Psychological Well-being of Polio Survivors

Postpolio Syndrome

Volumn , Issue , 2004, Pages 287-306

  Kalpakjian, Claire Z ^a   Roller, Sunny ^a   Tate, Denise G ^a  

^a UNIVERSITY OF MICHIGAN MEDICAL SCHOOL   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

EID: 13444284139     PISSN: None     EISSN: None     Source Type: Book    
DOI: 10.1016/B978-1-56053-606-2.50022-6     Document Type: Chapter

References (77)

1. Halstead L The lessons and legacies of polio. Post-Polio Syndrome. 1995, 199-214. Hanley & Belfus, Philadelphia. L. Halstead, G. Grimby (Eds.).
2. Hollingsworth L, Didelot M, Levington C Post-polio syndrome: Psychological adjustment to disability. Iss Ment Health Nurs 2002, 23:135-156.
3. Ryan RM, Deci EL On happiness and human potentials: A review of research on hedonic and eudaimonic well-being. Annu Rev Psychol 2001, 52:141-166.
4. Garber M Some emotional aspects of poliomyelitis. Public Health Nurs 1952, 44:340-344. 363.
5. Cohen E A medical-social workers approach to the problem of poliomyelitis. Am J Public Health 1948, 38:1092-1096.
6. Wennenberg S, Ahlstrom G Illness narratives of persons with post-polio syndrome. J Adv Nurs 2000, 31:354-361.
7. Bruno RL, Frick NM The psychology of polio as prelude to postpolio sequelae: Behavior-modification and psychotherapy. Orthopedics 1991, 14:1185-1193.
8. Conrady LJ, Wish JR, Agre JC, et al. Psychologic characteristics of polio survivors: A preliminary report. Arch Phys Med Rehabil 1989, 70:458-463.
9. Wenneberg S, Ahlstrom G Illness narratives of persons with post-polio syndrome. J Adv Nurs 2000, 31:354-361.
10. Clark K, Dinsmore S, Grafman J, Dalakas MC A personality profile of patients diagnosed with postpolio syndrome. Neurology 1994, 44:1809-1811.
11. Schanke AK, Lobben B, Oyhaugen S The Norwegian Polio Study 1994 part II: Early experiences of polio and later psychosocial well-being. Spinal Cord 1999, 37:515-521.
12. Silver J Post-Polio Syndrome: A Guide for Polio Survivors and their Families. 2001, Yale University Press, New Haven, CT.
13. Backman M The post-polio patient: psychological issues. J Rehabil 1987, 53:23-26.
14. Kohl S Emotional response to the late effects of poliomyelitis. Research and Clinical Aspects of the Late Effects of Poliomyelitis. 1986, 135-143. March of Dimes Birth Defects Foundation, White Plains, NY. L. Halstead, D. Wiechers (Eds.).
15. Roller A Post-polio. Accent Liv 1990, 35:72.
16. Seligman MEP, Csikszentmihalyi M Positive psychology: An introduction. Am Psychol 2000, 55:5-14.
17. Bruno R, Frick N Stress and "type A" behavior as precipitants of post-polio sequelae: The Felician/Columbia Survey. Research and Clinical Aspects of the Late Effects of Poliomyelitis. 1986, 145-155. March of Dimes Birth Defects Foundation, White Plains, NY. L. Halstead, D. Wiechers (Eds.).
18. Scheer J, Luborsky MR The cultural context of polio biographies. Orthopedics 1991, 14:1173-1181.
19. Gaynes BN, Burns BJ, Tweed DL, Erickson P Depression and health-related quality of life. J Nerv Ment Dis 2002, 190:799-806.
20. Elliott TR, Kurylo M, Rivera P Positive growrh following acquired physical disability. Handbook of Positive Psychology. 2002, Oxford University Press, New York. C.R. Snyder, S. Lopez (Eds.).
21. Ahlstrom G, Karlsson U Disability and quality of life in individuals with postpolio syndrome. Disabil Rehabil 2000, 22:416-422.
22. Bach JR, Campagnolo DI Psychosocial adjustment of postpoliomyelitis ventilator assisted individuals. Arch Phys Med Rehabil 1992, 73:934-939.
23. Wortman CB, Silver RC The myths of coping with loss. J Consult Clin Psychol 1989, 57:349-357.
24. Kendall E, Buys N An integrated model of psychosocial adjustment following acquired disability. J Rehabil 1998, 64:16-20.
25. Kuehn A, Winters R A study of symptom distress, health locus of control and coping resources of aging post-polio survivors. IMAGE. J Nurs Scholarship 1994, 26:325-331.
26. Liechty J Psychosocial issues and post-polio: A literature review of the past thirteen years. Post-Polio Syndrome. 1995, 199-214. Hanley & Belfus, Philadelphia. L. Halstead, G. Grimby (Eds.).
27. Frank RG, Chaney JM, Clay DL, et al. Dysphoria: A major symptom factor in persons with disability or chronic illness. Psychiatry Res 1992, 43:231-241.
28. Kemp BJ, Adams BM, Campbell ML Depression and life satisfaction in aging polio survivors versus age-matched controls: Relation to postpolio syndrome, family functioning, and attitude toward disability. Arch Phys Med Rehabil 1997, 78:187-192.
29. Schanke HK Psychological distress, social support and coping behaviour among polio survivors: A 5-year perspective on 63 polio patients. Disabil Rehabil 1997, 19:108-116.
30. Erdal KJ, Zautra AJ Psychological impact of illness downturns: A comparison of new and chronic conditions. Psychol Aging 1995, 10:570-577.
31. Westbrook MT, McIlwain D Living with the late effects of disability: A five-year follow-up survey of coping among post-polio survivors. Aust Occup Ther J 1996, 43:60-71.
32. Mullins LL, Chaney JM, Hartman V, et al. Cognitive and affective features of postpolio syndrome: Illness uncertainty, attributional style and adaptation. Int J Rehabil Health 1995, 1:211-222.
33. Schanke A, Stangelle J Fatigue in polio survivors. Spinal Cord 2001, 39:243-251.
34. Kemp BJ, Krause JS Depression and life satisfaction among people ageing with postpolio and spinal cord injury. Disabil Rehabil 1999, 21:241-249.
35. Tate D, Kirsch N, Maynard F, et al. Coping with the late effects: Differences between depressed and nondepressed polio survivors. Am J Phys Med Rehabil 1994, 73:27-35.
36. Berlly MH, Strauser WW, Hall KM Fatigue in postpolio syndrome. Arch Phys Med Rehabil 1991, 72:115-118.
37. Agre J, Rodriquez AA, Sperling KB Symptoms and clinical impressions of patients seen in a postpolio clinic. Arch Phys Med Rehabil 1989, 70:367-370.
38. Thoren-Jonsson AL, Hedberg M, Grimby G Distress in everyday life in people with poliomyelitis sequelae. J Rehabil Med 2001, 33:119-127.
39. Tate DG, Forchheimer M, Kirsch N, et al. Prevalence and associated features of depression and psychological distress in polio survivors. Arch Phys Med Rehabil 1993, 74:1056-1060.
40. Hazendonk KM, Crowe SF A neuropsychological study of the postpolio syndrome: Support for depression without neuropsychological impairment. Neuropsychiatry Neuropsychol Behav Neurol 2000, 13:112-118.
41. Maynard F, Julius M, Kirsch N, et al. The late effects of polio: A model for identification and assessment of preventable secondary conditions. 1991, Department of Physical Medicine and Rehabilitation, University of Michigan, Ann Arbor, MI.
42. Cooper AF Whose illness is it anyway? Why patient perceptions matter. Int J Clin Pract 1998, 52:551-556.
43. Strumse Y, Stanghelle JK, Utne L, et al. Treatment of patients with postpolio syndrome in a warm climate. Disabil Rehabil 2003, 25:77-84.
44. Diener E, Sapyta J, Suh E Subjective well-being is essential to well-being. Psychol Inq 1998, 9:33-37.
45. Diener E, Suh E Measuring quality of life: Economic, social and subjective indicators. Soc Indicators Res 1997, 40:189-216.
46. Tate D, Kalpakjian C, Forchheimer M Quality of life issues in individuals with spinal cord injury. Arch Phys Med Rehabil 2002, 83(2):1-8.
47. Diener E, Suh E, Lucas R, Smith H Subjective well-being: Three decades of progress. Psychol Bull 1999, 125:276-302.
48. Farbu E, Gilhus N Former poliomyelitis as a health and socioeconomic factor: A paired sibling study. J Neurol 2002, 249:404-409.
49. Lowman CL, Seidenfeld MA A preliminary report of the psychosocial effects of poliomyelitis. J Consult Psychol 1947, 11:30-37.
50. Vasiliadis H, Collet J, Shapiro S, et al. Predictive factors and correlates for pain in postpoliomyelitis syndrome patients. Arch Phys Med Rehabil 2002, 83:1109-1115.
51. Burger H, Marincek C The influence of post-polio syndrome on independence and life satisfaction. Disabil Rehabil 2000, 22:318-322.
52. Kling C, Persson A, Gardulf A The health-related quality of life of patients suffering from the late effects of polio (post-polio). J Adv Nurs 2000, 32:164-173.
53. Hansson B, Ahlstrom G Coping with chronic illness: A qualitative study of coping with postpolio syndrome. Int J Nurs Stud 1999, 36:255-262.
54. Maynard F, Roller A Recognizing typical coping styles of polio survivors can improve re-rehabilitation: A commentary. Am J Phys Med Rehabil 1991, 70:70-72.
55. Visotsky HM, Goss ME, Lebovits BZ, Hamburg DA Coping behavior under extreme stress: Observations of patients with severe poliomyelitis. Arch Gen Psychiatry 1961, 5:423-448.
56. Frick N Post-polio sequelae and the psychology of second disability. Orthopedics 1991, 8:851-853.
57. Lazarus R, Folkman S Stress, Appraisal and Coping. 1984, Springer Publishing, New York.
58. Ahlstrom G, Wenneberg S Coping will illness-related problems in persons with progressive muscular diseases: The Swedish version of the Ways of Coping Questionnaire. Scand J Caring Sci 2002, 16:368-375.
59. Natterlund B, Gunnarsson LG, Ahlstrom G Disability, coping and quality of life in individuals with muscular dystrophy: A prospective study over five years. Disabil Rehabil 2000, 22:776-785.
60. Gignac MAM, Cott C, Badley EM Adaptation to disability: Applying selective optimization with compensation to the behaviors of older adults with osteoarthritis. Psychol Aging 2002, 17:520-524.
61. Natterlund B, Ahlstrom G Problem-focused coping and satisfaction with activities of daily living in individuals with muscular dystrophy and postpolio syndrome. Scand J Caring Sci 1999, 13:26-32.
62. Folkman S, Moskowitz T Positive affect and the other side of coping. Am Psychol 2000, 55:647-654.
63. Roller A Health promotion for people with chronic neuromuscular disabilities. Women with Physical Disabilities: Achieving and Maintaining Health and Well-being. 1996, 431-439. Paul H. Brookes Publishing, Baltimore. D. Krotoski, M. Nosek, M. Turk (Eds.).
64. Peach P, Olejnik S Effect of treatment and noncompliance on post-polio sequelae. Orthopedics 1991, 14:1199-1203.
65. Thoren-Jonsson AL Coming to terms with the shift in one's capabilities: A study of the adaptive process in persons with poliomyelitis sequelae. Disabil Rehabil 2001, 23:341-351.
66. Peterson C, Kirsch N, Tate D Coping with post-polio III: Optimism and cognitive style. Arch Phys Med Rehabil 1989, 70:25. Suppl A.
67. Schwartz C, Sprangers M Adaptation to Changing Health: Response Shift in Quality-of-Life Research. 2000, American Psychological Association, Washington, DC.
68. Locker D, Kaufert P, Kirk B The impact of life support technology upon psychosocial adaptation to the late effects of poliomyelitis. Research and Clincal Aspects of the Late Effects of Poliomyelitis. 1986, 157-171. March of Dimes Birth Defects Foundation, White Plains, NY. L. Halstead, D. Wiechers (Eds.).
69. Smith DW Power and spirituality in polio survivors: A study based on Rogers science. Nurs Sci 1995, Q8:133-139.
70. DoRozario L Spirituality in the lives of people with disability and chronic illness: A creative paradigm of wholeness and reconstitution. Disabil Rehabil 1997, 19:427-434.
71. Woods-Smith DW Power and spirituality in polio survivors: A study based on Rogers science. Nurs Sci Q 1995, 8:133-139.
72. Niemeier JP, Burnett DM No such thing as "uncomplicated bereavement" for patients in rehabilitation. Disabil Rehabil 2001, 23:645-653.
73. Ignotus P Some psychological and spiritual aspects of acute anterior poliomyelitis. Ment Health 1953, 7:95-98.
74. Wendland L A therapeutic group with husbands and wives of poliomyelitic patients. Group Psychother 1955, 8:25-32.
75. Tate D, Forchheimer M, Roller A: A wellness and health promotion program for women with polio [unpublished report]. Ann Arbor, MI, Department of Physical Medicine and Rehabilitation, University of Michigan, 1998.
76. Hoffman C, Maynard F A pilot program of nutrition and exercise for polio survivors: A community-based model for secondary disability prevention. Top Clin Nutr 1992, 7:69-80.
77. Natterlund B, Ahlstrom G Experience of social support in rehabilitation: A phenomenological study. J Adv Nurs 1999, 30:1332-1340.