The Sibling Center: A pilot program for siblings of children and adolescents with a serious medical condition

Journal of Pediatrics

Volumn 146, Issue 6, 2005, Pages 831-835

  Fanos, Joanna H ^a,b   Fahrner, Kathleen ^a   Jelveh, Mojgan ^a   King, Richard ^a   Tejeda, David ^a  

^a CALIFORNIA PACIFIC MEDICAL CENTER   (United States)

^b DARTMOUTH MEDICAL SCHOOL   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ANXIETY; CHRONIC DISEASE; CLINICAL RESEARCH; CYSTIC FIBROSIS; EMOTIONAL STABILITY; EMOTIONALITY; FAMILY COUNSELING; FEAR; HEALTH CENTER; HEALTH PROGRAM; HUMAN; INTERPERSONAL COMMUNICATION; LONG TERM CARE; NOTE; PRIORITY JOURNAL; RISK ASSESSMENT; SIBLING; SOCIAL PSYCHOLOGY;

ADAPTATION, PSYCHOLOGICAL; ADOLESCENT; CHILD; CHILD, PRESCHOOL; CHRONIC DISEASE; FEMALE; HUMANS; JEALOUSY; MALE; PARENT-CHILD RELATIONS; PILOT PROJECTS; PROGRAM EVALUATION; PSYCHOTHERAPY; SIBLING RELATIONS; SIBLINGS;

EID: 20544431771     PISSN: 00223476     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.jpeds.2004.12.029     Document Type: Note

References (44)

1. J.J. Spinetta, M. Jankovic, T. Eden, D. Green, A.G. Martins, and C. Wandzura Guidelines for assistance to siblings of children with cancer: Report of the SIOP Working Committee on Psychosocial Issues in Pediatric Oncology Med Pediatr Oncol 33 1999 395 398
2. D.E. Balk The self-concepts of bereaved adolescents: Sibling death and its aftermath J Adolesc Res 5 1990 112 132
3. M. Ferrari The diabetic child and well sibling: Risks to the well child's self-concept Child-Health Care 15 1987 141 148
4. A. Koch "If only it could be me": The families of pediatric cancer patients Fam Relat 34 1985 63 70
5. A. Koch-Hattem Siblings' experience of pediatric cancer: Interviews with children Health Soc Work 11 1986 107 117
6. I.M. Martinson, and R.G. Campos Adolescent bereavement: Long-term responses to a sibling's death from cancer J Adoles Res 6 1991 54 69
7. J.J. Spinetta The sibling of the child with cancer J.J. Spinetta P. Deasy-Spinetta Living with Childhood Cancer 1981 Mosby St Louis 133 142
8. S.G. Tritt, and L.M. Esses Psychosocial adaptation of siblings of children with chronic medical illnesses Am J Orthopsychiatry 58 1988 211 220
9. J.C. Vance, L.E. Fazan, B. Satterwhite, and I.B. Pless Effects of nephrotic syndrome on the family: A controlled study Pediatrics 65 1980 948 955
10. Fanos JH, Nickerson BG. Long-term effects of sibling death during adolescence. In: Balk D, ed. Death and adolescent bereavement [Special Issue]. J Adolesc Res 1991;6:70-82.
11. J.H. Fanos Sibling Loss 1996 Lawrence Erlbaum Mahwah (NJ)
12. N. Breslau, and K. Prabucki Siblings of disabled children: Effects of chronic stress in the family Arch Gen Psychiatry 44 1987 1040 1046
13. E.B. Davies The family environment in bereaved families and its relationship to surviving sibling behavior Child Health Care 17 1988 22 31
14. J.H. Fanos, and L. Wiener Tomorrow's survivors: Siblings of human immunodeficiency virus-infected children J Dev Behav Pediatr 15 Suppl 3 1994 S43 S48
15. J.H. Fanos, J. Davis, and J.M. Puck Sib understanding of genetics and attitudes toward carrier testing for X-Linked severe combined immunodeficiency Am J Med Genet 98 2001 46 56
16. D. Cadman, M. Boyle, and D.R. Offord The Ontario Child Health Study: Social adjustment and mental health of siblings of children with chronic health problems J Dev Behav Pediatr 9 1988 117 121
17. L. Cowen, J. Mok, M. Corey, H. MacMillan, R. Simmons, and H. Levison Psychological adjustment of the family with a member who has cystic fibrosis Pediatrics 77 1986 743 753
18. J.H. Fanos, and J.P. Johnson Perception of carrier status by cystic fibrosis siblings Am J Hum Genet 57 1995 431 438
19. J.H. Fanos, and J.P. Johnson Barriers to carrier testing for adult cystic fibrosis sibs: The importance of not knowing Am J Med Genet 59 1995 85 91
20. J.H. Fanos The missing link in linkage analysis: The well sibling revisited Genet Test 3 1999 273 278
21. J.H. Fanos "My Crooked Vision": The well sib views ataxia-telangiectasia Am J Med Genet 87 1999 420 425
22. J.H. Fanos, and J.M. Puck Family pictures: The impact of growing up with a brother with X-linked severe combined immunodeficiency Am J Med Genet 98 2001 57 63
23. M.S. Hardy, F.D. Armstrong, D.K. Routh, J. Albrecht, and J. Davis Coping and communication among parents and children with human immunodeficiency virus and cancer J Dev Behav Pediatr 15 Suppl 3 1994 S49 S53
24. J.J. Spinetta, and L.J. Maloney The child with cancer: Patterns of communication and denial J Consult Clin Psychol 46 1978 1540 1541
25. R.F. Kramer Living with childhood cancer: Impact on the healthy siblings Oncol Nurs Forum 11 1984 44 51
26. L.K. Birenbaum, M.A. Robinson, D.S. Phillips, B.S. Stewart, and D.E. McCown The response of children to the dying and death of a sibling Omega 20 1989 213 228
27. B.A. Van der Kolk Psychological trauma 1987 American Psychiatric Press Washington, DC
28. S. Eth, and R.S. Pynoos Interaction of trauma and grief in childhood S. Eth R. Pynoos Post-traumatic stress disorder in children. (Progress in Psychiatry series, Spiegel, series ed.) 1985 American Psychiatric Press Washington 169 186
29. F. Davis Passage through Crisis: Polio Victims and their Families 1963 Bobbs-Merrill Indianapolis (IN)
30. H. Rosen Unspoken Grief: Coping with Childhood Sibling Loss 1986 Lexington Books Lexington (MA)
31. M.J. Horowitz Stress Response Syndromes 1986 Jason Aronson North Vale (NJ)
32. A. Pound Attachment and maternal depression C.M. Parkes J. Stevenson-Hinde The Place of Attachment in Human Behavior 1982 Basic Books New York 118 130
33. K. Siegel, and E. Gorey Childhood bereavement due to parental death from acquired immunodeficiency syndrome J Dev Behav Pediatr 15 Suppl 3 1994 S66 S70
34. C.B. Wortman, and R.C. Silver The myths of coping with loss J Consult Clin Psychol 57 1989 349 357
35. J.H. Fanos, and M.A. Mackintosh Never again joy without sorrow: The effect on parents of a child with ataxia-telangiectasia Am J Med Genet 87 1999 413 419
36. P.W. Newacheck, and W.R. Taylor Childhood chronic illness: prevalence, severity, and impact Am J Public Health 82 1992 364 371
37. S.L. Gortmaker, D.K. Walker, M. Weitzman, and A.M. Sobol Chronic conditions, socioeconomic risks, and behavioral problems in children and adolescents Pediatrics 85 1990 267 276
38. D.J. Meyer, and P.F. Vadasy. Sibshops: Workshops for Siblings of Children with Special Needs 1994 Paul H. Brookes Baltimore
39. Brandenberg F. I Wish I was Sick, Too! New York (NY): Penguin Putnam Books for Young Readers; 1978.
40. Peterkin AD. What About Me? When Brothers and Sisters Get Sick. Washington DC: American Psychological Association; 1992.
41. R. Weiss Learning from Strangers 1994 Free Press New York
42. O. Renik The patient's experience of therapeutic benefit Psychoanalytic Q 70 2001 231 241
43. P.D. Williams, A.R. Williams, J.C. Graff, S. Hanson, A. Stanton, C. Hafeman, and A. Liebergen A community-based intervention for siblings and parents of children with chronic illness or disability: The ISEE study J Pediatr 143 2003 386 393
44. D.J. Lobato, and B.T. Kao Integrated sibling-parent group intervention to improve sibling knowledge and adjustment to chronic illness and disability J Pediatr Psychol 27 2002 711 716