Measuring physical function in children with spina bifida and dislocated hips: The Spina Bifida Hips Questionnaire

Journal of Pediatric Orthopaedics

Volumn 25, Issue 3, 2005, Pages 273-279

  Smith, Patricia L ^a   Owen, Janice L ^a   Fehlings, Darcy ^a   Wright, James G ^a,b  

^a HOSPITAL FOR SICK CHILDREN   (Canada)

^b UNIVERSITY OF TORONTO   (Canada)

Author keywords

Dislocated hips; Hip surgery; Physical disability; Questionnaire; Spina bifida

Indexed keywords

ACTIVITIES SCALE FOR KIDS; ADOLESCENT; ARTICLE; CHILD; CLINICAL ARTICLE; DAILY LIFE ACTIVITY; FEMALE; HIP DISLOCATION; HUMAN; INTERMETHOD COMPARISON; INTERVIEW; MALE; OUTCOMES RESEARCH; PEDIATRIC OUTCOMES DATA COLLECTION QUESTIONNAIRE; PHYSICAL ACTIVITY; PRIORITY JOURNAL; QUESTIONNAIRE; RELIABILITY; SPINA BIFIDA; SPINA BIFIDA HIPS QUESTIONNAIRE; TREATMENT OUTCOME;

ACTIVITIES OF DAILY LIVING; ADOLESCENT; CHILD; DISLOCATIONS; FEMALE; HIP JOINT; HUMANS; MALE; QUESTIONNAIRES; REPRODUCIBILITY OF RESULTS; SPINAL DYSRAPHISM;

EID: 17844394402     PISSN: 02716798     EISSN: None     Source Type: Journal    
DOI: 10.1097/01.bpo.0000151056.62356.c0     Document Type: Article

References (36)

1. Alman BA, Bhandari M, Wright JG. Function of dislocated hips in children with lower level spina bifida. J Bone Joint Surg [Br]. 1996;78:294-298.
2. Beaty JH, Canale ST. Orthopaedic aspects of myelomeningocele. J Bone Joint Surg [Am]. 1990;72:626-630.
3. Wright JG, Feinstein AR. Improving the reliability of orthopaedic measurements. J Bone Joint Surg [Br]. 1992;74:287-291.
4. Young NL, Yoshida KK, Williams JI, et al. The role of children in reporting their physical disability. Arch Phys Med Rehabil. 1995;76:913-918.
5. Guyatt GH, Bombardier C, Tugwell PX. Measuring disease-specific quality of life in clinical trials. Can Med Assoc J. 1986;134:889-895.
6. Beaton DE, Bombardier C, Guillemin F, et al. Guidelines for the process of cross-cultural adaptation of self-report measures. Spine. 2000;25:3186-3191.
7. Marx RG, Bombardier C, Hogg-Johnson S, et al. How should importance and severity ratings be combined for item reduction in the development of health status instruments? J Clin Epidemiol. 1999;52:193-197.
8. Fleiss J. Reliability of measurement. In: Fleiss J, ed. The Design and Analysis of Clinical Experiences. New York: John Wiley & Sons, 1986:1-32.
9. Young NL, Williams JI, Yoshida KK, et al. Measurement properties of the activities scale for kids. J Clin Epidemiol. 2000;53:125-137.
10. Daltroy LH, Liang MH, Fossel AH, et al. The POSNA pediatric musculoskeletal functional health questionnaire: report on reliability, validity, and sensitivity to change. J Pediatr Orthop. 1998;18:561-571.
11. Asher M, Olson J. Factors affecting the ambulatory status of patients with spina bifida cystica. J Bone Joint Surg [Am]. 1983;65:350-356.
12. Feiwell E, Sakai D, Blatt T. The effect of hip reduction on function in patients with myelomeningocele. Potential gains and hazards of surgical treatment. J Bone Joint Surg [Am]. 1978;60:169-173.
13. Hoffer MM, Feiwell E, Perry R, et al. Functional ambulation in patients with myelomeningocele. J Bone Joint Surg [Am]. 1973;55:137-148.
14. Samuelsson L, Eklof O. Hip instability in myelomeningocele. 158 patients followed for 15 years. Acta Orthop Scand. 1990;61:3-6.
15. Patrick DL, Deyo RA. Generic and disease-specific measures in assessing health status and quality of life. Med Care. 1989;27:S217-S232.
16. Wiklund I, Karlberg J. Evaluation of quality of life in clinical trials. Selecting quality-of-life measures. Control Clin Trials. 1991;12:204S-216S.
17. Feldman AB, Haley SM, Coryell J. Concurrent and construct validity of the Pediatric Evaluation of Disability Inventory. Phys Ther. 1990;70:602-610.
18. Russell DJ, Rosenbaum PL, Cadman DT, et al. The gross motor function measure: a means to evaluate the effects of physical therapy. Dev Med Child Neurol. 1989;31:341-352.
19. Sousa JC, Telzrow RW, Holm RA, et al. Developmental guidelines for children with myelodysplasia. Arch Phys Ther. 1983;63:21-29.
20. Allen BL Jr, Lehmann TR. Pelvic displacement osteotomy in young myelodysplastic patients with dislocatable hips. South Med J. 1978;71:13-17.
21. Buckley SL, Sponseller PD, Magid D. The acetabulum in congenital and neuromuscular hip instability. J Pediatr Orthop. 1991;11:498-501.
22. Bunch WH, Hakala MW. Iliopsoas transfers in children with myelomeningocele. J Bone Joint Surg [Am]. 1984;66:224-227.
23. Carroll NC, Sharrard WJ. Long-term follow-up of posterior iliopsoas transplantation for paralytic dislocation of the hip. J Bone Joint Surg [Am]. 1972;54:551-560.
24. Cruess RL, Turner NS. Paralysis of hip abductor muscles in spina bifida. Results of treatment by the Mustard procedure. J Bone Joint Surg [Am]. 1970;52:1364-1372.
25. Freehafer AA, Vessely JC, Mack RP. Iliopsoas muscle transfer in the treatment of myelomeningocele patients with paralytic hip deformities. J Bone Joint Surg [Am]. 1972;54:1715-1729.
26. Gugenheim JJ, Gerson LP, Sadler C, et al. Pathologic morphology of the acetabulum in paralytic and congenital hip instability. J Pediatr Orthop. 1982;2:397-400.
27. Hogshead HP, Ponseti I. Fascia lata transfer to the erector spinae for the treatment of flexion-abduction contractures of the hip in patients with poliomyelitis and meningocele. J Bone Joint Surg [Am]. 1964;46:1389-1450.
28. Menelaus MB. Dislocation and deformity of the hip in children with spina bifida cystica. J Bone Joint Surg [Br]. 1969;51:238-251.
29. Yngve DA, Lindseth RE. Effectiveness of muscle transfers in myelomeningocele hips measured by radiographic indices. J Pediatr Orthop. 1982;2:121-125.
30. Wai EK, Owen J, Fehlings D, et al. Assessing physical disability in children with spina bifida and scoliosis. J Pediatr Orthop. 2000;20:765-770.
31. Crandall RC, Birkebak RC, Winter RB. The role of hip location and dislocation in the functional status of the myelodysplastic patient. A review of 100 patients. Orthopedics. 1989;12:675-684.
32. Chambers CT, Giesbrecht K, Craig KD, et al. A comparison of faces scales for the measurement of pediatric pain: children's and parents' ratings. Pain. 1999;83:25-35.
33. Chambers CT, Reid GJ, Craig KD, et al. Agreement between child and parent reports of pain. Clin J Pain. 1998;14:336-342.
34. Fanurik D, Koh J, Schmitz ML, et al. Pain assessment and treatment in children with cognitive impairment: a survey of nurses' and physicians' beliefs. Clin J Pain. 1999;15:304-312.
35. Fanurik D, Koh JL, Harrison RD, et al. Pain assessment in children with cognitive impairment. Clin Nurs Res. 1998;7:103-124.
36. Oberlander TF, Gilbert CA, Chambers CT, et al. Behavioral responses to acute pain in adolescents with a significant neurologic impairment. Clin J Pain. 1999;15:201-209.