Assessment of mobility, activities and pain in different subtypes of epidermolysis bullosa

Clinical and Experimental Dermatology

Volumn 29, Issue 2, 2004, Pages 122-127

  Fine, J D ^a,b,c,d   Johnson, L B ^a,c   Weiner, M ^a   Suchindran, C ^c  

^a Natl Epidermolysis Bullosa Registry   (United States)

^b UNIVERSITY OF KENTUCKY   (United States)

^c IL   (United States)

^d Dermatology Associates of Kentucky   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; ARTICLE; CHILD; CONTROLLED STUDY; DAILY LIFE ACTIVITY; EPIDERMOLYSIS BULLOSA; FEMALE; HUMAN; MAJOR CLINICAL STUDY; MALE; MOBILIZATION; PAIN ASSESSMENT; PRIORITY JOURNAL; QUESTIONNAIRE; RATING SCALE;

ACTIVITIES OF DAILY LIVING; CHILD; CROSS-SECTIONAL STUDIES; EPIDERMOLYSIS BULLOSA; HUMANS; MOVEMENT DISORDERS; PAIN; QUALITY OF LIFE; QUESTIONNAIRES; WALKING;

EID: 1642398229     PISSN: 03076938     EISSN: None     Source Type: Journal    
DOI: 10.1111/j.1365-2230.2004.01428.x     Document Type: Article

References (13)

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2. Fuchs EV. The molecular biology of epidermolysis bullosa simplex. In: Epidermolysis Bullosa. Clinical, Epidemiologic, and Laboratory Advances, and the Findings of the National Epidermolysis Bullosa Registry (Fine, JD, Bauer, EA, McGuire, J et al., eds). Baltimore: Johns. Hopkins University Press, 1999: 280-99.
3. Pulkkinen L, Uitto J, et al. The molecular basis of the junctional forms of epidermolysis bullosa. In: Epidermolysis Bullosa: Clinical, Epidemiologic, and Laboratory Advances, and the Findings of the National Epidermolysis Bullosa Registry (Fine, JD, Bauer, EA, McGuire, J et al., eds). Baltimore: Johns, Hopkins University Press, 1999: 300-25.
4. Uitto J, Pulkkinen L et al. The molecular basis of the dystrophic forms of epidermolysis bullosa. In: Epidermolysis Bullosa: Clinical, Epidemiologic, and Laboratory Advances, and the Findings of the National Epidermolysis Bullosa Registry (Fine, JD, Bauer, EA, McGuire, J et al., eds). Baltimore: Johns. Hopkins University Press, 1999: 326-50.
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7. Fine JD. Epidemiology and the study of genetic diseases. In: Epidemiology and Prevention of Skin Diseases (Grob, JJ, MacKie, R, Stern, R et al., eds). London: Blackwell Science 1996.
8. Fine JD, Bauer EA, McGuire J et al. Epidermolysis Bullosa: Clinical, Epidemiologic, and Laboratory Advances, and the Findings of the National Epidermolysis Bullosa Registry. Baltimore: Johns Hopkins University Press, 1999.
9. Fine JD, Johnson LB et al. The National Epidermolysis Bullosa Registry: organization, goals, methodologic approaches, basic demography, and accomplishments. In: Epidermolysis Bullosa: Clinical, Epidemiologic, and Laboratory Advances, and the Findings of the National Epidermolysis Bullosa Registry (Fine, JD, Bauer, EA, McGuire, J et al., eds). Baltimore: Johns Hopkins University Press, 1999: 79-100.
10. Fine JD, Johnson LB et al. The epidemiology of inherited EB. findings within American, Canadian, and European study populations. In: Epidermolysis Bullosa: Clinical, Epidemiologic, and Laboratory Advances, and the Findings of the National Epidermolysis Bullosa Registry (Fine, JD, Bauer, EA, McGuire, J et al., eds). Baltimore: Johns Hopkins University Press, 1999: 101-13.
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13. Fine JD, Johnson LB et al. Extracutaneous features of inherited EB. The National Epidermolysis Bullosa Registry experience. In: Epidermolysis Bullosa: Clinical, Epidemiologic, and Laboratory Advances, and the Findings of the National Epidermolysis Bullosa Registry (Fine, JD, Bauer, EA, McGuire, J et al., eds). Baltimore: Johns Hopkins University Press 1999, 147-74.