Assessing the Ethical and Practical Wisdom of Surrogate Consent for Living Organ Donation

JAMA

Volumn 291, Issue 6, 2004, Pages 732-735

  Wendler, David ^a   Emanuel, Ezekiel ^a  

^a NATIONAL INSTITUTES OF HEALTH   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

DECISION MAKING; ETHICS; EUTHANASIA; FAMILY; INFORMED CONSENT; LIVING DONOR; PERSISTENT VEGETATIVE STATE; PRIORITY JOURNAL; REVIEW; RISK; UNITED STATES; HEALTH CARE AND PUBLIC HEALTH; HUMAN; NOTE; TRANSPLANTATION;

HEALTH CARE AND PUBLIC HEALTH;

HUMANS; LIVING DONORS; RISK; THIRD-PARTY CONSENT; TISSUE AND ORGAN PROCUREMENT;

EID: 1442339150     PISSN: 00987484     EISSN: None     Source Type: Journal    
DOI: 10.1001/jama.291.6.732     Document Type: Review

References (33)

1. Robbins RA. Signing an organ donor card: psychological factors. Death Studies. 1990;14:219-229.
2. Arnold RM, Younger SJ. The dead donor rule: should we stretch it, bend it, or abandon it? Kennedy Inst Ethics J. 1993;3:263-278.
3. Siminoff LA. The dead donor rule: not dead yet. Am J Bioethics. 2003;3:30.
4. Robertson JA. The dead donor rule. Hastings Cent Rep 1999;29:6-13.
5. Abecassis M, Adams M, Adams P, et al, for the Live Organ Donor Consensus Group. Consensus statement on the live organ donor. JAMA. 2000;284:2919-2926.
6. Association of Organ Procurement Organizations Web site, Available at; http://www.aopo.org/aopo/html%20files/frequentlyAsked Questions.html#Section%208. Accessibility verified January 13, 2004.
7. Delmonico FL, Arnold R, Scheper-Hughes N, Siminoff LA, Kahn J, Youngner SJ. Ethical incentives-not payment-for organ donation. N Engl J Med. 2002; 346:2002-2005.
8. Ubel PA, Bryce CL, Siminoff LA, Caplan AL, Arnold RM. Pennsylvania's voluntary benefits program: evaluating an innovative proposal for increasing organ donation. Health Aff (Millwood). 2000;19:206-211.
9. Arras JD, Shinnar S. Anencephalic newborns as organ donors: a critique. JAMA. 1988;259:2284-2285.
10. Youngner SJ, Arnold RM. Philosophical debates about the definition of death: who cares? J Med Philos. 2001;26:527-537.
11. Koppelman ER. The dead donor rule and the concept of death: severing the ties that bind them. Am J Bioethics. 2003;3:1-9.
12. Cook D, Rocker G, Marshall J, et al, for the Level of Care Study Investigators and the Canadian Critical Care Trials Group. Withdrawal of mechanical ventilation in anticipation of death in the intensive care unit. N Engl J Med 2003;349: 1123-1132.
13. Quality Standards Subcommittee of the American Academy of Neurology. Practice parameters: assessment and management of patients in the persistent vegetative state. Neurology. 1995:45:1015-1018.
14. The Multi-Society Task Force on PVS. Medical aspects of persistent vegetative state. N Engl J Med. 1994;330:1499-1508.
15. It wasn't all bad. The Week. July 18, 2003:4.
16. Wendler D, Martinez R, Fairclough D, Sunderland T, Emanuel E. Views of potential subjects toward proposed regulations for clinical research with adults unable to consent. Am J Psychiatry. 2002;159:585-591.
17. SUPPORT Principal Investigators. A controlled trial to improve care for seriously ill hospitalized patients: the Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatments. JAMA. 1995;274:1591-1598.
18. Gross MD. What do patients express as their preferences in advance directives? Arch Intern Med. 1998;158:363-365.
19. Loewy EH. Ethical considerations in executing and implementing advance directives. Arch Intern Med. 1998;158:321-323.
20. Uhlmann RF, Pearlman RA, Cain KC. Physicians' and spouses' predictions of elderly patients' resuscitation preferences. J Gerontol. 1988;43:M115-M121.
21. Lo B, McLeod GA, Saika G. Patient attitudes to discussing life-sustaining treatment. Arch Intern Med. 1986;146:1613-1615.
22. Gamble ER, McDonald PJ, Lichstein PR. Knowledge, attitudes and behavior of elderly persons regarding living wills. Arch Intern Med. 1991;151:277-280.
23. Sulmasy DP, Haller K, Terry PB. More talk, less paper: predicting the accuracy of substituted judgements. Am J Med. 1994;96:432-438.
24. Sulmasy DP, Terry PB, Wisma CS. The accuracy of substituted judgments in patients with terminal diagnoses. Ann Intern Med. 1998;128:621-629.
25. Coppolino M, Ackerson L. Do surrogate decision makers provide accurate consent for intensive care research? Chest. 2001;119:603-612.
26. Emanuel EJ, Emanuel LL. Proxy decision making for incompetent patients: an ethical and empirical analysis. JAMA. 1992;267:2067-2071.
27. Silverman HJ. Ethical considerations of ensuring an informed and autonomous consent in research involving critically ill patients. Am J Respir Crit Care Med. 1996;154:582-586.
28. Buchanan AE, Brock DW. Deciding for Others: The Ethics of Surrogate Decision Making. Cambridge, England: Cambridge University Press; 1998.
29. Emanuel EJ, Fairclough DL, Slutsman J, Emanuel LL. Understanding economic and other burdens on terminal illness: the experience of patients and their caregivers. Ann Intern Med. 2000; 132;451-459.
30. Keenan SP, Hoffmaster B, Rutledge F, Eberhard J, Chen LM, Sibbald WJ. Attitudes regarding organ donation from non-heart-beating donors. J Crit Care. 2002; 17:29-36.
31. Jennett B. The Vegetative State: Medical Facts, Ethical and Legal Dilemmas. Cambridge, England: Cambridge University Press; 2002:33-51.
32. Sheehy E, Conrad SL, Brigham LE, et al. Estimating the number of potential organ donors in the United States. N Engl J Med. 2003;349:667-674.
33. Siminoff LA, Arnold RM, Hewlett J. The process of organ donation and its effect on consent. Clin Transplant. 2001;15:39-47.