Intersections of gender and age in health care: Adapting autonomy and confidentiality for the adolescent girl

Qualitative Health Research

Volumn 14, Issue 1, 2004, Pages 78-99

  Pinto, Kristina C ^a  

^a HARVARD UNIVERSITY   (United States)

Author keywords

Adolescence; Autonomy; Confidentiality; Gender; Health care

Indexed keywords

ADOLESCENT; ARTICLE; CASE REPORT; COMPREHENSION; CONFIDENTIALITY; DOCTOR PATIENT RELATION; FEMALE; HEALTH CARE; HOSPITALIZATION; HUMAN; HUMAN RELATION; MEDICAL PRACTICE; PRIORITY JOURNAL; PSYCHOLOGY; SEX DIFFERENCE; TRUST; CHILD PSYCHOLOGY; HEALTH CARE AND PUBLIC HEALTH; MEDICAL ETHICS; PERSONAL AUTONOMY; PROFESSIONAL PATIENT RELATIONSHIP; QUALITATIVE RESEARCH;

HEALTH CARE AND PUBLIC HEALTH; PROFESSIONAL PATIENT RELATIONSHIP;

ADOLESCENT; ADOLESCENT PSYCHOLOGY; CONFIDENTIALITY; ETHICS, MEDICAL; FEMALE; HUMANS; PERSONAL AUTONOMY; PHYSICIAN-PATIENT RELATIONS; QUALITATIVE RESEARCH;

EID: 1342265228     PISSN: 10497323     EISSN: 15527557     Source Type: Journal    
DOI: 10.1177/1049732303259674     Document Type: Article

References (101)

1. Baird, K. L. (1988). Gender justice and the health care system. New York: Garland.
2. Banister, E., & Schreiber, R. (2001). Young women's health concerns: Revealing paradox. Health Care for Women International, 22, 633-647.
3. Basow, S. A., & Rubin, L. R. (1999). Gender influences on adolescent development. In N. G. Johnson, M. C. Roberts, & J. Worrell. (Eds.), Beyond appearances: A new look at adolescent girls (pp. 25-52). Washington, DC: American Psychological Association.
4. Beauchamp, T. L., & Childress, J. F. (1994). Principles of biomedical ethics (4th ed.). New York: Oxford University Press.
5. Blos, P. (1979). The adolescent passage. New York: International Universities Press.
6. Brooks-Gunn, J. (1988). Antecedents and consequences of variations in girls' maturational timing. Journal of Adolescent Health Care, 9, 365-373.
7. Brown, L. M. (1998). Raising their voices: The politics of girls' anger. Cambridge, MA: Harvard University.
8. Brown, L. M., & Gilligan, C. (1992). Meeting at the crossroads: Women's psychology and girls' development. New York: Ballantine.
9. Candib, L. (1995). Medicine and the family: A feminist perspective. New York: Basic Books.
10. Carse, A. L., & Nelson, H. L. (1999). Rehabilitating care. In A. Donchin & L. M. Purdy (Eds.), Embodying bioethics: Recent feminist advances (pp. 17-32). Lanham, MD: Rowman & Littlefield.
11. Chang, H. (1992). Adolescent life and ethos: An ethnography of a US high school. London: Falmer.
12. Charon, R. (1994). Narrative contributions to medical ethics: Recognition, formulation, interpretation, and validation in the practice of the ethicist. In E. R. DuBose, R. P. Hamel, & L. J. O'Connell (Eds.), A matter of principles (pp. 260-283). Valley Forge, PA: Trinity Press International.
13. Cheng, T. L., Savageau, J. A., Sattler, A. L., & Dewitt, T. G. (1993). Confidentiality in health care: A survey of knowledge, perceptions, and attitudes among high school students. Journal of the American Medical Association, 269(11), 1404-1407.
14. Debold, E. (1991). The body at play. In C. Gilligan, A. G. Rogers, & D. L. Tolman (Eds.), Women, girls, & psychotherapy: Refraining resistance (pp.169-184). New York: Harrington Park.
15. Debold, E., Brown, L. M., Weseen, S., & Brookins, G. K. (1999). Cultivating hardiness zones for adolescent girls: A reconceptualization of resilience in relationships with caring adults. In N. G. Johnson, M. C. Roberts, & J. Worrell. (Eds.), Beyond appearances: A new look at adolescent girls (pp.181-204). Washington, DC: American Psychological Association.
16. Debold, E., Wilson, I., & Malave, M. (1993). Mother daughter revolution: From good girls to great women. New York: Bantam.
17. Denmark, F. L. (1999). Enhancing the development of adolescent girls. In N. G. Johnson, M. C. Roberts, & J. Worrell. (Eds.), Beyond appearances: A new look at adolescent girls (pp. 377-404). Washington, DC: American Psychological Association.
18. Dougherty, D. M. (1999). Health care for adolescent girls. In N. G. Johnson, M. C. Roberts, & J. Worell (Eds.), Beyond appearance: A new look at adolescent girls (pp. 301-325). Washington, DC: American Psychological Association.
19. Dunn, D. A., & Johnson, J. L. (2001). Choosing to remain smoke-free: The experiences of adolescent girls. Journal of Adolescent Health, 29(4), 289-297.
20. Erikson, E. H. (1964). Insight and responsibility. New York: Norton.
21. Erikson, E. H. (1968). Identity: Youth and crisis. New York: Norton.
22. Fetro, J. V., Coyle, K. K., & Pham, P. (2001). Health-risk behaviors among middle school students in a large majority-minority school district. Journal of School Health, 71(1), 30-37.
23. Ford, C. A., Halpern-Felscher, B. L., Irwin, C. E., & Millstein, S. G. (1997). Influence of physician confidentiality assurances on adolescents' willingness to disclose information and seek care. Journal of Adolescent Health, 278(12), 1029-1034.
24. Frank, A. (1995). The wounded storyteller: Body, illness, and ethics. Chicago: University of Chicago Press.
25. Freud, S. (1997). Dora: An analysis of a case of hysteria. New York: Simon & Schuster. (Original work published 1963)
26. Genuardi, F. J., & Zenni, E. A. (2001). Adolescent medicine faculty development needs. Journal of Adolescent Health, 29, 46-49.
27. Gibbs, J. T. (1996). Health-compromising behaviors in urban early adolescent females: Ethnic and socioeconomic variations. In B. J. R. Leadbeater & N. Way (Eds.), Urban girls (pp. 309-327). New York: NYU Press.
28. Gilligan, C. (1988a). Adolescent development reconsidered. In C. Gilligan, J. V. Ward, & J. M. Taylor, with B. Bardige (Eds.), Mapping the moral domain (pp. vii-xxxix). Cambridge, MA: Harvard University Press.
29. Gilligan, C. (1988b). Exit-voice dilemmas in adolescent development. In C. Gilligan, J. V. Ward, & J. M. Taylor, with B. Bardige (Eds.), Mapping the moral domain (pp. 141-158). Cambridge, MA: Harvard University Press.
30. Gilligan, C. (1989). Teaching Shakespeare's sister. In C. Gilligan, N. P. Lyons, & T. J. Hanmer (Eds.), Making connections: The relational worlds of adolescent girls at Emma Willard School (pp. 6-29). Troy, NY: Emma Willard School.
31. Gilligan, C. (1996a). The centrality of relationship in human development: A puzzle, some evidence, and a theory. In G. G. Noam & K. W. Fischer (Eds.), Development and vulnerability in close relationships (pp. 237-261). Mahweh, NJ: Lawrence Erlbaum.
32. Gilligan, C. (1996b). In a different voice (pp. ix-xxviii). Cambridge, MA: Harvard University Press.
33. Gilligan, C., Brown, L. M., & Rogers, A. (1990). Psyche embedded: A place for body, relationships, and culture in personality theory. In A. I. Rabin, R. Zucker, R. Emmons, & S. Frank (Eds.), Studying persons and lives (pp. 86-147). New York: Springer.
34. Gilligan, C., & Machoian, L. (in press). Learning to speak the language: A relational interpretation of an adolescent girl's suicidality. Studies of Gender and Sexuality.
35. Gilligan, C., & Pollak, S. (1988). The vulnerable and invulnerable physician. In C. Gilligan, J. V. Ward, & J. M. Taylor (Eds.), Mapping the moral domain (pp. 247-262). Cambridge, MA: Harvard University Press.
36. Ginsburg, K. R., Menapace, A. S., & Slap, G. B. (1997). Factors affecting the decision to seek care: The voice of adolescents. Pediatrics, 100(6), 922-930.
37. Ginsburg, K. R., Slap, G. B., Cnaan, A., Forke, C. M., Baisley, C. M., & Rouselle, D. M. (1995). Adolescents' perceptions of factors affecting their decisions to seek health care. Journal of the American Medical Association, 273(24), 1913-1918.
38. Green, C. A., & Pope, C. R. (2000). Depressive symptoms, health promotion, and health risk behaviors. American Journal of Health Promotion, 15(1), 29-34.
39. Gudorf, C. E. (1994). A feminist critique of biomedical principlism. In E. R. Dubose, R. P. Hamel, & L. J. O'Connell (Eds.), A matter of principles? Ferment in U.S. bioethics (pp. 164-181). Valley Forge, PA: Trinity Press International.
40. Hayward, C., & Sanborn, K. (2002). Puberty and the emergence of gender differences in psychopathology. Journal of Adolescent Health, 30(4), 49-58.
41. Hedberg, V. A., Klein, J. D., Graff, C. A., & Allan, M. J. (1997). Development of an adolescent health counseling quality questionnaire. Journal of Adolescent Health, 20(2), 159.
42. Hein, K. (1999). Health of adolescent girls: Letting go [Electronic version]. Journal of the American Medical Women's Association, 54(3), 1-4.
43. Holmes, H. B. (1999). Closing the gaps: An imperative for feminist bioethics. In A. Donchin & L. M. Purdy (Eds.), Embodying bioethics: Recent feminist advances (pp. 45-64). New York: Rowman & Littlefield.
44. Hornberger, L. L., Lynch, D. A., & Dekker, A. (1997). Comparison of primary care residents' life experiences, beliefs and attitudes regarding adolescents' health care. Journal of Adolescent Health, 20(2), 173.
45. Igra, V., & Millstein, S. G. (1993). Current status and approaches to improving preventative services for adolescents. Journal of the American Medical Association, 269(11), 1408-1412.
46. Jack, D. (1991). Silencing the self: Women and depression. New York: Harper Perennial.
47. Johnson, N. G., & Roberts, M. C. (1999). Passage on the wild river of adolescence: Arriving safely. In N. G. Johnson, M. C. Roberts, & J. Worell (Eds.), Beyond appearance: A new look at adolescent girls (pp. 3-18). Washington, DC: American Psychological Association.
48. Jordan, J. (1991). Relational awareness: Transforming disconnection (Work in Progress, No. 76). Wellesley, MA: Stone Center.
49. Kaplan, S. H., Greenfield, S., & Ware, J. E., Jr. (1989). Assessing the effects of physician-patient interactions on the outcomes of chronic disease. Medical Care, 27(Suppl. 3), S110-S127.
50. Kapphahn, C., Wilson, K. M., & Klein, J. D. (1999). Adolescent girls' and boys' preferences for provider gender and confidentiality in their health care. Journal of Adolescent Health, 25(2), 131-142.
51. Klein, J., Hedberg, V. A., Graff, C. A., & Allan, M. J. (1997). More adolescent voices: Teens recommendations for their care. Journal of Adolescent Health, 20(2), 163.
52. Klein, J., Wilson, K. M., McNulty, M., Kapphahn, C., & Collins, K. S. (1999). Access to medical care for adolescents: Results from the 1997 Commonwealth Fund Survey of the Health of Adolescent Girls. Journal of Adolescent Health, 25(2), 120-130.
53. Kleinman, A. (1988). The illness narratives: Suffering, healing, and the human condition. New York: Basic Books.
54. Kohlberg, L. (1984). The psychology of moral development: The nature and validity of moral stages. New York: Harper & Row.
55. Komesaroff, P.A. (1995). Introduction: Postmodern medical ethics? In P. A. Komesaroff (Ed.), Troubled bodies: Critical perspectives on postmodernism, medical ethics, and the body (pp. 1-19). Durham, NC: Duke University Press.
56. Kraus, B., Stronski, S., & Michaud, P.-A. (2002). Training needs in adolescent medicine: Comparisons across medical specialties [Electronic version]. Journal of Adolescent Health, 30(2).
57. Kreider, H. M. (1997). Living elsewhere: A psychological study of successful women who lived in group care as girls. Unpublished doctoral dissertation, Harvard University.
58. Langellier, K. M., & Sullivan, C. F. (1998). Breast talk in breast cancer narratives. Qualitative Health Research, 8, 76-94.
59. Leadbeater, B. J., Blatt, S. J., & Quinlan, D. M. (1995). Gender-linked vulnerabilities to depressive symptoms, stress, and problem behaviors in adolescence. Journal of Research on Adolescence, 5, 1-29.
60. Leadbeater, B. J. R., & Way, N. (1996). Introduction. In B. J. R. Leadbeater & N. Way (Eds.), Urban girls (pp. 1-14). New York: NYU Press.
61. Lyons, N. (1989). Listening to voices we have not heard: Emma Willard girls' ideas about self, relationships, and morality. In C. Gilligan, N. P. Lyons, & T. Hanmer (Eds.), Making connections: The relational worlds of adolescent girls at Emma Willard School (pp. 30-72). Troy, NY: Emma Willard School.
62. Mahowald, M. (1993). Women and children in health care: An unequal majority. New York: Oxford University Press.
63. Manne, S., & Miller, D. (1998). Social support, social conflict, and adjustment among adolescents with cancer. Journal of Pediatric Psychology, 23(2), 121-130.
64. Mauthner, N., & Doucet, A. (1998). Reflections on a voice-centered relational method: Analysing maternal and domestic voices. In J. Ribbens & R. Edwards (Eds.), Feminist dilemmas in qualitative research: Public knowledge and private lives (pp. 119-146). London: Sage.
65. Miller, J. B. (1988). Connections, disconnections, and violations (Working Paper Series No. 33). Wellsley, MA: Stone Center.
66. Miller, J. B., Jordan, J., Stiver, I. P., Walker, M., Surrey, J., & Eldridge, N. (1999). Therapists' authenticity (Working Paper Series No. 82). Wellesley, MA: Stone Center.
67. Nakkula, M. J., & Ravitch, S. M. (1998). Matters of interpretation: Reciprocal transformation in therapeutic and development relationships with youth. San Francisco: Jossey-Bass.
68. Nichter, M. (2000). Fat talk: What girls and their parents say about dieting. Cambridge, MA: Harvard University Press.
69. Noddings, N. (1984). Caring: A feminine approach to ethics and moral education. Berkeley: University of California Press.
70. Pastor, J., McCormick, J., & Fine, M. (1996). Makin' homes: An urban girl thing. In B. J. R. Leadbeater & N. Way (Eds.), Urban girls (pp. 15-34). New York: NYU Press.
71. Quinn, M. M., & Dubler, N. N. (2000). Ethical and legal issues. In S. M. Coupey (Ed.), Primary care of adolescent girls (pp. 89-102). Philadelphia: Hanley & Belfus.
72. Redding, P. (1995). Science, medicine, and illness: Rediscovering the patient as person. In P. C. Komesaroff (Ed.), Troubled bodies: Critical perspectives on postmodernism, medical ethics, and the body (pp. 87-102). Durham, NC: Duke University Press.
73. Resnick, M. D., Litman, T. J., & Blum, R.W. (1992). Physician attitudes toward confidentiality of treatment for adolescents: Findings from the Upper Midwest Regional Physicians Survey. Journal of Adolescent Health, 13(7), 616-622.
74. Rhodes, J. E., & Davis, A. B. (1996). Supportive ties between nonparent adults and urban adolescent girls. In B. J. R. Leadbeater & N. Way (Eds.), Urban girls (pp. 213-225). New York: NYU Press.
75. Ridson, E., & Edey, L. (1999). Bringing authenticity to our care. Academic Medicine, 74(8), 896-899.
76. Robinson, C. R. (1991). Working with adolescent girls: Strategies to address health status. In C. Gilligan, A. Rogers, & D. Tolman (Eds.), Women, girls, and psychotherapy: Reframing resistance (pp. 241-252). New York: Harrington Park.
77. Rogers, A. G. (1993). Voice, play, and a practice of courage in girls' and women's lives. Harvard Educational Review, 63(3), 265-295.
78. Schoen, C., Davis, K., Collins, K. S., Greenberg, L., Des Roches, C., & Abrams, M. (1997). Commonwealth fund survey of adolescent girls. New York: Commonwealth Fund.
79. Shaw, S. N. (2002). Shifting conversations on girls' and women's self-injury: An analysis of the clinical literature in historical context. Feminism and Psychology, 12(2), 191-220.
80. Sherwin, S. (1992). No longer patient: Feminist ethics and healthcare. Philadelphia: Temple University Press.
81. Simantov, E., Schoen, C., & Klein, J. D. (2000). Health-compromising behavior: Why do adolescents smoke or drink? Identifying underlying risk and protective factors. Archives of Pediatrics & Adolescent Medicine, 154(10), 1025-1033.
82. Slater, J. M., Guthrie, B. J., & Boyd, C. J. (2001). A feminist theoretical approach to understanding health of adolescent females. Journal of Adolescent Health, 28(6), 443-449.
83. Steiner-Adair, C. (1989). The body-politic: Normal female adolescent development and the development of eating disorders. In C. Gilligan, N. P. Lyons, & T. J. Hanmer (Eds.), Making connections: The relational lives of adolescent girls at Emma Willard School (pp. 162-182). Troy, NY: Emma Willard School.
84. Steiner-Adair, C. (1991). When the body speaks: Girls, eating disorders, and psychotherapy. In C. Gilligan, A. Rogers, & D. Tolman (Eds.), Women, girls, and psychotherapy: Reframing resistance (pp. 253-266). New York: Harrington Park.
85. Stern, L. (1989). Conceptions of separation and connection in female adolescents. In C. Gilligan, N. P. Lyons, & T. Hanmer (Eds.), Making connections: The relational worlds of adolescent girls at Emma Willard School (pp. 73-87). Troy, NY: Emma Willard School.
86. Stoppard, J. M. (2000). Depression in adolescence: Negotiating identities in a girl poisoning culture. In J. Ussher (Ed.), Understanding depression: Feminist social constructionist approaches (pp. 113-136). New York: Routledge.
87. Striegel-Moore, R. H., & Cachelin, F. M. (1999). Body image concerns and disordered eating in adolescent girls: Risk and protective factors. In N. G. Johnson, M. C. Roberts, & J. Worell (Eds.), Beyond appearance: A new look at adolescent girls (pp. 85-108). Washington, D.C: American Psychological Association.
88. Sullivan, A. (1996). From mentor to muse: Recasting the role of women in relationship with urban adolescent girls. In B. J. R. Leadbeater & N. Way (Eds.), Urban girls (pp. 226-249). New York: NYU Press.
89. Taylor, J. M., Gilligan, C., & Sullivan, A. M. (1995). Between voice and silence: Women and girls, race and relationship. Cambridge, MA: Harvard University Press.
90. Thomas, M., Teaster, D., & Redden, D. (1997). What really matters: Adolescents' view of factors affecting their health care provider choice. Journal of Adolescent Health, 20(2), 173.
91. Thrall, J., McCloskey, L., Rothstein, E., Ettner, S. L., Spivak, H., Tighe, J. E., et al. (1997). Perceptions of confidentiality and adolescents' use of health care services and information. Journal of Adolescent Health, 20(2), 163.
92. Tolman, D. (1991). Adolescent girls, women, and sexuality: Discerning dilemmas of desire. In C. Gilligan, A. Rogers, & D. Tolman (Eds.), Women, girls, and psychotherapy: Reframing resistance (pp. 55-69). New York: Harrington Park.
93. Tolman, D. (1992). Voicing the body: A psychological study of adolescent girls' sexual desire. Unpublished doctoral dissertation, Harvard University Press.
94. Tolman, D., & Debold, E. (1994). Conflicts of body and image: Female adolescents and the no-body body. In P. Fallon, M. A. Katzman, & C. Wooley (Eds.), Feminist perspectives on eating disorders (pp.301-317). New York: Guilford.
95. Ward, J. V. (1996). Raising resistors: The role of truth telling in the psychological development of African American girls. In B. J. R. Leadbeater & N. Way (Eds.), Urban girls (pp.85-99). New York: NYU Press.
96. Way, N. (1998). Everyday courage: The lives of urban teenagers. New York: New York University Press.
97. Waz, R., & Henkind, J. (1995). The adequacy of medical ethics education in a pediatrics training program. Academic Medicine, 70(11), 1041-1043.
98. Wooley, S. (1994). Sexual abuse and eating disorders: The concealed debate. In P. Fallon, M. A. Katzman, & S. C. Wooley (Eds.), Feminist perspectives on eating disorders (pp. 171-211). New York: Guilford.
99. Yordan, E. E. (2000). The early adolescent girl: Ages 10-13 years. In S. M. Coupey (Ed.), Primary care of adolescent girls (pp. 1-15). Philadelphia: Hanley & Belfus.
100. Zemsky, B. (1991). Coming out against all odds: Resistance in the life of a young lesbian. In C. Gilligan, A. Rogers, & D. Tolman (Eds.), Women, girls, and psychotherapy: Reframing resistance (pp. 185-201). New York: Harrington Park.
101. Ziv, A., Boulet, J. R., & Slap, G. B. (1999). Utilization of physician offices by adolescents in the United States. Pediatrics, 104(1), 35-42.