Subjective experience in patients with brain injury and their close relatives before and after a rehabilitation programme

Neuropsychological Rehabilitation

Volumn 14, Issue 5, 2004, Pages 495-515

  Svendsen, Henriette Aa ^a   Teasdale, Thomas W ^a   Pinner, Mugge ^a  

^a UNIVERSITY OF COPENHAGEN   (Denmark)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; ARTICLE; BRAIN INJURY; CONTROLLED STUDY; EVALUATION; EXPERIENCE; FEMALE; HEALTH PROGRAM; HUMAN; INTERMETHOD COMPARISON; MALE; MEDICAL DOCUMENTATION; NEUROPSYCHOLOGY; PATIENT; QUESTIONNAIRE; RELATIVE; SELF REPORT; STATISTICAL SIGNIFICANCE; SYMPTOM; TREATMENT OUTCOME;

EID: 10944245725     PISSN: 09602011     EISSN: None     Source Type: Journal    
DOI: 10.1080/09602010343000318     Document Type: Article

References (47)

1. Allen, K., Linn, R., Gutierrez, H., & Willer, B. (1994). Family burden following traumatic brain injury. Rehabilitation Psychology, 39, 29-48.
2. Bond, M. R. (1975). Assessment of the psychosocial outcome after severe head injury. CIBA Foundation Symposium, 34, 141-157.
3. Brooks, N. (1984). Head injury and the family. In N. Brooks, (Ed.), Closed head injury: Psychological, social and family consequences. Oxford: Oxford University Press.
4. Brooks, N., Campsie, L., Symington, C., Beattie, A., & McKinlay, W. (1987). The effects of severe head injury on patient and relative within seven years of injury. Journal of Head Trauma Rehabilitation, 2, 1-13.
5. Brooks, N., & McKinlay, W. (1983). Personality and behavioral change after severe blunt head injury - A relative's view. Journal of Neurology, Neurosurgery and Psychiatry, 46, 336-344.
6. Christensen, A-L., Pinner, E. M., & Rosenberg, N. K. (1988). Program for rehabilitation for brain damage in Denmark. In A.-L. Christensen & B. P. Uzzell (Eds.), Neuropsychological rehabilitation: Current knowledge and future directions (pp. 115-24). Boston: Kluwer.
7. Elsass, P. (1993). Sundhedspsykologi, Copenhagen: Nordisk Forlag.
8. Engberg, Aa. (1995). Severe traumatic brain injury - epidemiology, external causes, prevention, and rehabilitation of mental and physical sequelae. Acta Neurologica Scandinavica, Supplementum, 164.
9. Eslinger, P. (1998). Neurological and neuropsychological basis of empathy. European Journal of Neurology, 39, 193-199.
10. Fleminger, S., & Powell, J. (1999). Editorial. Neuropsychological Rehabilitation, 9(3-4), 225-230.
11. Fordyce, D. J., & Roueche, J. R. (1986). Changes in perspectives of disability among patients, staff, and relatives during rehabilitation of brain injury. Rehabilitation Psychology, 31, 217-229.
12. Godfrey, H. P. D., Partidge, F. M., Knight, R. G., & Bishara, S. (1993). Course of insight disorder and emotional dysfunction following closed head injury: A controlled cross-sectional follow-up study. Journal of Clinical and Experimental Neuropsychology, 15, 503-515.
13. Haas, J. F., Cope, D. N., & Hall, K. (1987). Premorbid prevalence of poor academic performance in severe head injury. Journal of Neurology, Neurosurgery and Psychiatry, 50, 52-56.
14. Hillier, S. L., & Metzer, J. (1997). Awareness and perceptions of outcomes after traumatic brain injury. Brain Injury, 11, 525-536.
15. Howell, D. C. (2001). Fundamental statistics for the behavioural sciences (4th ed.). Pacific Grove, CA: Brooks/Cole Publishing Company.
16. Lannoo, E., Colardyn, F., Vandekerckhove, T., De Deyne, C., De Soete, G., & Jannes, C. (1998). Subjective complaints versus neuropsychological test performance after moderate to severe head injury. Acta Neurochirugica, 140, 245-253.
17. Leathern, J. M., Murphy, L. J., & Flett, R. A. (1998). Self- and informant-ratings on the patient competency rating scale in patients with traumatic brain injury. Journal of Clinical and Experimental Neuropsychology, 20, 694-705.
18. Lezak, M. D. (1988). Brain damage is a family affair. Journal of Clinical and Experimental Neuropsychology, 10, 111-123.
19. McKinlay, W. W., & Brooks, D. N. (1984). Methodological problems in assessing psychosocial recovery following severe head injury. Journal of Clinical Neuropsychology. 6, 87-99.
20. Oddy, M., Humphrey, M., & Uttley, D. (1978a). Subjective impairment and social recovery after closed head injury. Journal of Neurology, Neurosurgery and Psychiatry, 41, 611-616.
21. Oddy, M., Humphrey, M., & Uttley, D. (1978b) Stresses upon the relatives of head-injured patients. British Journal of Psychiatry, 133, 507-513.
22. Onsworth, T. L., McFarland, K., & Young, R. (2000). Self-awareness and psychosocial functioning following acquired brain injury: An evaluation of a group support programme. Neuropsychological Rehabilitation, 10, 465-484.
23. Peters, L. C., Stambrook M., Moore A. D., & Esses, L. (1990). Psychosocial sequelae of closed head injury: Effects on the marital relationship. Brain Injury, 4, 39-47.
24. Ponsford, J., Sloan, S., & Snow, P. (1995b). Traumatic brain injury: Rehabilitation for everyday adaptive living. Hove, UK: Lawrence Erlbaum Associates Ltd.
25. Ponsford, J. L., Olver, J. K., & Curran, C. (1995a). A profile of outcome: 2 years after traumatic brain injury. Brain Injury, 9, 1-10.
26. Port, A., Willmott, C., & Charlton, J. (2002). Self-awereness following traumatic brain injury and implications for rehabilitation. Brain Injury, 16, 277-289.
27. Powell J. H., Beckers, K., & Greenwood, R. J. (1998). Measuring progress and outcome in community rehabilitation after brain injury with a new assessment instrument - the BICRO-39 scales. Brain Injury Community Rehabilitation Outcome. Archives of Physical Medicine and Rehabilitation, 79, 1213-1225.
28. Prigatano, G. P., Altman, I. M., & O'Brien, K. P. (1990). Behavioural limitations that brain injured patients tend to underestimate. The Clinical Neuropsychologist, 4, 163-176.
29. Prigatano, G. P., & Leathem, J. M. (1993). Awareness of behavioural limitations after traumatic brain injury: A cross-cultural study of New Zealand Maoris and non-Maoris. The Clinical Neuropsychologist, 7, 123-135.
30. Prigatano, G. P., Ogano, M., & Amakusa, B. (1997). A cross-cultural study on impaired self-awareness in Japanese patients with brain dysfunction. Neuropsychiatry, Neuropsychology and Behavioural Neurology, 10, 135-143.
31. Scherer, M., Boake, C., Levin, E., Silver, B. V., Ringholz, G., & High, W. (1998). Characteristics of impaired awareness after traumatic brain injury. Journal of the International Neuropsychological Society, 4, 380-387.
32. Stilwell, P., Stilwell, J., Hawley, C., & Davies, C. (1999). The national traumatic brain injury study: Assessing outcomes across settings. Neuropsychological Rehabilitation, 9, 277-293.
33. Teasdale, T. W., & Caetano, C. (1995). Psychopathological symptomatology in brain-injured patients before and after a rehabilitation program. Applied Neuropsychology, 2, 116-123.
34. Teasdale, T. W., Skovdahl Hansen, H., Gade, A., & Christensen, A.-L. (1997a). Neuropsychological test scores before and after brain injury rehabilitation in relation to return to employment. Lancet, 350, 1069-1071.
35. Teasdale, T. W., Christensen, A. L., Willmes, K., Deloche, G., Braga, L., Stachowiak, F., Vendrell, J. M., Castro Caldas, A., Laaksonen, R. K., & Leclercq, M. (1997b). Subjective experience in brain-injured patients and their close relatives: A European Brain Injury Questionnaire study. Brain Injury, 11, 543-563.
36. Teasdale, T. W., & Engberg, Aa. (1997). Duration of cognitive dysfunction after concussion, and cognitive dysfunction as a risk factor: A population study of young men. British Medical Journal, 315, 569-572.
37. Thomsen, I. V. (1974). The patient with severe head injury and his family. Scandinavian Journal of Rehabilitation Medicine, 6, 180-183.
38. Thomsen, I. V. (1992). Late psychosocial outcome in severe traumatic brain injury: Preliminary results of a third follow-up study after 20 years. Scandinavian Journal of Rehabilitation Medicine, 26, 142-152.
39. Trexler, L. E., & Helmke, C. (1996). Efficacy of holistic neuropsychological rehabilitation. In W. (Ed.), Ambulante und teilstationäre Rehabilitation von Hirnverletzten, (pp. 25-39). München: W. Zuckschwerdt Verlag.
40. Voogt, R. D., Teasdale, T. W., Patrick, P. D., & Carman, J. (1998). Reintegration into the family and the community following traumatic brain injury. Neurorehabilitation, 11, 107-117.
41. Wade, D. T. (1992) Measurement in neurological rehabilitation. Oxford: Oxford University Press.
42. Williams, W. H., Evans, J. J., & Wilson, B. A. (1999). Outcome measures for survivors of acquired brain injury in day and outpatient neurorehabilitation programmes. Neuropsychological Rehabilitation, 9, 421-436.
43. Willer, B., Flaherty, P. M., & Coallier, S. (2001 ). Families living with the effects of acquired brain injury. In R. Ll. Wood, & T. M. McMillan, (Eds.), Neurobehavioural disability and social handicap following traumatic brain injury (pp. 47-63). Hove, UK: Psychology Press.
44. Wilson, B. A. (2000). Compensating for cognitive deficits following brain injury. Neuropsychology Review, 10, 233-243.
45. Wilson, B. A. (2002). Towards a comprehensive model of cognitive rehabilitation. Neuropsychological Rehabilitation, 12, 97-110.
46. Wilson, B. A., Alderman, N., Burgess, P. W., Emslie, H., & Evans, J.J (1996). The behavioural assessment of the dysexecutive syndrome. Bury St Edmunds, UK: Thames Valley Test Company.
47. Wood, R. Ll., & Yurdakul, L. K. (1997). Change in relationship status following traumatic brain injury. Brain Injury, 11, 491-501.