People With Schizophrenia in Five Countries: Conceptual Similarities and Intercultural Differences in Family Caregiving

Schizophrenia Bulletin

Volumn 29, Issue 3, 2003, Pages 573-586

  Van Wijngaarden, Bob ^a   Schene, Aart ^b   Koeter, Maarten ^b   Becker, Thomas ^c   Knapp, Martin ^d   Knudsen, Helle Charlotte ^e   Tansella, Michele ^f   Thornicroft, Graham ^g   Vázquez Barquero, José Luis ^h   Lasalvia, Antonio ^f   Leese, Morven ^g  

^a NETHERLANDS INSTITUTE OF MENTAL HEALTH AND ADDICTION   (Netherlands)

^b UNIVERSITY OF AMSTERDAM   (Netherlands)

^c UNIVERSITY OF ULM   (Germany)

^d LONDON SCHOOL OF ECONOMICS   (United Kingdom)

^e NAESTVED HOSPITAL   (Denmark)

^f UNIVERSITY OF VERONA   (Italy)

^g KING'S COLLEGE LONDON   (United Kingdom)

^h HOSPITAL UNIVERSITARIO MARQUÉS DE VALDECILLA   (Spain)

Author keywords

Caregiving consequences; Family burden; Instruments; Intercultural validity; Schizophrenia

Indexed keywords

ARTICLE; CAREGIVER; CULTURAL FACTOR; FEMALE; GERMANY; HUMAN; ITALY; MAJOR CLINICAL STUDY; MALE; NETHERLANDS; PRIORITY JOURNAL; QUESTIONNAIRE; SCHIZOPHRENIA; SCORING SYSTEM; SPAIN; UNITED KINGDOM; VALIDATION PROCESS;

EID: 10744230246     PISSN: 05867614     EISSN: None     Source Type: Journal    
DOI: 10.1093/oxfordjournals.schbul.a007029     Document Type: Article

References (35)

1. American Psychiatric Association. DSM-IV: Diagnostic and Statistical Manual of Mental Disorders. 4th ed. Washington, DC: APA, 1994.
2. Azevedo, M.H.; Soares, M.J.; Coelho, I.; Dourado, A.; Valente, J.; Mecado, A.; Pato, M.; and Pato, C. Using consensus OPCRIT diagnoses: An efficient procedure for best-estimate lifetime diagnoses. British Journal of Psychiatry, 175:154-157, 1999.
3. Becker, T.; Knapp, M.; Knudsen, H.C.; Schene, A.; Tansella, M.; Thornicroft, G.; Vázquez-Barquero, J.L.; and the EPSILON study group. The EPSILON study of schizophrenia in five European countries: Design and methodology for standardising outcome measures and comparing patterns of care and service costs. British Journal of Psychiatry, 175:514-521, 1999.
4. Becker, T.; Knapp, M.; Knudsen, H.C.; Schene, A.; Tansella, M.; Thornicroft, G.; Vázquez-Barquero, J.L.; and the EPSILON study group. Reliable outcome measures for mental health service research in five European countries: The EPSILON Study. Aims, outcome measures, study sites and patient sample. British Journal of Psychiatry, 177(Suppl 39):S1-S7, 2000.
5. Goldberg, D., and Williams, P. A User's Guide to the General Health Questionnaire. Windsor, U.K.: NFER-Nelson, 1988.
6. Hatfield, A.B., and Lefley, H.P. Families of the Mentally Ill: Coping and Adaptation. New York, NY: Guilford Press, 1987.
7. Jenkins, J.H., and Karno, M. The meaning of expressed emotion: Theoretical issues raised by cross-cultural research. American Journal of Psychiatry, 149:9-21, 1992.
8. Kastrup, M. Mental health in the city of Copenhagen, Denmark. In: Goldberg, D., and Thornicroft, G., eds. Mental Health in Our Future Cities. Hove, U.K.: Psychology Press, 1998. pp. 101-123.
9. Kiers, H.A.L. SCA: A Program for Simultaneous Components Analysis of Variables Measured in Two or More Populations. Groningen, The Netherlands: iec ProGAMMA, 1990.
10. Knudsen, H.C.; Vázquez-Barquero, J.L.; Welcher, B.; Gaite, L.; Becker, T.; Chisholm, D.; Ruggeri, M.; Schene, A.H.; Thornicroft, G.; and the EPSILON study group. Translation and cross-cultural adaptation of outcome measurements for schizophrenia. British Journal of Psychiatry, 177(Suppl 39):S8-S14, 2000.
11. Lefley, H.P. The family experience in cultural context: Implications for further research and practice. In: Lefley, H.P., ed. Families Coping With Mental Illness: The Cultural Context. San Francisco, CA: Jossey-Bass Publishers, 1998. pp. 97-106.
12. Magliano, L.; Fadden, G.; Economou, M.; Held, T.; Xavier, M.; Guarneri, M.; Malangone, C.; Marasco, C.; and Maj, J. Family burden and coping strategies in schizophrenia: 1-year follow-up data from the BIOMED 1 study. Social Psychiatry and Psychiatric Epidemiology, 35:109-115, 2000.
13. Magliano, L.; Fadden, G.; Madianos, M.; Caldas de Ameida, J.M.; Held, T. ; Guarneri, M.; Marasco, C.; Tosini, P.; and Maj, M. Burden on the families of patients with schizophrenia: Results of the BIOMED I study. Social Psychiatry and Psychiatric Epidemiology, 33:405-412, 1998.
14. Murray, C.J.L., and Lopez, A.D., eds. The Global Burden of Disease. Vol. 1. Boston, MA: Harvard School of Public Health, 1996.
15. Schene, A.H. Worried at Home: A Monograph on Burden on the Family in Psychiatry. Utrecht, The Netherlands: NcGv, 1986. In Dutch.
16. Schene, A.H. Objective and subjective dimensions of family burden. Toward an integrative framework for research. Social Psychiatry and Psychiatric Epidemiology, 25:289-297, 1990.
17. Schene, A.H.; Hoffmann, E.; and Goethals, A.L.J. Mental health in Amsterdam. In: Goldberg, D., and Thornicroft, G., eds. Mental Health in Our Future Cities. Hove, U.K.: Psychology Press, 1998a. pp. 33-55.
18. Schene, A.H.; Tessler, R.C.; and Gamache, G.M. Instruments measuring family or caregiver burden in severe mental illness. Social Psychiatry and Psychiatric Epidemiology, 29:228-240, 1994.
19. Schene, A.H.; Tessler, R.C.; and Gamache, G.M. Caregiving in severe mental illness: Conceptualisation and measurement. In: Knudsen, H.C., and Thornicroft, G., eds. Mental Health Service Evaluation. Cambridge, U.K.: Cambridge University Press, 1996. pp. 296-316.
20. Schene, A.H., and van Wijngaarden, B. The Involvement Evaluation Questionnaire. Amsterdam, The Netherlands: Department of Psychiatry, University of Amsterdam, 1992.
21. Schene, A.H., and van Wijngaarden, B. Family Members of People With a Psychotic Disorder: A Study Among Members of Ypsilon. Amsterdam, The Netherlands: Department of Psychiatry, University of Amsterdam, 1993. In Dutch.
22. Schene, A.H., and van Wijngaarden, B. A survey of an organization for families of patients with serious mental illness in the Netherlands. Psychiatric Services, 46:807-813, 1995.
23. Schene, A.H.; van Wijngaarden, B.; and Koeter, M.W.J. Family caregiving in schizophrenia: Domains and distress. Schizophrenia Bulletin, 24(4):609-618, 1998b.
24. Schene, A.H.; van Wijngaarden, B.; Poelijoe, N.W.; and Gersons, B.P.R. The Utrecht comparative study on psychiatric day treatment and inpatient treatment. Acta Psychiatrica Scandinavica, 87:427-436, 1993.
25. SPSS Inc. SPSS Base System Syntax Reference Guide, Release 8.0. Chicago, IL: SPSS, 1997.
26. StataCorp. Stata Statistical Software: Release 6.0. College Station, TX: Stata Corporation, 1999.
27. Tansella, M.; Amaddeo, F.; and Burti, L. Community-based mental health care in Verona, Italy. In: Goldberg, D., and Thornicroft, G., eds. Mental Health in Our Future Cities. Hove, U.K.: Psychology Press, 1998. pp. 239-262.
28. Thornicroft, G., and Goldberg, D. London's mental health services. In: Goldberg, D., and Thornicroft, G., eds. Mental Health in Our Future Cities. Hove, U.K.: Psychology Press, 1998. pp. 15-31.
29. van Wijngaarden, B.; Schene, A.H.; and Koeter, M. Caregiving consequences in the Netherlands and other European countries: The development and use of the Involvement Evaluation Questionnaire (IEQ). In: Lefley, H.P., and Johnson, D.B., eds. Family Interventions in Mental Illness: International Perspectives. Westport, CT: Prager, 2002. pp. 145-169.
30. van Wijngaarden, B.; Schene, A.H.; and Koeter, M.W.J. The Consequences of Depressive Disorders for Those Involved With the Patient: A Study on the Psychometric Qualities of the Involvement Evaluation Questionnaire. Amsterdam, The Netherlands: Department of Psychiatry, University of Amsterdam, 1996. In Dutch.
31. van Wijngaarden, B.; Schene, A.H.; Koeter, M.; Vázquez-Barquero, J.L.; Knudsen, H.C.; Lasalvia, A.; McCrone, P.; and the EPSILON study group. Caregiving in schizophrenia: Development, internal consistency and reliability of the European version of the Involvement Evaluation Questionnaire-EU version (IEQ-EU). British Journal of Psychiatry, 177(Suppl 39):S21-S27, 2000.
32. Vázquez-Barquero, J.L., and Garcia, J. Deinstitutionalization and psychiatric reform in Spain. European Archives of Psychiatry and Clinical Neuroscience, 249:128-135, 1999.
33. Ventura, J.; Green, M.F.; Shaner, A.; and Liberman, R.P. Training and quality assurance with the Brief Psychiatric Rating Scale: 'The drift busters.' International Journal of Methods in Psychiatric Research, 3:221-244, 1993.
34. World Bank. World Development Report 1993: Investing in Health-World Development Indicators. New York, NY: Oxford University Press, 1993.
35. World Health Organization. Schedulesfor Clinical Assessment in Neuropsychiatry. Geneva, Switzerland: WHO, 1992.