Struggling with the fragility of life: A relational-narrative approach to ethics in palliative nursing

Nursing Ethics

Volumn 12, Issue 4, 2005, Pages 337-348

  Abma, Tineke A ^a  

^a MAASTRICHT UNIVERSITY   (Netherlands)

Author keywords

Dialogue; Family involvement; Palliative nursing; Relational narratives

Indexed keywords

CANCER PALLIATIVE THERAPY; CANCER PATIENT; CASE REPORT; DEATH; DEPRESSION; DYING; EMOTION; FEMALE; HOSPITALIZATION; HUMAN; INTERPERSONAL COMMUNICATION; MALE; MEDICAL ETHICS; NURSE PATIENT RELATIONSHIP; NURSING; ONCOLOGY; PALLIATIVE THERAPY; REVIEW; SOCIAL ISOLATION;

BIOETHICS AND PROFESSIONAL ETHICS; DEATH AND EUTHANASIA; PROFESSIONAL PATIENT RELATIONSHIP;

ADAPTATION, PSYCHOLOGICAL; ATTITUDE OF HEALTH PERSONNEL; ATTITUDE TO DEATH; ATTITUDE TO HEALTH; COMMUNICATION; CONFLICT (PSYCHOLOGY); EMPATHY; ETHICS, NURSING; FEMALE; HUMANS; MALE; MIDDLE AGED; MORALE; NARRATION; NETHERLANDS; NURSE'S ROLE; NURSE-PATIENT RELATIONS; NURSING METHODOLOGY RESEARCH; NURSING STAFF, HOSPITAL; ONCOLOGIC NURSING; PALLIATIVE CARE; PHILOSOPHY, NURSING; PROFESSIONAL-FAMILY RELATIONS; QUESTIONNAIRES; SEMANTICS; SOCIAL SUPPORT; SPOUSES; THYROID NEOPLASMS; WORKLOAD;

EID: 21644466831     PISSN: 09697330     EISSN: None     Source Type: Journal    
DOI: 10.1191/0969733005ne799oa     Document Type: Review

References (39)

1. Doyle D, Hanks GWC, McDonald N. Oxford textbook of palliative medicine. Oxford: Oxford University Press, 1993.
2. Higginson I, Wade A, McCarthy M. Palliative care: views of patients and their families. BMJ 1990; 301: 277-80.
3. Sykes NP, Pearson SE, Chell S. Quality of care of the terminally ill: the carer's perspective. Palliat Med 1992; 6: 227-36.
4. McMillan SC. Quality of life of primary caregivers of hospice patients with cancer. Cancer Pract 1996; 4: 191-98.
5. Woods S, Beaver K, Luker K. Users' views of palliative care services: ethical implications. Nurs Ethics 2000; 7: 314-26.
6. Leis AM, Kristjanson L, Koop PM, Laizner A. Family health and the palliative care trajectory: a cancer research agenda. Cancer Prev Control 1997; 1: 352-60.
7. Rose K. How informal carers cope with terminal cancer. Nurs Stand 1997; 11(30): 39-42.
8. Proot IM, Huijer Abu-Saad H, Crebolder HFJM, Goldsteen M, Luker KA, Widdershoven GAM. Vulnerability of family caregivers in terminal palliative care at home: balancing between burden and capacity. Scad J Caring Sci 2003; 17: 113-21.
9. Lindemann Nelson H. Stories and their limits. Narrative approaches to bioethics. New York: Routledge, 1997.
10. Walker MU. Moral understandings. New York: Routledge, 1998.
11. Widdershoven GAM. Ethiek in de kliniek. [Ethics in the clinic.] Amsterdam: Boom, 2000 (in Dutch).
12. Charon R, Montello M. Stories matter. The role of narrative in medical ethics. London: Routledge, 2002.
13. Nussbaum M. The fragility of goodness. Cambridge: Cambridge University Press, 1986.
14. Nussbaum MC. Love's knowledge. Oxford: Oxford University Press, 1990.
15. Widdershoven GA, Smits MJ. Ethics and narratives. In: Josselson R ed. The narrative study of lives: vol. 4. Newbury Park, CA: SAGE, 1996; 275-87.
16. Kleinman S. The illness narratives: suffering, healing and the human condition. New York: Basic Books, 1988.
17. Ezzy D. Illness narratives: time, hope and HIV. Soc Sci Med 2000; 50: 605-17.
18. Hunter KM. Doctors' stories. The narrative structure of medical knowledge. Princeton, NJ: Princeton University Press, 1991.
19. Abma TA. Storytelling as inquiry in a mental hospital. Qualit Health Res 1998; 8: 821-38.
20. Baker C, Diekelmann N. Connecting conversations of caring: recalling the narrative to clinical practice. Nurs Outlook 1994; 42(2): 65-70.
21. Vachon MLS. The nurse's role: the world of palliative care nursing. In: Ferrell BR, Coyle N eds. Textbook of palliative nursing. Oxford: Oxford University Press, 2001: 647-62.
22. Bowers R, More KN. Nursing narratives and dialogical consciousness. ANS Adv Nurs Sci 1997; 19(3): 70-77.
23. Widdershoven GAM. Care, cure and interpersonal understanding. J Adv Nurs 1999; 29: 1163-69.
24. Benner P. The roles of embodiment, emotion and life world for rationality and agency in nursing practice. Nurs Philos 2000; 1: 5-19.
25. Lindsay R, Graham H. Relational narratives: solving an ethical dilemma concerning an individual's insurance policy. Nurs Ethics 2000; 7: 148-57.
26. Gadow S. Relational narrative: the postmodern turn in nursing ethics. Sch Inq Nurs Pract 1999; 13: 3-6.
27. Abma TA. Evaluating palliative care: facilitating reflexive dialogues about an ambiguous concept. Med Healthc Philos 2001; 4: 261-76.
28. Stake RE. Case studies. In: Denzin NK, Lincoln YS eds. The handbook for qualitative research. Thousand Oaks, CA: SAGE, 1994: 236-47.
29. Reissman CK. Narrative analysis. Qualitative research methods series, 30. Newbury Park, CA: SAGE, 1993.
30. Larson CL. Re-presenting the subject: problems in personal narrative inquiry. Qualit Stud Educ 1997; 10: 455-70.
31. Lieblich AR, Tuval-Mashiach R, Zilber T. Narrative research: reading, analysis and interpretation. Thousand Oaks, CA: SAGE, 1998.
32. Meadows LM, Morse JM. Constructing evidence within a qualitative project. In: Morse JM, Swanson JM, Kuzel AJ eds. The nature of qualitative evidence. Thousand Oaks, CA: SAGE, 2001: 187-201.
33. Andershed B, Ternestedt BM. Involvement of relatives in care of the dying in different care cultures: development of a theoretical understanding. Nurs Sci Q 1999; 12(1): 45-51.
34. Frank AW. The wounded storyteller: body, illness and ethics. Chicago, IL: University of Chicago Press, 1995.
35. Andershed B, Ternestedt BM. Involvement of relatives in the care of the dying in different care cultures: involvement in the dark or in the light? Cancer Nurs 1997; 21: 106-16.
36. Andershed B, Ternestedt BM. Development of a theoretical framework describing relatives' involvement in palliative care. J Adv Nurs 2001; 34: 554-62.
37. Clark D, Seymour J eds. Reflections on palliative care. Buckingham: Open University Press, 1999.
38. Thé AM. Palliatieve geneeskunde en communicatie. [Palliative medicine and communication.] Houten/Zaventem: BohmStafleu/Van Lochem, 1999 (in Dutch).
39. Milligan S. Perceptions of spiritual care among nurses undertaking postregistration education. Int J Palliat Nurs 2004; 10: 162-71.