Adverse psychological events occurring in the first year after predictive testing for Huntington's disease

Journal of Medical Genetics

Volumn 33, Issue 10, 1996, Pages 856-862

  Lawson, Karen ^b   Wiggins, Sandi ^b   Green, Tiffinie ^b   Adam, Shelin ^b   Bloch, Maurice ^b   Hayden, Michael R ^b   Klimek, M ^a   Suchowersky, O ^a   Grover, S ^a   Bamforth, S ^a   Shokeir, M H K ^a   Greenberg, C ^a   Kane, J ^a   Soltan, H ^a   Eisenberg, D ^a   Whelan, D ^a   MacGregor, D ^a   Summers, A ^a   Meschino, W ^a   Hunter, A ^a   MacLeod, P ^a   Dufrasne, S ^a   Rosenblatt, D ^a   Prevost, C ^a   Fuller, A ^a   Welch, P ^a   Ives, E ^a   more..

^a 416 2125 East Mall ^*

^b UNIVERSITY OF BRITISH COLUMBIA   (Canada)

Author keywords

Adverse events; Huntington's disease; Predictive testing; Psychosocial consequences

Indexed keywords

ADULT; ARTICLE; CONTROLLED STUDY; DEPRESSION; DISTRESS SYNDROME; EDUCATION; FEMALE; FOLLOW UP; GENETIC COUNSELING; HOSPITALIZATION; HUMAN; HUNTINGTON CHOREA; MAJOR CLINICAL STUDY; MALE; MARRIAGE; MENTAL HOSPITAL; PRIORITY JOURNAL; PSYCHOLOGICAL ASPECT; RISK; SOCIAL INTERACTION; SOCIAL SUPPORT; SUBSTANCE ABUSE; SUICIDE ATTEMPT;

EID: 19244362641     PISSN: 00222593     EISSN: None     Source Type: Journal    
DOI: None     Document Type: Article

References (12)

1. Hayden, MR. Huntington 's chorea. New York: Springer Verlag, 1981.
2. Farrer LA. Suicide and attempted suicide in Huntington disease: implications for preclinical testing of persons at risk. Am J Med Genet 1986;24:305-11.
3. Kessler S. Psychiatric implications of presymptomatic testing for Huntington's disease. Am J Orthopsychiatry 1987;57:212-19.
4. Kessler S, Field T, Worth L, Mosbarger H. Attitudes of persons at risk for Huntington disease toward predictive testing. Am J Med Genet 1987;26:259-70.
5. Mastromauro C, Myers RH, Berkman B. Attitudes toward presymptomatic testing in Huntington disease. Am J Med Genet 1987;26:271-82.
6. Meissen GJ, Mastromauro CA, Kiely DK, McNamara DS, Myers RH. Understanding the decision to take the predictive test for Huntington disease. Am J Med Genet 1991;39:404-10.
7. Huggins M, Bloch M, Wiggins S, et al. Predictive testing for Huntington disease in Canada: adverse effects and unexpected results in those receiving a decreased risk. Am J Med Genet 1992;42:508-15.
8. Fox S, Bloch M, Fahy M, Hayden MR. Predictive testing for Huntington disease. I. Description of a pilot project in British Columbia, Am J Med Genet 1989;32:211-16.
9. Derogatis LR. SCL-90-R: Administration, Scoring & Procedures Manual-II for the Revised Version. 2nd ed, 1983.
10. Beck AT, Ward CH, Mendelson M, et al. An inventory for measuring depression. Arch Gen Psychiatry 1961;4:561-71.
11. Sarason IG, Levine HM, Basham RB, Sarason BR. Assessing social support: the social support questionnaire. J Pers Soc Psychol 1983;44:127-39.
12. Wiggins S, Whyte P, Huggins M, et al. The psychological consequences of predictive testing for Huntington's disease. N Engl J Med 1992;327:1401-5.