Value-bifurcation in bioscience: The rhetoric of research justification

Perspectives on Science

Volumn 7, Issue 4, 1999, Pages 413-446

  Whitt, Laurie Anne ^a  

^a MICHIGAN TECHNOLOGICAL UNIVERSITY   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

EID: 14644388640     PISSN: 10636145     EISSN: 15309274     Source Type: Journal    
DOI: 10.1162/posc.1999.7.4.413     Document Type: Article

References (76)

1. Barnes, Barry. 1974. Scientific Knowledge and Sociological Theory. London: Routledge & Kegan Paul.
2. Beckwith, Jon. 1993. "Thinking of Biology: A Historical View of Social Responsibility in Genetics," BioScience 43, No. 5: 327-33.
3. Bereano, Philip. 1995. "Patent Pending: The Race to Own DNA" The Seattle Times, Sunday, (August 27). http://students.washington.edu/radin/guaymi.htm.
4. Berlan, Jean-Pierre. 1989. "The Commodification of Life," Monthly Review, December: 24-30.
5. Brenner, Sydney. 1991. "Old Ethics for New Issues," Science and Public Affairs (August): 35-38.
6. Burrows, Beth. 1994. "Life, Liberty, and the Pursuit of Patents," The Boycott Quarterly, 2(1): 32-35.
7. Butler, Declan. 1995. "Genetic diversity proposal fails to impress international ethics panel," Nature 377, 5 October: 373.
8. Cavalli-Sforza, L. Luca, A. C. Wilson, C.R. Cantor, R.M. Cook-Deegan, and M.C. King. 1991. "Call for A Worldwide Survey of Human Genetic Diversity: A Vanishing Opportunity for the Human Genome Project," Genomics 11:490-91.
9. Cavalli-Sforza, L.Luca and H.T. Greely. 1993. "Human Genome Diversity Project-Organizers' Response," July 8. http://bioc09.uthscsa.edu/natnet/archive/nl/9307/0046.html.
10. Ching, Kara H. 1997. "Indigenous Self-Determination in an Age of Genetic Patenting: Recognizing an Emerging Human Rights Norm." Fordham Law Review 66: 687-730.
11. Cook-Deegan, Robert. 1994. The Gene Wars. New York: W.W. Norton & Company.
12. Dulbecco, Renato. 1986. "A Turning Point in Cancer Research: Sequencing the Human Genome," Science 231:1055-56.
13. FAQ (Answers to "Frequently Asked Questions" regarding the HGDP). 1996. http://www.leland.stanford.edu/group/moprrinst/HGDP.html.
14. Fisher, Lawrence M. 1994. "Mining the Genome: Big Science as Big Business." The New York Times Section 1 (30 January): 1.
15. Friedlander, Jonathan. 1995. "Re: Papua New Guinea Patents." (October 25) Posted by Edward Hammond. http://bioc09.uthscsa.edu/natnet/archive/nl/9510/0285.html.
16. Garver, Kenneth L. and Bettylee Garver. 1994. "The Human Genome Project and Eugenic Concerns," American Journal of Human Genetics 54: 148-58.
17. Greely, Henry. 1993. "Re: DNA Probe Angers the 'Endangered.'" (12 October) http://bioc09.uthscsa.edu/natnet/archive/nl/9310/0173.html.
18. Greely, Henry. 1993b. "The HGD Project-A Response to SAIIC" (October 25). http://bioc09.uthscsa.edu/natnet/archive/nl/9310/0325.html.
19. Greely, Henry. 1994a. "Status of the HGD Project" (February 2). http://bioc09.uthscsa.edu/natnet/archive/nl/9402/0020.html.
20. Greely, Henry. 1994b. "An Update on the HGD Project" (May 6). http://bioc09.uthscsa.edu/natnet/archive/nl/9405/0055.html.
21. Greely, Henry. 1995a "Papua New Guinea Patents" (October 20). http://bioc09.uthscsa.edu/natnet/archive/nl/9510/0225.html.
22. Greely, Henry. 1995b. "Re: Papua New Guinea Patents" (October 25). http://bioc09.uthscsa.edu/natnet/archive/nl/9510/0319.html.
23. Gross, Paul R. and Norman Levitt. 1997. Higher Superstition: The Academic Left and Its Quarrel With Science. Baltimore, MD: Johns Hopkins University Press.
24. Gutin, Joan. 1994. "End of the rainbow." Discover 15, No.11: 70-5.
25. HGDP(Human Genome Diversity Project). 1993. "Summary of Planning Workshop 3(B): Ethical and Human Rights Implications." Bethesda, MD: HGDPOr ganizing Committee.
26. Human Genome News. 1995. "Patenting Statement Issued," Vol. 6, No. 6. http://www.ornl.gov/TechResources/Human_Genome?publicat/hgn/v6n6/5hugo.html.
27. Jaroff, L. 1989. "The Gene Hunt," Time. 20 March: 63-67.
28. Kahn, Patricia. 1994. "Genetic Diversity Project Tries Again," Science 266, No. 5186: 720-22.
29. Kenney, Martin. 1986. Biotechnology: The University-Industrial Complex, New Haven, CT: Yale University Press.
30. Koshland, D. 1989. "Sequences and Consequences of the Human Genome," Science 246:189.
31. Laudan, Larry. 1984. Science and Values. Berkeley, CA: University of California Press.
32. Lewontin, Richard C. 1992. "The Dream of the Human Genome," The New York Review of Books (May 28): 31-40.
33. Longino, Helen. 1990. Science as Social Knowledge. Princeton, NJ: Princeton University Press.
34. MacKenzie, Debora. "European Commission tables new proposals on genome research," New Scientist, 25 November: 24.
35. Marks, Jonathan. 1995a. "The Human Genome Diversity Project." Anthropology Newsletter April: 72.
36. Marks, Jonathan. 1995b. Human Biodiversity: Genes, Race and History. Hawthorne, NY: Aldine de Gruyter.
37. McLaughlin, Andrew. 1993. Regarding Nature. Albany, NY: SUNY Press.
38. McPherson, Elizabeth Clay. 1995. "Ethical Implications of the Human Genome Diversity Project," Nursing Connections 8, No. 1: 36-43.
39. Mead, Aroha Te Pareake. 1995. "Letter from Aroha Mead," (July 29). http://bioc09.uthscsa.edu/natnet/archive/nl/9510/0350.html.
40. Mooney, Pat and Edward Hammond. 1995. "Letter from Pat Mooney and Edward Hammond," (October 26). http://bioc09.uthscsa.edu/natnet/archive/nl/9510/0310.html.
41. Moore, John. 1994. "Putting Anthropology Back Together Again," American Anthropologist 96, No. 4: 925-41.
42. Murray, Thomas H. 1997. "Ethical Issues in Human Genome Research" in Technology and Values. Eds. Kristin Shrader-Frechette and Laura Westra. Lanham, MD: Rowman & Littlefield.
43. Nason, D. 1994. "Tickner warns over Aboriginal gene sampling," The Australian 25 January: 3.
44. NRC (National Research Council). 1996. "Study on the Proposed Human Genome Diversity Project: Request for Input and Notice of Public Meetings," (June 14). http://nativenet.uthscsa.edu/natnet/archive/nl/9606/0078.html.
45. NSF (National Science Foundation). 1996. "Pilot Projects for a Human Genome Diversity Project: Special Competition," (June 19). http://www.nsf.gov/pub/stis1996/nsf96112/nsf96112.txt.
46. Noble, Cheryl. 1982. "Ethics and Experts," Hastings Center Report, 12 (3): 7-9.
47. de Oliveira, Paulo Celso. 1996. "Brazil: Uru-eu-wau-wau Need Help," (March 25). http://bioc09.uthscsa.edu/natnet/archive/nl/9603/0182.html.
48. Osterhammel, Jürgen. 1997. Colonialism: A Theoretical Overview. Princeton, NJ: Markus Wiener.
49. Poincaré, Henri. 1905. The Value of Science. New York: Dover Publications.
50. Proctor, Robert N. 1991. Value-Free Science?: Purity and Power in Modern Knowledge. Cambridge, MA: Harvard University Press.
51. RAFI (Rural Advancement Foundation International). 1994. "Stealing Indigenous Genes," Abya Yala News 7 (2):10
52. RAFI (Rural Advancement Foundation International). 1997a. "Scientific Review Rejects the HGDP." (October 25). http://www.rafi.ca/ealleasis.
53. RAFI (Rural Advancement Foundation International). 1997b. "US Funding of Human Biodiversity Collections Carries on Despite Contrary Scientific Advice." (November 14). http://www.rafi.ca/ps/release08.html.
54. RAFI (Rural Advancement Foundation International). 1997c. "The Human Tissue Trade," RAFI COMMUNIQUE, Jan/Feb. http://www.rafi.ca.
55. Rix, Bo Andreassen. 1991. "Should Ethical Concerns Regulate Science?: The European Experience With the Human Genome Project," Bioethics 5 (3): 250-56.
56. Roberts, Jenna. 1993. "Global Project UnderWay To Sample Genetic Diversity." Nature 361:675.
57. Roberts, Leslie. 1991. "A Genetic Survey of Vanishing Peoples." Science 252: 1614-17.
58. Roberts, Leslie. 1992a. "How To Sample The World's Genetic Diversity." Science 257: 1204-5.
59. Roberts, Leslie. 1992b. "Genetic Diversity Project: Anthropologists Climb (Gingerly) On Board." Science 258, No. 5086: 1300-01.
60. SAIIC. 1993. Message posted to Native-l on 9 November. http://bioc09.uthscsa.edu/natnet/archive/nl.
61. Scipio, Philip. 1998. "Biotech IR: Life Without Earnings." Investor Relations Business, 20 July.
62. Senate, United States. 1993. "Human Genome Diversity Project: Hearing before the Committee on Governmental Affairs." Washington, DC: U.S. Government Printing Office: 1-82.
63. Sherwin, Sue. 1992. No Longer Patient. Philadelphia, PA: Temple University Press.
64. Skene, Loane. 1991. "Mapping the Human Genome: Some thoughts for those who say 'there should be a law on it'," Bioethics 5, No. 3: 233-49.
65. Stemerding, Dirk and Jaap Jelsma. 1996. "Compensatory Ethics for the Human Genome Diversity Project," Science as Culture 5, (24): 335-51.
66. Swazey, Judith. 1992. "Those Who Forget Their History: Lessons From the Recent Past for the Human Genome Quest," in Gene-Mapping, ed. G. Annas & S. Elias, Great Britain: Oxford University Press.
67. Tate, Warren. 1995. "A Report on the HRC Consensus Development Conference" Centre for Gene Research Newsletter. (August). http://biochem.otago.ac.nz:800/cgr/cgrnews.html (This issue has been deleted from the site; however, a copy is on file with the author).
68. Tauli-Corpus, Victoria. 1993. "We Are Part of Biodiversity. Respect Our Rights," Third World Resurgence, 36: 25-26.
69. UNESCO. 1995. Report of Subcommittee on Bioethics and Population Genetics of the UNESCO International Bioethics Committee. 15 November. http:/www.biol.tsukuba.ac.jp/~macer/PG.html.
70. Vicedo, Margo. 1992. "The Human Genome Project: Towards an analysis of the Empirical, Ethical, and Conceptual Issues Involved," Biology and Philosophy 7: 255-78.
71. Waldouz, Michael and Hilary Stout. 1992. The Wall Street Journal Vol. CCXIX, No. 76 (April 17): 1.
72. Watson, James D. 1990. "The Human Genome Project: Past, Present and Future," Science 248: 46.
73. Weiss, Mark. 1994. Message posted to Native-l on 3 March. Available online at http://bioc09.uthscsa.edu/natnet/archive/nl.
74. Whitt, Laurie Anne. 1998a. "Resisting Value-Bifurcation: Indigenist Critiques of the Human Genome Diversity Project." In Ann Ferguson and Bat Ami Bar- On, Daring To Be Good: Feminist Essays in Ethico-Politics. Great Britain: Routledge, Chapman and Hall.
75. Whitt, Laurie Anne. 1998b. "Indigenous Peoples, Intellectual Property and the New Imperial Science," Oklahoma City University Law Review 23, Nos. 1 & 2: 211-259.
76. Winner, Langdon. 1991. "The Social and Professional Responsibility of Engineers." In Deborah Johnson, Ethical Issues in Engineering. New Jersey: Prentice-Hall.