Development of the US PSORIQoL: A psoriasis-specific measure of quality of life

International Journal of Dermatology

Volumn 44, Issue 6, 2005, Pages 462-469

  McKenna, Stephen P ^a,b,c   Lebwohl, Mark ^a,b,c   Kahler, Kristijan N ^a,b,c  

^a GALEN RESEARCH   (United Kingdom)

^b MOUNT SINAI SCHOOL OF MEDICINE   (United States)

^c NOVARTIS PHARMA AG   (Switzerland)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; ARTICLE; DISABILITY; FEMALE; HUMAN; MAJOR CLINICAL STUDY; MALE; PSORIASIS; PSYCHOMETRY; QUALITY OF LIFE; QUESTIONNAIRE; RELIABILITY; REPRODUCIBILITY; UNITED STATES;

ADULT; AGED; AGED, 80 AND OVER; FEMALE; HUMANS; INTERVIEWS; MALE; MIDDLE AGED; PSORIASIS; PSYCHOMETRICS; QUALITY OF LIFE; QUESTIONNAIRES; REPRODUCIBILITY OF RESULTS;

EID: 20944448825     PISSN: 00119059     EISSN: None     Source Type: Journal    
DOI: 10.1111/j.1365-4632.2005.01941.x     Document Type: Article

References (36)

1. Sander HM, Morris LF, Phillips CM, et al. The annual cost of psoriasis. J Am Acad Dermatol 1993; 28: 422-425.
2. Gawkrodger DJ on behalf of the Therapy Guidelines and Audit Subcommittee of the British Association of Dermatologists. Current management of psoriasis. Br J Dermatol 1997; 8: 27-55.
3. Ramsey B, O'Reagan M. A survey of the social and psychological effects of psoriasis. Br J Dermatol 1988; 118: 195-201.
4. Krueger G, Koo J, Lebwohl M, et al. The impact of psoriasis on quality of life: Results of a 1998 National Psoriasis Foundation Patient-Membership survey. Arch Dermatol 2000; 137: 282-284.
5. Root S, Kent G, Al-Abadie MSK. The relationship between disease severity, disability and psychological distress in patients undergoing PUVA treatment for psoriasis. Dermatology 1994; 189: 234-237.
6. Finlay AY, Coles EC. The effect of severe psoriasis on the quality of life of 369 patients. Br J Dermatol 1995; 132: 236-244.
7. Wahl AK, Gjengedal E, Hanestad BR. The bodily suffering of living with severe psoriasis: In-depth interviews with 22 hospitalized patients with psoriasis. Qual Health Res 2002; 12: 250-261.
8. Fried RG, Friedman S, Paradis C. Trivial or terrible? The psychosocial impact of psoriasis. Int J Dermatol 1995; 34: 101-105.
9. Hughes JE, Barraclough M, Hamblin LG, et al. Psychiatric symptoms in dermatology patients. Br J Psychiatry 1983; 143: 51-54.
10. Jowett S, Ryan T. Skin disease and handicap: An analysis of the impact of skin conditions. Soc Sci Med 1985; 20: 425-429.
11. Fortune DG, Main CJ, O'Sullivan TM, et al. Quality of life in patients with psoriasis: the contribution of clinical variables and psoriasis-specific stress. Br J Dermatol 1997; 137: 755-760.
12. Rapp SR, Feldman SR, Exurn ML, et al. Psoriasis causes as much disability as other major medical diseases. J Am Acad Dermatol 1999; 41: 401-407.
13. Nichol MB, Margolis JE, Lippa E, et al. The application of multiple quality of life instruments in individuals with mild-to-moderate psoriasis. Pharmacoeconomics 1996; 10: 644-653.
14. Whalley D. Determining cross-cultural validity of quality of life measures. Qual Life Res 1997; 6: 742.
15. Finlay AY. Quality of life assessments in dermatology. Semin Cutaneous Med Surg 1998; 17: 291-296.
16. Gupta MA, Gupta AK. The Psoriasis Life Stress Inventory: a preliminary index of psoriasis-related stress. Acta Derm Venereol 1995; 75: 240-143.
17. Finlay AY, Kelly SE. Psoriasis - an index of disability. Clin Exp Dermatol 1987; 12: 8-11.
18. Finlay AY, Khan GK. Dermatology Life Quality Index (DLQI) - a simple practical measure for routine clinical use. Clin Exp Dermatol 1994; 19: 210-216.
19. Chren MM, Lasek RJ, Quinn LM, et al. Skindex, a quality-of-life measure for patients with skin disease: reliability, validity, and responsiveness. J Invest Dermatol 1996; 107: 707-713.
20. Morgan M, McCreedy R, Simpson J, Hay RJ. Dermatology quality of life scales - a measure of the impact of skin diseases. Br J Dermatol 1997; 136: 202-206.
21. McKenna SP, Whalley D, Doward LC. Which outcomes are important in schizophrenia trials? Int J Meth Psychiatric Res 2000; 9: S58-S67.
22. Hunt SM, McKenna SP, The QLDS. A scale for the measurement of quality of life in depression. Health Policy 1992; 22: 307-319.
23. Gill TM, Feinstein AR. A critical appraisal of the quality of quality of life measurements. JAMA 1994; 272: 619-625.
24. Holmes SJ, McKenna SP, Doward LC, Shalet SM. Development of a questionnaire to assess the quality of life of adults with growth hormone deficiency. Endocrinol Metabolism 1995; 2: 63-69.
25. Wagner TH, Patrick DL, McKenna SP, Froese MA. Cross-cultural development of a quality of life measure for men with erection difficulties. Qual Life Res 1996; 5: 443-449.
26. de Jong Z, van der Heijde D, McKenna SP, et al. The reliability and construct validity of the RAQoL: a rheumatoid arthritis-specific quality of life instrument. Br J Rheumatol 1997; 36: 878-883.
27. McKenna SP, Doward LC, Mackenzie Davey K. The development and psychometric properties of the MSQOL; a migraine-specific quality-of-life instrument. Clin Drug Invest 1998; 15: 413-423.
28. Doward LC, McKenna SP, Kohlmann T, et al. The international development of the RGHQoL: a quality of life measure for recurrent genital herpes. Qual Life Res 1998; 7: 143-153.
29. Doward LC, Spoorenberg A, Cook SA, et al. The Development of the ASQoL: a quality of life instrument specific to Ankylosing Spondylitis. Ann Rheum Dis 2003; 62: 20-26.
30. McKenna SP, Cook SA, Whalley D, et al. The development of the PSORIQoL: a quality of life measure specific to psoriasis. Qual Life Res 2000; 9: 322.
31. Weiner EA, Stewart BJ. Assessing Individuals. Boston: Little Brown, 1984.
32. Nunally JC Jr. Psychometric Theory, 2nd edn. New York: McGraw-Hill, 1978.
33. Brenner MH, Curbow B, Legro MW. The proximal-distal continuum of multiple health outcome measures: The case of cataract surgery. Medical Care 1995; 33: Supple AS236-244.
34. Koo J. Population-based epidemiologic study of psoriasis with emphasis on quality of life assessment. Dermatol Clin 1996; 14: 485-496.
35. Berzon R, Hays RD, Shumaker SA. International use, application and performance of health-related quality of life instruments. Qual Life Res 1993; 2: 367-368.
36. Hunt SM. The problem of quality of life. Qual Life Res 1997; 6: 205-212.