What are cancer patients' preferences about treatment at the end of life, and who should start talking about it? A comparison with healthy people and medical staff

Supportive Care in Cancer

Volumn 13, Issue 4, 2005, Pages 206-214

  Sahm, S ^a,b   Will, R ^a   Hommel, G ^c  

^a DEUTSCHE KLINIK FÜR DIAGNOSTIK   (Germany)

^b GOETHE UNIVERSITY   (Germany)

^c JOHANNES GUTENBERG UNIVERSITY   (Germany)

Author keywords

Advance directive; Autonomy; Cancer patients; Palliative care

Indexed keywords

ADULT; AGED; ANTIBIOTIC THERAPY; ARTICLE; ARTIFICIAL VENTILATION; CANCER CHEMOTHERAPY; CANCER PALLIATIVE THERAPY; CANCER PATIENT; CONTROLLED STUDY; DIALYSIS; DISEASE COURSE; FEMALE; HUMAN; LIVING WILL; MAJOR CLINICAL STUDY; MALE; MEDICAL DECISION MAKING; NURSE; PATIENT PARTICIPATION; PATIENT RIGHT; PHYSICIAN; PRIORITY JOURNAL;

ADULT; ADVANCE DIRECTIVES; AGED; ANTI-BACTERIAL AGENTS; ANTIDEPRESSIVE AGENTS; CASE-CONTROL STUDIES; DATA COLLECTION; FEMALE; GERMANY; HUMANS; MALE; MEDICAL STAFF; MIDDLE AGED; NEOPLASMS; PATIENT SATISFACTION; RENAL DIALYSIS; RESPIRATION, ARTIFICIAL; TERMINAL CARE;

EID: 17744362467     PISSN: 09414355     EISSN: None     Source Type: Journal    
DOI: 10.1007/s00520-004-0725-z     Document Type: Article

References (24)

1. Albert SM, Murphy PL, Del Bene ML, Rowland LP (1999) A prospective study of preferences and actual treatment choices in ALS. Neurology 53:278-283
2. Bozzetti F, Amadori D, Bruera E, Cozzaglio L, Corli O, Filiberti A, Rapin CH, Neuenschwander H, Aoun M, Ricci SB, De Conno F, Doci R, Garrone M, Gentilini M, Lery N, Mantell M, Sheldon-Collins R, Trompino G (1996) Guidelines on artificial nutrition versus hydration in terminal cancer patients. European Association for Palliative Care. Nutrition 12:163-167
3. Chin AE, Hedberg K, Higginson GK, Fleming DW (1999) Legalized physician-assisted suicide in Oregon - the first year's experience. N Engl J Med 340:577-583
4. Dyer C. (2004) Bill clarifies gap in law over living wills. BMJ 328:1516
5. Ditto PH, Danks JH, Smucker WD, Bookwala J, Coppola KM, Dresser R, Fagerlin A, Gready RM, Houts RM, Lockhart LK, Zyzanski S (2001) Advance directives as acts of communication: a randomized controlled Arch Intern Med 161:421-430
6. Ditto PH, Smucker WD, Danks JH, Jacobson JA, Houts RM, Fagerlin A, Coppola KM, Gready RM (2003) Stability of older adults' preferences for life-sustaining medical treatment. Health Psychol 22:605-615
7. Ellershaw JE, Sutcliff JM, Saunders CM (1995) Dehydration and the dying patient. J Pain Symptom Manage 10:192-197
8. Emanuel LL, Barry MJ, Stoeckle JD, Ettelson LM, Emanuel EJ (1991) Advance directives for medical care-a case for greater use. N Engl J Med 324:889-895
9. Fagerlin A, Schneider CE Enough (2004) The failure of the living will. Hastings Center Report 2004. 30-42
10. Fainsinger RL, Bruera E (1997) When to treat dehydration in a terminally ill patient? Support Care Cancer 5:205-211
11. Garrett JM, Harris RP, Norburn JK, Patrick DL, Danis M (1993) Life-sustaining treatments during terminal illness: Who wants what? J Gen Intern Med 8:361-368
12. German Medical Council. (2004) Principles of the Medical care of the dying. German Medical Council. Dtsch Ärztebl 101:A1298-1299
13. Oorschot B van, Hausmann C, Köhler N, Leppert K, Schweitzer S, Steinbach K, Anselm R (2004) Perspectives of patients on advanced directives. Results of a survey of palliative tumour patients. Ethik Med 16:112-122
14. Palker NB, Nettles-Carson B (1995) The prevalence of advance directives: lessons from a nursing home. Nurse Pract 20:7-8, 13, 17-18
15. Reilly BM, Magnussen CR, Ross J, Ash J, Papa L, Wagner M (1994) Can we talk? Inpatient discussions about advance directives in a community hospital. Attending physicians' attitudes, their inpatients' wishes, and reported experience. Arch Intern Med 154:2299-2308
16. Robertson I (1991) Second thoughts on living wills. Hastings Cent Rep 21:6-9
17. Sahm SW (2000) Palliative care versus euthanasia. The German position: the German General Medical Council's principles for medical care of the terminally ill. J Med Philos 25:195-219
18. Sahm S (2004) Patients' self-determination at the end of life. Area of conflict between medicine, ethics and law. Ethik Med 16:133-147
19. Silverstein MD, Stocking CB, Antel JP, Beckwith J, Roos RP, SiegIer M (1991) Amyotrophic lateral sclerosis and life-sustaining therapy: patients desires for information, participation in decision making, and life-sustaining therapy. Mayo Clin Proc 66:906-913
20. Slevin ML, Stubbs L, Plant HJ, Wilson P, Gregory WM, Armes PJ, Downer SM (1990) Attitudes to chemotherapy: comparing views of patients with cancer with those of doctors, nurses, and general public. BMJ 300:1458-1460
21. Task force of the German Federal Ministry of Justice on patients' autonomy at the end of life. Final report. http://www.bmj.bund.de. Cited 22 Sep 2004
22. Teno J, Lynn J, Wenger N, Phillips RS, Murphy DP, Connors AF Jr, Desbiens N, Fulkerson W, Bellamy P, Knaus WA (1997) Advance directives for seriously ill hospitalized patients: effectiveness with the patient self-determination act and the SUPPORT intervention. SUPPORT Investigators. Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatment. Am Geriatr Soc 45:500-507
23. Tonelli MR (1996) Pulling the plug on living wills. A critical analysis of advance directives. Chest 110:816-822
24. Weiss SC, Emanuel LL, Fairclough DL, Emanuel EJ (2001) Understanding the experience of pain in terminally ill patients. Lancet 357:1311-1315