Reliability, validity and responsiveness of instruments to assess disabilities in personal care in patients with rheumatic disorders. A systematic review

Clinical and Experimental Rheumatology

Volumn 23, Issue 1, 2005, Pages 71-79

  Swinkels, Raymond A H M ^a,d   Dijkstra, Pieter U ^b   Bouter, Lex M ^c  

^a FREE UNIVERSITY OF BRUSSELS   (Belgium)

^b UNIVERSITY MEDICAL CENTER GRONINGEN   (Netherlands)

^c VU UNIVERSITY MEDICAL CENTER   (Netherlands)

^d NONE   (Netherlands)

Author keywords

Assessment; Measurement instrument; Methodological quality; Personal care; Rheumatic disorders; Systematic review

Indexed keywords

ADL DISABILITY; CORRELATION ANALYSIS; DATA ANALYSIS; DATA BASE; HUMAN; MEDICAL LITERATURE; METHODOLOGY; PRIORITY JOURNAL; QUESTIONNAIRE; RELIABILITY; REVIEW; RHEUMATIC DISEASE; SYSTEMATIC REVIEW; VALIDATION PROCESS;

ACTIVITIES OF DAILY LIVING; ADULT; DISABILITY EVALUATION; HEALTH STATUS INDICATORS; HUMANS; QUESTIONNAIRES; REPRODUCIBILITY OF RESULTS; RHEUMATIC DISEASES;

EID: 15844410525     PISSN: 0392856X     EISSN: None     Source Type: Journal    
DOI: None     Document Type: Review

References (85)

1. FEINSTEIN AR: Clinimetrics. New Haven, Yale University Press, 1987.
2. KIRSCHNER B, GUYATT GH: A methodological framework for assessing health indices. J Chron Dis 1985; 38:27-36.
3. BOMBARDIER C, TUGWELL P: Methodological considerations in functional assessment. J Rheumatol 1987; 14 (Suppl. 15): 6-10.
4. BECKERMAN H, BOUTER LM: Efficacy of physiotherapy for musculoskeletal disorders: what can we learn from research? Br J Gen Pract 1993; 43: 483-91.
5. McDOWELL I, NEWELL C: Measuring Health: A Guide To Rating Scales and Questionnaires. New York, Oxford University Press, 1987.
6. PORTNEY LG, WATKINS MP: Foundations of Clinical Research. Applications to Practice. Appleton and Lange, 2000: 1-722.
7. STREINER DL, NORMAN GR: Health Status Measurement Scales. A Practical Guide to Their Development and Use. 2nd ed., Oxford, Oxford University Press, 2003: 1-231.
8. JENSEN MP: Questionnaire validation: a brief guide for readers of the research literature. Clin J Pain 2003; 19: 345-52.
9. SWINKELS RAHM, VET HCWd, OOSTENDORP RAB, BOUTER LM: Construct validity of impairment measures in rheumatic disorders: Which constructs are selected for validation? 2004; submitted.
10. World Health Organization: International Statistical Classification of Diseases and Related Health Problems (ICD-10), 10th revision. Geneva, World Health Organisation, 1993.
11. World Health Organization: International Classification of Impairments, Disabilities and Handicaps: A Manual of Classification Relating to the Consequences of Disease. Geneva, World Health Organisation, 1980.
12. World Health Organization: International Classification of Functioning, Disabilities and Health Problems. Geneva, World Health Organization, 2001 (report).
13. SWINKELS RAHM: The ICF-classification as a system for structuring outcome assessment. Physiotherapy Singapore 2004; 7: 7-13.
14. STUCKI G, SIGL T: Assessment of the impact of disease on the individual. Best Pract Res Clin Rheumatol 2003; 17: 451-73.
15. OOSTENDORP RAB, ELVERS JWH, SWINKELS RAHM: Judgement list for reading articles. Amersfoort 1997, unpublished.
16. DeJONG A, MOLENAAR IW: An application of Mokken's model for stochastic cummulative scaling in psychiatric research. J Psychiatr Res 1987; 21: 137-49.
17. ELIASZIW M, YOUNG SL, WOODBURY MG, FRYDAY-FIELD K: Statistical methodology for the concurrent assessment of inter-rater and intrarater reliability: using goniometric measurements as an example. Phys Ther 1994; 74: 777-88.
18. DOEGLAS D, KROL B, GUILLEMIN F et al.: The assessment of functional status in rheumatoid arthritis: a cross cultural, longitudinal comparison of the Health Assessment Questionnaire and the Groningen Activity Restriction Scale. J Rheumatol 1995; 22: 1834-43.
19. SWINKELS RA, OOSTENDORP RA, BOUTER LM: Which are the best instruments for measuring disabilities in gait and gait-related activities in patients with rheumatic disorders. Clin Exp Rheumatol 2004; 22: 25-33.
20. TERWEE CB, DEKKER FW, WIERSINGA WM, PRUMMEL MF, BOSSUYT PM: On assessing responsiveness of health-related quality of life instruments: guidelines for instrument evaluation. Qual Life Res 2003; 12: 349-62.
21. FITZPATRICK R, ZIEBLAND S, JENKINSON C, MOWAT A, MOWAT A: A comparison of the sensitivity to change of several health status instruments in rheumatoid arthritis. J Rheumatol 1993; 20: 429-36.
22. WALLSTON KA, BROWN GK, STEIN MJ, DOBBINS CJ: Comparing the short and long versions of the Arthritis Impact Measurement Scales. J Rheumatol 1989; 16: 1105-9.
23. ZIEBLAND S, FITZPATRICK R, JENKINSON C, MOWAT A, MOWAT A: Comparison of two approaches to measuring change in health status in rheumatoid arthritis: the Health Assessment Questionnaire (HAQ) and modified HAQ. Ann Rheum Dis 1992; 51: 1202-5.
24. HAYS RD, HAHN H, MARSHALL G: Use of the SF-36 and other health-related quality of life measures to assess persons with disabilities. Arch Phys Med Rehabil 2002; 83 (Suppl. 2): S4-S9.
25. SWINKELS RAHM, OOSTENDORP RAB, BOUTER LM, ENDE CHMvd: Measuring impairments in rheumatic disorders: what are the best instruments for allied health care? 2004; submitted.
26. COX-REIJVEN PL, VAN KREEL B, SOETERS PB: Bioelectrical impedance measurements in patients with gastrointestinal disease: validation of the spectrum approach and a comparison of different methods for screening for nutritional depletion. Am J Clin Nutr 2003; 78: 1111-9.
27. CHRISTENSEN AE, TOBIASSEN M, JENSEN TK, WIELANDT H, BAKKETEIG L, HOST A: Repeated validation of parental self-reported smoking during pregnancy and infancy: a prospective cohort study of infants at high risk for allergy development. Paediatr Perinat Epidemiol 2004; 18: 73-9.
28. VLAEYEN JWS, KOLE-SNIJDERS AMJ, ROTTEVEEL AM, RUESINK R, HEUTS PHTG: The role of fear of movement/(re)injury in pain disability. J Occup Rehabil 1995; 5: 235-52.
29. MEENAN RF, ANDERSON JJ, KAZIS LE et al.: Outcome assessment in clinical trials. Evidence for the sensitivity of a health status measure. Arthritis Rheum 1984; 27: 1344-52.
30. MEENAN RF, GERTMAN PM, MASON JH: Measuring health status in arthritis. The arthritis impact measurement scales. Arthritis Rheum 1980; 23: 146-52.
31. KAZIS LE, ANDERSON JJ, MEENAN RF: Effect sizes for interpreting changes in health status. Med Care 1989; 27 (Suppl.): S178-S189.
32. ANDERSON JJ, FIRSCHEIN HE, MEENAN RF: Sensitivity of a health status measure to short-term clinical changes in arthritis. Arthritis Rheum 1989; 32: 844-50.
33. HIDDING A, SANTEN Mv, KLERK ED, GIELEN X, BOERS M: Discordance between self-report measures and clinical observations of functional disability in ankylosing spondylitis, rheumatoid arthritis and fibromyalgia. Group physical therapy in ankylosing spondylitis (thesis). Meppel, Krips Repro, 1993: 94-104.
34. BUCHBINDER R, BOMBARDIER C, YEUNG M, TUGWELL P: Which outcome measures should be used in rheumatoid arthritis clinical trials? Clinical and quality-of-life measures' responsiveness to treatment in a randomized controlled trial. Arthritis Rheum 1995; 38: 1568-80.
35. ANDERSON JJ, CHERNOFF MC: Sensitivity to change of rheumatoid arthritis clinical trial outcome measures. J Rheumatol 1993; 20: 535-7.
36. POTTS MK, BRANDT KD: Evidence of the validity of the Arthritis Impact Measurement Scales. Arthritis Rheum 1987; 30: 93-6.
37. MEENAN RF, MASON JH, ANDERSON JJ, GUCCIONE AA, KAZIS LE: AIMS2. The content and properties of a revised and expanded Arthritis Impact Measurement Scales Health Status Questionnaire. Arthritis Rheum 1992; 35: 1-10.
38. LIANG MH, LARSON MG, CULLEN KE, SCHWARTZ JA: Comparative measurement efficiency and sensitivity of five health status instruments for arthritis research. Arthritis Rheum 1985; 28: 542-7.
39. MEENAN RF, GERTMAN PM, MASON JH, DUNAIF R: The arthritis impact measurement scales. Further investigations of a health status measure. Arthritis Rheum 1982; 25: 1048-53.
40. KEEFE FJ, CALDWELL DS, QUEEN KT et al.: Pain coping strategies in osteoarthritis patients. J Consult Clin Psychol 1987; 55: 208-12.
41. LIANG MH, FOSSEL AH, LARSON MG: Comparisons of five health status instruments for orthopedic evaluation. Med Care 1990; 28: 632-42.
42. GOEPPINGER J, DOYLE MA, CHARLTON SL, LORIG K: A nursing perspective on the assessment of function in persons with arthritis. Res Nurs Health 1988; 11: 321-31.
43. JACOBS JW, OOSTERVELD FG, DEUXBOUTS N et al.: Opinions of patients with rheumatoid arthritis about their own functional capacity: how valid is it? Ann Rheum Dis 1992; 51: 765-8.
44. DUFFY CM, WATANABE DUFFY KN, GLADMAN DD et al.: The utility of the arthritis impact measurement scales for patients with psoriatic arthritis. J Rheumatol 1992; 19: 1727-32.
45. HAWLEY DJ, WOLFE F: Sensitivity to change of the health assessment questionnaire (HAQ) and other clinical and health status measures in rheumatoid arthritis: results of short-term clinical trials and observational studies versus long-term observational studies. Arthritis Care Res 1992; 5: 130-6.
46. VLIET VLIELAND TP, van der WIJK TP, JOLIE IM, ZWINDERMAN AH, HAZES JM: Determinants of hand function in patients with rheumatoid arthritis. J Rheumatol 1996; 23: 835-40.
47. WEINBERGER M, SAMSA GP, TIERNEY WM, BELYEA MJ, HINER SL: Generic versus disease specific health status measures: comparing the sickness impact profile and the arthritis impact measurement scales. J Rheumatol 1992; 19: 543-6.
48. HUSTED J, GLADMAN DD, FAREWELL VT, LONG JA: Validation of the revised and expanded version of the Arthritis Impact Measurement Scales for patients with psoriatic arthritis. J Rheumatol 1996; 23: 1015-9.
49. GOOSSENS PH, HEEMSKERK B, van TONGEREN J, ZWINDERMAN AH, VLIELAND TP, HUIZINGA TW: Reliability and sensitivity to change of various measures of hand function in relation to treatment of synovitis of the metacarpophalangeal joint in rheumatoid arthritis. Rheumatology (Oxford) 2000; 39: 909-13.
50. RIEMSMA RP, TAAL E, RASKER JJ, HOUTMAN PM, Van PAASSEN HC, WIEGMAN O: Evaluation of a Dutch version of the AIMS2 for patients with rheumatoid arthritis. Br J Rheumatol 1996; 35: 755-60.
51. OOSTERVELD FGJ, JACOBS JWG, DEUXBOUTS N, RASKER JJ, DEQUEKER J, TAAL E: De DUTCH-AIMS bij RA: een goede maat voor fysiek funictioneren. Ned Tijdschr Fysioth 1990; 100: 317-9.
52. TAAL E, JACOBS JW, SEYDEL ER, WIEGMAN O, RASKER JJ: Evaluation of the Dutch arthritis Impact Measurement Scales (DUTCH-AIMS) in patients with rheumatoid arthritis. Br J Rheumatol 1989; 28: 487-91.
53. KEMPEN GIJM, DOEGLAS DM, SUURMEIJER ThPBM: Groningen Activiteiten Restrictie Schaal (GARS). Handleiding. 1-31. Groningen, Noordelijk Centrum voor Gezondheidsvraagstukken 1993 (report).
54. SUURMEIJER TP, DOEGLAS DM, MOUM T et al.: The Groningen Activity Restriction Scale for measuring disability: its utility in international comparisons. Am J Public Health 1994; 84: 1270-3.
55. LEIGH JP, FRIES JF: Predictors of disability in a longitudinal sample of patients with rheumatoid arthritis. Ann Rheum Dis 1992; 51: 221-7.
56. WOLFE E CATHEY MA: The assessment and prediction of functional disability in rheumatoid arthritis. J Rheumatol 1991; 18: 1298-306.
57. van DEN ENDE CH, BREEDVELD FC, DIJKMANS BA, HAZES JM: The limited value of the Health Assessment Questionnaire as an outcome measure in short term exercise trials. J Rheumatol 1997; 24: 1972-7.
58. NORDENSKIOLD U, GRIMBY G: Assessments of disability in women with rheumatoid arthritis in relation to grip force and pain. Disabil Rehabil 1997; 19: 13-9.
59. PINCUS T, SUMMEY JA, SORACI SA Jr, WALLSTON KA, HUMMON NP: Assessment of patient satisfaction in activities of daily living using a modified Stanford Health Assessment Questionnaire. Arthritis Rheum 1983; 26: 1346-53.
60. DALTROY LH, LARSON MG, ROBERTS NW, LIANG MH: A modification of the Health Assessment Questionnaire for the spondyloarthropathies. J Rheumatol 1990; 17: 946-50.
61. SIEGERT CE, VLEMING LJ, VANDEN-BROUCKE JP, CATS A: Measurement of disability in Dutch rheumatoid arthritis patients. Clin Rheumatol 1984; 3: 305-9.
62. WOLFE F, KLEINHEKSEL SM, CATHEY MA, HAWLEY DJ, SPITZ PW, FRIES JF: The clinical value of the Stanford Health Assessment Questionnaire Functional Disability Index in patients with rheumatoid arthritis. J Rheumatol 1988; 15: 1480-8.
63. HUSTED JA, GLADMAN DD, LONG JA, FAREWELL VT: A modified version of the Health Assessment Questionnaire (HAQ) for psoriatic arthritis. Clin Exp Rheumatol 1995; 13: 439-43.
64. GARDINER PV, SYKES HR, HASSEY GA, WALKER DJ: An evaluation of the Health Assessment Questionnaire in long-term longitudinal follow-up of disability in rheumatoid arthritis. Br J Rheumatol 1993; 32: 724-8.
65. FITZPATRICK R, NEWMAN S, LAMB R, SHIPLEY M: A comparison of measures of health status in rheumatoid arthritis. Br J Rheumatol 1989; 28: 201-6.
66. HURST NP, KIND P, RUTA D, HUNTER M, STUBBINGS A: Measuring health-related quality of life in rheumatoid arthritis: validity, responsiveness and reliability of EuroQol (EQ-5D). Br J Rheumatol 1997; 36: 551-9.
67. BLALOCK SJ, SAUTER SV, DEVELLIS RF: The Modified Health Assessment Questionnaire Difficulty Scale. A health status measure revisited. Arthritis Care Res 1990; 3: 182-8.
68. STUCKI G, STUCKI S, BRUHLMANN P, MICHEL BA: Ceiling effects of the Health Assessment Questionnaire and its modified version in some ambulatory rheumatoid arthritis patients. Ann Rheum Dis 1995; 54: 461-5.
69. BLACKMORE MG, GLADMAN DD, HUSTED J, LONG JA, FAREWELL VT: Measuring health status in psoriatic arthritis: the Health Assessment Questionnaire and its modification. J Rheumatol 1995; 22: 886-93.
70. BRAZIER JE, HARPER R, MUNRO J, WALTERS SJ, SNAITH ML: Generic and condition-specific outcome measures for people with osteoarthritis of the knee. Rheumatology (Oxford) 1999; 38: 870-7.
71. FRIES JF, SPITZ P, KRAINES RG, HOLMAN HR: Measurement of patient outcome in arthritis. Arthritis Rheum 1980; 23: 137-45.
72. HUISKES CJAE, KRAAIMAAT FW, BIJLSMA JW: De ontwikkeling van de IRGL. Gedrag & Gezondheid 1990; 18: 78-89.
73. HUISKES CJAE, KRAAIMAAT FW, BIJLSMA JWJ: Development of a self-report questionnaire to assess the impact of rheumatic diseases on health and lifestyle. J Rehabil Sciences 1990; 3: 65-70.
74. BORSTLAP M, ZANT JL, van SOESBERGEN RM, van der KORST JK: Quality of life assessment: a comparison of four questionnaires: for measuring improvements after total hip replacement. Clin Rheumatol 1995; 14: 15-20.
75. BIJLSMA JW, HUISKES CJ, KRAAIMAAT FW, VANDERVEEN MJ, HUBER-BRUNING O: Relation between patients' own health assessment and clinical and laboratory findings in rheumatoid arthritis. J Rheumatol 1991; 18: 650-3.
76. MacKENZIE CR, CHARLSON ME, DiGIOIA D, KELLY K: Can the Sickness Impact Profile measure change? An example of scale assessment. J Chron Dis 1986; 39: 429-38.
77. MATTSSON E, BROSTROM LA: The physical and psychosocial effect of moderate osteoarthrosis of the knee. Scand J Rehabil Med 1991; 23: 215-8.
78. DEYO RA, INUI TS, LEININGER JD, OVERMAN SS: Measuring functional outcomes in chronic disease: a comparison of traditional scales and a self-administered health status questionnaire in patients with rheumatoid arthritis. Med Care 1983; 21: 180-92.
79. BERGNER M, BOBBITT RA, CARTER WB, GILSON BS: The Sickness Impact Profile: development and final revision of a health status measure. Medical Care 1981; 19: 787-804.
80. de BRUIN AF, BUYS M, de WITTE LP, DIEDERIKS JP: The sickness impact profile: SIP-68, a short generic version. First evaluation of the reliability and reproducibility. J Clin Epidemiol 1994; 47: 863-71.
81. DEYO RA, INUI TS: Toward clinical applications of health status measures: sensitivity of scales to clinically important changes. Health Services Research 1984; 19: 275-89.
82. MARTIN DP, ENGELBERG R, AGEL J, SWIONTKOWSKI MF: Comparison of the Musculoskeletal Function Assessment Quenstionnaire with the Short Form-36, the Western Ontario and McMaster University Osteoarthritis Index, and the Sickness Impact Profile Health-status measures. J Bone Joint Surg 1997; 79.A (9, Sept.).
83. WITTE LD, JACOBS H, HORST FVD, LUTTIK A, JOOSTEN J, PHILIPSEN H: De waarde van de Sickness Impact Profile als maat voor het functioneren van patiënten. Gezondheid & Samenleving 1987; 8: 120-7.
84. SULLIVAN M, AHLMEN M, BJELLE A: Health status assessment in rheumatoid arthritis. I. Further work on the validity of the sickness impact profile. J Rheumatol 1990; 17: 439-47.
85. van LANKVELD W, van't PAD BP BAKKER J, TERWINDT S, FRANSSEN M, van RIEL P: Sequential occupational dexterity assessment (SODA): A new test to measure hand disability. J Hand Ther 1996; 9: 27-32.