The uncertainty of preadolescents' chronic health conditions and family distress

Journal of Family Nursing

Volumn 8, Issue 1, 2002, Pages 11-31

  Garwick, Ann W ^a,c   Patterson, Joän M ^a,d   Meschke, Laurie L ^a,d   Bennett, Forrest C ^b,e   Blum, Robert W ^b,f  

^a UNIVERSITY OF MINNESOTA   (United States)

^b UNIVERSITY OF WASHINGTON   (United States)

^c UNIVERSITY OF MINNESOTA   (United States)

^d UNIVERSITY OF MINNESOTA   (United States)

^e UNIVERSITY OF WASHINGTON SCHOOL OF MEDICINE   (United States)

^f UNIVERSITY OF MINNESOTA MEDICAL SCHOOL   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

EID: 22244480425     PISSN: 10748407     EISSN: 1552549X     Source Type: Journal    
DOI: 10.1177/107484070200800102     Document Type: Article

References (31)

1. Afifi, A. A., & Clark, V. (1990). Computer-aided multivariate analysis (2nd ed.). New York: Van Nostrand Reinhold.
2. Boss, P. (1999). Ambiguous loss: Learning to live with unresolved grief. Cambridge, MA: Harvard University Press.
3. Bray, J. H., & Maxwell, S. E. (1985). Multivariate analysis of variance. In Sage university paper series on quantitative research methods (Vol. 54). Beverly Hill, CA: Sage.
4. Carter, B., & McGoldrick, M. (1988). The changing family life cycle. New York: Gardner.
5. Cohen, M. H. (1995). The triggers of heightened parental uncertainty in chronic, life-threatening childhood illness. Qualitative Health Research, 5, 63-77.
6. Cohen, M. S. (1999). Families coping with childhood chronic illness: A research review. Families, Systems, & Health, 17, 149-164.
7. Dadds, M. R., Stein, R. E., & Silver, E. J. (1995). The role of maternal psychological adjustment in the measurement of children's functional status. Journal of Pediatric Psychology, 20(4), 527-544.
8. Dodgson, J., Garwick, A., Blozis, S., Patterson, J., Bennett, F., & Blum, R. (2000). Uncertainty in childhood chronic conditions and distress in families of young children. Journal of Family 'Nursing, 6(3), 252-266.
9. Garwick, A. M., & Titus, J. C. (1996). Documentation of the Characteristics of Chronic Conditions instrument: Description and psychometric properties. Minneapolis: University of Minnesota, Center for Children With Chronic Disease and Disabilities.
10. Hirose, T., & Ueda, R. (1990). Long-term follow-up of cerebral palsy children and coping behaviour of parents. Journal of Advanced Nursing, 15, 762-770.
11. Jessop, D. J., & Stein, R. E. (1985). Uncertainty and its relations to the psychological and social correlates of chronic illness in children. Social Science Medicine, 20, 993-999.
12. Kazak, A. (1986). Families with physically handicapped children: Social ecology and family systems. Family Process, 25, 265-281.
13. MacDonald, H. (1995). Chronic renal disease: The mother's experience. Pediatric Nursing, 22, 503-507.
14. Mischel, M. H. (1991). Reconceptualization of the uncertainty in illness theory. Image: The Journal of Nursing Scholarship, 22(4), 256-262.
15. Mischel, M. H. (1999). Uncertainty in chronic illness. Annual Review of Nursing Research, 27, 269-294.
16. Neter, J., Wasserman, W., & Kutner, M. H. (1990). Applied linear statistical models (3rd ed.). Burr Ridge, IL: Irwin.
17. Patterson, J. M., & Garwick, A. W. (1994). The impact of chronic illness on families: A family systems perspective. Annals of Behavioral Medicine, 16(2), 131-142.
18. Pedhazur, E.J. (1997). Multiple regression in behavioral research: Explanation and prediction. Orlando, FL: Harcourt Brace.
19. Perrin, E. C., Newacheck, P., Pless, I. B., Drotar, D., Gortmacher, S. L., Leventhal, J., et al. (1993). Issues involved in the definition and classification of chronic health conditions. Pediatrics, 92(4), 787-793.
20. Rolland, J. S. (1994). Families, illness, & disability: An integrative treatment model. New York: Basic Books.
21. Sawyer, M. G., Antoniou, G., Toogood, I., Rice, M., & Baghurst, P. A. (1993). A prospective study of the psychological adjustment of parents and families of children with cancer. Journal of Paediatric Child Health, 29, 352-356.
22. Simon, N. B., & Smith, D. (1992). Living with chronic pediatric liver disease: The parents' experience. Pediatric Nursing, 18(5), 453-489.
23. Stein, R. E., & Jessop, D. (1982). Anoncategorical approach to chronic childhood illness. Public Health Reports, 97, 354-362.
24. Stein, R. E., Bauman, L. J., Westbrook, L. E., Coupey S. M., & Ireys, H. T. (1993). Framework for identifying children who have chronic conditions: The case for a new definition. Pediatrics, 222(2), 342-347.
25. Stein, R. E., & Jessop, D. (1985). Tables documenting the psychometric properties of a measure of the impact of chronic illness on a family. Unpublished manuscript.
26. Stein, R. E., & Jessop, D. (1990). Functional Status II: A measure of child health status. Medical Care, 28(11), 1041-1055.
27. Stein, R. E., & Riessman, C. K. (1980). The development of an Impact-on-Family scale: Preliminary findings. Medical Care, 18, 465-472.
28. Sterken, D. J. (1996). Uncertainty and coping in fathers of children with cancer. Journal of Pediatric Oncology Nursing, 13(2), 81-88.
29. U.S. Department of Health and Human Services (1988). International Classification of Diseases, 9th revision, clinical modification, 4th edition. Washington DC: Author.
30. Van Dongen-Melman, J. W., Pruyn, J. F., De Groot, A., Koot, H. M., Hahlen, K., & Verhulst, F. C. (1995). Late psychosocial consequences for parents of children who survived cancer. Journal of Pediatric Psychology, 20(5), 567-586.
31. Yarcheski, A. (1988). Uncertainty in illness and the future. Western Journal of Nursing Research, 20(4), 401-413.