Role change experienced by family caregivers of adults with Alzheimer's disease: Implications for occupational therapy

Physical and Occupational Therapy in Geriatrics

Volumn 22, Issue 1, 2003, Pages 21-43

  Hogan, Victoria M ^a   Lisy, Ellen D ^b   Savannah, Rachelle L ^c   Henry, Laura ^d   Kuo, Fengyi ^e   Fisher, Grace S ^f  

^a WESTERN PENNSYLVANIA HOSPITAL   (United States)

^b Cleveland Municipal School District   (United States)

^c UNIVERSITY OF MARYLAND MEDICAL CENTER   (United States)

^d GEORGETOWN UNIVERSITY MEDICAL CENTER   (United States)

^e GANNON UNIVERSITY   (United States)

^f Misericordia University   (United States)

Author keywords

Alzheimer's disease; Caregivers' experiences; Role changes

Indexed keywords

AGED; ALZHEIMER DISEASE; ARTICLE; CAREGIVER; FEMALE; HOUSEHOLD; HUMAN; HUMAN RELATION; LEISURE; MALE; OCCUPATIONAL THERAPIST; OCCUPATIONAL THERAPY; QUALITY OF LIFE; RESPONSIBILITY; SOCIAL SUPPORT; WELLBEING;

EID: 19244365713     PISSN: 02703181     EISSN: None     Source Type: Journal    
DOI: 10.1300/J148v22n01_02     Document Type: Article

References (33)

1. Aitken, M. J. & Lohman, H. (1996). Heath care system: Changing perspectives. In K. O. Larson, R. G. Stevens-Ratchford, L. Pedretti, & J. L. Crabtree, (Eds.). ROTE: The role of occupational therapy with the elderly. (pp. 55-98). Bethesda, MD: The American Occupational Therapy Association.
2. Alzheimer's Association: Physicians and Health Care Professionals: General Statistics and Demographics (2001), Retrieved March, 12, 2002, from http:www.alz.org/hc/overview/stats.htm.
3. Anderstedt, L., Elmstahl, S., Ingvad, B., & Samuelsson, S. (2000). Family caregivers in dementia. Scandinavian Journal of Public Health, 28, 23-31.
4. Baum, C. M., & Law, M. (1997). Occupational therapy practice: Focusing on occupational performance. The American Journal of Occupational Therapy, 51, 277-287.
5. Bergman-Evans, B. (1994). A health profile of spousal Alzheimer's caregivers. Journal of Psychosocial Nursing, 32, 25-30.
6. Carter, M. A., & Cook, K. (1995). Adaptation to retirement: Role changes and psychological resources. The Career Development Quarterly, 44, 67-81.
7. Chenoweth, B., & Spencer, B. (1986). Dementia: The experience of family caregivers. The Gerontologist, 26, 267-272.
8. Clark, M. S., & Bond, M. J. (2000). The effect on lifestyle activities of caring for a person with dementia. Psychology, Health & Medicine, 5, 13-27.
9. Elliot, M. S., & Barris, R. (1990). Occupational role performance and life satisfaction in elderly persons. The Occupational Therapy Journal of Research, 7, 215-224.
10. Fidler, G. S. & Velde, B. P. (2002). Lifestyle Performance. Thorofare, NJ: Slack.
11. Frankfort-Nachmias, C., & Nachmias, D. (1996). Research Methods in Social Sciences. New York: St. Martin.
12. Gelinas, E., Gauthier, L., & McIntyre, M. (1999). Development of a functional measure for persons with Alzheimer's Disease: The Disability Assessment for Dementia. American Journal of Occupational Therapy, 53(5), 471-481.
13. George, L. K., & Gwyther, L. P. (1986). Caregiver well-being: A multidimensional examination of family caregivers of demented adults. The Gerontologist, 26, 253-259.
14. Hasselkus, B. R. (1988). Meaning in family caregiving: Perspectives on caregiver and professional relationships. The Gerontologist, 28, 686-691.
15. Hills, G. A. (1998). Caregivers of the elderly: Hidden patients and health team members. Topics in Geriatric Rehabilitation, 14, 1-11.
16. Kielhofner, G. (1997). Conceptual foundations of occupational therapy. Philadelphia, PA: Davis.
17. Kielhofher, G., & Barrett, L. (1998). Occupational behavior defined. In Neistadt, M. E. & Crepeau, E. B., Willard and Spackman's Occupational Therapy (9th ed.). (pp. 525-527). New York: Lippincott.
18. Krefting, L. (1991). Rigor in qualitative research, The assessment of trustworthiness. American Journal of Occupational Therapy, 45, 214-222.
19. Law, M. (1998). Client-centered Occupational Therapy. Thorofare. NJ: Slack.
20. McGrath, W. L., Mueller, M. M., Brown. C., Teitelman, J., & Watts, J. (2000). Caregivers of persons with Alzheimer's disease: An exploratory study of occupational performance and respite. Physical & Occupational Therapy in Geriatrics, 18, 51-69.
21. Merriam, S. B. (1998). Qualitative Research and Case Study Applications in Education. San Francisco, CA; Jossey-Bass.
22. Merriam, S. B. (1991). Case Study Research in Education: A Qualitative Approach. San Francisco, CA: Jossey-Bass.
23. Morris, A. L. & Gainer, F. (January, 1997). Helping the caregiver: Opportunities for OT. OT Practice, 36-40.
24. Morse, J. M. & Field, P.A. (1995). Qualitative Research Methods for Health Professionals: Second Edition. London: SAGE.
25. Neundorfer, M. M., McClendon, M. J., Smyth, K. A., Stuckey, J. C., Strauss, M. E., & Patterson, M. B. (2001). A longitudinal study of the relationship between levels of depression among persons with Alzheimer's disease and levels of depression among their family caregivers. Journal of Gerontology, 56, 301-313.
26. Rogers, J. C., & Holm, M. B. (1995). Role Change Assessment (version 2.0). Unpublished assessment.
27. Rogers, J. C., & Holm, M. B. (1999). Role Change Assessment: An Interview Tool for Older Adults. In Hemphill-Pearson. B. J. Assessment in Occupational Therapy Mental Health: An Integrative Approach. (pp. 73-82). Thorofare. NJ: Slack.
28. Salmanson, E., & Robbins, J. (2003, April). Caregiver Support and Social Work. In K. R. Daffner (Chair), Dementia: A comprehensive update. Symposium conducted at the presentation of the Harvard Medical School, Boston. MA.
29. Spitze, G., & Logan, J. (1990). More evidence on women and men in the middle. Research on Aging, 12, 182-198.
30. Stone, R., Cafferata, G. L., & Sangl, J. (1987). Caregivers of frail elderly: National profile. The Gerontologist, 27, 616-626.
31. Toth-Cohen, S. (2000). Role perceptions of occupational therapists providing support and education for caregivers of persons with dementia. AJOT, 54(5), 509-515.
32. Trochim, W. M. (2001). Research Methods Knowledge Base. Retrieved February 21, 2002, from Cornell University Website: http://trochim.human. cornell.edu/kb/qualval.htm.
33. Ziff, S. M., & Schaffner, A. R. (2000). Occupational therapy student research of the needs and characteristics of dementia caregivers. Physical & Occupational Therapy in Geriatrics, 17, 29-40.