Family carers: Some impediments to effective policy and service development

Australian Journal of Social Issues

Volumn 31, Issue 2, 1996, Pages 157-172

  Schofield, Hialry ^a   Bozic, Suzanne ^a   Herrman, Helen ^a   Singh, Bruce ^a  

^a UNIVERSITY OF MELBOURNE   (Australia)

Author keywords

[No Author keywords available]

Indexed keywords

EID: 0346102178     PISSN: 01576321     EISSN: None     Source Type: Journal    
DOI: 10.1002/j.1839-4655.1996.tb01047.x     Document Type: Article

References (52)

1. Action Group for Disabled Children Inc. (1988), HACC and Children with Disabilities, Melbourne, Australia.
2. Annison J., (1991) What Do Families Who Have An Intellectually Disabled Child or Developmentally Delayed Child Want, and Are They Happy With What They Get?, Paper presented at the National Conference on Intellectual Disability, Still Breaking Down the Barriers 10 Years Onl, Geelong: Deakin University.
3. Australian Bureau of Statistics (1990), Carers of the Handicapped at Home, (Catalogue No.4122.0).
4. Australian Bureau of Statistics (1994a), Survey of Disability, Ageing and Carers: Summary of Findings (Catalogue No. 4430.0).
5. Australian Bureau of Statistics (1994b), Focus of Families: Caring in Families: Support for persons who are older or have disabilities (Catalogue No. 4423.0)
6. Barnett K. and Cricelli M. (1990)Caring for Caregivers: The Multicultural Respite Care Project, Australian Social Work 43(2), 39-43.
7. Barnett K. (1992)Evaluation of Carer Education-Lessons Learned, Alzheimer's Association of Australia, The Dementia Dilemma, Proceedings from the 2nd National Conference, Adelaide, Australia.
8. Baxter C. (1987)Professional Services as Support: Perceptions of Parents, Australia and New Zealand Journal of Developmental Disabilities, 23(4), 243-253.
9. Baxter C. (1989a)Investigating Stigma as Stress in Social Interactions of Parents, Journal of Mental Deficiency Research, 33, 455-460.
10. Baxter C. (1989b)Parental Access to Assistance from Services: Social Status and Age Related Difference, Australian and New Zealand Journal of Developmental Disabilities, 15(1), 15-25.
11. Baxter C., Cummins R.A., Volard J. and daCosta C. (1992)Shared Family Care: Policy Implementation During the Initial Stage of Service Development, Australian Disability Review, 2, 63-72.
12. Bozic S., Herrman H. and Schofield H. (1993), Government Policy and Unpaid Family Carers: An Overview of Federal and Victorian Government Policy in Relation to Unpaid Family Caregivers, The Case of the Invisible and the Invaluable, Carers of People with Disability: Research and Health Promotion Program, Melbourne: The University of Melbourne.
13. Braithwaite V.A. (1990), Bound to Care, Sydney: Allen and Unwin.
14. Brodaty H. and Greshham M. (1989)Effect of a training program to reduce stress in carers of patients with dementia, British Medical Journal, 299, 1375-1379.
15. Brodaty H. and Hadzi-Pavlovic D. (1991)Psychosocial Effects on Carers Living with Persons with Dementia, International Psychogeriatrics, 3(1), 11-22.
16. Brown J. and McCallum J. (1991), Geriatric Assessment and Community Care: A Follow-up Study, Department of Health, Housing and Community Services, Aged and Community Care Division, Canberra: AGPS.
17. Browne M. (1990)Links Between Practice, Evaluation and Policy: A Commonwealth Perspective in Howe A., Ozanne E. and Selby-Smith C., Community Care Policy and Practice: New Directions in Australia, Public Sector Management Institute, Faculty of Economics and Politics, Melbourne: Monash University.
18. Budget Related Paper No. 5 (1992), Health Care for All Australians, 1992-93 Reform, Canberra: AGPS.
19. Cocks E. (1993)The Place of Family in Social Policy, Family Matters, 34, 28-30, Melbourne: The Australian Institute of Family Studies.
20. Community Services Victoria (1990), Annual Report, 1989-1990, Melbourne: Victorian Government Publication.
21. Coorey L. (1992)Women in the Home - Women as Carers of the Frail Elderly, Paper Presented to the National Agenda for Women, Sydney: NSW Women's Advisory Council.
22. Department of Prime Minister and Cabinet (1991), Women's Budget Statement, 1991-92, Budget Related Paper No.5, Canberra: AGPS.
23. Department of Health, Housing and Community Services (1991), Aged Care Reform Strategy, Mid Term Review 1990-91, Canberra: AGPS.
24. Department of Health, Housing and Community Services (1992), HACC User Characteristics Survey, 1990, Aged and Community Care Service Development and Evaluation Report, No.3, AGPS, Canberra.
25. Department of Health, Housing, Local Government and Community Services (1993), Commonwealth Respite for Carers Planning Project, Commonwealth of Australia.
26. Dickens E.A., Browning C.J., Jellie C. and Thomas S.A. (1993), Older People's Satisfaction with Services Provided by General Medical Practitioners, Lincoln Papers in Gerontology, No. 18, Lincoln Gerontology Centre, Melbourne: La Trobe University.
27. Edgar D. (1992)Sharing the Caring: Rethinking Current Policies, Family Matters, 31, 40-55, Melbourne: The Australian Institute of Family Studies.
28. Hollingworth J. (1990), Service Needs of Children with Disability and Their Families: Final Report, Melbourne: Action Group for Disabled Children Inc., A Home and Community Care Access and Advocacy Project.
29. Home and Community Care (HACC) (1989), National Guidelines, Canberra: AGPS.
30. Howe A. (1990)Evaluating Innovations: Approach With Caution, in Howe A., Ozanne E. and Selby-Smith C., Community Care Policy and Practice : New Directions in Australia, Public Sector Management Institute, Faculty of Economics and Politics, Melbourne: Monash University.
31. Johnson M. and Maguire M. (1989)Give Me A Break: Benefits of a Caregiver Support Service, Journal of Gerontological Nursing, 15(11), 22-26.
32. McCallum J. and Gelfand D. (1990), Ethnic Women in the Middle: A Focus Group Study of Australian Daughters Caring for Migrant Elderly, Report to the Department of Community Services and Health Research and Development Grants Committee, Canberra, Australia.
33. Moore S. and Ernst J. (1991)Who Cares, Home or Community Care for the Elderly, in Batten R., Weeks W. and Wilson J., Issues Facing Australian Families, Melbourne: Longman Cheshire.
34. NSW Women's Advisory Council (1993), Who Cares? The Health and Well Being of Women who are Carers, Sydney: NSW Women's Advisory Council.
35. Office of the Status of Women (1992), Women as Carers: The Economic and Social Implications, Commonwealth/State Minister's Conference on the Status of Women, Canberra.
36. Rix P. (1989), Living with a Disability and Dying for a Break, A Study of Respite Care, Sydney: Disability Council of NSW.
37. Roberts D. (1992), Caregivers in Western Australia, Paper presented at the 2nd National Conference of the Alzheimer's Association of Australia, Adelaide.
38. Rosenman L. (1991), Community Care : Social or Economic Policy?, Paper presented at the Social Policy Research Centre National Conference, Sydney: University of NSW.
39. Rosenman L. and Cahill S. (1988), The Economic Impact of Alzheimer's Disease, Paper presented at the Alzheimer's International Conference, Brisbane.
40. Rosenman L. and Tilse C. (1992), Economic, Social and Emotional Costs of Care of Dementia to Families and the Community: Report to Carers, Department of Social Work and Social Policy, St Lucia: The University of Queensland.
41. Schofield H. and Herrman H. 1993Characteristics of Carers in Victoria, Family Matters, 34, 21-26, Melbourne: Australian Institute of Family Studies.
42. Schultz C.L. and Schultz N.C. (1991)Caring for Family Caregivers, Australian Journal of Marriage and Family, 11(2), 84-93.
43. Shires of Kyneton, Newham & Woodend and Romsey (1993), Respite Care Plan (unpublished report).
44. Sisely D., Links Between Practice (1990)Evaluation and Policy: A State Perspective in Howe A., Ozanne E. and Selby-Smith C., Community Care Policy and Practice: New Directions in Australia, Public Sector Management Institute, Faculty of Economics and Politics, Melbourne: Monash University.
45. Smith B. and O'Malley S. (1993)The Costs and Experiences of Caring for Sick and Disabled Geriatric Patients-Australian Observations, Australian Journal of Public Health, 17(3), 131-134.
46. Staples P. (1991), Social Justice for People with Disabilities, Ministry for Health, Housing and Community Services, Canberra: AGPS.
47. Szwarc C. (1988), A Stitch in Time: A Study in to the Respite Care Needs of Families of Disabled Children in Victoria, Melbourne: The Children's Bureau of Australia and OIDS, Community Services.
48. The City of Melbourne Respite Care Project (1993), Time our for Carers: Respite Care Provision in the Melbourne Municipality, Commonwealth of Australia.
49. Twigg J., Atkin K. and Perring C. (1990), Carers and Services: A Review of Research, Social Policy Research Unit, London: HMSO.
50. Twigg J. (1991), The Interweaving of Formal and Informal Care: Policy Models and Problems, Paper Presented at the International Conference on 'Better Care for Dependant People Living at Home: Meeting the New Agenda in Services for the Elderly', Noordwijkerhout, The Netherlands.
51. Victorian Auditor-General's Office (1992), Integrated Education for Children with Disabilities, Melbourne: Victorian Government Printer.
52. Watson E. and Mears J. (1991), Women in the Middle: Care Givers with a Double Burden of Care, Faculty of Arts and Social Sciences, Sydney: University of Western Sydney (Macarthur).