The intimate mediator: A carer's experience of Alzheimer's

Scandinavian Journal of Caring Sciences

Volumn 19, Issue 1, 2005, Pages 2-11

  Galvin, Kathleen ^a   Todres, Les ^a   Richardson, Mervyn ^a  

^a BOURNEMOUTH UNIVERSITY   (United Kingdom)

Author keywords

Alzheimer's; Carer's experience; Hermeneutics; Phenomenology; User involvement

Indexed keywords

ALZHEIMER DISEASE; ARTICLE; CAREGIVER; COPING BEHAVIOR; EXPERIENCE; HUMAN; MEDICAL RESEARCH; PATIENT CARE; SOCIAL CARE; HUMAN RELATION; METHODOLOGY; RESEARCH;

ALZHEIMER DISEASE; CAREGIVERS; HUMANS; PROFESSIONAL-PATIENT RELATIONS; RESEARCH;

EID: 17944363908     PISSN: 02839318     EISSN: None     Source Type: Journal    
DOI: 10.1111/j.1471-6712.2004.00312.x     Document Type: Article

References (31)

1. Hall JA. The watcher at the gates of dawn: the transformation of self in liminality and by the transcendent function. In Liminality and Transitional Phenomena (Stein M, Schwartz-Salant N eds), 1991, Chiron Publications, Wilmette, IL, 33-51.
2. Kitwood T. Towards a theory of dementia care: the interpersonal process. Aging Soc 1993; 13: 51-67.
3. Kitwood T. Dementia Reconsidered: The Person Comes First. 1997, Open University Press, Buckinghamshire.
4. Hirschfeld M. Home care versus institutionalisation: family caregiving and senile brain disease. Int J Nurs Stud 2003; 40: 463-9.
5. Kitson A. A comparative analysis of lay-caring and professional (nursing) caring relationships. Int J Nurs Stud 2003; 40: 503-10.
6. Koch T. Establishing rigour in qualitative research: the decision trail. J Adv Nurs 1994; 19: 976-86.
7. Jacelon CS. The dignity of elders in hospital. Qual Health Res 2003; 13: 543-56.
8. Clarke A, Hanson BJ, Ross H. Seeing the person behind the patient: enhancing the care of older people using a biographical approach. J Clin Nurs 2003; 12: 697-706.
9. Koch T, Webb C, Williams AM. Listening to the voices of older patients: an existential phenomenological approach to quality assurance. J Clin Nurs 1995; 4: 185-93.
10. Nygard L, Borell L. A life-world of altering meaning: expressions of the illness experience of dementia in everyday life over three years. Occup Ther J Res 1998; 18: 109-36.
11. Siriopoulos G, Brown Y, Wright K. Caregivers of wives diagnosed with Alzheimer's disease: husbands' perspectives. Am J Alz Dis 1999; 14: 79-87.
12. Butcher HK, Holkup PA, Buckwalter KC. The experience of caring for a family member with Alzheimer's disease. Western J Nurs Res 2001; 23: 33-55.
13. Gates K. The experience of caring for a loved one: a phenomenological study. Nurs Sci Q 2000; 13: 54-59.
14. Gubrium JF. Taking stock. Qual Health Res 1995; 5: 267-9.
15. Bar-David G. Three phase development of caring capacity in primary caregivers for relatives with Alzheimer's disease. J Aging Stud 1999; 3: 117-38.
16. Parsons K. The male experience of caregiving for a family member with Alzheimer's disease. Qual Health Res 1997; 7: 391-417.
17. Giorgi A. Phenomenology and Psychological Research. 1985, Duquesne University Press, Pittsburgh, PA.
18. Kellett UM. Searching for new possibilities to care: a qualitative analysis of family caring involvement in nursing homes. Nurs Enquiry 1999; 6: 9-16.
19. Sabat SR. The Experience of Alzheimer's Disease: Life Through a Tangled Veil. 2001, Blackwell Publishing, Oxford.
20. Sabat SR. Surviving the manifestations of selfhood in Alzheimer's disease: a case study. Dementia 2002; 1: 25-36.
21. Sabat SR, Harre R. The construction and deconstruction of self in Alzheimer's disease. Aging Soc 1992; 12: 443-61.
22. Ashworth A, Ashworth P. The Lifeworld as Phenomenon and as Research Heuristic, Exemplified by a Study of the Lifeworld of a Person Suffering Alzheimer's disease. Paper presented at the 22nd International Human Science Research Conference, 13-16th August 2003, Ersta Skondal University College, Stockholm, Sweden.
23. Denzin NK, Lincoln YS (eds). Collecting and Interpreting Qualitative Materials, 2nd edn. 2003, Sage, Thousand Oaks.
24. Todres L. The qualitative description of human experience: the aesthetic dimension. Qual Health Res 1998; 35: 121-7.
25. Todres L. Writing phenomenological-psychological description: an illustration attempting to balance texture and structure. Auto/Biography 2000; 3: 41-48.
26. Todres L. Humanising forces: phenomenology in science; psychotherapy in technological culture. Couns Psychother Res 2003; 3: 196-203.
27. Todres L, Fulbrook P, Albarrran J. On the receiving end: a hermeneutic-phenomenological analysis of a patient's struggle to cope while going through intensive care. Nurs Crit Care 2000; 5: 277-87.
28. Wilcock PM, Stewart Brown GC, Bateson J, Carver J, Machin S. Using patient stories to inspire quality improvement within the NHS Modernisation Agency collaborative programmes. J Clin Nurs 2003; 12: 422-30.
29. Department of Health. The NHS Plan. 1999, HMSO, London.
30. Heliker D. Transformation of story to practice: an innovative approach to long term care. Issues Ment Health Nurs 1999; 20: 513-25.
31. Reisberg B, Kenowsky S, Franssen BH, Auer SR, Souren LBM. Towards a science of an Alzheimer's disease management: a model based upon current knowledge of retrogenesis. Int Psychogeriatr 1999; 11: 7-23.