The HIPAA Privacy Rule and Adolescents: Legal Questions and Clinical Challenges

Perspectives on Sexual and Reproductive Health

Volumn 36, Issue 2, 2004, Pages 80-86

  English, Abigail ^a   Ford, Carol A ^b  

^a Center for Adolescent Health and the Law   (United States)

^b UNIVERSITY OF NORTH CAROLINA SCHOOL OF MEDICINE   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ACCESS TO INFORMATION; ADOLESCENT; ADOLESCENT PREGNANCY; CLINICAL PRACTICE; CONFIDENTIALITY; FEMALE; HEALTH INSURANCE; HUMAN; HUMAN IMMUNODEFICIENCY VIRUS INFECTION; JUVENILE; LAW; MEDICAID; MEDICAL RECORD; NOTE; PRIVACY; PRIVATE PRACTICE; SCHOOL HEALTH SERVICE; SEXUAL BEHAVIOR; SEXUALLY TRANSMITTED DISEASE;

LEGAL APPROACH; PROFESSIONAL PATIENT RELATIONSHIP;

ADOLESCENT; ADOLESCENT BEHAVIOR; ADOLESCENT HEALTH SERVICES; CONFIDENTIALITY; FEMALE; HEALTH INSURANCE PORTABILITY AND ACCOUNTABILITY ACT; HUMANS; INFORMED CONSENT; MALE; PHYSICIAN-PATIENT RELATIONS; QUALITY ASSURANCE, HEALTH CARE; UNITED STATES;

EID: 2342592003     PISSN: 15386341     EISSN: None     Source Type: Journal    
DOI: 10.1363/3608004     Document Type: Note

References (56)

1. Federal Register, 2000, 65(250):82462-82829; and Federal Register, 2002, 67(157):53182-53273.
2. Federal Register, 2000, 65(250):82462-82829; and Federal Register, 2002, 67(157):53182-53273.
3. English A and Morreale M, A legal and policy framework for adolescent health care: past, present, and future, Houston Journal of Health Law & Policy, 2001, 1(1):63-108.
4. Ford CA and English A, Limiting confidentiality of adolescent health services: what are the risks? editorial, Journal of the American Medical Association, 2002, 288(6):752-753.
5. Klein J, McNulty L and Flatau C, Teenager's self-reported use of services and perceived access to confidential care, Archives of Pediatrics & Adolescent Medicine, 1998, 152(7):676-682;
6. Klein J et al., Access to medical care for adolescents: results from the 1997 Commonwealth Fund Survey of the Health of Adolescent Girls, Journal of Adolescent Health, 1999, 25(2):120-130;
7. Ford C, Bearman P and Moody J, Foregone health care among adolescents, Journal of the American Medical Association, 1999, 282(23):2227-2234;
8. Reddy DM, Fleming R and Swain C, Effect of mandatory parental notification on adolescent girls' use of sexual health care services, Journal of the American Medical Association, 2002, 288(6):710-714;
9. Sugerman S et al., Family planning clinic clients: their usual health care providers, insurance status, and implications for managed care, Journal of Adolescent Health, 2000, 27(1):25-33;
10. Marks A et al., Assessment of health needs and willingness to utilize health care resources of adolescents in a suburban population, Journal of Pediatrics, 1983, 102(3):456-460;
11. and Cheng T et al., Confidentiality in health care: a survey of knowledge, perceptions, and attitudes among high school students, Journal of the American Medical Association, 1993, 269(11):1404-1407.
12. Ford C, Bearman P and Moody J, 1999, op. cit. (see reference 4); and Klein J et al., 1999, op. cit. (see reference 4).
13. Ford C, Bearman P and Moody J, 1999, op. cit. (see reference 4); and Klein J et al., 1999, op. cit. (see reference 4).
14. Klein J et al., 1999, op. cit. (see reference 4).
15. Reddy DM, Fleming R and Swain C, 2002, op. cit. (see reference 4).
16. I b i d.
17. Lane M et al., Features of sexually transmitted disease services important to African-American adolescents, Archives of Pediatrics & Adolescent Medicine, 1999, 153(8):829-833; Sugerman S et al., 2000, op. cit. (see reference 4); and Cheng T et al., 1993, op. cit. (see reference 4).
18. Lane M et al., Features of sexually transmitted disease services important to African-American adolescents, Archives of Pediatrics & Adolescent Medicine, 1999, 153(8):829-833; Sugerman S et al., 2000, op. cit. (see reference 4); and Cheng T et al., 1993, op. cit. (see reference 4).
19. Lane M et al., Features of sexually transmitted disease services important to African-American adolescents, Archives of Pediatrics & Adolescent Medicine, 1999, 153(8):829-833; Sugerman S et al., 2000, op. cit. (see reference 4); and Cheng T et al., 1993, op. cit. (see reference 4).
20. Ford C et al., Influence of physician confidentiality assurances on adolescents' willingness to disclose information and seek future health care, Journal of the American Medical Association, 1997, 278((12):1029-1034.
21. Thrall J et al., Confidentiality and adolescents' use of providers for health information and for pelvic exams, Archives of Pediatrics & Adolescent Medicine, 2000, 154(9):885-892; Ford CA, Best DB and Miller WC, Confidentiality and adolescents' willingness to consent to STD testing, Archives of Pediatrics & Adolescent Medicine, 2001, 155(9):1072-1073; and Meehan TM, Hansen H and Klein WC, The impact of parental consent on the HIV testing of minors, American Journal of Public Health, 1997, 97(8):1338-1341.
22. Thrall J et al., Confidentiality and adolescents' use of providers for health information and for pelvic exams, Archives of Pediatrics & Adolescent Medicine, 2000, 154(9):885-892; Ford CA, Best DB and Miller WC, Confidentiality and adolescents' willingness to consent to STD testing, Archives of Pediatrics & Adolescent Medicine, 2001, 155(9):1072-1073; and Meehan TM, Hansen H and Klein WC, The impact of parental consent on the HIV testing of minors, American Journal of Public Health, 1997, 97(8):1338-1341.
23. Thrall J et al., Confidentiality and adolescents' use of providers for health information and for pelvic exams, Archives of Pediatrics & Adolescent Medicine, 2000, 154(9):885-892; Ford CA, Best DB and Miller WC, Confidentiality and adolescents' willingness to consent to STD testing, Archives of Pediatrics & Adolescent Medicine, 2001, 155(9):1072-1073; and Meehan TM, Hansen H and Klein WC, The impact of parental consent on the HIV testing of minors, American Journal of Public Health, 1997, 97(8):1338-1341.
24. Morreale MC and Dowling EC, Policy Compendium on Confidential Health Services for Adolescents, second ed., Chapel Hill, NC: Center for Adolescent Health & the Law, 2004 (forthcoming).
25. Health Privacy Project, Institute for Health Care Research and Policy, Georgetown University, Summary of HIPAA Privacy Rule, 2002, 〈 http://www.healthprivacy.org/usr_doc/RegSummary2002.pdf〉, accessed July 29, 2003.
26. I b i d.
27. 45 CFR § 164.502(g)(3); and Weiss C and Dalven J, Protecting Minors' Health Information Under the Federal Medical Privacy Regulations, American Civil Liberties Union Reproductive Freedom Project, 2003, 〈http://www.aclu.org/Files/OpenFile.cfm?id=12117〉, accessed July 29, 2003.
28. 45 CFR § 164.522(b).
29. 45 CFR § 164.522(a).
30. Weiss C and Dalven J, 2003, op. cit. (see reference 15).
31. 45 CFR § 164.502(g)(5).
32. 45 CFR § 164.524(a)(3)(iii); and Weiss C and Dalven J, 2003, op. cit. (see, reference 15).
33. 45 CFR 512(j)(l)(i); and Weiss C and Dalven J, 2003, op. cit. (see reference 15).
34. Ford CA and English A, 2002, op. cit. (see reference 3); and American Academy of Pediatrics et al., Letter to U.S. Department of Health and Human Services (DHHS), Office for Civil Rights, re: standards for privacy of individually identifiable health information, proposed rule, Elk Grove, IL, and Washington, DC, Apr. 26, 2002.
35. Ford CA and English A, 2002, op. cit. (see reference 3); and American Academy of Pediatrics et al., Letter to U.S. Department of Health and Human Services (DHHS), Office for Civil Rights, re: standards for privacy of individually identifiable health information, proposed rule, Elk Grove, IL, and Washington, DC, Apr. 26, 2002.
36. Federal Register, 2002, 67(157):53200.
37. English A and Kenney KE, State Minor Consent Laws: A Summary, second ed., Chapel Hill, NC: Center for Adolescent Health & the Law, 2003;
38. and Boonstra H and Nash E, Minors and the right to consent to health care, Guttmacher Report on Public Policy, 2000, 3(4):4-8.
39. English A and Kenney KE, 2003, op. cit. (see reference 24).
40. Health Privacy Project, 2002, op. cit. (see reference 13).
41. English A and Kenney KE, 2003, op. cit. (see reference 24).
42. 45 CFR § 160.103; Family Educational Rights and Privacy Act, 20 USC § 1232g; and 34 CFR, part 98.
43. Cheung O, Clements B and Pechman E, Protecting the Privacy of Student Records: Guidelines for Education Agencies, National Center for Education Statistics, 1997, 〈http://nces.ed.gov/pubs97/97527.pdf〉, accessed May 12, 2003.
44. Moore J and Wall A, Applicability of HIPAA to Health Information in Schools, University of North Carolina Institute of Government, 2003, 〈www.medicalprivacy.unc.edu/pdfs/schools.pdf〉, accessed Mar. 5, 2004.
45. 42 USC § 300 et seq. 42 CFR Part 59.
46. 42 USC § 300(a).
47. 42 USC §§ 1396a(a)(7), 1396d(a)(4)(C); and 42 CFR § 441.20.
48. Planned Parenthood Federation of New York v. Heckler, 712 F. 2d 650 (DC Cir. 1983); National Family Planning and Reproductive Health Association v. Department of Health and Human Services, F. 2d 650 (DC Cir. 1983); and T.H. v. Jones, 425 F. Supp. 873 (D. Utah), 425 U.S. 986 (1976), aff'd in part.
49. Planned Parenthood Federation of New York v. Heckler, 712 F. 2d 650 (DC Cir. 1983); National Family Planning and Reproductive Health Association v. Department of Health and Human Services, F. 2d 650 (DC Cir. 1983); and T.H. v. Jones, 425 F. Supp. 873 (D. Utah), 425 U.S. 986 (1976), aff'd in part.
50. Planned Parenthood Federation of New York v. Heckler, 712 F. 2d 650 (DC Cir. 1983); National Family Planning and Reproductive Health Association v. Department of Health and Human Services, F. 2d 650 (DC Cir. 1983); and T.H. v. Jones, 425 F. Supp. 873 (D. Utah), 425 U.S. 986 (1976), aff'd in part.
51. Weiss C and Dalven J, 2003, op. cit. (see reference 15).
52. Office for Civil Rights, DHHS, Summary of the HIPAA privacy rule, 2003, 〈http://www.hhs.gov/ocr/privacysummary.pdf〉, accessed Aug. 11, 2003.
53. Weiss C and Dalven J, 2003, op cit. (see reference 15).
54. I b i d.
55. Minn. H.F. No. 352, Feb. 10, 2003.
56. Va. H.R. 1499, Dec. 10, 2002.