Measuring the Quality of Children's Health Care: A Prerequisite to Action

Pediatrics

Volumn 113, Issue 1 II, 2004, Pages 185-198

  Dougherty, Denise ^a   Simpson, Lisa A ^a,b  

^a AGENCY FOR HEALTHCARE RESEARCH AND QUALITY   (United States)

^b UNIVERSITY OF SOUTH FLORIDA   (United States)

Author keywords

Effectiveness research; Public opinion; Quality of care

Indexed keywords

CHILD HEALTH CARE; HEALTH CARE QUALITY; INFORMATION SYSTEM; MENTAL HEALTH CARE; MOUTH HYGIENE; NEWBORN CARE; PEDIATRICIAN; PRIORITY JOURNAL; PUBLIC OPINION; REVIEW; RISK ASSESSMENT; SAFETY; SCHOOL HEALTH SERVICE; TERMINAL CARE;

CHILD; HUMANS; OUTCOME AND PROCESS ASSESSMENT (HEALTH CARE); PEDIATRICS; QUALITY OF HEALTH CARE; REPRODUCIBILITY OF RESULTS; UNITED STATES;

EID: 0347986897     PISSN: 00314005     EISSN: None     Source Type: Journal    
DOI: None     Document Type: Review

References (129)

1. National Committee on Quality Assurance. The State of Health Care Quality 2002: Industry Trends and Analysis. Washington, DC: National Committee on Quality Assurance; 2002
2. The Commonwealth Fund. Quality of Health Care in the United States: A Chartbook. New York, NY: The Commonwealth Fund; 2002
3. Agency for Healthcare Research and Quality. MEPS Statistical Brief no. 3: Children's Health Care Quality. Rockville, MD: Agency for Healthcare Research and Quality; 2002
4. Finkelstein JA, Lozano P, Farber H, Miroshnik I, Lieu TA. Underuse of controller medications among Medicaid-insured children with asthma. Arch Pediatr Adolesc Med. 2002;156:562-567
5. The President's Advisory Commission on Consumer Protection and Quality in the Health Care Industry. Quality First: Better Health Care for All Americans. Washington, DC: US Government Printing Office; 1997
6. Halfon N, McGlynn EM, Steinwachs D, Valentine W, Eds. Improving the Quality of Healthcare for Children: An Agenda for Research: A Special Supplement to HSR-Articles from an Invitational Conference. Malden, MA: Health Research Educational Trust by Health Administration Press; 1998
7. Forrest C, Simpson L, Clancy C. Child health services research: challenges and opportunities. JAMA. 1997;277:1787-1793
8. Centers for Medicare and Medicaid Services. Framework for annual report of State Children's Health Insurance Programs under Title XXI of the Social Security Act. Available at: http://www.cms.gov/schip/chartn99.pdf. Accessed August 29, 2002
9. Foundation for Accountability, Child and Adolescent Health Measurement Initiative. Available at: http://www.facct.org/facct/site/generic/generic/home?action=viewLink&id=2. Accessed August 29, 2002
10. Berman S. Improving children's health care: an interview with Charles Homer. Jt Comm J Qual Improv. 2002;28:139-147
11. Institute of Medicine. To Err is Human: Building a Safer Health System. Washington, DC: National Academy Press; 1999
12. Institute of Medicine. Crossing the Quality Chasm: A New Health System for the 21st Century. Washington, DC: National Academy Press; 2001
13. Midwest Business Group on Health. Reducing the Cost of Poor Health Quality Through Responsible Purchasing Leadership. Chicago, IL: Midwest Business Group on Health; 2002
14. California HealthCare Foundation. Consumers and Health Care Quality Information: Need, Availability, Utility. Oakland, CA: California HealthCare Foundation; 2001
15. The Commonwealth Fund. Room for improvement: patients report on the quality of their health care. Available at: http://www.cmwf.org/programs/quality/davis improvement bn 534.asp. Accessed May 15, 2002
16. Kizer KW. Establishing health care performance standards in an era of consumerism. JAMA. 2001;286:1213-1217
17. Quality Interagency Coordination Task Force. Available at: http://www.quic.gov. Accessed August 29, 2002
18. American Medical Association Physician Consortium for Performance Improvement. Introduction to Physician Performance Measurement Sets. Chicago, IL: American Medical Association; 2001
19. Family Voices. What do families say about health care for children with special health care needs. Available at: http://www.familyvoices.org/information/caring.htm. Accessed December 9, 2003
20. Krauss MW, Gulley S, Leiter V, et al. The Family Partners Project: Report on a National Survey of the Health Care Experiences of Families of Children with Special Health Care Needs. Boston, MA: Brandeis University and Family Voices; 2000
21. Beal AC, Co JPT, Dougherty D, et al. Quality measures for children's health care. Pediatrics. 2004;113:199-209
22. Institute of Medicine Committee on the National Quality Report on Health Care Delivery. Envisioning the National Health Care Quality Report. Washington, DC: National Academy Press; 2001
23. Agency for Healthcare Research and Quality. Child Health Toolbox - CAHPS. Rockville, MD: Agency for Healthcare Research and Quality; 2002
24. Bethell C, Peck C, Schor E. Assessing health system provision of well-child care: the Promoting Healthy Development Survey. Pediatrics. 2001;107:1084-1094
25. Shaller D. Implementing and using quality measures for children's health care: perspectives on the state of the practice. Pediatrics. 2004;113:217-227
26. Eisenberg JM. Globalize the evidence, localize the decision: evidence-based medicine and international diversity. Health Aff. 2002;21:166-168
27. Barton S. Clinical Evidence Pediatrics. London, UK: BMJ Publishing Group; 2002
28. Moyer VA, Elliott EJ, Davis RL, et al. Evidence Based Pediatrics and Child Health. London, UK: BMJ Books; 2000
29. Sackett DL, Straus SE, Richardson WS, et al. Evidence-Based Medicine: How to Practice and Teach EBM. 2nd Ed. London, UK: Churchill Livingstone; 2000
30. Christakis DA, Davis R, Rivara FP. Pediatric evidence-based medicine: past, present and future. J Pediatr. 2000;136:383-389
31. McGlynn EA, Damberg CL, Kerr EA, Schuster MA. Quality of Care for Children and Adolescents: A Review of Selected Clinical Conditions and Quality Indicators. Santa Monica, CA: Rand; 2000
32. Kuhlthau K, Walker DK, Perrin JM, et al. Assessing managed care for children with chronic conditions. Health Aff. 1998;17:42-52
33. Institute of Medicine Committee on Palliative and End of Life Care for Children and Their Families. When Children Die: Improving Palliative and End-of-Life Care for Children and Their Families. Washington, DC: National Academy Press; 2002
34. Kuhlthau K, Ferris TG, Iezzoni LI. Risk adjustment for pediatric quality indicators. Pediatrics. 2004;113:210-216
35. Bates D. The Quality Argument for Information Technology in Healthcare. BMC Medical Informatics and Decision Making. Available at: www.biomedcentral.com/1472-6947/2/7. Accessed October 23, 2003
36. Weitzman M, Shiffman R. Information technology and the future of child health care: a revolution is occurring. Arch Pediatr Adolesc Med. 2001;155:990-991
37. Johnson K. Barriers that impede the adoption of pediatric information technology. Arch Pediatr Adolesc Med. 2001;155:1374-1379
38. Texas Medical Foundation. Diabetes quality improvement program. Available at: http://www.tmf.org/hcqip/diabetes.html. Accessed December 9, 2003
39. Fleming BB, Greenfield S, Engelgau MM, Pogach LM, Clauser SB, Parrott MA. The Diabetes Quality Improvement Project: moving science into health policy to gain an edge on the diabetes epidemic. Diabetes Care. 2001;24:1815-1820
40. Barlow SE, Dietz WH, Klish WJ, Trowbridge FL. Medical evaluation of overweight children and adolescents: reports from pediatricians, pediatric nurse practitioners, and registered dietitians. Pediatrics. 2002;110:222-228
41. Gold MR, Siegel JE, Russell LB, Weinstein MC, Eds. Cost-Effectiveness in Health and Medicine. New York, NY: Oxford University Press; 1996
42. Koplan JP, Schoenbaum SC, Weinstein MC, Fraser DW. Pertussis vaccine - an analysis of benefits, risks and costs. N Engl J Med. 1979;301:906-911
43. Palmer RH, Miller MR. Methodologic Challenges in Developing and Implementing Measures of Quality for Child Health Care. Ambul Pediatr. 2001;1:39-52
44. Schuster MA, Asch SM, McGlynn EA, Kerr EA, Hardy AM, Gifford DS. Development of a quality of care measurement system for children and adolescents. Arch Pediatr Adolesc Med. 1997;151:1085-1092
45. Agency for Healthcare Research and Quality. Evidence-Based Practice. Available at www.ahrq.gov/clinic/epcix.htm. Accessed September 2, 2002
46. US Department of Health and Human Services. Pediatric Outcomes Research in the U.S. Department of Health and Human Services: A Report to Congress. Washington, DC: US Department of Health and Human Services; 1998
47. Dougherty D, Miller M, Lefkowitz D. AHRQ enhances data collection on children's health care quality. Ambulatory Pediatric Association Newsletter. 2001;38:23-24
48. Forrest CB, Shipman S, Dougherty D, Miller M. Outcomes research in pediatric settings: recent trends and future directions. Pediatrics. 2003;111:171-178
49. Cowan CA, McDonnell PA, Levit KR, Zezza MA. Burden of health care costs: businesses, households, and governments, 1987-2000. Health Care Financ Rev. 2002;23:131-159.
50. National Institute for Child Health and Human Development, National Institute for Environmental Health Sciences, Centers for Disease Control and Prevention, Environmental Protection Agency. The National Children's Study. Available at: http://www.nationalchildrensstudy.gov. Accessed August 30, 2002
51. Children's Oncology Group. Children's Oncology Group. Available at: http://www.childrensoncologygroup.org. Accessed September 2, 2002
52. Glockler-Ries L. Childhood cancer mortality. Available at: http:/seer.cancer.gov/publications/childhood/mortality.pdf. Accessed November 25, 2002
53. Donabedian A. Evaluating the quality of medical care. Milbank Q. 1966;44:166-206
54. Clancy CM. Testimony on AHRQ's Role in Eliminating Racial and Ethnic Disparities in Health Before the Subcommittee on Criminal Justice, Drug Policy, and Human Resources, Committee on Government Reform United States House of Representatives. Rockville, MD: Agency for Healthcare Research and Quality; 2002
55. Institute of Medicine. Guidance for the National Healthcare Disparities Report. Washington, DC: National Academy Press; 2002
56. Agency for Healthcare Research and Quality. National Healthcare Disparities Report Fact Sheet. Rockville, MD: Agency for Healthcare Research and Quality; 2002
57. Cubanski J, Kline J. Improving Health Care Quality: Can Federal Efforts Lead the Way? New York, NY: The Commonwealth Fund; 2002:7
58. Health Care Financing Administration. A Profile of Medicaid. Baltimore, MD: Health Care Financing Administration; 2000
59. Social Security Administration Office of Policy. Annual Statistical Supplement, 2000. Baltimore, MD: Social Security Administration; 2000:1-4
60. Institute of Medicine. Leadership by Example: Coordinating Government Roles in Improving Health Care Quality. Washington, DC: National Academy Press; 2002
61. Institute of Medicine. Fostering Rapid Advances in Health Care: Learning from Systems Demonstrations. Washington, DC: National Academy Press; 2002
62. Institute of Medicine. Priority Areas for National Action: Transforming Health Care Quality. Washington, DC: National Academy Press; 2003
63. California HealthCare Foundation. Crossing the Chasm With Information Technology: Bridging the Quality Gap in Health Care. Oakland, CA: California HealthCare Foundation; 2002:33
64. Agency for Healthcare Research and Quality. Responding to Bioterrorism: AHRQ Helps Clinicians, Health Systems, and Policymakers - Practical Science-Based Advice Emerging from AHRQ's Research. Rockville, MD: Agency for Healthcare Research and Quality; 2002
65. The Leapfrog Group. Computer Physician Order Entry (CPOE). Available at: http://www.leapfroggroup.org/consumer_intro2.htm#CPOE. Accessed September 29, 2002
66. Agency for Healthcare Research and Quality and National Institutes of Health, National Library of Medicine. Available at: www.ahrq.gov/fund/grantix.htm. Accessed December 10, 2003
67. The National Quality Forum. A National Framework for Healthcare Quality Measurement and Reporting: A Consensus Report. Washington, DC: National Forum for Health Care Quality Measurement and Reporting; 2002
68. Grol R. Improving the quality of medical care: building bridges among professional pride, payer profit, and patient satisfaction. JAMA. 2001;286:2578-2585
69. Horbar JD, Rogowski J, Plsek PE, et al. Collaborative quality improvement for neonatal intensive care. Pediatrics. 2001;107:14-22
70. National Initiative for Children's Healthcare Quality. Initiatives. Available at: http://www.nichq.org/initiatives. Accessed September 2, 2002
71. Center for Health Care Strategies. Managed care best practices: best clinical and administrative practices. Available at: http://www.chcs.org/ManagedCare/bcap.html. Accessed September 2, 2002
72. Health Resources and Services Administration Bureau of Primary Health Care. The Quality center. Available at: http://bphc.hrsa.gov/quality/default.htm. Accessed September 2, 2002
73. National Initiative for Children's Healthcare Quality. Medical home learning collaborative. Available at: http://www.nichq.org. Accessed December 9, 2003
74. Shafer MA, Tebb KP, Pantell RH, et al. Effect of a clinical practice improvement intervention on chlamydial screening in adolescent girls. JAMA. 2002;288:2846-2852
75. Agency for Healthcare Research and Quality. Improving Quality in Child and Adolescent Health-Research and Tools: Fact Sheet. Rockville, MD: Agency for Healthcare Research and Quality; 2002:12
76. Agency for Healthcare Research and Quality. Changing Practices, Changing Lives: Assessing the Impacts of the HRSA Health Disparities Collaboratives. Rockville, MD: Agency for Healthcare Research and Quality; 2002
77. Agency for Healthcare Research and Quality. Evaluations of Demonstrations: Rewarding Results. Rockville, MD: Agency for Healthcare Research and Quality; 2002
78. Bordley WC, Margolis PA, Stuart J, Lannon C, Keyes L. Improving preventive service delivery through office systems. Pediatrics. 2001;108(3). Available at: http://www.pediatrics.org/cgi/content/full/108/3/e41
79. Hillman A, Ripley K, Goldfarb N, Weiner J, Nuamah I, Lusk E. The use of physician financial incentives and feedback to improve pediatric preventive care in Medicaid managed care. Pediatrics. 1999;104:931-935
80. Ferris TG, Dougherty D, Blumenthal D, Perrin JM. A report card on quality improvement for children's health care. Pediatrics. 2001;107:143-155
81. Clancy CM, Simpson LA. Looking Forward to Impact: Moving Beyond Serendipity. Health Services Research; 2002
82. American Academy of Pediatrics, Subcommittee on Attention-Deficit/Hyperactivity Disorder and Committee on Quality Improvement. Clinical practice guideline: treatment of the school-aged child with attention-deficit/hyperactivity disorder. Pediatrics. 2001;108:1033-1044
83. Agency for Healthcare Research and Quality. National Guideline Clearinghouse. Available at: www.guideline.gov. Accessed December 9, 2003
84. Agency for Healthcare Research and Quality. National Quality Measures Clearinghouse. Available at: http://www.qualitymeasures. ahrq.gov. Accessed August 3, 2003
85. Agency for Healthcare Research and Quality. Child Health Toolbox. Rockville, MD: Agency for Healthcare Research and Quality; 2002
86. Berwick D. Institute for Healthcare Improvement. Available at: http://www.ihi.org. Accessed September 2, 2002
87. Goode LD, Clancy CM, Kimball HR, Meyer GM, Eisenberg JM. When is "good enough"? The role and responsibility of physicians to improve patient safety. Acad Med. 2002;77:947-951.
88. Sectich TC, Florianai V, Badat MC, Perelman R, Bernstein HH. Continuous professional development: raising the bar for pediatricians. Pediatrics. 2002;110:152-156
89. American Academy of Pediatrics. PediaLink CME. Available at: http://www.pedialink.org/pedialink/index.cfm. Accessed September 2, 2002
90. American Academy of Pediatrics. Education in quality improvement for pediatric practice. Available at: http://www.eqipp.org. Accessed September 2, 2002
91. Agency for Healthcare Research and Quality. Research on Child and Adolescent Health New Starts-Fiscal Year 2002. Rockville, MD: Agency for Healthcare Research and Quality; 2003
92. Agency for Healthcare Research and Quality. Partnerships for Quality RFA. Rockville, MD: Agency for Healthcare Research and Quality; 2002
93. Homer CJ. Quality in pediatrics: a progress report for the American Academy of Pediatrics. Pediatrics. 2001;108:1362-1364
94. American Academy of Pediatrics. Quality improvement and management. Available at: http://www.aap.org/visit/qualityimp.htm. Accessed January 6, 2003
95. Shaw J. NICHQ Update. Paper presented at: Child and Adolescent Health Measurement Advisory Committee Meeting; May 30-31, 2002; Elk Grove Village, IL
96. The Leapfrog Group. Leapfrog Group Hospital Survey Results Site. Available at: http://www.healthgrades.com/leapfrog/index.cfm?fuseaction+mod& modtype=LeapFrogSurvey&modact=LeapFrogSurvey search. Accessed September 2, 2002
97. Hulbert A. The century of the child. Wilson Q. 1999;23:14-29
98. Agency for Healthcare Research and Quality. Fact Sheet: Primary Care Practice-Based Research Networks. Rockville, MD: Agency for Healthcare Research and Quality; 2001
99. Agency for Healthcare Research and Quality. Fact Sheet: Integrated Delivery System Research Network (IDSRN) - Field Partnerships to Conduct and Use Research. Rockville, MD: Agency for Healthcare Research and Quality; 2002
100. Fraser I, Lanier D, Hellinger F, Eisenberg JM. Putting practice into research. Health Serv Res. 2002;37:xiii-xxvi
101. Kaplan-Sanoff M. Healthy steps: delivering developmental services for young children through pediatric primary care. Infants Young Child. 2001;13:69-76
102. Minkovitz C, Strobino D, Hughart N, Scharfstein D, Guyer B. Healthy Steps Evaluation Team. Early effects of the Healthy Steps for Young Children program. Arch Pediatr Adolesc Med. 2001;155:470-479
103. Pelletier H, Abrams M. The North Carolina ABCD Project: a new approach for providing developmental services in primary care practice. Available at: http://www.cmwf.org/programs/child/pelletier_nashpabcd.pdf. Accessed October 7, 2002
104. Gausche M, Lewis RJ, Stratton SJ, et al. Effect of out-of-hospital pediatric endotracheal intubation on survival and neurological outcome: a controlled clinical trial. JAMA. 2000;283:783-790
105. Cifuentes J, Bronstein J, Phibbs CS, Phibbs RH, Schmitt SK, Carlo WA. Mortality in low birth weight infants according to level of neonatal care at hospital of birth. Pediatrics. 2002;109:745-751
106. Tilford JM, Simpson PM, Green JW, Lensing S, Fiser DH. Volume-outcome relationships in pediatric intensive care units. Pediatrics. 2000;106:289-294
107. Kradjan WA, Schulz R, Christensen DB, et al. Patients' perceived benefit from and satisfaction with asthma-related pharmacy services. J Am Pharm Assoc. 1999;39:658-666
108. Miller MR, Elixhauser A, Zhan C, Meyer GM. Patient safety indicators: using administrative data to identify potential patient safety concerns. Health Serv Res. 2001;36:110-132
109. Miller MR, Elixhauser A, Zahn C. Patient safety events during pediatric hospitalizations. Pediatrics. 2003;111:1358-1366
110. National Quality Forum. A National Framework for Healthcare Quality Measurement and Reporting: A Consensus Report. Washington, DC: The National Forum for HealthCare Quality Measurement and Reporting; 2002
111. Agency for Healthcare Research and Quality. AHRQ Quality Indicators. Rockville, MD: Agency for Healthcare Research and Quality; 2003
112. Hermann RC, Palmer RH. Common ground: a framework for selecting core quality measures for mental health and substance abuse care. Psychiatr Serv. 2002;53:281-287
113. Center for Quality Assessment and Improvement in Mental Health. Available at: www.cqaimh.org/quality.html. Accessed December 10, 2003
114. Bader JD, Shugars DA, White BA, Rindal DB. Development of effectiveness of care and use of services measures for dental care plans. J Public Health Dent. 1999;59:142-149
115. Crall JJ. Oral health component of child health services research. J Dent Educ. 1997;61:776-780
116. Mouradian WE. Building and involving constituencies with the Surgeon General's Workshop and Conference. J Dent Res. 2001;80:1873-1874
117. Olin SC, Hoagwood K. The Surgeon General's National Action Agenda on Children's Mental Health. Curr Psychiatry Rep. 2002;4:101-107
118. Surgeon General of the United States. Oral health in America: a report of the Surgeon General. Available at: http://www. surgeongeneral.gov/library/oralhealth. Accessed August 30, 2002
119. Forrest CB, Glade GB, Baker AE, Bocian A, von Schrader S, Starfield B. Coordination of specialty referrals and physician satisfaction with referral care. Arch Pediatr Adolesc Med. 2000;154:499-506
120. Glade GB, Forrest CB, Starfield B, Baker AE, Bocian AB, Wasserman RC. Specialty referrals made during telephone conversations with parents: a study from the pediatric research in office settings network. Ambul Pediatr. 2002;2:93-98
121. Watson MR, Manski RJ, Macek MD. The impact of income on children's and adolescent's preventive dental visits. J Am Dent Assoc. 2001;132:1580-1587
122. Agency for Healthcare Research and Quality. Fact Sheet: National Health Care Quality Report - Update. Agency for Healthcare Research and Quality; 2002
123. Patient Safety Task Force. Patient Safety Task Force fact sheet. Available at: http://www.ahrq.gov/qual/taskforce/psfactst.htm. Accessed November 11, 2002
124. Center for Health Care Strategies. Managed Care Solutions Forum. Available at: http://www.chcs.org/InformedPurchasing/mcsf.html. Accessed September 2, 2002
125. Child and Adolescent Health Measurement Initiative. CAHMI state learning networks (CSLN). Available at: http://www.facct.org/facct/site/CAHMI/CAHMI/home?action=viewToolkit&id=27. Accessed November 11, 2002
126. Blendon RJ, Young JT, McCormick MC, Kropf M, Blair J. Americans' views on children's health. JAMA. 1998;280:2122-2127
127. Kaiser Family Foundation and Agency for Healthcare Research and Quality. Americans as Health Care Consumers: The Role of Quality Information-Highlights of a National Survey. Rockville, MD: Agency for Healthcare Research and Quality; 2002
128. National Health Care Purchasing Institute. Rewarding results: aligning incentives with high quality health care. Available at: http://www.leapfroggroup.org/RewardingResults. Accessed December 10, 2003
129. Institute for Healthcare Improvement. Pursuing perfection: raising the bar for health care performance. Available at: http://www.ihi.org/pursuingperfection. Accessed September 2, 2002