Variations in neurodegenerative disease across the UK: Findings from the national study of Progressive Intellectual and Neurological Deterioration (PIND)

Archives of Disease in Childhood

Volumn 89, Issue 1, 2004, Pages 8-12

  Devereux, G ^a   Stellitano, L ^a   Verity, C M ^a   Nicoll, A ^a,b   Will, R G ^a,c   Rogers, P ^a,b  

^a ADDENBROOKE S HOSPITAL   (United Kingdom)

^b PUBLIC HEALTH ENGLAND   (United Kingdom)

^c National Creutzfeldt Jakob Disease Surveillance Unit   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

ADRENOLEUKODYSTROPHY; ARTICLE; CHILD; CONSANGUINITY; CONTROLLED STUDY; CREUTZFELDT JAKOB DISEASE; DEGENERATIVE DISEASE; DEMOGRAPHY; DISORDERS OF MITOCHONDRIAL FUNCTIONS; ETHNOLOGY; GEOGRAPHIC DISTRIBUTION; HEALTH SURVEY; HUMAN; INTELLECTUAL IMPAIRMENT; INTERVIEW; MAJOR CLINICAL STUDY; NEUROLOGIC DISEASE; NEURONAL CEROID LIPOFUSCINOSIS; PEDIATRICIAN; PRIORITY JOURNAL; QUESTIONNAIRE; RETT SYNDROME; SANFILIPPO SYNDROME; UNITED KINGDOM;

ADOLESCENT; AFRICAN CONTINENTAL ANCESTRY GROUP; ASIA; CHILD; CHILD, PRESCHOOL; CREUTZFELDT-JAKOB SYNDROME; EUROPEAN CONTINENTAL ANCESTRY GROUP; GREAT BRITAIN; HUMANS; INFANT; INFANT, NEWBORN; MENTAL RETARDATION; RESIDENCE CHARACTERISTICS;

EID: 1642499253     PISSN: 00039888     EISSN: 14682044     Source Type: Journal    
DOI: None     Document Type: Article

References (17)

1. Hunt A, Burne R. Medical and nursing problems of children wild neurodegenerative disease. Palliat Med 1995;9(1):19-26.
2. Verity CM, Nicoll A, Will RG, et al. Variant Creutzfeldt-Jakob disease in UK children: a national surveillance study. Lancet 2000;356:1224-7.
3. Verity C, Preece M. Surveillance for rare disorders by the BPSU. Arch Dis Child 2002;87:269-71.
4. British Paediatric Surveillance Unit. Annual Report 2001-2002.
5. Lynn R. Key issues in child health surveillance. Proc R Coll Physicians Edinb 2001;13:39-45.
6. Dechlich S, Carter AO. Public health surveillance: historical origins, methods and evaluation. Bull World Health Organ 1994;72:285-304.
7. Bundey S, Alam H. A five-year prospective study of the health of children in different ethnic groups with particular reference to the effect of inbreeding. Eur J Hum Genet 1993;1:206-19.
8. Hutchesson AC, Bundey S, Preece MA, et al. A comparison of disease and gene frequencies of inborn errors of metabolism among different ethnic groups in the West Midlands, UK. J Med Genet 1998;35:366-70.
9. Morton R, Sharma V, Nicholson J, et al. Disability in children from different ethnic populations. Child Care Health Dev 2002;28(1):87-93.
10. Sinha G, Corry P, Subesinghe D, et al. Prevalence and type of cerebral palsy in a British ethnic community: the role of consanguinity. Dev Med Child Neurol 1997;39:259-62.
11. Office for National Statistics. Census Data, 1991.
12. Anon. Bradford population forecasts and information bulletin. February 2000.
13. Davidson EJ, Silva TJ, Sofis LA, et al. The doctor's dilemma: challenges for the primary care physician caring for the child with special health care needs. Ambul Pediatr 2002;2:218-23.
14. Gravelle AM. Caring for a child with a progressive illness during the complex chronic phase: parents' experience of facing adversity. J Adv Nurs 1997;25:738-45.
15. Davies H. Living with dying: families coping with a child who has a neurodegenerative genetic disorder. Axone 1996;18(2):38-44.
16. Avard DM, Knoppers BM. Ethical dimensions of genetics in paediatric neurology: a look into the future. Semin Pediatr Neurol 2002;9:53-61.
17. Roberts G. Supporting children with serious health care needs. Analyzing the costs and benefits. Evaluation & the Health Professions 2001;24:72-83.