Health-related quality of life among patients with idiopathic pulmonary fibrosis

Chest

Volumn 127, Issue 1, 2005, Pages 284-294

  Swigris, Jeffrey J ^a   Gould, Michael K ^b   Wilson, Sandra R ^c  

^a STANFORD UNIVERSITY MEDICAL CENTER   (United States)

^b VA PALO ALTO HEALTH CARE SYSTEM   (United States)

^c PALO ALTO MEDICAL FOUNDATION   (United States)

Author keywords

Construct validity; Health related quality of life; Pulmonary fibrosis; quality of life

Indexed keywords

COLCHICINE; GAMMA1B INTERFERON; PLACEBO; PREDNISONE; STEROID;

CLINICAL TRIAL; CONTROLLED CLINICAL TRIAL; CONTROLLED STUDY; DEATH; DISEASE COURSE; HUMAN; IDIOPATHIC DISEASE; LUNG FIBROSIS; PRIORITY JOURNAL; PSYCHOMETRY; QUALITY OF LIFE; RESPIRATORY FAILURE; REVIEW; SURVIVAL; HEALTH SURVEY; PATHOPHYSIOLOGY; PROGNOSIS; REPRODUCIBILITY;

DISEASE PROGRESSION; HEALTH STATUS INDICATORS; HUMANS; PROGNOSIS; PULMONARY FIBROSIS; QUALITY OF LIFE; REPRODUCIBILITY OF RESULTS;

EID: 13844322150     PISSN: 00123692     EISSN: None     Source Type: Journal    
DOI: 10.1378/chest.127.1.284     Document Type: Article

References (40)

1. Coultas D, Zumwalt R, Black W, et al. The epidemiology of interstitial lung disease. Am J Respir Crit Care Med 1994; 150:967-972
2. American Thoracic Society and the European Respiratory Society. Idiopathic pulmonary fibrosis: diagnosis and treatment; International consensus statement-American Thoracic Society (ATS), and the European Respiratory Society (ERS). Am J Respir Crit Care Med 2000; 161:646-664
3. Panos RJ, Mortenson RL, Niccoli SA, et al. Clinical deterioration in patients with idiopathic pulmonary fibrosis: causes and assessment. Am J Med 1990; 88:396-404
4. Flaherty KR, Toews GB, Lynch JP III, et al. Steroids in idiopathic pulmonary fibrosis: a prospective assessment of adverse reactions, response to therapy, and survival. Am J Med 2001; 110:278-282
5. Curtis J, Martin D, Martin T. Patient-assessed health outcomes in chronic lung disease: what are they, how do they help us, and where do we go from here? Am J Respir Crit Care Med 1997; 156:1032-1039
6. Flanagan J. A research approach to improving our quality of life. Am Psychol 1978; 33:138-147
7. Oleson M. Subjectively perceived quality of life. Image (IN) 1990; 22:187-190
8. American Thoracic Society. Quality of life resource. Available at: www.atsqol.org. Accessed March 1, 2004
9. Organization WH. Constitution of the World Health Organization: Chronicle of the World Health Organization 1. Geneva, Switzerland: World Health Organization, 1947
10. Testa M, Simonson D. Current concepts: assessment of quality-of-life outcomes. N Engl J Med 1996; 334:835-840
11. Landy F. Stamp collecting versus science. Am Psychol 1986; 41:1183-1192
12. Streiner D, Norman G. Health measurement scales: a practical guide to their development and use. New York: Oxford University Press, 1995
13. Curtis J, Deyo R, Hudson L. Health-related quality of life among patients with chronic obstructive pulmonary disease. Thorax 1994; 49:162-170
14. De Vries J, Seebregts A, Drent M. Assessing health status and quality of life in idiopathic pulmonary fibrosis: which measure should be used? Respir Med 2000; 94:273-278
15. Jones P, Quirk F, Baveystock C. The St. George's Respiratory Questionnaire. Respir Med 1991; 85:25-31
16. De Vries J, Kessels B, Drent M. Quality of life of idiopathic pulmonary fibrosis patients. Eur Respir J 2001; 17:954-961
17. Group TW. The world health organization quality of life assessment (WHOQOL): development and general psychometric properties. Soc Sci Med 1998; 46:1569-1585
18. Martinez T, Pereira C, dos Santos M, et al. Evaluation of the short-form 36-item questionnaire to measure health-related quality of life in patients with idiopathic pulmonary fibrosis. Chest 2000; 117:1627-1632
19. Ware JE Jr, Sherbourne C. The MOS 36-item short-form health survey (SF-36): I. Conceptual framework and item selection. Med Care 1992; 30:473-483
20. Ware JE Jr. SF-36 health survey update. Spine 2000; 25:3130-3139
21. McHorney C, Ware JE Jr, Lu J, et al. The MOS 36-item Short Form Health Survey (SF-36): III. Tests of data quality, scaling assumptions, and reliability across diverse patient groups. Med Care 1994; 32:40-66
22. Bousquet J, Knani J, Dhivert H, et al. Quality of life in asthma: I. Internal consistency and validity of the SF-36 questionnaire. Am J Respir Crit Care Med 1994; 149:371-375
23. McHorney C, Ware JE Jr, Raczek A. The MOS 36-item short-form health survey (SF-36): II. Psychometric and clinical tests of validity in measuring physical and mental health constructs. Med Care 1993; 31:247-263
24. Martinez J, Martinez T, Galhardo F, et al. Dyspnea scales as a measure of health-related quality of life in patients with idiopathic pulmonary fibrosis. Med Sci Monit 2002; 8:CR405-CR410
25. Chang J, Curtis R, Patrick D, et al. Assessment of health-related quality of life in patients with interstitial lung disease. Chest 1999; 116:1175-1182
26. Spencer S, Calverley P, Burge P, et al. Health status deterioration in patients with chronic obstructive pulmonary disease. Am J Respir Crit Care Med 2001; 163:122-128
27. Burge P, Calverley P, Jones P, et al. Randomized, double-blind, placebo controlled study of fluticasone proprionate in patients with moderate to severe chronic obstructive pulmonary disease: the ISOLDE trial. BMJ 2000; 320:1297-1303
28. Guyatt G, Berman L, Townsend M, et al. A measure of quality of life for clinical trials of chronic lung disease. Thorax 1987; 42:773-778
29. Kaplan R, Bush J, Berry C. Health status: types of validity and the index of well-being. Health Serv Res 1976; 11:478-507
30. Kaplan R, Bush J. Health-related quality of life measurement for evaluation research and policy analysis. Health Psychol 1982; 1:61-81
31. Clark M, Cooper B, Singh S, et al. A survey of nocturnal hypoxaemia and health related quality of life in patients with cryptogenic fibrosing alveolitis. Thorax 2001; 56:482-486
32. Johnston ID, Gomm S, Kalra A. The management of cryptogenic fibrosing alveolitis in three regions of the United Kingdom. Eur Respir J 1993; 6:891-893
33. Douglas WW, Ryu JH, Schroeder DR. Idiopathic pulmonary fibrosis: impact of oxygen and colchicine, prednisone, or no therapy on survival. Am J Respir Crit Care Med 2000; 161:1172-1178
34. Douglas WW, Ryu JH, Bjoraker JA, et al. Colchicine versus prednisone as treatment of usual interstitial pneumonia. Mayo Clin Proc 1997; 72:201-209
35. Raghu G, Brown KK, Bradford WZ, et al. A placebo-controlled trial of interferonγ-1b in patients with idiopathic pulmonary fibrosis. N Engl J Med 2004; 350:125-133
36. McHorney C, Tarlov A. Individual-patient monitoring in clinical practice: are available health status surveys adequate? Qual Life Res 1995; 4:293-307
37. Howard G, Dailey P. Response shift bias: a source of contamination of self-report measures. J Appl Psychol 1979; 64:144-150
38. Golembiewski R, Billingsley K, Yeager S. Measuring change and persistence in human affairs: types of change generated by old designs. J Appl Behav Sci 1976; 12:133-157
39. Veterans Administration Health Services Research and Development Service. Measurement excellence initiative (MEI). Available at: www.measurementexperts. org. Accessed March 1, 2004
40. Guyatt G, Feeny D, Patrick D. Measuring health-related quality of life. Ann Intern Med 1993; 118:622-629