Parents want to know if their child is at high risk of getting diabetes

Annals of the New York Academy of Sciences

Volumn 1005, Issue , 2003, Pages 395-399

  Gustafsson Stolt, U ^a   Liss, P E ^a   Ludvigsson, J ^a  

^a LINKÖPING UNIVERSITY   (Sweden)

Author keywords

ABIS; Children; Diabetes; Ethics; Information; Informed consent; Prediction; Screening

Indexed keywords

CONFERENCE PAPER; CONTROLLED STUDY; GENETIC SUSCEPTIBILITY; HUMAN; INFORMED CONSENT; INSULIN DEPENDENT DIABETES MELLITUS; MAJOR CLINICAL STUDY; MEDICAL ETHICS; MEDICAL INFORMATION; NEWBORN SCREENING; PATIENT RIGHT; PREDICTION; QUESTIONNAIRE; RANDOMIZATION; RISK ASSESSMENT; RISK FACTOR; SCREENING TEST;

EID: 1942538583     PISSN: 00778923     EISSN: None     Source Type: Book Series    
DOI: 10.1196/annals.1288.066     Document Type: Conference Paper

References (24)

1. KING, H., R. AUBERT & W. HERMAN. 1998. Global burden of diabetes, 1995-2025: prevalence, numerical estimates, and projections. Diabetes Care 21: 1414-1431.
2. NARAYAN, K., E. GREGG, A. FAGOT-CAMPAGNA et al. 2000. Diabetes - a common, growing, serious, costly, and potentially preventable public health problem. Diabetes Res. Clin. Pract. 50(suppl. 2): S77-S84.
3. SILINK, M. 2000. Childhood diabetes: a global perspective. Horm. Res. 57(suppl. 1): 1-5.
4. ZIMMET, P., M. ALBERT & J. SHAW. 2001. Global and societal implications of the diabetes epidemic. Nature 414: 782-787.
5. KARVONEN, M., M. VIIK-KAJANDER, E. MOLTCHANOVA et al. 2000. Incidence of childhood type 1 diabetes worldwide. Diabetes Care 23: 1516-1526.
6. ATKINSON, M. & G. EISENBARTH. 2001. Type 1 diabetes: new perspectives on disease pathogenesis and treatment. Lancet 358: 221-229.
7. GRAVES, P. & G. EISENBARTH. 1999. Pathogenesis, prediction, and trials for the prevention of insulin-dependent (type 1) diabetes mellitus. Adv. Drug Delivery Rev. 35: 143-156.
8. KNIP, M. 1998. Prediction and prevention of type 1 diabetes. Acta Paediatr. Suppl. 425: 54-62.
9. BURGESS, M. 2003. Beyond consent: ethical and social issues in genetic testing. In Contemporary Issues in Bioethics. Sixth edition. Wadsworth/Thomson Learning.
10. BURKE, W., L. PINSKY & N. PRESS. 2001. Categorizing genetic tests to identify their ethical, legal, and social implications. Am. J. Med. Genet. 106(3): 233-240.
11. ROTH, R. 2001. Psychological and ethical aspects of prevention trials. J. Pediatr. Endocrinol. Metab. 14(suppl. 1): 669-674.
12. CLARKE, A. 1999. The genetic testing of children. In The Ethics of Genetic Screening. Kluwer. Dordrecht.
13. LUDVIGSSON, J., M. LUDVIGSSON & A. SEPA. 2001. Screening for pre-diabetes in the general child population may be reassuring. Pediatr. Diabetes 2: 170-174.
14. GUSTAFSSON STOLT, U., P-E. LISS, J. LUDVIGSSON & T. SVENSSON. 2002. Attitudes to bioethical issues - a case study of a screening project. Soc. Sci. Med. 54(9): 1333-1344.
15. GUSTAFSSON STOLT, U., J. LUDVIGSSON, P-E. LISS & T. SVENSSON. 2003. Bioethical theory and clinical practice: results from a research ethics case study of ABIS - a Swedish research screening for pre-diabetes. Med. Health Care Philos. 6: 45-50.
16. LUDVIGSSON, J. 1993. Ethical aspects on clinical studies of prediabetes. Pediatr. Adolesc. Endocrinol. 23: 175-179.
17. NORDENFELT, L. 1996. Prevention and ethics in medicine: the case of diabetes prevention. J. Pediatr. Endocrinol. Metab. 9: 381-386.
18. MICHIE, S. & T.M. MARTEAU. 1996. Predictive genetic testing in children: the need for psychological research. Br. J. Health Psychol. 1: 3-14.
19. BENNETT JOHNSON, S. 2001. Screening programs to identify children at risk for diabetes mellitus: psychological impact on children and parents. J. Pediatr. Endocrinol. Metab. 14: 653-659.
20. ATKINSON, M. & G. EISENBARTH. 2001. Type 1 diabetes: new perspectives on disease pathogenesis and treatment. Lancet 358: 221-229.
21. AVERY, L., D. BORSEY, S. GREENE et al. 1998. British Diabetic Association guidelines on genetic and immune screening for type 1 diabetes mellitus. Diabetes Med. 15(8): 643.
22. FLANDERS, G., P. GRAVES & M. REWERS. 1999. Prevention of type 1 diabetes from laboratory to public health. Autoimmunity 29(3): 235-246.
23. BIESECKER, B. & T. MARTEAU. 1999. The future of genetic counselling: an international perspective. Nat. Genet. 22: 133-137.
24. AMERICAN SOCIETY OF HUMAN GENETICS. 1995. Points to consider: ethical, legal, and psychological implications of genetic testing in children and adolescents. Am. J. Hum. Genet. 57: 1233-1241.