European cystic fibrosis society consensus on standards - A roadmap to "best care"

Journal of Cystic Fibrosis

Volumn 4, Issue 1, 2005, Pages 1-5

  Littlewood, Jim M ^a,b  

^a CYSTIC FIBROSIS TRUST   (United Kingdom)

^b ST JAMES S UNIVERSITY HOSPITAL   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

ANTIBIOTIC AGENT;

CLINICAL PRACTICE; CLINICAL TRIAL; COMPARATIVE STUDY; CONSENSUS; CYSTIC FIBROSIS; DISEASE SEVERITY; DRUG EFFICACY; EARLY DIAGNOSIS; EDITORIAL; EVIDENCE BASED MEDICINE; EXPERIENCE; FORCED EXPIRATORY VOLUME; HEALTH CARE DELIVERY; HEALTH CARE POLICY; HEALTH STATUS; HUMAN; INTERNET; LUNG FIBROSIS; LUNG INFECTION; LUNG TRANSPLANTATION; MEDICAL INFORMATION; MEDICAL SOCIETY; MORTALITY; PATIENT CARE; PATIENT MONITORING; PEDIATRIC HOSPITAL; PHYSICIAN ATTITUDE; PRACTICE GUIDELINE; PREDICTION; PROGNOSIS; RESPIRATORY FUNCTION DISORDER; SURVIVAL;

CYSTIC FIBROSIS; DELIVERY OF HEALTH CARE; EUROPE; HUMANS; PRACTICE GUIDELINES; SOCIETIES, MEDICAL;

EID: 14844282758     PISSN: 15691993     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.jcf.2004.12.001     Document Type: Editorial

References (49)

1. D.H. Andersen Cystic fibrosis of the pancreas and its relation to celiac disease: A clinical and pathological study Am. J. Dis. Child. 56 1938 344-399
2. M. Corey V. Farewell Determinants of mortality from cystic fibrosis in Canada, 1970-1989 Am. J. Epidemiol. 143 1996 1007-1017
3. J.A. Dodge S. Morison P.A. Lewis E.C. Coles D. Geddes G. Russell, et al. Incidence, population, and survival of cystic fibrosis in the UK, 1968-95 Arch. Dis. Child. 77 1997 493-496
4. B. Frederiksen S. Laang C. Koch N. Hoiby Improved survival in the Danish center-treated cystic fibrosis patients: Results of aggressive treatment Pediatr. Pulmonol. 21 1996 153-158
5. L.W. Matthews C.F. Doershuk M. Wise G. Eddy H. Nudelman S. Spector A therapeutic regimen for patients with cystic fibrosis J. Pediatr. 65 1964 558-575
6. C.F. Doershuk L.W. Matthews A.S. Tucker H. Nudelman G. Eddy M. Wise, et al. Five-year clinical evaluation of therapeutic programme for patients with cystic fibrosis J. Pediatr. 65 1964 677-693
7. D.N. Crozier Cystic fibrosis: A not so fatal disease Pediatr. Clin. North Am. 21 1974 935-948
8. M. Szaff N. Hoiby E.W. Flensborg Frequent antibiotic therapy improves survival of cystic fibrosis patients with chronic Pseudomonas aeruginosa infection Acta Paediatr. Scand. 72 1983 651-657
9. P. Phelan E. Hey Cystic fibrosis mortality in England and Wales and in Victoria Australia Arch. Dis. Child. 59 1984 71-73
10. R. Mahadeva K. Webb R.C. Westerbeek N.R. Carroll M.E. Dodd D. Bilton Clinical outcome in relation to care in centres specialising in cystic fibrosis: Cross sectional study BMJ 316 1998 1771-1775
11. T.J. David Recent advances in management of cystic fibrosis J. R. Soc. Med. 80 Suppl. 15 1987 1
12. A. Pamukcu A. Bush R. Buchdal Effects of Pseudomonas aeruginosa colonisation on lung function and anthropometric variables in children with cystic fibrosis Pediatr. Pulmonol. 19 1995 10-15
13. B. Frederiksen S. Lanng C. Koch N. Hoiby Improved survival in the Danish center-treated cystic fibrosis patients: Results of aggressive treatment Pediatr. Pulmonol. 21 1996 153-158
14. L. Drittanti M.V. Masciovecchio J. Gabbarini M. Vega Cystic fibrosis: gene therapy or preventive gene transfer Gene Ther. 4 1997 1001-1003
15. B. Frederiksen C. Koch N. Hoiby Antibiotic treatment of initial colonization with Pseudomonas aeruginosa postpones chronic infection and prevents deterioration of pulmonary function in cystic fibrosis Pediatr. Pulmonol. 23 1997 330-335
16. J.M. Littlewood M.G. Miller A.T.M. Ghonheim C. Ramsden Nebulised colomycin for early Pseudomonas colonisation in cystic fibrosis Lancet I 1985 865
17. N.H. Valerius C. Koch N. Hoiby Prevention of chronic Pseudomonas aeruginosa infection in cystic fibrosis by early treatment Lancet 338 1991 725-726
18. T.W.R. Lee K.G. Brownlee M. Denton J.M. Littlewood S.P. Conway Reduction in prevalence of chronic Pseudomonas aeruginosa infection at a regional pediatric cystic fibrosis center Pediatr. Pulmonol. 37 2004 104-110
19. P.M. Farrell M.R. Kosorok M.J. Rock A. Laxova L. Zeng H.C. Lai, et al. Early diagnosis of cystic fibrosis through neonatal screening prevents severe malnutrition and improves long-term growth Pediatrics 107 2001 1-13
20. C. Koch N. Hoiby Cystic fibrosis: 7. Management in different countries. Cystic Fibrosis in Copenhagen Thorax 46 1991 385-386
21. K. Cheng R.L. Smyth J. Motley U. O'Hea D. Ashby Randomized controlled trials in cystic fibrosis (1966-1997) categorized by time, design, and intervention Pediatr. Pulmonol. 29 2000 1-7
22. R.L. Smyth K. Cheng J. Motley Systematic reviews in cystic fibrosis J. R. Soc. Med. 91 Suppl. 34 1998 19-24
23. M.A. Anselmo K.M. Lash E.S. Stieb K.E. Haver Cystic fibrosis on the Internet: A survey of site adherence to AMA guidelines Pediatrics 114 2004 100-103
24. S.E. Straus G. Jones What has evidence based medicine done for us? BMJ 329 2004 987-988
25. Cystic Fibrosis Foundation Patient Registry 2000 Annual Report, Bethesda, MD, September 2001.
26. M.W. Konstan S.M. Butler D.V. Schidlow W.J. Morgan J.R. Julius C.A. Johnson et al. Patterns of medical practice in cystic fibrosis: Part 1. Evaluation and monitoring of health status of patients Pediatr. Pulmonol. 28 1999 242-247
27. J. Navarro M. Rainisio H.K. Harms M.E. Hodson C. Koch G. Mastella et al. Factors associated with poor pulmonary function: Cross-sectional analysis of data from the European epidemiologic registry of cystic fibrosis Eur. Respir. J. 18 2001 298-305
28. R.E. Wood F. Piazza Survival in cystic fibrosis: Correlation with treatment in three cystic fibrosis centers 10th International Cystic Fibrosis Congress, Sydney Excerpta Medica Asia Pacific Services vol. 74 1988 79
29. M.E. Wohl S.M. Butler C.A. Johnson Measuring outcomes in ESCF Pediatr. Pulmonol. Suppl. 17 1998 148-149
30. C.F. Doershuk The Matthews comprehensive treatment program; a ray of hope In: C.F. Doershuk editor. Cystic fibrosis in the 20th century 2001 AM Publishing Cleveland 63-78
31. C.F. Doershuk L.W. Mathews A.S. Tucker S. Spector Evaluation of a prophylactic and therapeutic programme for patients with cystic fibrosis Pediatrics 36 1965 675-688
32. C.T. Gillespie Nova Scotia Cystic fibrosis in the 20th century In: C.F. Doershuk editor. People, events and progress 2001 AM Publishing Cleveland 360-387
33. Cystic Fibrosis Foundation Guidelines for Patient Services, Evaluation, and Monitoring in Cystic Fibrosis Centers. Cystic Fibrosis Foundation Center Committee and Guidelines Cystic Fibrosis Foundation Subcommittee Am. J. Dis. Child. 144 1990 1311-1312
34. A.W. Wesley M.I. Asher J.D. Gillies P.K. Pattemore A. Kerr C. Hewitt Proposals for standards of cystic fibrosis management in New Zealand N. Z. Med. J. 109 1996 140-141
35. A. Jackson Clinical guidelines for cystic fibrosis care. Summary of guidelines prepared by a working group of the cystic fibrosis trust, the British paediatric association and the British Thoracic society J. R. Coll. Physicians Lond. 30 1996 305-308
36. Clinical practice guidelines for cystic fibrosis 1997 Cystic Fibrosis Foundation Bethesda (MD)
37. Cystic Fibrosis Care. Quality of Care Guidelines. Victorian Clinical Standards Advisory Group 1999.
38. Standards for the clinical care of children and adults with cystic fibrosis in the UK 2001 2001 UK Cystic Fibrosis Trust Bromley
39. Institute of Medicine A In: M.J. Field K.N. Lohr ediors. Guidelines for clinical practice: From development to use 1992 National Academy Press Washington
40. S.H. Woolf R. Grol A. Hutchinson M. Eccles J. Grimshaw Potential benefits, limitations, and harms of clinical guidelines BMJ 318 1999 527-530
41. B.M. Reilly The essence of EBM (evidenced based medicine). Practising what we preach remains a big challenge BMJ 329 2004 991-992
42. Standards for the treatment of people with cystic fibrosis J. Cyst. Fibros. 2005 [Need the appropriate reference here]
43. H. Quinton Using data to identify opportunities for change and to monitor progress Pediatr. Pulmonol. Suppl. 27 2004 124-125
44. B.C. Marshall Port to the future Pediatr. Pulmonol. Suppl. 27 2004 125-126
45. C.M. McDonald B.A. Chatfield K. Richards D. Haberman S. Gunnell Quality improvement: Attaining normal nutrition status and appropriate growth in children with CF Pediatr. Pulmonol. Suppl. 27 2004 351 [Abstract 462]
46. M. Corrigan J. Maddock A. Douglass J. Mukerjee A. Cairns Improving the management and sensitivity of screening for glucose intolerance and diabetes (CFRD) related to cystic fibrosis Pediatr. Pulmonol. Suppl. 27 2004 347 [Abstract 452]
47. P. Stroud J. Matel M. Helmers K. Shelton K. Boyle J. Asano, et al. Tools to improve adherence to CFF clinical guidelines Pediatr. Pulmonol. Suppl. 27 2004 353 [Abstract 466]
48. S. VandenBraden Going beyond "good enough": Improving cystic fibrosis care Pediatr. Pulmonol. Suppl. 27 2004 121-122
49. M.S. Schechter Key strategies for improving care Pediatr. Pulmonol. Suppl. 27 2004 121-122