Reconsidering the social location of the medical model: An examination of disability in parenting literature

Journal of Medical Humanities

Volumn 26, Issue 2-3, 2005, Pages 141-158

  Ong Dean, Colin ^a  

^a UNIVERSITY OF CALIFORNIA   (United States)

Author keywords

Advice books; Autism; Disability studies; Learning disabilities; Medical model of disability; Parenting; Social stratification

Indexed keywords

ARTICLE; CAUCASIAN; CHILD PARENT RELATION; DENIAL; DISEASE MODEL; HUMAN; HUMANITIES; INCOME; LEARNING DISORDER; MEDICAL ILLUSTRATION; PARENTHOOD; SCIENTIFIC LITERATURE; SOCIAL BEHAVIOR; SOCIAL CARE; SOCIAL DISABILITY; SOCIAL STATUS; STRATIFICATION;

ADULT; CHILD; DELIVERY OF HEALTH CARE; DISABLED CHILDREN; HUMANS; INCOME; MODELS, THEORETICAL; NEEDS ASSESSMENT; PARENT-CHILD RELATIONS; PARENTING; SOCIAL CLASS;

EID: 19444361945     PISSN: 10413545     EISSN: None     Source Type: Journal    
DOI: 10.1007/s10912-005-2915-1     Document Type: Article

References (38)

1. See Simi Linton, Claiming Disability: Knowledge and Identity (New York: New York UP, 1998);
2. Paul K. Longmore, "Medical Decision Making and People with Disabilities: A Clash of Cultures" Journal of Law, Medicine&Ethics 23 (1995): 82-87;
3. Mike Oliver, "A Sociology of Disability or a Disablist Sociology?" in Disability and Society: Emerging Issues and Insights, ed. Len Barton (London: Longman, 1996) 18-42.
4. Saying that behavioral manifestations are central is not equivalent to saying that they are "behavioral disabilities," a category that would usually imply a much narrower range of conditions and would exclude conditions such as learning disabilities.
5. This criterion would exclude a condition like mental retardation. A recent report of the Federal Office of Special Education Programs, for instance, showed an 8.4% growth from 1989-1990 to 1998-1999 in the number of mentally retarded students accommodated under the Individuals with Disabilities Education Act, a growth significantly lower than the 14.1% increase in total enrollment and far less than the 36.6% increase in the number of students with specific learning disabilities (Office of Special Education Programs). (Comparable figures on autism were not available.) Office of Special Education Programs, U.S. Department of Education, Twenty-Second Annual Report to Congress on the Implementation of the Individuals with Disabilities Education Act, 2000.
6. Rima D. Apple, "Constructing Mothers: Scientific Motherhood in the Nineteenth and Twentieth Centuries," in Mothers and Motherhood: Readings in American History, eds. Rima D. Apple and Janet Golden (Columbus: Ohio State University Press, 1997), 90-110.
7. Julia Grant, Raising Baby by the Book: The Education of American Mothers (New Haven: Yale University Press, 1998).
8. Julia Wrigley, "Do Young Children Need Intellectual Stimulation? Experts' Advice to Parents, 1900-1985," History of Education Quarterly, 29, no. 1 (1989): 41-75. Subsequent references are cited parenthetically in the text.
9. Sharon Hays, The Cultural Contradictions of Motherhood (New Haven: Yale University Press, 1996).
10. Annette Lareau, Home Advantage: Social Class and Parental Intervention in Elementary Education, 2nd ed. (New York: Rowman&Littlefield Publishers, Inc., 2000), 170.
11. Bert Kruger Smith, Your Nonlearning Child (Boston: Beacon Press, 1968), 84.
12. Richard S. Lewis, Alfred A. Strauss, and Laura E. Lehtinen, The Other Child: The Brain-Injured Child, a Book for Parents and Laymen (New York: Grune&Stratton, 1960), 81. Subsequent references are cited parenthetically in the text.
13. See Lewis, Strauss, Lehtinen, Alfred A. Strauss, and Laura E. Lehtinen, Psychopathology and Education of the Brain-Injured Child (New York: Grune&Stratton, 1947).
14. Clark Johnson, The Diagnosis of Learning Disabilities (Boulder, Colorado: Pruett Publishing Company, 1981), 213-219.
15. Milton Brutten, Sylvia O. Richardson, and Charles Mangel, Something's Wrong with My Child: A Parents' Book about Children with Learning Disabilities (New York: Harcourt Brace Jovanovich, Inc., 1973), 76. Subsequent references are cited parenthetically in the text.
16. See also Sylvia Farnham-Diggory, Learning Disabilities, The Developing Child Series, eds. Jerome Bruner, Michael Cole, and Barbara Lloyd (Cambridge, MA: Harvard University Press, 1978), and Smith.
17. See, for example, James G. Carrier, Learning Disability: Social Class and the Construction of Inequality in American Education, Contributions to the Study of Education No. 18 (New York: Greenwood Press, 1986);
18. Gerald Coles, The Learning Mystique: A Critical Look at "Learning Disabilities" (New York: Pantheon Books, 1987); and
19. Hugh Mehan, Alma Hertweck, and J. Lee Meihls, Handicapping the Handicapped: Decision Making in Students' Educational Careers (Stanford, CA: Stanford University Press, 1986).
20. Mitzi Waltz, Obsessive-Compulsive Disorder: Help for Children and Adolescents (Sebastopol, CA: O'Reilly&Associates, 2000), xiii. Subsequent references are cited parenthetically in the text.
21. Harold S. Koplewicz, It's Nobody's Fault: New Hope and Help for Difficult Children (New York: Random House, Inc., 1996), 4. Subsequent references are cited parenthetically in the text.
22. Betty B. Osman, Learning Disabilities and ADHD: A Family Guide to Living and Learning Together (New York: John Wiley and Sons, 1997), 32. Subsequent references are cited parenthetically in the text.
23. Larry B. Silver, M. D., The Misunderstood Child (New York: Three Rivers Press, 1998), 16. Subsequent references are cited parenthetically in the text.
24. Kathleen Nosek, The Dyslexic Scholar: Helping Your Child Succeed in the School System (Dallas, TX: Taylor Publishing, 1995), 107.
25. Leo Kanner, "Early Infantile Autis," Journal of Pediatrics, 25 (1944): 211-217.
26. Bruno Bettelheim, The Empty Fortress: Infantile Autism and the Birth of the Self (New York: Free Press, 1967), 71.
27. See, for example, Richard Pollak, The Creation of Dr. B: A Biography of Bruno Bettelheim (New York: Simon&Schuster, 1997). Subsequent references are cited parenthetically in the text.
28. Clara Claiborne Park, The Siege: The First Eight Years of an Autistic Child (Boston: Little, Brown, 1967 and 1982 with an epilogue, fifteen years later, by Clara Claiborne Park), 7. Subsequent references are cited parenthetically in the text.
29. Bernard Rimland, Infantile Autism: The Syndrome and Its Implications for a Neural Theory of Behavior, The Century Psychology Series, eds. Richard M. Elliot, Gardner Lindzey, and Kenneth MacCorquodale (New York: Meredith Publishing Company, 1964). Subsequent references are cited parenthetically in the text.
30. Lorna Wing, Autistic Children: A Guide for Parents (New York: Brunner/ Mazel, 1972), 34.
31. Christopher Green and Kit Chee, Understanding ADHD (New York: Fawcett Columbine, 1998), 88.
32. Shirley Cohen, Targeting Autism (Berkeley: University of California Press, 1998), 136.
33. Edward Hallowell, When You Worry About the Child You Love (New York: Simon&Schuster, 1996), 21.
34. Barry E. McNamara and Francine J.McNamara, Keys to Parenting a Child with a Learning Disability (Hauppauge, NY: Barron's 1995), 50.
35. Johanna Fisher, A Parents' Guide to Learning Disabilities (New York: Charles Scribner's Sons, 1978), xi.
36. Gunther Kress, "Ideological Structures in Discourse," Handbook of Discourse Analysis, ed. T. A. van Dijk (London: Academic Press Limited, 1985), Vol. 4, 27.
37. Charles Hart, Without Reason: A Family Copes with Two Generations of Autism (New York: Harper&Row, 1989).
38. Barry Kaufman, Son-Rise (New York: Harper&Row, 1976), 15. Subsequent references are cited parenthetically in the text.