Aging with a Long-Term Disability: Voices Unheard

Physical and Occupational Therapy in Geriatrics

Volumn 21, Issue 3, 2003, Pages 33-47

  Wiley, E Ann Moore ^a,b,c  

^a TEXAS WOMAN'S UNIVERSITY   (United States)

^b BAYLOR HEALTH CARE SYSTEM   (United States)

^c NONE   (United States)

Author keywords

Aging; Aging with a long term disability; Health; Narrative; Polio; Post polio syndrome; Qualitative research; Quality of life; Spinal cord injury; Well being

Indexed keywords

AGING; CHRONIC DISEASE; COPING BEHAVIOR; DECISION MAKING; DEMOGRAPHY; HUMAN; OCCUPATIONAL THERAPY; PHYSICAL DISABILITY; POSTPOLIOMYELITIS SYNDROME; QUALITATIVE ANALYSIS; QUALITY OF LIFE; REVIEW; SPINAL CORD INJURY; WELLBEING;

EID: 1542297782     PISSN: 02703181     EISSN: None     Source Type: Journal    
DOI: 10.1300/J148v21n03_03     Document Type: Review

References (62)

1. Campbell, M. (1996). A research perspective: Next steps in bridging the gap between aging and disability. Maximizing Human Potential: Quarterly Newsletter of the Aging, Disability and Rehabilitation Network of the American Society on Aging, 3(4): 1-2.
2. Carpenter, C. (1994). The experience of spinal cord injury: The individual's perspective-Implications for rehabilitation practice. Physical Therapy, 74, 614-627.
3. Carter, N. B. (2002). Snapshots: Polio Survivors Remember. Omaha, NE: NPSA Press.
4. Census.gov. Retrieved February 26, 2003, in http://www.census.gov/mso/www/pres_lib/65yrs/tsld007.htm
5. Charlifue, S. W., Weitzenkamp, D. A., & Whiteneck, G. G. (1999). Longitudinal outcomes in spinal cord injury: Aging, secondary conditions, and well-being. Archives of Physical Medicine and Rehabilitation, 80, 1429-1434.
6. Christianson, C. H. (1999). Defining lives: Occupation as identity: An essay on coherence, and the creation of meaning. American Journal of Occupational Therapy, 53, 547-558.
7. Clark, F., Carlson, M., Zemke, R., Frank, G., Patterson, K., Ennevor, B. L. et al. (1996). Life domains and adaptive strategies of a group of low-income, well older adults. American Journal of Occupational Therapy, 50, 99-108.
8. Clark, P. (1995). Quality of life, values, and teamwork in geriatric care: Do we communicate what we mean? The Gerontologist, 35, 402-411.
9. Crewe, N. M. (1990). Aging and severe physical disability: Patterns of change and implications for services. Educational Gerontology, 16, 525-534.
10. DeVivo, M. J. & Stover, S. L. (1995). Long-term survival and causes of death. In S. L. Stover, J. A. DeLisa, & G. G. Whiteneck (Eds.), Spinal Cord Injury: Clinical Outcomes from the Model Systems (p. 298). Gaithersburg, MD: Aspen Publishers, Inc.
11. Ellis, N. B. (1991). Aging, functional change, and adaptation. In J. Kiernat (Ed.), Occupational Therapy and the Older Adult: A Clinical Manual (pp. 26-42). Gaithersburg, MD: Aspen Publishers, Inc.
12. Gazette International Networking Institute, home page. Retrieved April 24, 2003 in http://www.post-polio.org/contact.html
13. Gerhart, K. S., Bergstrom, E., Charlifue, S. W., Menter, R. R., & Whiteneck, G. G. (1993). Long-term spinal cord injury: Functional changes over time. Archives of Physical Medicine and Rehabilitation, 74, 1030-1034.
14. Gilson, S. F., & Netting, F. H. (1997). When people with pre-existing disabilities age in place: Implications for social work practice. Health & Social Work, 2, 290-298.
15. Hammell, W. K. (1985). Spinal cord injury; quality of life; occupational therapy, Is there a connection? The British Journal of Occupational Therapy, 58, 151-157.
16. Hansen, N. S., Forchheimer, M., Tate, D. G., & Luera, G. (1998). Relationships among community reintegration, coping strategies, and life satisfaction in a sample of persons with spinal cord injury. Topics in Spinal Cord Injury Rehabilitation, 4(1), 56-72.
17. Hays, R. D., Hahn, H. H., & Marshall, G. (2002). Use of the SF-36 and other health-related quality of life measures to assess persons with disabilities. Archives of Physical Medicine and Rehabilitation, 83, S4-9.
18. Information about the late effects of polio. Retrieved from: http//www.post-polio. org/ipn/aboutlep.html
19. International Polio Network. Survivors of Polio. http://www.post-polio.org.
20. Jackson, J., Carlson, M., Mandel, D., Zemke, R., & Clark, F. (1998). Occupation in lifestyle redesign: The well elderly study occupational therapy program. American Journal of Occupational Therapy, 52, 326-336.
21. Johnson, J. (1985). Wellness: Its myths, realities, and potential for occupational therapy. In F. Cromwell (Ed.), Private Practice in Occupational Therapy (pp. 117-138). Binghamton, NY: The Haworth Press, Inc.
22. Jubelt, B. (2000). Characteristics and management of post polio syndrome. Journal of the American Medical Association, 284, 412-414.
23. Kemp, B., & Ettelson, D. (2001). Quality of life while living and aging with a spinal cord injury and other impairments. Topics in Spinal Cord Rehabilitation, 6, 116-127.
24. King, W. F. (1978). Problems of geriatrics. American Journal of Occupational Therapy, 3, 124-127.
25. Kleinman, A. K. (1988). The Illness Narratives: Suffering, Healing, and the Human Condition (p. xii). Basic Books, Inc., a subsidiary of Perseus Books, L. L. C.
26. Krause, J. S., & Sternberg, M. (1997). Aging and adjustment after spinal cord injury: The roles of chronologic age, time since injury, and environmental change. Rehabilitation Psychology, 42, 287-302.
27. Lammertse, D. P. (2001). Maintaining health long-term with spinal cord injury. Topics in Spinal Cord Injury, Rehabilitation, 6(3), 1-21.
28. Law, M., Steinwender, S., & Leclair, L. (1998). Occupation, health and well-being. Canadian Journal of Occupational Therapy, 65, 81-91.
29. Lewis, A. (1996). The benefits of highly valued leisure activities to persons who have acquired a disability. Unpublished Master's Thesis. Colorado State University, Fort Collins, CO.
30. Lewis, S. C. (1989). Eldercare in Occupational Therapy (pp.119-197). Thorofare, NJ: Slack.
31. Manns, P., & Chad, K. (2001). Components of quality of life for persons with a quadriplegic and paraplegic spinal cord injury. Qualitative Health Research, 11, 796-811.
32. McHorney, C. A., Ware, J. E., & Raczek, A. E. (1993). The MOS 36-item short form health survey (SF36): II. Psychometric and clinical tests of validity in measuring physical and mental health constructs. Medical Care, 31, 247-63.
33. McNeil, J. M. (1994). Americans with Disabilities, SB, 94-1. Washington, D.C.: Bureau of the Census.
34. McNeil, J. M. (1997a). Americans with Disabilities: 1994-1995. U.S. Bureau of the Census: Current Population Reports. Washington, D.C.: U.S. Government Printing Office.
35. McNeil, J. M. (1997b). Americans with Disabilities: 1997. Retrieved April 3, 2003, from http: //www.census.gov/hhes/www/disable/sipp/disab97/asc97.html
36. Morgan, D. L. (1988). Focus Groups as Qualitative Research (pp. 11, 12, 25). Newbury Park, CA: Sage.
37. Mosey, A. C. (1996). Applied scientific inquiry in the health professions: An epistemological orientation (p. 56). Bethesda, MD: The American Occupational Therapy Association, Inc.
38. National Health Interview Survey (NHIS). Disability in the United States: Prevalence and causes, 1992. Retrieved April 3, 2003, from http://www.ed.gov
39. National Institute of Health. (1996). Post-polio Syndrome Fact Sheet. Retrieved February 6, 2003, in http://www.ninds.nih.gov/health_and_medical/pubs/post-polio.htm
40. Nieves, C. C., Charter, A. R., & Aspinall, M. J. (1999). Relationship between effective coping and perceived quality of life in spinal cord injured patients. Rehabilitation Nursing, 16, 129-132.
41. Pentland, W., McColl, M. A., & Rosenthal, C. (1995). The effect of aging and duration of disability on long term health outcomes following spinal cord injury. Paraplegia, 33, 367-373.
42. Pentland, W., Walker, J., Minnes, P., Tremblay, M., Brouwer, B., & Gould, M. (2002). Women with spinal cord injury and the impact of aging. Spinal Cord, 40, 374-87. Population aged 65 and older. Retrieved February 26, 2003, from http://www. census.gov/mso/www/pres_lib/ 65yrs/tsld007.htm
43. Post-Polio Taskforce. Retrieved April 24, 2003, from http://www.post-polio.org/task/ task.html.
44. Reed, K. L., & Sanderson, S. N. (1992). Concepts of Occupational Therapy (pp. 54, 72). Baltimore: Williams & Wilkins.
45. Richards, J. S., Bombardier, C. H., Tate, D., Dijkers, M., Gordon, W., Scheuchuk, R. et al. (1999). Access to the environment and life satisfaction after spinal cord injury. Archives of Physical Medicine and Rehabilitation, 80, 1501-1506.
46. Sass, E. J., Gottfried, G., & Sorem, A. (1996). Polio's Legacy: An Oral History. Lanham, MD: University Press of America, Inc.
47. Scheer, J., & Luborsky, M. L. (1991). The cultural context of polio biographies. Orthopedics, 14. 1173-1181.
48. Schieman, S., & Turner, H. A. (1998). Age, disability, and the sense of mastery. Journal of Health and Social Behavior, 39, 169-186.
49. Schkade, J. K., & Schultz, S. (1992). Occupational adaptation: Toward a holistic approach to contemporary practice. Part I. American Journal of Occupational Therapy, 49, 829-837.
50. Schultz, S., & Schkade, J. K. (1992). Occupational adaptation: Toward a holistic approach to contemporary practice. Part II. American Journal of Occupational Therapy, 49, 917-925.
51. Seelman, K. (1999). Aging with a disability: Views from the National Institute on Disability and Rehabilitation Research. Assistive Technology, 11, 84-87.
52. Smith, N. R., Kielhofner, G., & Watts, J. H. (1986). The relationships between volition, activity pattern, and life satisfaction in the elderly. American Journal of Occupational Therapy, 40, 278-283.
53. Spencer, J., Hersch, G., Eschenfelder, V., Fournet, J., & Murray-Gerzik, M. (1999). Outcomes of protocol-based and adaptation-based occupational therapy interventions for low-income elderly persons on a transitional unit. American Journal of Occupational Therapy, 53, 159-170.
54. Spencer, J., Young, M. E., Rintala, D., & Bates, S. (1995). Socialization to the culture of a rehabilitation hospital: An ethnographic study. American Journal of Occupational Therapy, 49, 53-62.
55. Spinal cord injury: Facts and figures at a glance. (2001). Retrieved February 6, 2003 from http://www.spinalcord.uab.edu/show.asp?durki=21446
56. Stover, S. I., DeVivo, M. J., & Go, B. K. (1999). History, implementation, and current status of the national spinal cord injury database. Archives of Physical Medicine and Rehabilitation, 80, 1365-1371.
57. Strauss, A., & Corbin, J. (1990). Basics of Qualitative Research (p. 19). Newbury Park, CA: Sage.
58. Taylor, L. P., & McGruder, J. E. (1996). The meaning of sea kayaking for persons with spinal cord injuries. American Journal of Occupational Therapy, 50, 39-46.
59. Trieschmann, R. (1987). Health and physical disability. Aging bodies with disabilities. The psychological and environmental implications of aging (pp. 44-59, 60-105, 106-133). In Aging with a Disability. New York: Demos.
60. Ware, J. E., & Sherbourne, C. D. (1992). The MOS 36-item short-form health survey (SF-36): I. Conceptual framework and item selection. Medical Care, 30, 473-483.
61. Whiteneck, G. G., Charlifue, S. W., Frankel, H. L., Fraser, M. H., Gardner, B. P., Gerhart, K. A. et al. (1992). Mortality, morbidity, and psychosocial outcomes of persons spinal cord injured more than 20 years ago. Paraplegia, 30, 617-630.
62. Yerxa, E. J. (1998). Health and the human spirit for occupation. American Journal of Occupational Therapy, 52, 412-418.