The perils of hope

Cambridge Quarterly of Healthcare Ethics

Volumn 14, Issue 2, 2005, Pages 235-239

  Schneiderman, Lawrence J ^a,b  

^a UNIVERSITY OF CALIFORNIA   (United States)

^b UNIVERSITY OF CALIFORNIA SAN DIEGO   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

DECISION MAKING; HEALTH CARE COST; HEALTH CARE UTILIZATION; LIFE EXPECTANCY; MEDICAL ETHICS; PATIENT ATTITUDE; PATIENT CARE; PATIENT RIGHT; PROGNOSIS; REVIEW; SURVIVAL RATE; TERMINALLY ILL PATIENT;

DEATH AND EUTHANASIA; PROFESSIONAL PATIENT RELATIONSHIP;

ADAPTATION, PSYCHOLOGICAL; ATTITUDE TO DEATH; EMOTIONS; HUMANS; MORALE; PALLIATIVE CARE;

EID: 17144431380     PISSN: 09631801     EISSN: None     Source Type: Journal    
DOI: 10.1017/S0963180105050310     Document Type: Review

References (60)

1. Johnson LH, Dahlen R, Roberts SL. Supporting hope in congestive heart failure patients. Dimensions in Critical Care Nursing 1997;16:65-78.
2. Bone RC. Benediction: A farewell to my medical colleagues. The Journal of Critical Illness 1997;12(7):139-40.
3. Ubel A. Truth in the most optimistic way. Annals of Internal Medicine 2001;134:1142-3.
4. Maruta T, Colligan RC, Malinchoc M, Offord KP. Optimists vs. pessimists: Survival rate among medical patients over a 30-year period. Mayo Clinic Proceedings 2000;75:140-3; Levy BR, Slade MD, Kunkel SR, Kasl SV. Longevity increased by positive self-perceptions of aging. Journal of Personality and Social Psychology 2002;83:261-70.
5. Maruta T, Colligan RC, Malinchoc M, Offord KP. Optimists vs. pessimists: Survival rate among medical patients over a 30-year period. Mayo Clinic Proceedings 2000;75:140-3; Levy BR, Slade MD, Kunkel SR, Kasl SV. Longevity increased by positive self-perceptions of aging. Journal of Personality and Social Psychology 2002;83:261-70.
6. Stern SL, Dhanda R, Hazuda HP. Hopelessness predicts mortality in older Mexican and European Americans. Psychosomatic Medicine 2001;63:344-51.
7. Reed GM, Kemeny ME, Taylor SE, Wang H-YJ, Visscher BR. Realistic acceptance as a predictor of decreased survival time in gay men with AIDS. Health Psychology 1994;13(4):299-307.
8. Taylor SE, Kemeny ME, Reed GM, Bower JE, Gruenewald TL. Psychological resources, positive illusions, and health. American Psychologist 2000;55(1):99-109.
9. Affleck G, Tennen H. Construing benefits from adversity: Adaptational significance and dispositional underpinnings. Journal of Personality 1996;64(4):899-922; Rabkin JG, Ferrando SJ, Lin S-H, Sewell M, McElhiney M. Psychological effects of HAART: A 2-year study. Psychosomatic Medicine 2000;62:413-22.
10. Affleck G, Tennen H. Construing benefits from adversity: Adaptational significance and dispositional underpinnings. Journal of Personality 1996;64(4):899-922; Rabkin JG, Ferrando SJ, Lin S-H, Sewell M, McElhiney M. Psychological effects of HAART: A 2-year study. Psychosomatic Medicine 2000;62:413-22.
11. Greer S, Morris T, Pettingale KW. Psychological response to breast cancer: Effect on outcome. The Lancet 1979;2:785-7.
12. Watson M, Haviland JS, Greer S, Davidson J, Bliss JM. Influence of psychological response on survival in breast cancer: A population-based cohort study. The Lancet 1999;354:1331-6.
13. Cassileth BR, Lusk EJ, Miller DS, Brown LL, Miller C. Psychosocial correlates of survival in advanced malignant disease? New England Journal of Medicine 1985;312:1551-5.
14. Petticrew M, Bell R, Hunter D. Influence of psychological coping on survival and recurrence in people with cancer: Systematic review. BMJ 2002;325:1066-76.
15. See note 12, Petticrew, Bell, Hunter 2002.
16. Angell M. Disease as a reflection of the psyche. New England Journal of Medicine 1985; 312:1570-2.
17. Cutliffe JR, Herth KA. The concept of hope in nursing 5: Hope and critical care nursing. British Journal of Nursing 2002;11(18):1190-5; Cutcliffe JR, Herth K. The concept of hope in nursing 1: Its origins, background and nature. British Journal of Nursing 2002;11(12): 832-40.
18. Cutliffe JR, Herth KA. The concept of hope in nursing 5: Hope and critical care nursing. British Journal of Nursing 2002;11(18):1190-5; Cutcliffe JR, Herth K. The concept of hope in nursing 1: Its origins, background and nature. British Journal of Nursing 2002;11(12): 832-40.
19. Kutner JS, Steiner JF, Corbett KK, Jahnigen DW, Barton PL. Information needs in terminal illness. Social Science & Medicine 1999; 48:1341-52.
20. See note 3, Ubel 2001.
21. Scioli A, Chamberlin CM, Samor CM, Lapointe AB, Campbell TL, Macleod AR, McLennon J. A prospective study of hope, optimism, and health. Psychological Reports 1997;81:723-35.
22. Weinstein ND. Optimistic biases about personal risks. Science 1989;246:1232-3.
23. Scheier MF, Carver CS. Optimism, coping, and health: Assessment and implications of generalized outcome expectancies. Health Psychology 1985;4(3):219-47.
24. See note 8, Rabkin, Ferrando, Lin, Sewell, McElhiney 2000.
25. Brody H, Lynn J. The physician's responsibility under the new Medicare reimbursement for hospice care. New England Journal of Medicine 1984;310:920-2; Parkes CM. Commentary: Prognoses should be based on proved indices not intuition. BMJ 2000; 320:473; Wolfe J, Klar N, Grier HE, Duncan J, Salem-Schatz S, Emanuel EJ, Weeks JC. Understanding of prognosis among parents of children who died of cancer: Impact on treatment goals and integration of palliative care. JAMA 2000;284:2469-75; Pearlman RA. Inaccurate predictions of life expectancy. Archives of Internal Medicine 1988;148:2537-8.
26. Brody H, Lynn J. The physician's responsibility under the new Medicare reimbursement for hospice care. New England Journal of Medicine 1984;310:920-2; Parkes CM. Commentary: Prognoses should be based on proved indices not intuition. BMJ 2000; 320:473; Wolfe J, Klar N, Grier HE, Duncan J, Salem-Schatz S, Emanuel EJ, Weeks JC. Understanding of prognosis among parents of children who died of cancer: Impact on treatment goals and integration of palliative care. JAMA 2000;284:2469-75; Pearlman RA. Inaccurate predictions of life expectancy. Archives of Internal Medicine 1988;148:2537-8.
27. Brody H, Lynn J. The physician's responsibility under the new Medicare reimbursement for hospice care. New England Journal of Medicine 1984;310:920-2; Parkes CM. Commentary: Prognoses should be based on proved indices not intuition. BMJ 2000; 320:473; Wolfe J, Klar N, Grier HE, Duncan J, Salem-Schatz S, Emanuel EJ, Weeks JC. Understanding of prognosis among parents of children who died of cancer: Impact on treatment goals and integration of palliative care. JAMA 2000;284:2469-75; Pearlman RA. Inaccurate predictions of life expectancy. Archives of Internal Medicine 1988;148:2537-8.
28. Brody H, Lynn J. The physician's responsibility under the new Medicare reimbursement for hospice care. New England Journal of Medicine 1984;310:920-2; Parkes CM. Commentary: Prognoses should be based on proved indices not intuition. BMJ 2000; 320:473; Wolfe J, Klar N, Grier HE, Duncan J, Salem-Schatz S, Emanuel EJ, Weeks JC. Understanding of prognosis among parents of children who died of cancer: Impact on treatment goals and integration of palliative care. JAMA 2000;284:2469-75; Pearlman RA. Inaccurate predictions of life expectancy. Archives of Internal Medicine 1988;148:2537-8.
29. Christakis NA, Escarce JJ. Survival of Medicare patients after enrollment in Hospice programs. New England Journal of Medicine 1996;225:172-8.
30. Weeks JC, Cook EF, O'Day SJ, et al. Relationship between cancer patients' predictions of prognosis and their treatment preferences. JAMA 1998;279:1709-14; Phillips RS, Wenger NS, Teno J, Oye RK, Younger S, Califf R, Layde P. Choices of seriously ill patients about cardiopulmonary resuscitation: Correlates and outcomes. American Journal of Medicine 1996;100:128-37.
31. Weeks JC, Cook EF, O'Day SJ, et al. Relationship between cancer patients' predictions of prognosis and their treatment preferences. JAMA 1998;279:1709-14; Phillips RS, Wenger NS, Teno J, Oye RK, Younger S, Califf R, Layde P. Choices of seriously ill patients about cardiopulmonary resuscitation: Correlates and outcomes. American Journal of Medicine 1996;100:128-37.
32. Diem SJ, Lantos JD, Tulsky JA. Cardiopulmonary resuscitation on television - Miracles and misinformation. New England Journal of Medicine 1996;334:1578-82.
33. Murphy DJ, Burrows D, Santilli S, Kemp AW, Tenner S, Kreling B, Teno J. The influence of the probability of survival on patients' preferences regarding cardiopulmonary resuscitation. New England Journal of Medicine 1994;330:545-9; Schonwetter RS, Walker RM, Kramer DR, Robinson BE. Resuscitation decision making in the elderly: The value of outcome data. Journal of General Internal Medicine 1993;8:295-300.
34. Murphy DJ, Burrows D, Santilli S, Kemp AW, Tenner S, Kreling B, Teno J. The influence of the probability of survival on patients' preferences regarding cardiopulmonary resuscitation. New England Journal of Medicine 1994;330:545-9; Schonwetter RS, Walker RM, Kramer DR, Robinson BE. Resuscitation decision making in the elderly: The value of outcome data. Journal of General Internal Medicine 1993;8:295-300.
35. Eidinger RN, Schapira DV. Cancer patients insight into their treatment, prognosis, and unconventional therapies. Cancer 1984;53: 2736-40.
36. Andrykowski MA, Brady MJ, Greiner CB, Almaier EM, Burish TG, Antin JH, et al. "Returning to normal" following bone marrow transplantation: Outcomes expectations and informed consent. Bone Marrow Transplantation 1995;15:573-81.
37. Mackillop WJ, Steward WE, Ginsburg AD, Stewart SS. Cancer patients' perceptions of their disease and its treatment. British Journal of Cancer 1988;58:355-8; Lee SJ, Fairclough D, Antin HJ, Weeks JC. Discrepancies between patient and physician estimates for the success of stem cell transplantation. JAMA 2001;285:1034-8; Arkes HR, Dawson NV, Speroff T, Harrell FE, Alzola C, Phillips R, et al. The covariance decomposition of the probability score and its use in evaluating prognostic estimates. Medical Decision Making 1995;15:120-31.
38. Mackillop WJ, Steward WE, Ginsburg AD, Stewart SS. Cancer patients' perceptions of their disease and its treatment. British Journal of Cancer 1988;58:355-8; Lee SJ, Fairclough D, Antin HJ, Weeks JC. Discrepancies between patient and physician estimates for the success of stem cell transplantation. JAMA 2001;285:1034-8; Arkes HR, Dawson NV, Speroff T, Harrell FE, Alzola C, Phillips R, et al. The covariance decomposition of the probability score and its use in evaluating prognostic estimates. Medical Decision Making 1995;15:120-31.
39. Mackillop WJ, Steward WE, Ginsburg AD, Stewart SS. Cancer patients' perceptions of their disease and its treatment. British Journal of Cancer 1988;58:355-8; Lee SJ, Fairclough D, Antin HJ, Weeks JC. Discrepancies between patient and physician estimates for the success of stem cell transplantation. JAMA 2001;285:1034-8; Arkes HR, Dawson NV, Speroff T, Harrell FE, Alzola C, Phillips R, et al. The covariance decomposition of the probability score and its use in evaluating prognostic estimates. Medical Decision Making 1995;15:120-31.
40. Perkins HS, Jonsen AR, Epstein WV. Providers as predictors: Using outcome predictions in intensive care. Critical Care Medicine 1986;14(2):105-10; Heyse-Moore LH, Johnson-Bell VE. Can doctors accurately predict the life expectancy of patients with terminal cancer? Palliative Medicine 1987;1:165-6; Christakis NA, Lamont EB. Extent and determinants of error in doctors' prognoses in terminally ill patients: Prospective cohort study. British Medical Journal 2000;320: 469-72.
41. Perkins HS, Jonsen AR, Epstein WV. Providers as predictors: Using outcome predictions in intensive care. Critical Care Medicine 1986;14(2):105-10; Heyse-Moore LH, Johnson-Bell VE. Can doctors accurately predict the life expectancy of patients with terminal cancer? Palliative Medicine 1987;1:165-6; Christakis NA, Lamont EB. Extent and determinants of error in doctors' prognoses in terminally ill patients: Prospective cohort study. British Medical Journal 2000;320: 469-72.
42. Perkins HS, Jonsen AR, Epstein WV. Providers as predictors: Using outcome predictions in intensive care. Critical Care Medicine 1986;14(2):105-10; Heyse-Moore LH, Johnson-Bell VE. Can doctors accurately predict the life expectancy of patients with terminal cancer? Palliative Medicine 1987;1:165-6; Christakis NA, Lamont EB. Extent and determinants of error in doctors' prognoses in terminally ill patients: Prospective cohort study. British Medical Journal 2000;320: 469-72.
43. Wilson DK, Kaplan RM, Schneiderman LJ. Framing of decisions and selections of alternatives in health care. Social Behavior 1987; 2:51-9; Pearlman RA. Variability in physician estimates of survival for acute respiratory failure in chronic obstructive pulmonary disease. Chest 1987;91(4):515-21; Zimmerman JE, Knaus WA, Sharpe SM, Anderson AS, Draper EA, Wagner DP. The use and implications of do not resuscitate order in Intensive Care Units. JAMA 1986;255:351-6.
44. Wilson DK, Kaplan RM, Schneiderman LJ. Framing of decisions and selections of alternatives in health care. Social Behavior 1987; 2:51-9; Pearlman RA. Variability in physician estimates of survival for acute respiratory failure in chronic obstructive pulmonary disease. Chest 1987;91(4):515-21; Zimmerman JE, Knaus WA, Sharpe SM, Anderson AS, Draper EA, Wagner DP. The use and implications of do not resuscitate order in Intensive Care Units. JAMA 1986;255:351-6.
45. Wilson DK, Kaplan RM, Schneiderman LJ. Framing of decisions and selections of alternatives in health care. Social Behavior 1987; 2:51-9; Pearlman RA. Variability in physician estimates of survival for acute respiratory failure in chronic obstructive pulmonary disease. Chest 1987;91(4):515-21; Zimmerman JE, Knaus WA, Sharpe SM, Anderson AS, Draper EA, Wagner DP. The use and implications of do not resuscitate order in Intensive Care Units. JAMA 1986;255:351-6.
46. Christakis NA, Iwashyna TJ. Attitude and self-reported practice regarding prognostication in a national sample of internists. Archives of Internal Medicine 1998;158:2389-95; Lamont EB, Christakis NA. Prognostic disclosure to patients with cancer near the end of life. Annals of Internal Medicine 2001; 134:1096-105 .
47. Christakis NA, Iwashyna TJ. Attitude and self-reported practice regarding prognostication in a national sample of internists. Archives of Internal Medicine 1998;158:2389-95; Lamont EB, Christakis NA. Prognostic disclosure to patients with cancer near the end of life. Annals of Internal Medicine 2001; 134:1096-105 .
48. See note 31, Zimmerman, Knaus, Sharpe, Anderson, Draper, Wagner 1986.
49. See note 32, Christakis, Iwashyna 1998.
50. Smith JL. Commentary: Why do doctors overestimate? British Medical Journal 2000; 320:472-3.
51. Poses RM, McClish DK, Bekes C, Scott WE, Morley JN. Ego bias, reverse ego bias, and physicians' prognostic Critical Care Medicine 1991;19(12):1533-9.
52. Lynn J, Teno JM, Harrell FE. Accurate prognostications of death: Opportunities and challenges for clinicians. Western Journal of Medicine 1995;163:250-7.
53. Christopher M. My mother's gift-The link between honesty and hope. Bioethics Forum 1999;15(1):5-13.
54. Frankl V. Man's Search for Meaning. Boston: Beacon Press; 1962.
55. Frankl VE. Man's Search for Ultimate Meaning. Cambridge, Mass.: Perseus Publishing; 2000 at p. 139.
56. See note 40, Frankl 2000.
57. Ezzy D. Illness narratives: Time, hope and HIV. Social Science and Medicine. 2000;50(5): 605-17.
58. See note 42, Ezzy 2000.
59. See note 42, Ezzy 2000.
60. See note 42, Ezzy 2000.