Strategies used by families to navigate uncharted territory when a child is dying

Journal of Palliative Care

Volumn 21, Issue 2, 2005, Pages 103-110

  Steele, Rose ^a  

^a YORK UNIVERSITY   (Canada)

Author keywords

[No Author keywords available]

Indexed keywords

EID: 17444364665     PISSN: 08258597     EISSN: None     Source Type: Journal    
DOI: 10.1177/082585970502100206     Document Type: Article

References (13)

1. American Academy of Pediatrics, Committee on Bioethics ad Committee on Hospital Care. Palliative care for children. Pediatrics 2000; 106(2): 351-357.
2. Hutton N. Pediatric palliative care: The time has come. Arch Pediatr Adolesc Med 2002; 156(1): 9-10.
3. nd edition. Oxford: Oxford University Press, 1998; pp. 1077-1084.
4. Goldman A. Home care of the dying child. J Palliat Care 1996; 12(3): 16-19.
5. Davies H. Living with dying: families coping with a child who has a neurodegenerative genetic disorder. Axon 1996; 18(2): 38-44.
6. Parker M. Families caring for chronically ill children with tuberous sclerosis complex. Fam Community Health 1996; 19(3): 73-84.
7. Stein A, Forrest G, Woolley H, Baum J. Life-threatening illness and hospice care. Arch Dis Child 1989; 64(5): 697-702.
8. Stein A, Woolley H. An evaluation of hospice care for children. In: Baum J, Dominica F, Woodward R (eds). Listen: my child has a lot of living to do. New York: Oxford University Press, 1990; pp. 66-90.
9. Steele R. Navigating uncharted territory: experiences of families when a child has a neurodegenerative life-threatening illness [unpublished PhD thesis]. Vancouver, British Columbia: University of British Columbia, 1999.
10. Steele R. Trajectory of certain death at an unknown time: children with neurodegenerative, life-threatening illnesses. Can J Nurs Res 2000; 32(3): 49-67.
11. Steele R. Navigating uncharted territory: experiences of families when a child is dying. J Palliat Care 2005; 21: 35-43.
12. Martinson I, McClowry S, Davies B, Kuhlenkamp E. Changes over time: a study of family bereavement following childhood cancer. J Palliat Care 1994; 10(1): 19-25.
13. Bluebond-Langner M. In the Shadow of Illness: parents and siblings of the chronically ill child. Princeton, New Jersey: Princeton University Press, 1996.