Assessing adolescents with insulin-dependent diabetes mellitus: A multiple perspective pilot study using visual illness narratives and interviews

Journal of Adolescent Health

Volumn 36, Issue 1, 2005, Pages 71.e9-71.e13

  Buchbinder, Mara H ^a,c,f   Detzer, Mark J ^b,c   Welsch, Robert L ^a   Christiano, Ann S ^c   Patashnick, Jennifer L ^d   Rich, Michael ^d,e  

^a Dartmouth College   (United States)

^b DARTMOUTH MEDICAL SCHOOL   (United States)

^c DARTMOUTH HITCHCOCK MEDICAL CENTER   (United States)

^d BOSTON CHILDREN S HOSPITAL   (United States)

^e HARVARD MEDICAL SCHOOL   (United States)

^f CASE WESTERN RESERVE UNIVERSITY   (United States)

Author keywords

Chronic disease; Diabetes; Illness experience; Illness narratives; Patient centered research; Pediatrics; Qualitative methods; Video Intervention Prevention Assessment (VIA)

Indexed keywords

ADOLESCENT; ADULT; CLINICAL ARTICLE; CONFERENCE PAPER; DIABETES CONTROL; FAMILY; FEMALE; FOLLOW UP; HUMAN; INSULIN DEPENDENT DIABETES MELLITUS; INTERVIEW; MALE; PARENTAL BEHAVIOR; PRIORITY JOURNAL; SEX DIFFERENCE; VIDEORECORDING; VISUAL DISORDER;

EID: 12344324708     PISSN: 1054139X     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.jadohealth.2004.02.019     Document Type: Conference Paper

References (13)

1. H. Kyngas, J. Barlow Diabetes An adolescent's perspective J Adv Nurs 5 1995 941 947
2. M. Grey, E.A. Boland, C. Yu Personal and family factors associated with quality of life in adolescents with diabetes Diabetes Care 21 1998 909 914
3. B. Lernmark, B. Persson, L. Fisher Symptoms of depression are important to psychological adaptation and metabolic control in children with diabetes mellitus Diabet Med 16 1999 14 22
4. M. Rich, S. Lamola, J. Gordon, R. Chalfen Video intervention/prevention assessment A patient-centered methodology for understanding the adolescent illness experience J Adolesc Health 27 2000 155 165
5. M. Rich, J. Patashnick Narrative research with audiovisual data Video Intervention/Prevention Assessment (VIA) and NVivo Int J Soc Res Methodol 5 2002 245 261
6. B.G. Glaser, A.L. Strauss The Discovery of Grounded Theory Strategies for Qualitative Research 1967 Aldine de Gruyter New York, NY
7. S. Miller Hearing from children who have diabetes J Child Health Care 3 1999 5 12
8. B. Anderson, J. Ho, J. Brackett Parental involvement in diabetes management tasks Relationships to blood glucose monitoring adherence and metabolic control in young adolescents with insulin-dependent diabetes mellitus J Pediatr 130 1997 257 265
9. M. Martin Parent-child relationships and insulin-dependent diabetes mellitus Observational ratings of clinically relevant dimensions J Fam Psychol 12 1998 102 111
10. T. Wysocki, A. Taylor, B.S. Hough Deviation from developmentally appropriate self-care autonomy Association with diabetes outcomes Diabetes Care 19 1996 119 125
11. D.J. Drozda, S.R. Allen, D.A. Standiford Personal illness models of diabetes Parents of preadolescents and adolescents Diabetes Educ 23 1997 550 557
12. C. Williams Doing health, doing gender teenagers, diabetes, and asthma Soc Sci Med 50 2000 387 396
13. M. Rich, S.A. Taylor, R. Chalfen Illness as a social construct Understanding what asthma means to the patient to treat the disease Jt Comm J Qual Improv 26 2000 244 253