Genetic susceptibility screening in schools: Attitudes of the school community towards hereditary haemochromatosis

Clinical Genetics

Volumn 67, Issue 2, 2005, Pages 166-174

  Gason, Alexandra A ^a,b,c   Aitken, M A ^a,b,c   Metcalfe, S A ^a,b,c   Allen, K J ^a,b   Delatycki, M B ^a,b  

^a ROYAL CHILDREN'S HOSPITAL   (Australia)

^b UNIVERSITY OF MELBOURNE   (Australia)

^c Discovery of Genes Common Human Dis   (United States)

Author keywords

Adolescent health; Genetic screening; Haemochromatosis; School students

Indexed keywords

ADOLESCENT; ADULT; ANALYSIS OF VARIANCE; ARTICLE; AUSTRALIA; COMMUNITY CARE; DISEASE PREDISPOSITION; FEASIBILITY STUDY; FEMALE; GENETIC SCREENING; GENETIC SUSCEPTIBILITY; HEALTH EDUCATION; HEALTH PROGRAM; HEALTH SURVEY; HEMOCHROMATOSIS; HETEROZYGOTE DETECTION; HIGH SCHOOL; HUMAN; INTERVIEW; MALE; MASS SCREENING; PATIENT ATTITUDE; POPULATION RESEARCH; PRIORITY JOURNAL; QUESTIONNAIRE;

ADOLESCENT; ATTITUDE TO HEALTH; AUSTRALIA; FEMALE; GENETIC PREDISPOSITION TO DISEASE; GENETIC SCREENING; HEALTH SURVEYS; HEMOCHROMATOSIS; HUMANS; MALE; SCHOOL HEALTH SERVICES;

EID: 14244263017     PISSN: 00099163     EISSN: None     Source Type: Journal    
DOI: 10.1111/j.1399-0004.2004.00389.x     Document Type: Article

References (29)

1. Wilson JM, Jungner YG. Principles and practice of mass screening for disease. Bol Oficina Sanit Panam 1968: 65 (4): 281-393.
2. Burke W, Coughlin SS, Lee NC, Weed DL, Khoury MJ. Application of population screening principles to genetic screening for adult-onset conditions. Genet Test 2001: 5 (3): 201-211.
3. Goel V. Appraising organised screening programmes for testing for genetic susceptibility to cancer. BMJ 2001: 322 (7295): 1174-1178.
4. Khoury MJ, Burke W, Thomson EJ. Genetics and public health: a framework for the integration of human genetics into public health practices. In: Genetics and public health in the 21st Century: using genetic information to improve health and prevent disease (Khoury MJ, Burke W, Thomson EJ, eds). Oxford: Oxford University Press, 2000: 3-24.
5. Nisselle AE, Delatycki MB, Collins V et al. Implementation of HaemScreen, a workplace-based genetic screening program for hemochromatosis. Clin Genet 2004: 65 (5): 358-367.
6. Powell LW, Subramaniam VN, Yapp TR. Haemochromatosis in the new millennium. J Hepatol 2000: 32 (1 Suppl.): 48-62.
7. Niederau C, Fischer R, Purschel A, Stremmel W, Haussinger D, Strohmeyer G. Long-term survival in patients with hereditary hemochromatosis. Gastroenterology 1996: 110 (4): 1107-1119.
8. Beutler E, Felitti VJ, Koziol JA, Ho NJ, Gelbart T. Penetrance of 845G→A (C282Y) HFE hereditary haemochromatosis mutation in the USA. Lancet 2002: 359 (9302): 211-218.
9. Gertig DM, Hopper JL, Allen KJ. Population genetic screening for hereditary haemochromatosis. Med J Aust 2003: 179 (10): 517-518.
10. Allen K, Williamson R. Screening for hereditary haemochromatosis should be implemented now. BMJ 2000: 320 (7228): 183-184.
11. Delatycki MB, Allen KJ, Williamson R. Insurance agreement to facilitate genetic testing. Lancet 2002: 359: 1433.
12. ABS ABoS. Census of population and housing. Census 2001. Retreived on data from Accessed June 2 2003 http://www.abs.gov.au.
13. Kormondy EJ. Ethics and values in the biology classroom. Am Biol Teacher 1990: 52: 403-407.
14. Garver KL, LeChien K. Geneticists' responsibility to other health care professionals and to the lay public. Am J Hum Genet 1992: 51 (4): 922-923.
15. Fitzsimmons JS. The need for more human genetics in biology and health education. Sch Sci Rev 1983: 65: 368-373.
16. Gason AA, Sheffield E, Bankier A et al. Evaluation of a Tay-Sachs disease screening program. Clin Genet 2003: 63 (5): 386-392.
17. Mitchell JJ, Capua A, Clow C, Scriver CR. Twenty-year outcome analysis of genetic screening programs for Tay-Sachs and beta-thalassemia disease carriers in high schools. Am J Hum Genet 1996: 59 (4): 793-798.
18. Clow CL, Scriver CR. Knowledge about and attitudes toward genetic screening among high-school students: the Tay-Sachs experience. Pediatrics 1977: 59 (1): 86-90.
19. Allen K, Williamson R. Should we genetically test everyone for haemochromatosis? J Med Ethics 1999: 25 (2): 209-214.
20. Delatycki MB, Powell LW, Allen KJ. Hereditary hemochromatosis genetic testing of at-risk children: what is the appropriate age? Genetic Testing 2004: 8 (2): 98-103.
21. Streiner DL, Norman GR. Health Measurement Scales: A Practical Guide to Their Development and Use, 2nd edn. Oxford: Oxford University Press, 1995.
22. Harel A, Abuelo D, Kazura A. Adolescents and genetic testing: what do they think about it? J Adolesc Health 2003: 33 (6): 489-494.
23. Decruyenaere M, Evers-Kiebooms G, Welkenhuysen M, Bande-Knops J, Van Gerven V, Van den Berghe H. Adolescents' opinions about genetic risk information, prenatal diagnosis, and pregnancy termination. J Med Genet 1995: 32 (10): 799-805.
24. Bem BJ. Beliefs, Attitudes and Human Affairs. Monterey, CA: Brooks/Cole, 1970.
25. Lock R, Miles C, Hughes S. The influence of teaching on knowledge and attitudes in biotechnology and genetic engineering contexts: implications for teaching controversial issues and the public understanding of science. Sch Sci Rev 1995: 76: 47-59.
26. Jallinoja P, Aro AR. Does knowledge make a difference? The association between knowledge about genes and attitudes toward gene tests. J Health Commun 2000: 5 (1): 29-39.
27. American Society of Human Genetics Board of Directors, American College of Medical Genetics Board of Directors. Points to consider: ethical, legal, and psychosocial implications of genetic testing in children and adolescents. Am J Hum Genet 1995: 57 (5): 1233-1241.
28. Miller SM. Monitoring versus blunting styles of coping with cancer influence the information patients want and need about their disesase - implications for cancer screening and management. Cancer 1995: 76 (2): 167-177.
29. Marteau TM, Dormandy E, Michie S. A measure of informed choice. Health Expect 2001: 4 (2): 99-108.