Ethical issues in the perioperative management of neurologic patients

Neurologic Clinics

Volumn 22, Issue 2, 2004, Pages 457-471

  Bernat, James L ^a  

^a DARTMOUTH MEDICAL SCHOOL   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

BRAIN DEATH; CUSTODY; HUMAN; INFORMED CONSENT; LEGAL ASPECT; LIVING WILL; MEDICAL DECISION MAKING; MEDICAL ETHICS; NEUROLOGIC DISEASE; PERIOPERATIVE PERIOD; PRIORITY JOURNAL; PROGNOSIS; REVIEW; SURGICAL PATIENT;

EID: 1642324215     PISSN: 07338619     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.ncl.2003.12.004     Document Type: Review

References (68)

1. Bernat JL. Ethical issues in neurology. 2nd edition. Boston: Butterworth-Heinemann; 2002.
2. Faden AI, Faden RR. Informed consent in medical practice with particular reference to neurology. Arch Neurol 1978;35:761-4.
3. Gert B, Culver CM, Clouser KD. Bioethics: a return to fundamentals. New York: Oxford University Press; 1997. p. 131-250.
4. Schneiderman LJ, Arras JD. Counseling patients to counsel physicians on future care in the event of patient incompetence. Ann Intern Med 1985;102:692-8.
5. Menikoff JA, Sachs GA, Siegler M. Beyond advance directives-health care surrogate laws. N Engl J Med 1992;327:1165-9.
6. Bernat JL. Areas of consensus in withdrawing life-sustaining treatment in the neurointensive care unit. Neurology 1999;52:1538-9.
7. Schneiderman LJ, Pearlman RA, Kaplan RM, et al. Relationship of general advance directive instructions to specific life-sustaining treatment preferences in patients with serious illness. Arch Intern Med 1992;152:2114-22.
8. Lee MA, Smith DM, Fenn DS, Ganzini L. Do patients' treatment decisions match advance statements of their preferences? J Clin Ethics 1998;9:258-62.
9. Joos SK, Reuler JB, Powell JL, et al. Outpatients' attitudes and understanding regarding living wills. J Gen Intern Med 1993;8:259-63.
10. Eisendrath SJ, Jonsen AR. The living will: help or hindrance? JAMA 1983;249:2054-8.
11. Lynn J. Why I don't have a living will. Law Med Health Care 1991;19:101-4.
12. Annas GJ. The health care proxy and the living will. N Engl J Med 1991;324:1210-3.
13. Tulsky JA, Fischer GS, Rose MR, Arnold RM. Opening the black box: how do physician communicate about advance directives? Ann Intern Med 1998;129:441-9.
14. Goldblatt D. A messy necessary end: health care proxies need our support. Neurology 2001;56:148-52.
15. Bernat JL. Plan ahead: how neurologists can enhance patient-centered medicine. Neurology 2001;56:144-5.
16. Finucane TE, Beamer BA, Roca RP, et al. Establishing advance medical directives with demented patients: a pilot study. J Clin Ethics 1993;4:51-4.
17. Kohut N, Sam M, O'Rourke K, MacFadden DK, Salit I, Singer PA. Stability of treatment preferences: although most preferences do not change, most people change some of their preferences. J Clin Ethics 1997;8:124-35.
18. Youngner SJ. Do-not-resuscitate orders: no longer secret, but still a problem. Hastings Cent Rep 1987;17(1):24-33.
19. Curtis JR, Park DR, Krone MR, Pearlman RA. Use of the medical futility rationale in donot-attempt-resuscitation orders. JAMA 1995;273:124-8.
20. Ballew KA, Philbrick JT, Caven DE, Schorling JB. Predictors of survival following inhospital cardiopulmonary resuscitation. Arch Intern Med 1994;154:2426-32.
21. Bernat JL, Grabowski EW. Suspending do-not-resuscitate orders during anesthesia and surgery. Surg Neurol 1993;40:7-9.
22. Truog RD, Waisel DB, Burns JP. DNR in the OR: a goal-directed approach. Anesthesiology 1999;90:289-95.
23. Margolis JO, McGrath BJ, Kussin PS, Schwinn DA. Do not resuscitate (DNR) orders during surgery: ethical foundations for institutional policies in the United States. Anesth Analg 1995;80:806-9.
24. Fried TR, Bradley EH, Towle VR, Allore H. Understanding the treatment preferences of seriously ill patients. N Engl J Med 2002;346:1061-6.
25. Pearlman RA, Cain KC, Patrick DL, Appelbaum-Maizel M, Starks HE. Insights pertaining to patient assessments of states worse than death. J Clin Ethics 1993;4:33-41.
26. Bernat JL. Ethical aspects of determining and communicating prognosis in critical care. Neurocritical Care 2004;1:107-18.
27. Shewmon DA, De Giorgio CM. Early prognosis in anoxic coma. Neurol Clin 1989;7:823-43.
28. Becker KJ, Baxter AB, Cohen WA, et al. Withdrawal of support in intracerebral hemorrhage may lead to self-fulfilling prophecies. Neurology 2001;56:766-72.
29. Christakis NA. Prognostication and bioethics. Daedalus 1999;128:197-214.
30. Annas GJ. Informed consent, cancer, and truth in prognosis. N Engl J Med 1994;330:223-5.
31. Katz J. Why doctors don't disclose uncertainty. Hastings Cent Rep 1984;14(1):35-44.
32. Christakis NA, Iwashnya TJ. Attitude and self-reported practice regarding prognostication in a national sample of internists. Arch Intern Med 1998;158:2389-95.
33. SUPPORT Principal Investigators. A controlled trial to improve care for seriously ill hospitalized patients. The Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatment (SUPPORT). JAMA 1995;274:1591-8.
34. Tversky A, Kahneman D. The framing of decisions and the psychology of choice. Science 1981;211:453-8.
35. Malenka DJ, Baron JA, Johansen S, et al. The framing effect of relative and absolute risk. J Gen Intern Med 1993;8:543-8.
36. Mazur DJ, Hickam DH. Patients' interpretations of probability terms. J Gen Intern Med 1991;6:237-40.
37. Blackhall LJ, Murphy ST, Frank G, Michel V, Azen A. Ethnicity and attitudes toward patient autonomy. JAMA 1995;274:820-5.
38. Jecker NS, Carrese JA, Pearlman RA. Caring for patients in cross-cultural settings. Hastings Cent Rep 1995;25(1):6-14.
39. Crawley LM, Marshall PA, Lo B, Koenig BA. Strategies for culturally effective end-of-life care. Ann Intern Med 2002;136:673-9.
40. Raffin TA. Withdrawing life support: how is the decision made? JAMA 1995;273:738-9.
41. Prendergast TJ, Claessens MT, Luce JM. A national survey of end-of-life care for critically ill patients. Am J Respir Crit Care Med 1998;158:1163-7.
42. Carver AC, Vickrey BG, Bernat JL, Keran C, Ringel SP, Foley KM. End of life care: a survey of US neurologists' attitudes, behavior, and knowledge. Neurology 1999;53:284-93.
43. Mayer SA, Kossoff SB. Withdrawal of life support in the neurological intensive care unit. Neurology 1999;52:1602-9.
44. Lo B, Steinbrook R. Beyond the Cruzan case: the US Supreme Court and medical practice. Ann Intern Med 1991;114:895-901.
45. Rosner F. Why nutrition and hydration should not be withheld from patients. Chest 1993;104:1892-6.
46. Steinbrook R, Lo B. Artificial feeding-solid ground, not a slippery slope. N Engl J Med 1988;318:286-90.
47. Daily BJ, Thomas DT, Dyer MA. Procedures used in withdrawal of mechanical ventilation. Am J Crit Care 1996;5:331-8.
48. Brody H, Campbell ML, Faber-Langendoen K, Ogle KS. Withdrawing intensive lifesustaining treatment - recommendations for compassionate clinical management. N Engl J Med 1997;336:652-7.
49. O'Toole EE, Youngner SJ, Juknialis BW, Daly B, Bartlett ET, Landefeld CS. Evaluation of a treatment limitation policy with a specific treatment-limiting order page. Arch Intern Med 1994;154:425-32.
50. Molloy DW, Clarnette RM, Braun EA, et al. Decision making in the incompetent elderly: "the daughter from California syndrome." J Am Geriatr Soc 1991;39:396-9.
51. Terry PB, Vettese M, Song J, et al. End-of-life decision making: when patients and surrogates disagree. J Clin Ethics 1999;10:286-93.
52. Spike J, Greenlaw J. Ethics consultation: refusal of beneficial treatment by a surrogate decision maker. J Law Med Ethics 1995;23:202-4.
53. Wijdicks EFM. Brain death worldwide: accepted fact but no global consensus in diagnostic criteria. Neurology 2002;58:20-5.
54. Wijdicks EF. Determining brain death in adults. Neurology 1995;45:1003-11.
55. Mejia RE, Pollack MM. Variability in brain death determination practices in children. JAMA 1995;274:550-3.
56. Youngner SJ, Landefeld S, Coulton CJ, et al. "Brain death" and organ retrieval: a cross-sectional survey of knowledge and concepts among health professionals. JAMA 1989;261:2205-10.
57. Shewmon DA. Brainstem death, "brain death" and death: a critical re-evaluation of the purported equivalence. Issues Law Med 1998;14:125-45.
58. Veatch RM. The impending collapse of the whole-brain definition of death. Hastings Cent Rep 1993;23(4):18-24.
59. Byrne PA, O'Reilly S, Quay PM. Brain death - an opposing viewpoint. JAMA 1979;242:1985-90.
60. Furton EJ. Brain death, the soul, and organic life. National Catholic Bioethics Q 2002;2:455-70.
61. Rosner F. The definition of death in Jewish law. In: Youngner SJ, Arnold RM, Schapiro R, editors. The definition of death: contemporary controversies. Baltimore (MD): Johns Hopkins University Press; 1999. p. 210-21.
62. Yaqub BA, Al-Deeb SM. Brain death: current status in Saudi Arabia. Saudi Med J 1996;17:5-10.
63. Olick RS. Brain death, religious freedom, and public policy: New Jersey's landmark legislative initiative. Kennedy Inst Ethics J 1991;4:275-88.
64. Beresford HR. Brain death. Neurol Clin 1999;17:295-306.
65. Hardwig J. Treating the brain dead for the benefit of the family. J Clin Ethics 1991;2:53-6.
66. Cranford RE. Discontinuation of ventilation after brain death: policy should be balanced with concern for the family. BMJ 1999;318:1754-5.
67. Douglass GE, Daly M. Donor families' experience of organ donation. Anaesth Intensive Care 1995;23:96-8.
68. Pellegrino ED, Thomasma DC. The virtues in medical practice. New York: Oxford University Press; 1993.