Development of Disease-Specific Quality of Life Measurement Tools

Arthroscopy - Journal of Arthroscopic and Related Surgery

Volumn 19, Issue 10, 2003, Pages 1121-1128

  Kirkley, Alexandra ^a   Griffin, Sharon ^a,b  

^a Fowler Kennedy Sport Medicine Clinic   (Canada)

^b UNIVERSITY OF WESTERN ONTARIO   (Canada)

Author keywords

Measurement of outcome; Quality of life

Indexed keywords

ARTICLE; DIAGNOSTIC VALUE; FUNCTIONAL ASSESSMENT; HUMAN; JOINT MOBILITY; JOINT RADIOGRAPHY; MEASUREMENT; METHODOLOGY; ORTHOPEDIC SURGERY; PSYCHOLOGIC TEST; QUALITATIVE ANALYSIS; QUALITY OF LIFE; QUANTITATIVE ANALYSIS; RELIABILITY; STRENGTH; TREATMENT OUTCOME; VALIDATION PROCESS;

EID: 0346366995     PISSN: 07498063     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.arthro.2003.10.028     Document Type: Review

References (37)

1. Koran LM. The reliability of clinical methods, data and judgments. Part 1 of 2. N Engl J Med 1975;293:642-646.
2. Sugarbaker PH, Barofsky I, Rosenberg SA, Gianola FJ. Quality of life assessment of patients in extremity sarcoma clinical trials. Surgery 1982;91:17-23.
3. Patrick DL, Deyo RA. Generic and disease-specific measures in assessing health status and quality of life. Med Care 1989;27:S217-S232 (suppl).
4. Ware JE Jr, Sherbourne CD. The MOS 36-item short-form health survey (SF-36). 1. Conceptual framework and item selection. Med Care 1992;30:473-481.
5. MacKenzie CR, Charlson ME, DiGioia D, Kelley K. Can the Sickness Impact Profile measure change? An example of scale assessment. J Chronic Dis 1986;39:429-438.
6. Drummond MF, Stoddart GL, Torrance GW, eds. Methodsfor the economic evaluation of health care programmes. Oxford: Oxford University Press, 1987.
7. Juniper EF, Guyatt GH, Jaeschke R. How to develop and validate a new health-related quality of life instrument. In: Spilker B, ed. Quality of life and pharmacoeconomics in clinical trials. Philadelphia: Lippincott-Raven, 1996;49-56.
8. Streiner DL, Norman GR: Health measurement scales: A practical guide to their development and use. New York: Oxford University Press, Oxford Medical Publications, 1995
9. World Health Organization. The Constitution of the World Health Organization. Basic Documents. Geneva: World Health Organization, 1984.
10. Holden RR, Fekken GC, Jackson DN. Structured personality test item characteristics and validity. J Res Personality 1985;19:386-394.
11. Schriesheim CA, Hill KD. Controlling acquiescence response bias by item reversals. Educ Psychol Measure 1981;41:1101-1114.
12. Huskisson EC. Measurement of pain. Lancet 1974;2:1127-1131.
13. Miller GA. The magical number seven, plus or minus two: Some limits on our capacity for processing information. Psychol Rev 1956;63:81-97.
14. Likert RA. A technique for the development of attitude scales. Educ Psychol Measure 1952;12:313-315.
15. Guyatt G, Townsend M, Burman L, Keller JL. A comparison of Likert and Visual Analogue Scales for measuring change in function. J Chronic Dis 1987;40:1129-1133.
16. Wainer H. Estimating coefficients in linear models: It don't make no never mind. Psychol Bull 1976;83:213-217.
17. Holmes TH, Rahne RH. The social readjustment scale. J Psychosomatic Res 1967;11:213-218.
18. Streiner DL, Norman GR, McFarlane AH, Roy RG. Quality of life events and their relationship to strain. Schizophrenia Bull 1981;7:34-42.
19. Jenkinson C. Why are we weighting: A critical examination of the use of item weights in a health status measure. Soc Sci Med 1996;32:1413-1416.
20. Guyatt G, Walter S, Norman G. Measuring change over time: Assessing the usefulness of evaluative instruments. J Chronic Dis 1987;40:171-178.
21. Streiner DL. Sample size formulae for parameter estimation. Percept Motor Skills 1994;78:278-284.
22. Bryant RA. Memory for pain and affect in chronic pain patients. Pain 1993;54:347-351.
23. Linton SJ, Gotestam KG. A clinical comparison of 2 pain scales: Correlation, remembering chronic pain, and a measure of compliance. Pain 1983;17:57-65.
24. Rock MG. A comparison of memory for induced ischaemic pain and chronic rheumatoid pain. Pain 1986;25:337-343.
25. Kelley TL. Interpretation of educational measurements. Yonkers: World Books, 1927.
26. Weiner EA, Stewart BJ. Assessing individuals. Boston: Little Brown, 1984.
27. Cohen J, ed. Statistical power analysis for behavioral sciences. New York: Academic, 1977.
28. Liang MH, Larsen MG, Cullen KE, Schwartz JA. Comparative measurement efficiency and sensitivity of five health status instruments for arthritis research. Arthritis Rheum 1985;28:542-547.
29. Kazis LE, Anderson JJ, Meenan RF. Effect sizes for interpreting changes in health status. Med Care 1989;27:S178-S189 (suppl).
30. Wright JG, Young NL. A comparison of different indices of responsiveness. J Clin Epidemiol 1997;50:239-246.
31. Husted JA, Cook RJ, Farewell VT, Gladman DD. Methods for assessing responsiveness: A critical review and recommendations. J Clin Epidemiol 2000;53:459-468.
32. Guyatt G, Mitchell A, Irvine EJ, Singer J, Williams N, Goodacre R, Tompkins C. A new measure of health status for clinical trials in inflammatory bowel disease. Gastroenterology 1989;96:804-810.
33. Hayworth RJ, Hopkins J, Ells P, Ackroyd E, Mowat AG. Expectations and outcome of total hip replacement. Rheumatol Rehabil 1981;20:65-70.
34. Slevin ML, Plant H, Lynch D, Drinkwater J, Gregory WM. Who should measure quality of life, the doctor or the patient? Br J Cancer 1988;57:109-112.
35. Allen JJ, Yen WM. Introduction to measurement theory. Monterey, California: Brooks/Cole, 2002.
36. Jaeschke R, Singer J, Guyatt GH. Measurements of health status ascertaining the minimally clinically important difference. Control Clin Trials 1989;10:407-415.
37. Wright JG, Young NL. The Patient-Specific Index. Asking patients what they want. J Bone Joint Surg Am 1997;79:974-983.