The contextual model of HRQoL: A paradigm for expanding the HRQoL framework

Quality of Life Research

Volumn 14, Issue 2, 2005, Pages 297-307

  Ashing Giwa, Kimlin Tam ^a,b  

^a UNIVERSITY OF CALIFORNIA   (United States)

^b ALLIANT INTERNATIONAL UNIVERSITY   (United States)

Author keywords

Cancer Survivorship; Culture; Ethnic minority; HRQoL; Social ecology

Indexed keywords

CANCER RESEARCH; CANCER RISK; CANCER SURVIVAL; CULTURAL FACTOR; ETHNIC GROUP; ETHNOLOGY; PRIORITY JOURNAL; QUALITY OF LIFE; REVIEW; RISK FACTOR; SURVIVAL RATE; THEORETICAL MODEL;

CULTURAL CHARACTERISTICS; ETHNIC GROUPS; HUMANS; MODELS, THEORETICAL; NEOPLASMS; QUALITY OF LIFE; SOCIAL CLASS; SOCIAL SUPPORT; SPIRITUALITY; UNITED STATES;

EID: 17744385132     PISSN: 09629343     EISSN: None     Source Type: Journal    
DOI: 10.1007/s11136-004-0729-7     Document Type: Review

References (88)

1. American Cancer Society 2004 Cancer Facts and Figures 2004 American Cancer Society Atlanta
2. MA Hayes BD Smedley 1999 The Unequal Burden of Cancer: An Assessment of NIH Research and Programs for Ethnic Minorities and the Medically Underserver. National Academy Press Washington, DC Institute of Medicine
3. US Department of Health & Human Services. Healthy People 2010, Washington, DC: US Government Printing Office.
4. BD Smedley AY Stith AR Nelson 2002 Unequal Treatment: Confronting Racial and Ethnic Disparities in Health Care. National Academy Press Washington, DC Institute of Medicine
5. National Cancer Institute. The Nation's Investment in Cancer Research: A Plan and Budget Proposal for Fiscal Year 2003. NIH Publication No.02-4373. Available at: http://plan.cancer.gov, 2002.
6. K Ashing-Giwa 1999 Examining the socio-cultural relevance of breast cancer screening models for African-American women. Women Health 28 53 71
7. NM Aziz JH Rowland 2002 Cancer survivorship research among ethnic minority and medically underserved groups. Oncol Nurs Forum 29 789 801
8. K Ashing-Giwa 1999 The recruitment and retention of African American women into cancer control studies. J Natl Med Assoc 91 255 260
9. DF Cella DS Tulsky G Gray 1993 The Functional Assessment of Cancer Therapy (FACT) scale: Development and validation of the general measure. J Clin Oncol 11 570 579
10. TM Gill AR Feinstein 1994 A critical appraisal of the quality of life measures. JAMA 272 619 626
11. RP McQuellon G Kimmick GJ Hurt 1997 Quality of life measurement in women with breast cancer. Breast J 3 178 186
12. JE Ware 1984 Conceptualizing disease impact and treatment outcomes. Cancer 53 2316 2326
13. M Kagawa-Singer 2000 Improving the validity and generalizability of studies with underserved U.S. populations expanding the research paradigm. Ann Epidemiol 10 S92 S103
14. Myers, H. Hwang W-C. Race and ethnic differentials in health in later life. National Research Council. 2003.
15. K Ashing-Giwa PA Ganz L Petersen 1999 Quality of life of African-American and White long-term breast cancer survivors. Cancer 85 418 426
16. K Sanders-Phillips 1996 Correlates of health promotion behaviors in low-income Black women and Latinas. Am J Prev Med 12 450 458
17. C Boring T Squires C Heath 1992 Cancer statistics for African Americans. Cancer 42 7 18
18. H Freeman T Wasfie 1989 Cancer of the breast in poor black women. Cancer 63 2562 2569
19. H Freeman 1991 Race, poverty, and cancer. J Natl Cancer Inst 83 526 527
20. N Adler T Boyce M Chesney 1994 Socioeconomic status and health. Am Psychol 49 15 24
21. K Ashing-Giwa PA Ganz 1997 Understanding the psychosocial and quality of life impacts of breast cancer in African-American survivors. Psychosoc Oncol 15 19 35
22. J Elder F Castro C De Moor 1991 Differences in cancer-risk-related behaviors in Latino and Anglo adults. Prev Med 20 751 763
23. Ashing-Giwa K, Padilla G, Tejero J, et al. Understanding the breast cancer experience of women: A qualitative study of African American, Asian American, Latina and European American cancer survivors. Psychooncology 2003; Nov (published online).
24. M Antoni J Lehman K Kilbourn A Boyers J Culver S Alferi 2001 Cognitive-behavioral stress management intervention decreases the prevalence of depression and enhances benefit finding among women under treatment for early-stage breast cancer. Health Psychol 20 20 32
25. D Williams 1990 Socioeconomic differentials in health: A review and redirection. Soc Psvchol Q 53 81 99
26. K Ashing-Giwa 2004 Quality of life and psychosocial outcomes in long-term breast cancer survivors: A study of African American women. Psychosoc Oncol 17 47 62
27. Y Michael L Berkman C Graham M Holmes I Kawachi 2002 J Psychoso Res 5 285 293
28. K Johnson 1998 Ethnocultural influences in cancer. J Clin Psychol Med Settings 5 357 364
29. D Wellisch M Kagawa-Singer SL Reid YJ Lin S Nishikawa-Lee M Wellisch 1999 An exploratory study of social support: A cross-cultural comparison of Chinese-, Japanese-, and Anglo-American breast cancer patients. Psychooncology 8 207 219
30. JR Rodriguez 1997 An examination of race differences in patients' psychological adjustment to cancer. J Clin Psychol Med Settings 5 271 280
31. A Neale 1994 Racial and marital status influences on 10 year survival from breast cancer. J Clin Epidemiol 47 475 483
32. G Padilla M Kagawa-Singer 1998 Quality of life and culture C King P Hinds Quality of Life: Issues in Oncology Nursing Jones and Barlett Boston, MA
33. K Ashing-Giwa G Padilla J Tejero M Kagawa-Singer 2003 Understanding the breast cancer experience of Asian American women. Psychooncology 12 38 58
34. Ashing-Giwa K, Padilla G, Bohorquez D, Tejero J, Garcia M. Understanding the breast cancer experience of Latinas. Psychosocial Oncology (in press).
35. A Ramírez L Suarez L Laufman C Barroso P Cálela 2000 Hispanic women's breast and cervical cancer knowledge, attitudes, and screening behaviors. Am J Health Prompt 14 292 300
36. P Kato 1996 On nothing and everything: The relationship between ethnicity and health. P Kato T Mann Handbook of Diversity Issues in Health Psychology Plenum Press New York, NY 287 300
37. Ashing-Giwa K, Kagawa-Singer M, Padilla G, et al. The cervical cancer experience: A qualitative, multiethnic study. Psychooncology 2003; Nov (published online).
38. S Spencer J Lehman C Wynings P Arena C Carver M Antoni 1999 Concerns about breast cancer and relations to psychosocial well-being in a multiethnic sample of early-stage patients. Health Psychol 18 159 168
39. Cella DF. Manual of the Functional Assessment of Chronic Illness Therapy (FACIT) Measurement System. Center on Outcomes, Research and Education (CORE), 1997.
40. Joseph L White 1984 The Psychology of Blacks: An Afro-American Perspective. Prentice-Hall Englewood-Cliffs, NJ
41. B Greene 1994 African American women L Comas-Diaz B Greene Women of Color: Integrating Ethnic and Gender Identities in Psychotherapy Gilford Press New York, NY 10 30
42. G Marin E Perez-Stable B Marin 1989 Cigarette smoking among San Francisco Hispanics: The role of acculturation and gender. Am J Public Health 79 196 198
43. M Harmon F Castro K Coe 1996 Acculturation and cervical cancer: Knowledge, beliefs, and behaviors of Hispanic women. Women Health 24 37 57
44. B Ferrell M Grant B Funk S Otis-Green N Garcia 1997 Quality of life in breast cancer survivors as identified by focus groups. Psychoonco 6 13 23
45. D Erwin T Spatz C Turturro 1992 Development of an African American role model intervention to increase breast self-examination and mammography. J Cancer Educ 7 311 319
46. F Hubbell L Chavez S Mishra R Valdez 1996 Beliefs about sexual behavior and other predictors of papanicolaou smear screening among Latinas and Anglo women. Arch Intern Med 156 2353 2358
47. E Perez-Stable F Sabogal R Otero-Sabogal R Hiatt S McPhee 1992 Misconceptions about cancer among Latinos and Anglos. JAMA 268 3219 3223
48. B Powe 1995 Cancer fatalism among elderly European Americans and African Americans. Oncol Nurs Forum 22 1355 1359
49. L Chavez F Hubbell J McMullin R Martinez S Mishra 1995 Understanding knowledge and attitudes about breast cancer: A cultural analysis. Arch Fam Med 4 145 152
50. G Gotay MY Muraoka 1998 Quality of life in long-term survivors of adult-onset cancers. J Natl Cancer Inst 90 656 667
51. M Kagawa-Singer 1987 Ethnic perspectives of cancer nursing: Hispanics and Japanese-Americans. Oncol Nurs Forum 14 59 65
52. J Kaczorowski 1989 Spiritual well-being and anxiety in adults diagnosed with cancer. Hospital J 5 105 116
53. M Kurtz G Wyatt J Kurtz 1995 Psychological and sexual well-being, philosophical/spiritual views, and health habits of long-term cancer survivors. Health Care Women Int 16 253 262
54. J Mickley K Soeken 1993 Religiousness and hope in Hispanic- and Anglo-American women with breast cancer. Oncol Nurs Forum 20 1171 1177
55. J Mickley K Soeken A Belcher 1992 Spiritual well-being, religiousness and hope among women with breast cancer. Nurs Scholarship 24 267 272
56. J Yates B Chelmer P James M Follansbee F McKegney 1981 Religion in patients with advanced cancer. Med Ped Oncol 9 121 128
57. S Cotton E Levine C Fitzpatrick K Dold E Targ 1999 Exploring the relationships among spiritual well-being, quality of life, and psychological adjustment in women with breast cancer. Psychooncology 8 429 438
58. JN Bourjolly 1998 Differences in religiousness among black and white women with breast cancer. Soc Work Health Care 28 21 39
59. D Hayes-Bautista M Hayes-Bautista 2002 Uninsured Latinas' informal support networks: Lessons for communication and effective management. Era of Hope Department of Defense Breast CA Res Prog 3 58(8)
60. ER Greimel G Padilla MM Grant 1998 Gender differences in outcomes among patients with cancer. Psychooncology 7 197 206
61. JR Bloom SL Stewart M Johnston P Banks 2001 General and specific measures of quality of life in younger women with breast cancer. A Baum B Andersen Psychosocial Intervention for Cancer. American Psychological Association Washington, DC 37 56
62. M King P Kenny A Shiell J Hall J Boyages 2000 Quality of life three months and one year after first treatment for early stage breast cancer: Influence of treatment and patient characteristics. Qual life Res 9 789 800
63. B Cimprich DL Ronis G Martinez-Ramos 2002 Age at diagnosis and quality of life in breast cancer survivors. Cancer Pract 10 85 93
64. KL Taylor RM Lamdan JE Siegel R Shelby M Hrywna K Moran-Klimi 2002 Treatment regimen, sexual attractiveness concerns and psychological adjustment among African American breast cancer patients. Psychooncology 11 505 517
65. M Asken D Florence 1995 Keeping the care in managed care: The importance of the therapeutic relationship and psychosocial factors in the managed care setting. Physician Exec 21 22 25
66. L Hunt K de Voogd L Akana C Browner 1998 Abnormal pap screening among Mexican-American women: Impediments to receiving and reporting follow-up care. Oncol Nurs Forum 25 1743 1749
67. S James E Wagner D Strogatz S Beresford D Kleinbaum C Williams L Cutchin M Ibrahim 1984 The Edgecombe County (NC) high blood pressure control program: II. Barriers to the use of medical care among hypertensives. Am J Public Health 74 468 472
68. E Bailey 1987 Sociocultural factors and health care-seeking behavior among Black Americans. J Natl Med Assoc 79 389 392
69. Perez-Stable E. Hispanics populations and cancer research. Paper presented at the Am Soc Prev Oncol. Houston, Texas, March, 1995.
70. L Degner L Kristjanson D Bowman 1997 Information needs and decisional preferences in women with breast cancer. JAMA 277 1485 1492
71. S Brooks T Chen A Ghosh C Mullins J Gardner C Baquet 2000 Cervical cancer outcomes analysis: Impact of age, race, and comorbid illness on hospitalizations for invasive carcinoma of the cervix. Gynecol Oncol 79 107 115
72. T Rummans M Frost V Suman M Taylor P Novotny T Gendron 1998 Quality of life and pain in patients with recurrent breast and gynecologic cancer. Psychosomatics 39 437 445
73. MA Andrykowski SL Curran JL Studts 1996 Psychosocial adjustment and quality of life in women with breast cancer and benign breast problems: A controlled comparison. J Clin Epidemiol 49 827 834
74. GE Wyatt KA Desmond PA Ganz JH Rowland K Ashing-Giwa BE Meyerowitz 1998 Sexual functioning and intimacy in African American and white breast cancer survivors: A descriptive study. Women Health 4 385 405
75. G Gotay MY Muraoka 1998 Quality of life in long-term survivors of adult-onset cancers. J Natl Cancer Inst 90 656 667
76. L Northouse M Caffey L Deichelbohrer 1999 The quality of life of African American women with breast cancer. Res Nurs Health 22 449 460
77. M DiMatteo R Hays E Gritz R Bastani 1993 Patient adherence to cancer control regimens: Scale development and initial validation. Psychol Assess 5 102 112
78. Cella, DF. Quality of life and decision making. Invited oral presentation at the Sixth Biennial Symposium on Minorities and the Medically Underserved and Cancer, Washington, DC, 1997a.
79. PA Ganz A Coscarelli C Fred B Kahn ML Polinsky L Petersen 1996 Breast cancer survivors: Psychosocial concerns and quality of life. Breast Cancer Res Treat 38 183 199
80. B Andersen X Woods L Copeland 1997 Sexual self-schema and sexual morbidity among gynecologic cancer survivors. J Consult Clin Psychol 65 221 229
81. VJ Cull DI Cowie 1993 Early stage cervical cancer: Psychosocial and sexual outcomes of treatment. Br J Cancer 68 1216 1220
82. M Kagawa-Singer DK Wellisch R Durvasula 1997 Impact of breast cancer on Asian American and Anglo American women. Cult Med Psychiatry 21 449 480
83. T Middelboe L Ovesen EL Mortensen P Bech 1994 Depressive symptoms in cancer patients undergoing chemotherapy: A psychometric analysis. Psychother Psychosom 61 171 177
84. C Li G Samsioe C Losif 1999 Quality of life in long-term survivors of cervical cancer. Maturitas 32 95 102
85. G Juárez B Ferrell T Borneman 1998 Influence of culture on cancer pain management in Hispanic patients. Cancer Pract 6 262 269
86. K Ashing-Giwa G Padilla J Tejero M Kagawa-Singer 2002 Identifying quality of life and psychosocial risk factors in African-, Asian-, Latina- and European American breast cancer survivors. Era of Hope: Department of Defense Breast CA Res Prog 3 58(1)
87. B Powe S Weinrich 1999 An intervention to decrease cancer fatalism among rural elders. Oncol Nurs Forum 26 583 588
88. E Gritz R Bastani 1993 Cancer prevention-behavior changes: The short and long of it. Prev Med 22 676 688