Genetic testing and primary care: A new ethic for a new setting

New Genetics and Society

Volumn 22, Issue 3, 2003, Pages 245-256

  Resnik, David B ^a  

^a EAST CAROLINA UNIVERSITY   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

CLINICAL PRACTICE; CONFIDENTIALITY; FAMILY; GENETIC ANALYSIS; GENETIC COUNSELING; MEDICAL ETHICS; PRIMARY MEDICAL CARE; PRIORITY JOURNAL; REVIEW;

GENETICS AND REPRODUCTION;

CONFIDENTIALITY; DIRECTIVE COUNSELING; DISCLOSURE; FAMILY; GENETIC COUNSELING; GENETIC SCREENING; HUMANS; PRIMARY HEALTH CARE;

EID: 0842287304     PISSN: 14636778     EISSN: None     Source Type: Journal    
DOI: 10.1080/1463677032000147207     Document Type: Review

References (26)

1. Adams, J. (1990) Confidentiality and Huntingdon's chorea, Journal of Medical Ethics, 16, pp. 196-9.
2. American Medical Association (AMA) (1998) Code of Medical Ethics: Current Opinions with Annotations (Chicago, IL: AMA).
3. Andrews, L. et al (eds) (1994) Issues in Genetic Counseling (Washington, DC: National Academy Press).
4. Beauchamp, T. & Childress, J (2002) Principles of Biomedical Ethics, 5th edn (New York, NY: Oxford University Press).
5. Beckendorf, J. et al. (1997) Patients' attitudes about autonomy and confidentiality in genetic testing for breast-ovarian cancer susceptibility, American Journal of Medical Genetics, 73, pp. 296-303.
6. Biesecker, B. (1997) Privacy in genetic counseling. In: Rothstein, M. (ed) Genetic Secrets (New Haven, CT: Yale University Press), pp. 108-25.
7. Biesecker, B. (1998) Future directions of genetic counseling: practical and ethical considerations, Kennedy Institute of Ethics Journal, 8, pp. 145-60.
8. Caplan, A. (1993) Neutrality is not morality: the ethics of genetic counseling. In: Bartels, D., Leroy, B. & Caplan, A. (eds) Prescribing our Future: Ethical Challenges in Genetic Counseling (Hawthorne, NY: Aldine DeGruyter), 149-65.
9. Clark, A. (1991) Is non-directive genetic counseling possible?, Lancet, 338, pp. 998-1001.
10. Clark, A. (1998) Genetic counseling, Encyclopedia of Applied Ethics, Volume 2 (New York, NY: Academic Press).
11. Collins, F. & McKusick, V. (2001) Implications of the human genome project for medical science, Journal of the American Medical Association, 285, pp. 540-4.
12. Davis, D. (2001) Genetic Dilemmas (New York, NY: Routledge).
13. Doukas, D. & Berg, J. (2001) The family covenant and genetic testing, American Journal of Bioethics, 1(3), pp. 2-10.
14. Gostin, L. (2001) National health information privacy, regulations under the health insurance portability and accountability act, Journal of the American Medical Association, 285, pp. 3015-21.
15. Hakimian, R. (2000). Disclosure of Huntington's disease to family members: the dilemma of known but unknowing parties, Genetic Testing, 4, pp. 359-64.
16. Juengst, E. (1997) Caught in the middle again: professional ethical considerations in genetic testing for health risks, Genetic Testing, 1, pp. 189-200.
17. Lisker, R. et al. (1998) Mexican geneticist' opinions on disclosure issues, Clinical Genetics, 54, pp. 321-9.
18. Lucassen, A. & Parker, M. (2001) Revealing false paternity: some ethical considerations, Lancet, 357, pp. 1033-5.
19. Michie, S. et al. (1997) Nondirectiveness in genetic counseling: an empirical study, American Journal of Human Genetics, 60, pp. 40-7.
20. National Society of Genetic Counselors (1993) Code of Eethics. In: Bartles, D., LeRoy, B. & Caplan, A. (eds) Prescribing our Future (New York, NY: Aldine de Gruyter), p. 169.
21. President's Commission for the Study of Ethical Problems in Medicine & Biomedical & Behavioral Research (1993) Screening and Counseling for Genetic Conditions (Washington, DC: US Government Printing Office).
22. Rhodes, R. (1998) Genetic links, family ties, and social bonds: rights and responsibilities in the face of genetic knowledge, Journal of Medicine and Philosophy, 23, pp. 10-30.
23. Weijer, C. (2000) Family duty is more important than rights, British Medical Journal, 321, p. 1466.
24. Wertz, D., Fletcher, J. & Mulvihill, J. (1990) Medical geneticists confront ethical dilemmas: cross-cultural surveys among 18 nations, American Journal of Human Genetics, 46, pp. 1200-13.
25. Wertz, D. & Gregg, R. (2000) Genetic services in a social, ethical, and policy context: a collaboration between consumers and providers, Journal of Medical Ethics, 26, pp. 261-5.
26. White, T., Callif-Daley, F. & Donnelly, J. (1999) Genetic testing for disease susceptibility: social, ethical, and legal issues for family physicians, American Family Physician, 60, pp. 748-55.