Patient advocacy and arthritis: Moving forward

Bulletin of the World Health Organization

Volumn 82, Issue 2, 2004, Pages 115-120

  Leong, Amye L ^a,b,c   Euller Ziegler, Liana ^d  

^a HEALTHY MOTIVATION   (United States)

^b Bone and Joint Decade   (France)

^c Intl Bone and Jt Decade Sec   (Sweden)

^d UNIVERSITÉ CÔTE D'AZUR   (France)

Author keywords

Arthritis prevention and control therapy; Intersectoral cooperation; Patient advocacy; Patient participation; Patient rights; Physician patient relations; Self care; Self help groups

Indexed keywords

HEALTH CARE;

ARTHRITIS; ASIA; AWARENESS; DOCTOR PATIENT RELATION; EUROPE; HUMAN; MEDICAL RESEARCH; NORTH AMERICA; PACIFIC ISLANDS; PATIENT ATTITUDE; PATIENT RIGHT; REVIEW; SELF CARE; SELF HELP; UNITED STATES;

ARTHRITIS; AUSTRALIA; EDUCATION, MEDICAL; EUROPE; HUMANS; NEW ZEALAND; NORTH AMERICA; PATIENT ADVOCACY; PATIENT EDUCATION; PATIENT PARTICIPATION; PATIENT-CENTERED CARE; PERSONAL AUTONOMY; PROGRAM DEVELOPMENT; SELF CARE; SOUTH AFRICA;

EID: 1442340178     PISSN: 00429686     EISSN: None     Source Type: Journal    
DOI: None     Document Type: Review

References (43)

1. Mayrilli R., et al. Patient empowerment and health care reform. WHO Collaborating Centre for Primary Health Care, Slovenia, 24 March 2000.
2. Gadow S. Existential advocacy: philosophical foundation of nursing. In: Spiker SF, Gadow S, editors. Nursing: images and ideals. New York: Springer Publishing; 1990. p.79-101.
3. Freire P. Pedagogy of the oppressed. New York: Continuum Publishing; 1970:52-67.
4. Feste C. A practical look at patient empowerment. Diabetes Care 1992;15:922-5.
5. Daltroy L. Doctor-patient communication in rheumatological disorders. Bailliere's Clinical Rheumatology 1993;7:221-39.
6. Holman HR. What could ideal care look like? In: Manning FJ, Barondess JA, editors. Changing health systems in rheumatic diseases. Washington (DC): Institute of Medicine Press; 1966. p. 3546.
7. Robbins L. Patient education and self-management. In Klippel J, editor. Primer on rheumatic diseases, edition 12, Atlanta (GA): Arthritis Foundation; 2001. p. 569-72.
8. Therapeutic patient education: continuing education programs for health care providers in the field of prevention of chronic diseases. Copenhagen: WHO Regional Office for Europe; 1998. Report of WHO Working Group.
9. Callahan L, Pincus T. Education, self-care and outcomes of rheumatic diseases: further challenges to the "biomedical model" paradigm. Arthritis Care Research 1997;10:283-8.
10. Ramos-Remus C, Salcedo-Rocha AL, Prieto-Parra RE, Galvan-Villegas F. How important is patient education? Bailliere's Clinical Rheumatology 2000;14:689-703.
11. Lorig KR, Mazonson PD, Holman HR. Evidence suggesting that health education for self-management in patients with chronic arthritis has sustained health benefits while reducing health care costs. Arthritis and Rheumatism 1993;36:439-46.
12. Goeppinger J, et al. A re-examination of the effectiveness of self-care education for persons with arthritis. Arthritis and Rheumatism 1989;32:706-16.
13. Mazzuca SA, et al. Reduced utilization and cost of primary care clinic visits resulting from self-care education for patients with osteoarthritis of the knee. Arthritis and Rheumatism 1999;42:1267-73.
14. Keefe FJ, et al. Spouse-assisted coping skills training in the management of osteoarthritis knee pain. Arthritis and Rheumatism 1996;9:279-91.
15. Maggs FM, Jubb RW, Kemm JR. Single-blind randomized controlled trial of an educational booklet for patients with chronic arthritis. British Journal of Rheumatology 1996;35:775-7.
16. Reimsma RP, et al. Coordinated individual education with an arthritis passport for patients with rheumatoid arthritis. Arthritis Care Research 1997;10:238-49.
17. Mullen PD, Laville EA, Biddle AK, Lorig K. Efficacy of psychoeductional interventions on pain, depression, and disability in people with arthritis: a meta-analysis. Journal of Rheumatology 1987;14 Suppl 15:33-9.
18. Callahan LF, Cordray DS, Wells G, Pincus T. Formal education and five-year mortality in rheumatoid arthritis: mediation by helplessness scale scores. Arthritis Care Research 1996;9:463-72.
19. Weinberger M, Tierney WM, Booher P, Katz BP. Can the provision of information to patients with osteoarthritis improve functional status? Arthritis and Rheumatism 1989;32:1577-83
20. Parker J, et al. Pain management in rheumatoid arthritis patients - a cognitive behavioral approach. Arthritis and Rheumatism 1988;31:593-601.
21. Daltroy L, Liang M. Arthritis education: opportunities and state of the art. Health Education Quarterly 1993;20:3-16.
22. Burckhardt C. Arthritis and musculoskeletal patient education standards. Arthritis Care Research 1994;7:1-4.
23. Lorig K, et al. Outcomes for self help education for patients with arthritis. Arthritis and Rheumatism 1985;28:680-5.
24. Edworthy SM. How important is self-management? Baillere's Clinical Rheumatology 2000;14:705-14.
25. Gonzalez V, Goeppinger J, Lorig K. Four psychosocial theories and their application to patient education and clinical practice. Arthritis Care Research 1990;3:132-43.
26. Lorig KR, Mazonson PD, Holman HR. Evidence suggesting that health education for self-management in patients with chronic arthritis has sustained health benefits while reducing health care costs. Arthritis and Rheumatism 1993;36:439-46.
27. Kruger JM, Helmick CG, Callahan LF, Haddix AC. Cost-effectiveness of the arthritis self-help course. Archives of Internal Medicine 1998;158:1245-9.
28. Branch VE, Lipsky PE. Positive impact of an intervention by arthritis educators on retention of information, confidence, and examination skills of medical students. Arthritis Care Research 1998;11:32-8
29. Branch VK, Graves G, Hanczyc M, Lipsky PE. The utility of trained arthritis patient educators in the evaluation and improvement of musculoskeletal examination skills of physicians in training. Arthritis Care Research 1999;12:61-9.
30. Wykurz G, Kelly D. Developing the role of patients as teachers: literature review. BMJ 2002;325:818-21.
31. Schrieber L, Hendry GD, Hunter D. Musculoskeletal examination teaching in rheumatoid arthritis education: trained patient educators compared to nonspecialist doctors. Journal of Rheumatology 2000;27(6):1531-2.
32. Euller-Ziegler L, et al. Intervention of patient trainers (PTs) to teach medical students: living with the French patient partner programme (PPP). Annals of Rheumatic Disease 2000;59 Suppl 1:338.
33. Arthritis and Rheumatism International (ARI). See: http://www.ar-i.org.
34. International League of Associations for Rheumatology (ILAR). See: URL: http://www.ilar.org.
35. Bone and Joint Decade. See: URL: http://www.boneandjointdecade.org
36. Hootman JM, Sniezek JE, Helmick CG. Women and arthritis: burden, impact and prevention programs. Journal of Women's Health and Gender-Based Medicine 2002;11:407-16.
37. "Patients Rights and Quality of the Health Care System", Republic of France, Law No. 2002-303, 4 March 2002. See: http://www.legifrance.gouv.fr/WAspad/UnTexteDeJorf?numjo=mesx0100092l#.
38. European League Against Rheumatism (EULAR). See: URL: http://www.eular.org/
39. The PARE Manifesto. See URL: http://www.paremanifesto.org
40. Leong AL. Get a grip: a take charge approach to living with arthritis. New York: Penguin Putnam Publishing: 2002. p.213-7.
41. OMERACT (Outcome Measures in Rheumatoid Arthritis Clinical Trials). See URL: http://www.omeract.org
42. Harris ED, Jr. The Bone and Joint Decade: a catalyst for progress. Editorial. Arthritis and Rheumatism 2001;44:1969-70.
43. Iverson DC, Sahay TB, Ashbury FD. Personal empowerment: strategies to develop and evaluate interventions. Available from: ULR: http://www.healthpro.org.uk/publications/17.html