Hope, disclosure, and control in the neonatal intensive care unit

Health Communication

Volumn 17, Issue 2, 2005, Pages 191-203

  Charchuk, Margo ^a   Simpson, Christy ^b  

^a UNIVERSITY OF ALBERTA   (Canada)

^b DALHOUSIE UNIVERSITY   (Canada)

Author keywords

[No Author keywords available]

Indexed keywords

ACCESS TO INFORMATION; CRITICAL ILLNESS; DIAGNOSTIC VALUE; EXPERIENCE; HEALTH CARE PERSONNEL; HOSPITAL ADMISSION; HUMAN; INTERPERSONAL COMMUNICATION; MEDICAL DECISION MAKING; MEDICAL INFORMATION; NEWBORN INTENSIVE CARE; NURSE PRACTITIONER; PARENTAL BEHAVIOR; PARENTAL NOTIFICATION; PATIENT SATISFACTION; REVIEW;

EID: 16244414615     PISSN: 10410236     EISSN: None     Source Type: Journal    
DOI: 10.1207/s15327027hc1702_5     Document Type: Review

References (39)

1. Affleck, G., Tennen, H., Rowe, J., & Higgins, P. (1990). Mothers' remembrances of newborn intensive care: A predictive study. Journal of Pediatric Psychology, 15, 67-81.
2. Bachman, D. H., & Lind, R. F. (1997). Perinatal social work and the family of the newborn intensive care infant. Social Work in Health Care, 24, 21-37.
3. Barnett, B. (2000). Whose baby is it? In N. Tracey (Ed.), Parents of premature infants: Their emotional world (pp. 215-228). London: Whurr Publishers Ltd.
4. Barnum, D. D., Snyder, C. R., Rapoff, M. A., Mani, M. M., & Thompson, R. (1998). Hope and social support in the psychological adjustment of children who have survived burn injuries and their matched controls. Children's Health Care, 27, 15-30.
5. Bialoskurski, M. M., Cox, C. L., & Wiggins, R. D. (2002). The relationship between maternal needs and priorities in a neonatal intensive care unit. Journal of Advanced Nursing, 37, 62-69.
6. Bogdan, R., Brown, M. A., & Bannerman Foster, S. (1982). Be honest but not cruel: Staff/parent communication on a neonatal unit. Human Organization, 41, 6-16.
7. Brown, G. W., & Harris, T. (1978). Social origins of depression. London: Tavistock.
8. Buehler, J. A. (1975). What contributes to hope in the cancer patient? American Journal of Nursing, 75, 1353-1356.
9. Chaplin, J., & McIntyre, R. (2001). Hope: An exploration of selected literature. In S. Kinghorn & R. Gamlin. (Eds.), Palliative nursing: Bringing comfort and hope (pp. 117-127). Edinburgh, Scotland: Bailliere Tindall.
10. Christakis, N. A. (1999). Death foretold: Prophecy and prognosis in medical care. Chicago: The University of Chicago Press.
11. Conner, J. M., & Nelson, E. C. (1999). Neonatal intensive care: Satisfaction measured from a parent's perspective. Pediatrics, 103, 336-349.
12. Doering, L. V., Moser, D. K., & Dracup, K. (2000). Correlates of anxiety, hostility, depression, and psychosocial adjustment in parents of NICU infants. Neonatal Network, 19(5), 15-23.
13. Dufault, K. S. P., & Martocchio, B. C. (1985). Hope: Its spheres and dimensions. Nursing Clinics of North America, 20, 379-391.
14. Farran, C. J., Herth, K. A., & Popovich, J. M. (1995). Hope and hopelessness: Critical clinical constructs. Thousand Oaks, CA: Sage.
15. Finkelstein, D., Wu, A. W., Holtzman, N. A., & Smith, M. K. (1997). When a physician harms a patient by a medical error: Ethical, legal and risk-management considerations. The Journal of Clinical Ethics, 8, 330-335.
16. Freedman, B. (1993). Offering truth: One ethical approach to the uninformed cancer patient. Archives of Internal Medicine, 153, 572-576.
17. Huber, D. T. (1999). Parents' lived experience with the admission of their newborn into a newborn intensive care unit: A phenomenological study (Doctoral dissertation, University of Utah, 1999). Dissertation Abstracts International, 59(07), 3347B.
18. Hurst, I. (2001). Vigilant watching over: Mothers' actions to safeguard their premature babies in the newborn intensive care nursery. Journal of Perinatal and Neonatal Nursing, 15(3), 39-57.
19. Irving, L. M., Snyder, C. R., & Crowson, J. J. (1998). Hope and coping with cancer by college women. Journal of Personality, 66, 197-214.
20. King, N. M. P. (1992). Transparency in neonatal intensive care. Hastings Centre Report, 22(3), 18-25.
21. Kirschbaum, M. S. (1990). Needs of parents of critically ill children. Dimensions of Critical Care Nursing, 9, 344-352.
22. Kodish, E., & Post, S. (1995). Oncology and hope. Journal of Clinical Oncology, 13, 1817-1822.
23. Leming, M. R., & Dickinson, G. E. (1998). Children and death. In Understanding dying, death and bereavement (4th ed., pp. 71-107). Fort Worth, TX: Harcourt Brace.
24. Miller, J. F. (1985). Inspiring hope. American Journal of Nursing, 85, 22-25.
25. Miller, J. F. (1989). Hope-inspiring strategies of the critically ill. Applied Nursing Research, 2, 23-39.
26. Miller, J. F., & Powers, M. J. (1988). Development of an instrument to measure hope. Nursing Research, 37, 6-10.
27. Miyaji, N. T. (1993). The power of compassion: Truth-telling among American doctors in the care of dying patients. Social Science and Medicine, 36, 249-264.
28. Moehn, D. G., & Rossetti, L. (1996). The effects of neonatal intensive care on parental emotions and attachment. Infant-Toddler Intervention, 6, 229-246.
29. Pinch, W. J., & Spielman, M. L. (1989). Parental voices in the sea of neonatal ethical dilemmas. Issues in Comprehensive Pediatric Nursing, 12, 423-435.
30. Pinch, W. J., & Spielman, M. L. (1996). Ethics in the neonatal intensive care unit: Parental perceptions at four years postdisharge. Advances in Nursing Science, 19, 72-85.
31. Ptacek, J. T., & Eberhardt, T. L. (1996). Breaking bad news. A review of the literature. Journal of the American Medical Association, 276, 496-502.
32. Redshaw, M. E., & Harris, A. (1995). Maternal perceptions of neonatal care. Acta Paediatrica, 84, 593-598.
33. Sardell, A. N., & Trierweiler, S. J. (1993). Disclosing the cancer diagnosis. Procedures that influence patient hopefulness. Cancer, 72, 3355-3365.
34. Sharp, M. C., Strauss, R. P., & Lorch, S. C. (1992). Communicating medical bad news: Parents' experiences and preferences. The Journal of Pediatrics, 121, 539-546.
35. Shellabarger, S. G., & Thompson, T. L. (1993). The critical times: Meeting parental communication needs throughout the NICU experience. Neonatal Network, 12(2), 39-45.
36. Staats, S. (1991). Quality of life and affect in older persons: Hope, time frames, and training effects. Current Psychology: Research & Reviews, 10, 21-30.
37. VandenBerg, K. A. (2000). Supporting parents in the NICU: Guidelines for promoting parent confidence and competence. Neonatal Network, 19(8), 63-64.
38. Wong-Wylie, G.. & Jevne, R. F. (1997). Patient hope: Exploring the interactions between physicians and HIV seropositive individuals. Qualitative Health Research, 7, 35-56.
39. Zaner, R. M., & Bliton, M. J. (1991). Decisions in the NICU: The moral authority of parents. Children's Health Care, 20, 19-25.