Support network transformations in the first stages of the caregiver's career

Qualitative Health Research

Volumn 15, Issue 3, 2005, Pages 289-311

  Carpentier, Normand ^a   Ducharme, Francine ^a  

^a CENTRE DE RECHERCHE   (Canada)

Author keywords

Alzheimer's disease; Family caregiver; Methodological issues; Narrative; Social network transformation; Social processes

Indexed keywords

ALZHEIMER DISEASE; ARTICLE; CAREER; CAREGIVER; COMMUNITY CARE; COMPETENCE; COPING BEHAVIOR; DATA ANALYSIS; HEALTH CARE SYSTEM; HUMAN; HUMAN FACTORS RESEARCH; INFORMATION PROCESSING; INTERVIEW; JOB ANALYSIS; JOB PERFORMANCE; JOB SATISFACTION; LONGITUDINAL STUDY; MEDICAL RESEARCH; PATIENT CARE; POLICY; PRIORITY JOURNAL; SOCIAL ADAPTATION; SOCIAL INTERACTION; SOCIAL SUPPORT; WELLBEING; AGED; COST OF ILLNESS; DEMENTIA; FAMILY RELATION; HEALTH SERVICE; HUMAN RELATION; PATIENT ATTITUDE; PSYCHOLOGICAL ASPECT; QUALITATIVE RESEARCH; ROLE PLAYING; UNITED STATES; VERBAL COMMUNICATION;

AGED; CAREGIVERS; COST OF ILLNESS; DEMENTIA; FAMILY RELATIONS; HEALTH SERVICES NEEDS AND DEMAND; HUMANS; NARRATION; PATIENT ACCEPTANCE OF HEALTH CARE; PROFESSIONAL-FAMILY RELATIONS; QUALITATIVE RESEARCH; ROLE; SOCIAL SUPPORT; UNITED STATES;

EID: 17844369180     PISSN: 10497323     EISSN: None     Source Type: Journal    
DOI: 10.1177/1049732304270813     Document Type: Article

References (77)

1. Aneshensel, C. S., Pearlin, L. I., Mullan, J. T., Zarit, S. H., & Whitlatch, C. J. (1995). Profiles in caregiving: The unexpected career. New York: Academic Press.
2. Bazeley, P., & Richards, L. (2000). The NVivo qualitative project book. London: Sage.
3. Bourdieu, P. (1986). L'Illusion biographique. Actes de la Recherche en Sciences Sociales, 62/63, 4-6.
4. Bowling, A., Grundy, E., & Farquhar, M. (1995). Changes in network composition among the very old in inner London. Journal of Cross-Cultural Gerontology, 10, 331-347.
5. Broese van Groenou, M., & van Tilburg, T. (1996). Network analysis. In J. E. Birren (Ed.), Encyclopedia of gerontology: Age, aging and the aged (Vol. 2, pp. 197-210). San Diego: Academic Press.
6. Brubaker, E., & Brubaker, T. H. (1995). Critical policy issues. In G. C. Smith, S. S. Tobin, E. A. Robertson-Tchabo, & P. W. Power (Eds.), Strengthening aging families: Diversity in practice and policy (pp. 235-247). Thousand Oaks, CA: Sage.
7. Canadian Study of Health and Aging Working Group. (1994). Canadian Study of Health and Aging: Study methods and prevalence of dementia. Canadian Medical Association Journal, 150, 899-913.
8. Caplan, G. (1976). The family as support system. In G. Caplan & M. Killilea (Eds.), Support systems and mutual help (pp. 200-220). New York: Grune and Stratton.
9. Carpentier, N., & Ducharme, F. (2003). Care-giver network transformation: The need for an integrated perspective. Ageing and Society, 23(4), 507-525.
10. Carpentier, N., & White, D. (2002). Cohesion of the primary social network and sustained service use before the first psychiatric hospitalization. Journal of Behavioral Health Services & Research, 29(4), 404-418.
11. Chappell, N. L. (1992). Social support and aging. Toronto: Butterworth.
12. Chappell, N. L., & Penning, M. J. (2001). Sociology of aging in Canada: Issues for the millennium. Canadian Journal on Aging/Revue Canadienne Du Vieillissement, 20 (Suppl. 1), 82-110.
13. Coleman, P. G. (1999). Creating a life story: The task of reconciliation. The Gerontologist, 39(2), 133-139.
14. Colerick, E. J., & George, L. K. (1986). Predictors of institutionalization among caregivers of patients with Alzheimer's disease. American Geriatrics Society, 34, 493-498.
15. Collins, R. (1988). Theoretical sociology. New York: Harcourt Brace Jovanovich.
16. Connidis, I. A. (2001). Family ties and aging. Thousand Oaks, CA: Sage.
17. Cox, C., & Monk, A. (1993). Hispanic culture and family care of Alzheimer's patients. Health and Social Work, 18, 92-101.
18. Denzin, N. K. (2001). Interpretive interactionism (2nd ed.). Thousand Oaks, CA: Sage.
19. Ducharme, F., Lebel, P., & Bergman, H. (2001). Vieillissement et soins, l'urgence d'offrir des services de santé intégrés aux familles du XXIe siècle. Ruptures, Revue Transdisciplinaire En Santé, 8(2), 110-121.
20. Edling, C. R. (2002). Mathematics in sociology. Annual Review of Sociology, 28, 197-220.
21. Eisenhardt, K. M. (1989). Building theories from case study research. Academy of Management Review, 14, 532-550.
22. Emirbayer, M. (1997). Manifesto for a relational sociology. American Journal of Sociology, 103(2), 281-317.
23. Finch, J. (1989). Family obligations and social change. Cambridge, UK: Polity.
24. Franzosi, R. (1998). Narrative analysis - Or why (and how) sociologists should be interested in narrative. Annual Review of Sociology, 24, 517-554.
25. Gill, C. E., Hinrichsen, G. A., & DiGiuseppe, R. (1998). Factors associated with formal service use by family members of patients with dementia. Journal of Applied Gerontology, 17, 38-52.
26. Gottlieb, B. (1991). Social support and family care in the elderly. Canadian Journal on Aging/Revue Canadienne Du Vieillissement, 10(4), 359-375.
27. Gottlieb, B. H., & Johnson, J. (2000). Respite programs for caregivers of persons with dementia: A review with practice implications. Aging and Mental Health, 4(2), 119-129.
28. Griffin, L. J. (1992). Temporality, events, and explanation in historical sociology: An introduction. Sociological Methods and Research, 20(4), 403-427.
29. Griffin, L. J. (1993). Narrative, event-structure analysis and causal interpretation in historical sociology. American Journal of Sociology, 98(5), 1094-1133.
30. Griffin, L. J., & Ragin, C. (1994). Some observations on formal methods of qualitative analysis. Sociological Methods and Research, 23(1), 4-21.
31. Hamilton, E. M. (1996). Factors associated with family caregivers' choice not to use services. American Journal of Alzheimer's Disease, 11, 29-38.
32. Harrison, M. J., & Neufeld, A. (1997). Barriers to mobilizing support while caregiving. Health Care for Women International, 18, 591-602.
33. Hasselkus, B. R. (1988). Meaning in family caregiving: Perspectives on caregiver/professional relationships. The Gerontologist, 28(5), 686-691.
34. Hébert, R., Lévesque, L., Vézina, J., Lavoie, J.-P., Ducharme, F., Gendron, C., et al. (2003). Efficacy of a psychoeducative group program for caregivers of demented persons living at home: A randomized controlled trial. Journal of Gerontology: Social Sciences, 58B(1), S58-S67.
35. Heise, D. (1991). Event structure analysis: A qualitative model of quantitative research. In N. Fielding & R. Lee (Eds.), Using computers in qualitative research (pp. 136-163). Newbury Park, CA: Sage.
36. Juan, S. (1999). Méthodes de recherche en sciences sociohumaines: Exploration critique des techniques. Paris: PUF.
37. Kasper, J. D. (2000). Health care utilization and barriers to health care. In G. L. Albrecht, F. Ray, & S. C. Scrimshaw (Eds.), Handbook of social studies in health and medicine (pp. 323-338). London: Sage.
38. Keating, N., Otfinowski, P., Wenger, C., Fast, J., & Derksen, L. (2003). Understanding the caring capacity of informal networks of frail seniors: A case for care networks. Ageing and Society, 23, 115-127.
39. Keating, N. C., Fast, J. E., Connidis, I. A., Penning, M., & Keefe, J. (1997). Bridging policy and research in eldercare. Canadian Journal on Aging/Canadian Public Policy, 16(Suppl.), 22-41.
40. Kohler Riessman, C. K. (1993). Narrative analysis. Newbury Park, CA: Sage.
41. Lalive D'Épinay, C. (1983). Récit de vie et projet de connaissance scientifique. Recherches Sociologiques, 16(2), 237-249.
42. Lazega, E. (1994). Analyse des réseaux et sociologie des organisations. Revue française de sociologie, 35(2), 293-320.
43. Lieberman, M. A., & Fisher, L. (1999). The effects of family conflict resolution and decision making on the provision of help for an elder with Alzheimer's disease. The Gerontologist, 39(2), 159-166.
44. Lieblich, A., Tuval-Mashiach, R., & Zilber, T. (1998). Narrative research: Reading, analysis, and interpretation. Thousand Oaks, CA: Sage.
45. Lyons, K. L., & Zarit, S. H. (1999). Formal and informal support: The great divide. International Journal of Geriatric Psychiatry, 14, 183-196.
46. Maines, D. R. (1993). Narrative's moment and sociology's phenomena: Toward a narrative sociology. Sociological Quarterly, 34, 17-38.
47. Maisonneuve, J. (1980). Introduction à la psychosociologie. Paris: PUF.
48. McAuley, W. J., Travis, S. S., & Safewright, M. (1990). The relationship between formal and informal health care services for the elderly. In S. M. Stahl (Ed.), The legacy of longevity: Health and health care in later life (pp. 201-216). Newbury Park, CA: Sage.
49. McPherson, M., Smith-Lovin, L., & Cook, J. M. (2001). Birds of a feather: Homophily in social networks. Annual Review of Sociology, 27, 415-444.
50. Merton, R. (1968). Social theory and social structure. New York: Free Press.
51. Miller, B. (1998). Family caregiving: Telling it like it is. The Gerontologist, 38(4), 510-513.
52. Mitchell, B. A. (2003). Would I share a home with an elderly parent? Exploring ethnocultural diversity and intergenerational support relations during young adulthood. Canadian Journal on Aging/Revue Canadienne Du Vieillissement, 22(1), 69-82.
53. Mitchell, J. C. (1969). The concept and use of social networks. In J. C. Mitchell (Ed.), Social networks in urban situations: Analyses of personal relationships in Central African towns (pp. 1-50). Manchester, UK: Manchester University Press.
54. Mui, A. C., & Brunette, D. (1994). Long-term care service use by frail elders: Is ethnicity a factor? The Gerontologist, 34(2), 190-198.
55. Neufeld, A., & Harrison, M. J. (2000). Family caregiving: Issues in gaining access to support. In M. J. Stewart (Ed.), Chronic conditions and caregiving in Canada: Social support strategies (pp. 247-273). Toronto: University of Toronto Press.
56. Nolan, M., Grant, G., & Keady, J. (1996). Understanding family care: A multidimentional model of caring and coping. Buckingham, UK: Open University Press.
57. Nolan, M., Ingram, P., & Watson, R. (2002). Working with family carers of people with dementia: "Negotiated" coping as an essential outcome. Dementia, 1(1), 75-93.
58. Ory, M. G., Hoffman, R. R., Yee, J. L., Tennstedt, S., & Schulz, R. (1999). Prevalence and impact of caregiving: A detailed comparison between dementia and nondementia caregivers. The Gerontologist, 32(2), 177-185.
59. Paquet, M. (1999). Les professionnels et les familles dans le soutien aux personnes âgées dépendantes. Montréal, Canada: L'Harmattan.
60. Pearlin, L. I., Harrington, C., Lawton, P. M., Montgomery, R. J. V., & Zarit, S. H. (2001). An overview of the social and behavioral consequences of Alzheimer's disease. Aging and Mental Health, 5 (Suppl. 1), S3-S6.
61. Pedlar, D. J., & Biegel, D. E. (1999). The impact of family caregiver attitudes on the use of community services for dementia care. Journal of Applied Gerontology, 18(2), 201-221.
62. Pescosolido, B. A. (1991). Illness careers and network ties: A conceptual model of utilization and compliance. In G. Albrecht & J. Levy, Advances in medical sociology (Vol. 2, pp. 161-184). Greenwich, CT: JAI.
63. Pescosolido, B. A. (1992). Beyond rational choice: The social dynamics of how people seek help. American Journal of Sociology, 97(4), 1096-1138.
64. Pescosolido, B. A. (1994). Bringing Durkheim into the twenty-first century: A network approach to unresolved issues in the sociology of suicide. In D. Lester (Ed.), Emile Durkheim le suicide: One hundred years later (pp. 264-295). Philadelphia: Charles.
65. Pescosolido, B. A., & Kronenfeld, J. J. (1995). Health, illness and healing in an uncertain era: Challenges from and for medical sociology [Special issue]. Journal of Health and Social Behavior, 36, 5-33.
66. Pillemer, K. (1996). Family caregiving: What would a Martian say? The Gerontologist, 36(2), 269-271.
67. Poirier, J., Clapier-Valladon, S., & Raybaut, P. (1996). Les récits de vie: Théorie et pratique. Paris: PUF.
68. Rook, K. (1992). Detrimental aspects of social relationships: Taking stock of an emerging literature. In H. O. F. Veiel & U. Baumann (Eds.), Meaning and measurement of social support (pp. 157-169). New York: Hemisphere.
69. Scott, J. (2000). Social network analysis: A handbook (2nd ed.). London: Sage.
70. Shumaker, S. A., & Brownell, A. (1984). Toward a theory of social support: Closing conceptual gaps. Journal of Social Issues, 40(4), 11-36.
71. Sörensen, S., Pinquart, M., & Duberstein, P. (2002). How effective are interventions with caregivers? An updated meta-analysis. The Gerontologist, 42(3), 356-372.
72. Suitor, J., Wellman, B., & Morgan, D. L. (1997). It's about time: How, why, and when networks change. Social Networks, 19, 1-7.
73. Thoits, P. A. (1995). Stress, coping, and social support processes: Where are we? What next? [Special issue]. Journal of Health and Social Behavior, 36, 53-79.
74. Van der Poel, M. G. M. (1993). Delineating personal support networks. Social Networks, 15, 49-70.
75. Wallace Williams, S., Dilworth-Anderson, P., & Goodwin, P. Y. (2003). Caregiver role strain: The contribution of multiple roles and available resources in African-American women. Aging and Mental Health, 7(2), 103-112
76. Wellman, B. (1981). Applying network analysis to the study of support. In B. H. Gottlieb (Ed.), Social network and social support (pp. 171-200). Beverly Hills, CA: Sage.
77. Zarit, S. H., Gaugler, J. E., & Jarrott, S. E. (1999). Useful services for families: Research findings and directions. International Journal of Geriatric Psychiatry, 14, 165-181.