Privacy, public safety, and medical research

Journal of Medical Systems

Volumn 29, Issue 1, 2005, Pages 81-90

  Peterson, Margaret G E ^a  

^a HOSPITAL FOR SPECIAL SURGERY   (United States)

Author keywords

Medical databases; Privacy; Research databases; Subject identification

Indexed keywords

ARTICLE; COMPUTER MODEL; DATA BASE; HUMAN; MEDICAL LITERATURE; MEDICAL PRACTICE; MEDICAL RESEARCH; ONLINE SYSTEM; POLITICS; POPULATION RESEARCH;

CLINICAL TRIALS; COMPUTER SECURITY; CONFIDENTIALITY; DATABASES, FACTUAL; HUMANS; MEDICAL RECORDS SYSTEMS, COMPUTERIZED; PERIODICALS;

EID: 15244344545     PISSN: 01485598     EISSN: None     Source Type: Journal    
DOI: 10.1007/s10916-005-1106-y     Document Type: Article

References (12)

1. Gostin, L., Health Care Information and the Protection of personal privacy: Ethical and legal considerations. Ann. Int. Med. 127:683-690, 1997.
2. Lazaridis, E., Database standardization, linkage and protection of privacy. Ann. Int. Med. 127:696, 1997.
3. Walterspiel, J. N. Correspondence: The privacy of medical records. And following answer. N. Engl. J. Med. 345:1576-1577, 2001.
4. Annas, G. J., Medical privacy and medical research - Judging the new regulations. N. Engl. J. Med. 346:216-219, 2002.
5. Kulynich, J., and Korn, D., The effect of the new federal medical-privacy rule on research. N Engl. J. Med. 346:201-204, 2002.
6. Silver, H. J., Human subjects' protection draws attention of many actors. Amstat News 8-9, March 2001.
7. Marshall, E., Data sharing: Clear-cut publication rules elusive. Science 295:1625, 2002.
8. Gibbs, M. R., Shanks, G., Lederman, R., and De Sliva, R., Privacy and customer data quality: Exploring the issues. Proc. Aust. Conf. Inform. Syst. 2002. Melbourne, Australia, 2002.
9. Fuller, B., and Ip, M., Privacy of genetic information: A review of the laws in the United States. Medinfo 10(Pt 2):1292-1295, 2001.
10. Botkin, J. R., McMahon, W. M., Smith, K. R., and Nash, J. E., Privacy and confidentiality in the publication of pedigrees. JAMA 279: 1808-1812, 1998.
11. de Carvalho, F. D., Dellaert, N. P., and de Sanches Osorio, M., Statistical disclosure in two-dimensional tables: General tables. JASA 89:1547-1557, 1994.
12. Campbell, E. G., Clarridge, B. R., Gokhale, M., Birenbaum, L., Hilgartner, S., Holtzman, N. A., and Blumenthal, D., Data withholding in Academic Genetics; evidence from a national survey. JAMA 287:473-480, 2002.