Health-related quality of life (HRQOL) in family members of cancer victims: Results from a longitudinal intervention study in Norway and Sweden

Palliative Medicine

Volumn 18, Issue 2, 2004, Pages 108-120

  Ringdal, Gerd Inger ^a   Ringdal, Kristen ^a   Jordhøy, Marit S ^a   Ahlner Elmqvist, Marianne ^b   Jannert, Magnus ^b   Kaasa, Stein ^a  

^a NORWEGIAN UNIVERSITY OF SCIENCE AND TECHNOLOGY   (Norway)

^b LUND UNIVERSITY HOSPITAL   (Sweden)

Author keywords

Cancer victims; Family members; Health related quality of life (HRQOL); Longitudinal study; Randomized; Short form (SF 36) health survey questionnaire

Indexed keywords

ADULT; AGED; ARTICLE; CANCER PALLIATIVE THERAPY; CANCER PATIENT; CANCER THERAPY; CONTROLLED STUDY; DEATH; DETERIORATION; DISEASE COURSE; EMOTIONAL STRESS; FAMILY LIFE; FEMALE; HEALTH STATUS; HEALTH SURVEY; HUMAN; HYPOTHESIS; INTERMETHOD COMPARISON; LONGITUDINAL STUDY; MALE; MENTAL HEALTH; NORWAY; PAIN ASSESSMENT; PHYSICAL CAPACITY; QUALITY OF LIFE; QUESTIONNAIRE; RATING SCALE; SOCIAL INTERACTION; SWEDEN; TIME;

ADULT; AGED; FAMILY HEALTH; FAMILY RELATIONS; FEMALE; HEALTH STATUS; HUMANS; LONGITUDINAL STUDIES; MALE; MIDDLE AGED; NEOPLASMS; NORWAY; QUALITY OF LIFE; QUESTIONNAIRES; SWEDEN;

EID: 1642348807     PISSN: 02692163     EISSN: None     Source Type: Journal    
DOI: 10.1191/0269216304pm878oa     Document Type: Article

References (43)

1. Northouse L. The impact of cancer on the family: an overview. Int J Psychiatry Med 1984; 14: 215-42.
2. Sales E, Schulz R, Biegel D. Predictors of strain in families of cancer patients: a review of the literature. J Psychosoc Oncol 1992; 10: 1-26.
3. Cella D. Measuring quality of life in palliative care. Semin Oncol 1995; 22: 73-81.
4. Kaasa S, Loge JH. Quality-of-life-assessment in palliative care. Lancet Oncol 2002; 3: 175-82.
5. Jordhøy MS, Fayers P, Loge JH, Ahlner-Elmqvist M, Kaasa S. Quality of life in palliative cancer care: results from a cluster randomized trial. J Clin Oncol 2001; 19: 3884-94.
6. Blanchard CG, Albrecht TL, Ruckdeschel JC. The crisis of cancer: psychological impact on family caregivers. Oncology 1997: 11: 189-94.
7. Kristjanson LJ, Ashcroft T. The family's cancer journey: a literature review. Cancer Nurs 1994; 17: 1-17.
8. Lewis FM. Review. The impact of cancer of the family: a critical analysis of the research literature. Patient Educat Couns 1986; 8: 268-89.
9. Ramirez A, Addington-Hall J, Richards M. ABC of palliative care. The carers. BMJ 1998; 316: 208-11.
10. Vachon MLS, Kristjanson L, Higginson I. Psychosocial issues in palliative care: the patients, the family, and the process and outcome of care. J Pain Symptom Manage 1995; 10: 142-50.
11. Ringdal GI, Jordhøy MS, Ringdal K, Kaasa S. The first year of grief and bereavement in close family members to individuals who have died of cancer. Palliat Med 2001; 15: 91-105.
12. Ringdal GI, Jordhøy MS, Ringdal K, Kaasa S. Factors affecting grief reactions in close family members to individuals who have died of cancer. J Pain Symptom Manage 2001; 22: 1016-26.
13. Ringdal GI, Jordhoy MS, Kaasa S. Measuring quality of palliative care: psychometric properties of the FAM-CARE Scale. Qual Life Res 2003; 12: 167-76.
14. Ringdal GI, Jordhøy MS, Kaasa S. Family satisfaction with end-of-life care for cancer patients in a cluster, randomized trial. J Pain Symptom Manage 2002; 24: 51-61.
15. Fackhoury WKH, McCarthy M, Addington-Hall J. Carer's health status: is it associated with their evaluation of the quality of palliative care? Scand J Soc Med 1997; 25: 296-301.
16. Higginson IJ, Finlay I, Goodwin DM, et al. Do hospital-based palliative teams improve care for patients or families at the end of life? J Pain Symptom Manage 2002; 23: 96-106.
17. Addington-Hall JM, MacDonald LD, Anderson HR, et al. Randomised controlled trial of co-ordinating care for terminally ill cancer patients. BMJ 1992; 305: 1317-22.
18. Grande GE, Todd CJ, Farquar MC. A randomized controlled trial of a hospital at home service for the terminally ill. Palliat Med 2000; 14: 375-85.
19. Hughes SL, Cummings J, Weaver F, et al. A randomized trial of the cost effectiveness of VA hospital-based home care for the terminal ill. Health Serv Res 1992; 26: 801-17.
20. Kane RL, Bernstein L, Males J, et al. A randomized controlled trial of hospice care. Lancet 1984; 1: 890-94.
21. McCorkle R, Benoliel JQ, Donaldson G, et al. A randomized clinical trial of home nursing care for lung cancer patients. Cancer 1989; 64: 1375-82.
22. Zimmer JG, Groth-Junker A, McCusker J. A randomized controlled study of a home health care team. Am J Public Health 1985; 75: 134-41.
23. Cameron JI, Franche RL, Cheung AM, Stewart DE. Lifestyle interference and emotional distress in family caregivers of advanced cancer patients. Cancer 2002; 94: 521-27.
24. Axelsson B, Sjoden PO. Quality of life of cancer patients and their spouses in palliative home care. Palliat Med 1998; 12: 29-39.
25. Given CW, Sommel M, Given B, Osuch J, Kurtz ME, Kurtz JC. The influence of the cancer patient's symptoms, functional states on patient's depression and family caregiver's reaction and depression. Health Psychol 1993; 12: 277-85.
26. Kristjanson LJ, Sloan JA, Adaskin E. Family members' perceptions of palliative cancer care: predictors of family functioning and family members' health. J Palliat Care 1996; 12: 10-20.
27. Cameron J, Parkes CM. Terminal care: evaluation of effects on surviving family of care before and after bereavement. Postgrad Med J 1983; 59: 73-78.
28. Mor V, Allen S, Malin M. The psychosocial impact of cancer on older versus younger patients and their families. Cancer 1994; 74: 2118-27.
29. Barusch AS, Spaid WM. Gender differences in caregiving: why do wives report greater burden? Gerontologist 1989; 29: 667-76.
30. Hagedoorn M, Buunk BP, Kuijer RG, Wobbes T, Sanderman R. Couples dealing with cancer: role and gender differences regarding psychological distress and quality of life. Psycho-Oncology 2000; 9: 232-42.
31. Young RF, Kahana E. Specifying caregiver outcomes: gender and relationship aspects of caregiver strain. Gerontologist 1989; 29: 660-66.
32. Weitzner MA, Haley WE, Chen HB. The family caregiver of the older cancer patient. Hematol-Oncol Clin N Am 2000; 14: 269-77.
33. Weitzner MA, McMillan SC, Jacobsen PB. Family caregivers quality of life: differences between curative and palliative cancer treatment settings. J Pain Symptom Manage 1999; 17: 418-28.
34. Jordhøy MS, Kaasa S, Fayers P, Øvrenes T, Underland G, Ahlner-Elmqvist M. Challenges in palliative care research; recruitment, attrition and compliance: experience from a randomized controlled trial. Palliat Med 1999; 13: 299-310.
35. Jordhøy MS, Fayers P, Saltnes T, Ahlner-Elmqvist M, Kaasa S. A palliative-care intervention and death at home: a cluster ranomized trial. Lancet 2000; 356: 888-93.
36. Bornstein PE, Clayton PJ. The anniversary reaction. Dis Nerv Sys 1972; 3: 470-72.
37. Parkes CM. The first year of bereavement. A longitudinal study of the reaction of London widows to the death of their husbands. Psychiatry 1971; 33: 444-67.
38. Ware JE, Sherbourne, CD. The MOS 36-item short-form health survey (SF-36). I. Conceptual framework and item selection. Med Care 1992; 30: 473-83.
39. Jenkinson C, Layte R, Lawrence K. Development and testing of the Medical Outcome Study 36-item Short Form Health Survey Summary Scale Scores in the United kingdom. Results from a large-scale Survey and a clinical trial. Med Care 1997; 35: 410-16.
40. McHorney CA, Ware JE, Raczek AE. The MOS 36-item short-form health survey (SF-36): II. Psychometric and clinical tests of validity in measuring physical and mental health constructs. Med Care 1993; 31: 247-63.
41. Loge JH, Kaasa S. Short form 36 (SF-36) health survey: normative data from the general Norwegian population. Scand J Soc Med 1998; 26: 250-58.
42. Jenkinson C, Coulter A, Wright L. Short form 36 (SF-36) health survey questionnaire: normative data for adults of working age. BMJ 1993; 306: 1437-40.
43. Diggle P, Kenward MG. Informative drop-out in longitudinal data analysis. J Royal Statist Soc 1994; 43: 49-93.