The language of recovery: How effective communication of information is crucial to restructuring post-stroke life

Topics in Stroke Rehabilitation

Volumn 11, Issue 4, 2004, Pages 55-67

  Anderson, Sharon ^a   Marlett, Nancy J ^b  

^a University of Calgary ^*

^b UNIVERSITY OF CALGARY   (Canada)

Author keywords

Communication; Identity; Rehabilitation outcome; Social support; Stroke

Indexed keywords

ARTICLE; CONVALESCENCE; HUMAN; INTERPERSONAL COMMUNICATION; MEDICAL PRACTICE; MOTIVATION; OUTCOMES RESEARCH; QUALITY OF LIFE; SOCIAL SUPPORT; STROKE; THEORETICAL STUDY;

EID: 10644249975     PISSN: 10749357     EISSN: None     Source Type: Journal    
DOI: 10.1310/NPC4-01YV-P66Q-VM9R     Document Type: Article

References (61)

1. Wiles R. Pain H. Buckland S. McLellan L. Providing appropriate information to patients and carers following a stroke. J Adv Nurs. 1998;28(4):794-801.
2. Forster A, Smith J, Young J, Knapp P, House A, Wright J. Information provision for stroke patients and their caregivers (Cochrane review). The Cochrane Library. Oxford: Update Software; 2001:4.
3. Teasell R, Doherty T, Speechley M, Foley N, Bhogal SK. Evidence-based Review of Stroke Rehabilitation. London, Ontario: Ministry of Health and Long Term Care & Heart and Stroke Foundation of Ontario; 2002.
4. Clark MS. Patient and spouse perceptions of stroke and its rehabilitation. J Rehabil Res. 2000;23(1):19-29.
5. Clark MS, Smith DS. Factors contributing to patient satisfactions with rehabilitation following stroke. Int J Rehabil Res. 1998;21:143-154.
6. Pound P, Gompertz P, Ebrahim S. Patients' satisfaction with stroke services. Clin Rehabil. 1994;8(1):7-17.
7. Rodgers H, Bond S, Curless R. Inadequacies in the provision of information to stroke patients and their families. Age Ageing. 2001;30:129-133.
8. Wellword I, Dennis M, Warlow C. Patients' and carers' satisfaction with acute stroke management. Age Ageing. 1995;24(6):519-524.
9. Kaplan RM. Health outcomes and communication research. Health Commun. 1997;9(1):75-82.
10. Sligo FX, Jameson AM. The knowledge-behavior gap in use of health information. J Am Soc Information Sci. 2000;51(9):858-869.
11. Kurtz SM. Doctor-patient communication: principles and practices. Can J Neurol Sci. 2002;29(suppl 2):S23-29.
12. Man-Son-Hing M, Laupacis A, O'Connor AM, et al. A patient decision aid regarding antithrombotic therapy for stroke prevention in atrial fibrillation: a randomized controlled trial. JAMA. 1999;282(8):737-743.
13. Stewart M, Brown JB, Boon H, Galajda J, Meredith L, Sangster M. Evidence on patient-doctor communication. Cancer Prev Control. 1999;3(1):25-30.
14. Whelan T, Sawka C, Levine M, et al. Helping patients make informed choices: a randomized trial of a decision aid for adjuvant chemotherapy in lymph node-negative breast cancer. J Natl Cancer Inst. 2003;95(8):570-571.
15. Dowswell G, Lawler J, Dowswell T, Young J, Forster A, Hearn J. Investigating recovery from stroke: a qualitative study. J Clin Nurs. 2000;9:507-515.
16. Bendz M. Rules of relevance after a stroke. Soc Sci Med. 2002;51(5):713-723.
17. Doolittle ND. The experience of recovery following lacunar stroke. Rehabil Nurs. 1992;17(3):122-125.
18. Kaufman SR, Becker G. Content and boundaries of medicine in long term care: physicians talk about stroke. Gerontologist. 1991;31:238-245.
19. Lambert BL, Street RL, Cegala DJ, Smith DH, Kurtz S, Schofield T. Provider-patient communication, patient-centered care and the mangle of practice. Health Commun. 1997;9(1):27-43.
20. Burton CR. Living with stroke: a phenomenological study. J Adv Nurs. 2000;32(2):301-309.
21. Ellis-Hill CS, Horn S. Change in identity and self-concept: a new theoretical approach to recovery following a stroke. Clin Rehabil. 2000;14(3):279-287.
22. Hochstenbach J, Donders R, Mulder T, Van Limbeek J, Schoonderwaldt H. Long-term outcome after stroke: a disability-orientated approach. Int J Rehabil Res. 1996;19:189-200.
23. Kirkevold M. The unfolding illness trajectory of stroke. Disabil Rehabil. 2002;24(17):887-898.
24. Lewis SC, Dennis MS, O'Rourke SJ, Sharpe M. Negative attitudes among short-term stroke survivors predict worse long-term survival. Stroke. 2001;32(7):1640-1645.
25. Glass TA, Maddox GL. The quality and quantity of social support: stroke recovery as psychosocial transition. Soc Sci Med. 1992;34(11):1249-1261.
26. Norton R, Brenders D. Communication and Consequences: Laws of Interactions. Mahwah, NJ: Lawrence Erlbaum Associates; 1996.
27. Glass TA, Dym B, Greenberg S, Rintell D, Roesch C, Berkman LF. Psychosocial intervention in stroke: families in recovery from stroke trial (FIRST). Am J Orthopsychiatry. 2000;70(2):169-181.
28. Grant JS, Elliott TR, Weaver M, Bartolucci AA, Giger JN. Telephone intervention with family caregivers of stroke survivors after rehabilitation. Stroke. 2002;33:2060-2065.
29. Johnston M, Gilbert P, Partridge C, Collins J. Perceived control, coping and recovery from disability following stroke. Psych Health. 1999;14:181-192.
30. Knapp P, Hewison J. The protective effects of social support against mood disorder after stroke. Psych Health Med. 1998;3:275-283.
31. Partridge C, Johnston M. Perceived control of recovery from physical disability: measurement and prediction. B J Clin Psych. 1989;28:53-59.
32. Purkey W. An Overview of Self-Concept Theory for Counselors. Ann Arbor, MI: ERIC Clearinghouse on Counseling and Personnel Services; 1988. An ERIC/CAPS Digest: ED304630.
33. Caplan LR. Caplan's Stroke: A Clinical Approach, 3rd ed. Boston: Butterworth Heinemann; 2000.
34. Hakim AM, Silver F, Hodgson C. Is Canada falling behind international standards for stroke care? CMAJ. 1998;159:671-673.
35. Jones F, Mandy A. Who's in control after a stroke? Do we disempower our patients? Physio Res Inter. 2000;5(4):249-253.
36. Fink RB, Schwartz MF. MossRehab Aphasia Center: A collaborative model for long-term rehabilitation. Top Stroke Rehabil. 2000;7(2):32-43.
37. Kirby RL. Rehabilitation and stroke. CMAJ. 1999;160:784-785.
38. King R B. Quality of life after stroke. Stroke. 1996;27:1467-1472.
39. Watkins E, Baracaia S. Rumination and social problem solving in depression. Behav Res Ther. 2001;4:1179-1189.
40. Nolen-Hoeksema S. Responses to depression and their effects on the duration of depressive episodes. J Abnormal Psych. 1991;100:569-582.
41. Kant GL, D'Zurilla TJ, Maydeu-Olivares A. Social problem solving as a mediator of stress related depression and anxiety in middle-aged and elderly community residents. Cognitive Ther Res. 1997;21(1):73-96.
42. Peterson C, Seligman MEP. Causal explanations as a risk factor for depression: theory and evidence. Psych Rev. 1984;91:347-374.
43. Abramson LB, Metalsky GI, Alloy LB. Hopelessness depression: a theory based subtype of depression. Psych Review. 1989;96:358-372.
44. Hollon SD, Garber J. Cognitive therapy: a social-cognitive perspective. In: Abramson LY, ed. Social Cognition and Clinical Psychology: A Synthesis. New York: Guilford; 1988:204-253.
45. Nezu AM, Nezu CM, Perri MG. Problem-Solving Therapy for Depression: Theory, Research and Clinical Guidelines. New York: Wiley; 1989.
46. Elliot T, Shewchuk R, Richards JS. Caregiver social problem-solving abilities and family member adjustment to recent-onset physical disability. Rehabil Psych. 1999;44:104-123.
47. Godolphin W, Towle A, McKendry R. Evaluation of the quality of patient information to support informed shared decision-making. Health Expectations. 2001;4(4):235-242.
48. Northouse LL, Northouse PG. Health Communication: Strategies for Health Professionals, 3rd ed. Stamford, CT: Appleton & Lange; 1998.
49. Evans RL, Bishop DS, Matlock AL, Stranahan S, Pederson C. Family intervention after stroke: Does counseling or education help? Stroke. 1988;19:1243-1249.
50. Indredavik B, Bakke F, Slordahl SA, Rokseth R, Haheim LL. Stroke unit treatment: 10-year follow-up. Stroke. 1999;30(8):1524-1527.
51. Jorgensen HS, Reith J, Nakayama H, Kammersgaard LP, Raaschou HO, Olsen TS. What determines good recovery in patients with the most severe strokes? The Copenhagen Stroke Study. Stroke. 1999;30(10):2008-2012.
52. Dempster C, Knapp P, House A. The collaboration of carers during psychological therapy. Mental Health Nurs. 1998;18(3):24-27.
53. Taylor SE, Aspinwall LG. Mediating and moderating processes in psychosocial stress. In: Caplan HB, ed. Psychosocial Stress. San Diego, CA: Academic Press; 1996:71-110.
54. Association of Medical Colleges Task Force. Report III: Contemporary Issues in Medicine: Communication in Medicine. Washington DC: Association of Medical Colleges; 1999.
55. Coulter A, Entwistle V, Gilbert D. Sharing decisions with patients: Is the information good enough? BMJ. 1999;318:218-322.
56. Towle A, Godolphin W. Framework for teaching and learning informed shared decision making. BMJ. 1999;319:766-771.
57. Tsouna-Hadjis E, Vemmos KN, Zakopoulous N, Stamtelopoulos S. First-stroke recovery process: the role of family social support. Arch Phys Med Rehabil. 2000;81(7):881-887.
58. Ell K. Social networks, social support and coping with serious illness: the family connection. Soc Sci Med. 1996;42(2):173-183.
59. Thompson SC, Sobolew-Shubin A. Overprotective relationships: a nonsupportive side of social networks. Basic Appl Soc Psych. 1993;14(3):363-383.
60. Lilly CM, Sonna LA, Haley KJ, Massaro AF. Intensive communication: four-year follow-up from a clinical practice study. Crit Care Med. 2003;31(5 suppl):S394-399.
61. Senge P, Kleiner A, Roberts C, Ross R, Roth G, Smith B. The Dance of Change: The Challenges to Sustaining Momentum in Learning Organizations. New York: Doubleday; 1999.