Self-awareness in young adults with Down syndrome: I. Awareness of Down syndrome and disability

International Journal of Disability, Development and Education

Volumn 51, Issue 4, 2004, Pages 335-361

  Cunningham, Cliff ^a   Glenn, Sheila ^a  

^a LIVERPOOL JOHN MOORES UNIVERSITY   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

EID: 10444250275     PISSN: 1034912X     EISSN: None     Source Type: Journal    
DOI: 10.1080/1034912042000295017     Document Type: Review

References (63)

1. Appleton, J. V. (1995). Analysing qualitative interview data: Addressing issues of validity and reliability. Journal of Advanced Nursing, 22, 993-997.
2. Appleton, P. L., Mincham, P. E., Ellis, N. C., Elliott, C. E., Boll, V., & Jones, P. (1994). The self-concept of young people with spina bifida: A population-based study. Developmental Medicine and Child Neurology, 36, 198-215.
3. Berry, P., Groenweg, G., Gibson, D., & Brown, R. I. (1984). Mental development of adults with Down syndrome. American Journal of Mental Deficiency, 89, 252-256.
4. Begley, A., & Lewis, A. (1998). Methodological issues in the assessment of the self-concept of children with Down syndrome. Child Psychology and Psychiatry Review, 3, 33-40.
5. Booth, T., & Simons, K. (1989, October 5). Whose terms? Community Care, pp. 19-22.
6. Carr, J. (1995). Down's syndrome: Children growing up. Cambridge, UK: Cambridge University Press.
7. Collacott, R. A., Cooper, S. A., & McGrother, C. (1992). Differential rates of psychiatric disorders in adults with Down's syndrome compared with other mentally handicapped adults. British Journal of Psychiatry, 161, 671-674.
8. Crocker, J., & Major, B. (1989). Social stigma and self-esteem: The self-protective properties of stigma. Psychological Review, 96, 608-6.
9. Cunningham, C. C. (1988). Down's syndrome: An introduction for parents. London: Souvenir Press.
10. Cunningham, C. C. (1996). Families of children with Down syndrome. Down Syndrome: Research and Practice, 4, 87-95.
11. Cunningham, C. C., Glenn, S. M., & Fitzpatrick, H. (2000). Parents telling their offspring about Down syndrome and disability. Journal of Applied Research in Intellectual Disabilities, 13, 47-61.
12. Cuskelly, M., & de Jong, I. (1996). Self-concept in children with Down syndrome. Down Syndrome: Research and Practice, 4, 59-64.
13. Davis, F. (1972). Illness, interaction and the self. Wadsworth, UK: Belmont.
14. Davies, C. A., & Jenkins, R. (1997). She has different fits to me: How people with learning difficulties see themselves. Disability and Society, 12, 95-109.
15. Des Rosiers, F., Vrsalovic, W. T., Knauf, D. E., Vargas, M., & Busch-Rossnagel, N. A. (1999). Assessing the multiple dimensions of the self-concept of young children: A focus on Latinos. Merrill-Palmer Quarterly, 45, 543-566.
16. nd ed.). Windsor, UK: Nfer-Nelson.
17. Edgerton, R. B. (1967). The cloak of competence: Stigma in the lives of the mentally retarded. Berkeley, CA: University of California Press.
18. Finlay, M., & Lyons, E. (1998). Social identity and people with learning difficulties: Implications for self-advocacy groups. Disability and Society, 13, 37-51.
19. Finlay, W. M. L., & Lyons, E. (2000). Social categorisations, social comparisons and stigma: Presentations of self in people with learning difficulties. British Journal of Social Psychology, 39, 129-146.
20. Flynn, M., & Knussen, C. (1986, June 16). What it means to be labeled 'mentally handicapped'. Social Work Today, 11.
21. French, S. (1993). "Can you see the rainbow?" The roots of denial. In J. Swain & V. Finkelstein (Eds.), Disabling burners - Enabling environments (pp. 69-77). Milton Keynes, UK: Open University Press.
22. Gibbons, F. X. (1985). Stigma perception: Social comparisons among mentally retarded persons. American Journal of Mental Deficiency, 90, 98-106.
23. Gillman, M., Heyman, B., & Swain, J. (2000). What's in a name? The implications of diagnosis for people with learning difficulties and their family carers. Disability and Society, 15, 389-409.
24. Glenn, S. M., & Cunningham, C. C. (2001). Evaluation of self by young people with Down syndrome. International Journal of Disability, Development and Education, 48, 163-177.
25. Glenn, S. M., & Cunningham, C. C. (in press-a). Performance of young people with Down syndrome on the Leiter-R and British Picture Vocabulary Scales. Journal of Intellectual Disability Research.
26. Glenn, S. M., & Cunningham, C. C. (in press-b). Self-awareness in young adults with Down syndrome: II. Self understanding. International Journal of Disability, Development and Education.
27. Glidden, L. M., & Zetlin, A. G. (1992). Adolescence and community development. In L. Rowitz (Ed.), Mental retardation in the year 2000 (pp. 101-114). Berlin: Springer-Verlag.
28. Goffman, E. (1963). Stigma: Notes on the management of spoiled identity. Englewood Cliffs, NJ: Prentice-Hall.
29. Goffman, E. (1968). Stigma. Harmondsworth, UK: Penguin.
30. Harter, S. (1983). Developmental perspectives on the self-system. In E. M. Hetherington (Ed.), Handbook of child psychology: Socialisation, personality and social development (Vol. 4, pp. 275-385). New York: Wiley.
31. Harter, S. (1985) Manual for the Self-Perception Profile for Children. Denver, CO: University of Denver.
32. Harter, S., & Monsour, A. (1992). Developmental analysis of conflict caused by opposing attributes in the adolescent self-portrait. Developmental Psychology, 28, 251-260.
33. Harter, S., & Pike, R. (1984). The Pictorial Scale of Perceived Competence and Social Acceptance for Young Children. Child Development, 55, 1969-1982.
34. Hodapp, R. M. (1990). One road or many? Issues in the similar sequence hypothesis. In R. M. Hodapp, J. A. Burack, & E. Zigler (Eds.), Issues in the developmental approach to mental retardation (pp. 49-70). New York: Cambridge University Press.
35. Jahoda, A., Markova, I., & Cattermole, M. (1988). Stigma and the self-concept of people with a mild mental handicap. Journal of Mental Deficiency Research, 32, 103-115.
36. Joseph, J. (1979). Joseph Pre-School and Primary Self-Concept Screening Test. Wood Dale, IL: Stocking Co.
37. Katz, P. (1982). Development of children's racial awareness and intergroup attitudes. In L. G. Katz (Ed.), Current topics in early childhood education (Vol. 4, pp. 17-54). Norwood, NJ: Ablex.
38. Kutner, B. (1958). Patterns of mental functioning associated with prejudice in children. Psychological Monographs, 72, 460-511.
39. Lewis, A. (1995). Children's understanding of disability. London: Routledge.
40. Lewis, A. (1993). Primary school children's understanding of severe learning difficulties. Educational Psychology, 13, 133-145.
41. Lewis, M., & Brookes-Gunn, J. (1979). Social cognition and the acquisition of self. New York: Plenum.
42. Lewis, A., & Lewis, V. (1987). The attitudes of young children towards peers with severe learning difficulties. British Journal of Developmental Psychology, 5, 287-292.
43. Lewis, A., & Lewis, V. (1988). Young children's attitudes, after a period of integration, towards peers with severe learning difficulties. Journal of Special Needs Education, 3, 161-172.
44. Maas, E., Maracek, E., & Travers, J. R. (1978). Children's conception of disordered behaviour. Child Development, 49, 146-154.
45. Mans, L., Cicchetti, D., & Sroufe, L. A. (1978). Mirror reactions of Down's syndrome infants and toddlers: Cognitive underpinnings of self-recognition. Child Development, 49, 1247-1250.
46. Mincham, P. E., Appleton, P. L., Lawson, V., Boll, V., Jones, P., & Elliott, C. E. (1995). Impact of functional severity on self-concept in young people with spina bifida. Archives of Disease in Childhood, 73, 48-52.
47. Price-Williams, D. R. (1989). Communication in therapy with emotionally disturbed mentally retarded individuals. In M. Beveridge, G. Conti-Ramsden, & I. Leudar (Eds.), Language and communication in mentally handicapped people (pp. 254-273). London: Chapman and Hall.
48. Rapley, M., Kiernan, P., & Antaki, C. (1998). Invisible to themselves or negotiating identity? The interactional management of 'Being intellectually disabled'. Disability and Society, 13, 807-827.
49. Reiss, S., & Benson, B. (1984). Awareness of negative social conditions among mentally retarded emotionally disturbed outpatients. American Journal of Psychiatry, 141, 88-90.
50. Renick, M. J., & Harter, S. (1988). Manual for the Self-Perception Profile for Learning Disabled Students. Denver, CO: University of Denver.
51. Roffman, A. J., Herzog, J. E., & Wershba-Gershon, P. M. (1994). Helping young adults understand their learning disability. Journal of Learning Disabilities, 27, 413-419.
52. Roid, G. H., & Miller, L. J. (1997). The Leiter International Performance Scale-Revised. Wood Dale, IL: Stocking Co.
53. Secord, P., & Peevers, B. (1974). The development and attribution of person concepts. In T. Mischel (Ed.), Understanding other persons (pp. 117-142). Oxford: Blackwell.
54. Selman, R. (1980). The growth of interpersonal understanding. New York: Academic Press.
55. Shepperdson, B. (1988). Growing up with Down's syndrome. London: Cassell.
56. Slaby, R. G., & Frey, K. S. (1975). Development of gender constancy and selective attention to same sex models. Child Development, 46, 849-856.
57. Sloper, P., & Turner, S. (1994). Families of teenagers with Down syndrome: Parent, child and sibling adaptation. Final Report to the Economic and Social Research Council. Manchester, UK: University of Manchester, Hester Adrian Research Centre.
58. Szivos-Bach, S.E. (1993). Social comparisons, stigma and mainstreaming: The self-esteem of young adults with mild mental handicap. Mental Handicap Research, 6, 217-236.
59. Tajfel, H., & Turner, J. C. (1979). An integrative theory of intergroup conflict. In W. G. Austin & S. Worchel, (Eds.), The social psychology of intergroup relations (pp. 33-48). Monteray, CA: Brooks/Cole.
60. Todd, S. (1995). Preludes to secrecy: Handling the transition of young people from a special school. In J. Salisbury & S. Delamont (Eds.), Qualitative studies in education (pp. 6-29). Aldershot: Avebury.
61. Todd, S., & Shearn, J. (1997). Family dilemmas and secrets: Parents' disclosure of information to their adult offspring with learning disabilities. Disability and Society, 12, 341-366.
62. Turner, J. C., Hogg, M. A., Oakes, P. J., Reicher, S. D., & Wetherall, M. S. (1987). Rediscovering the social group: A self-categorisation theory. Oxford'New York: Basil Blackwell.
63. Zetlin, A. G., & Turner, J. L. (1985). Transition from adolescence to adulthood: Perspectives of mentally retarded individuals and their families. American Journal of Mental Deficiency, 89, 570-579.