Life as a young 'ventilator dependent' person

Journal of Social Work Practice

Volumn 13, Issue 2, 1999, Pages 177-190

  Noyes, Jane ^a  

^a UNIVERSITY OF SALFORD   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

EID: 0345979964     PISSN: 02650533     EISSN: None     Source Type: Journal    
DOI: 10.1080/026505399103395     Document Type: Article

References (35)

1. ALDERSON, P. (1999) Learning and Inclusion. Cleves School Experience (London, David Fulton Publishing).
2. Alderson, P. & GOODEY, C. (1998) Enabling Education: Experiences in Special and Ordinary Schools (London, Tufnell Press).
3. AUDIT COMMISSION (1993) Children First: A Study Of Hospital Services (London, HMSO).
4. CHILDREN ACT (1989) (London, HMSO).
5. CHRONICALLY SICK AND DISABLED PERSONS ACT (1970) (London, HMSO).
6. COMMUNITY CARE ACT (1990) (London, HMSO).
7. DEPARTMENT OF EDUCATION AND SCIENCE (1990) Special Needs Issue: A Survey by HM Inspectorate (London, Department of Education and Science, HMSO).
8. DEPARTMENT OF HEALTH (1992) The Patient's Charter (London, HMSO).
9. DEPARTMENT OF HEALTH (1996) The Patient's Charter. Services for Children and Young People (London, HMSO).
10. DEPARTMENT OF HEALTH (1997a) Paediatric Intensive Care 'A Framework for the Future', Report from the national coordinating group on paediatric intensive care to the Chief Executive of the NHS Executive (London, Department of Health).
11. DEPARTMENT OF HEALTH (1997b) A Bridge to the Future. Nursing Standards, Education and Workforce Planning in Paediatric Intensive Care, Report of the Chief Nursing Officer's Task Force (London, Department of Health).
12. DEPARTMENT OF HEALTH (1998a) A First Class Service: Quality within the New NHS (London, HMSO).
13. DEPARTMENT OF HEALTH (1998b) The Quality Protects Programme. Transforming Children's Services, Department of Health LAC (98) 28.
14. DEPARTMENT OF HEALTH (1998c) Objectives for Social Services for Children (London, Department of Health).
15. DEPARTMENT OF HEALTH (1998d) Evaluation of the Pilot Project Programme for Children with Life Threatening Illnesses (London, Department of Health).
16. DISABLED PERSONS ACT (1986) (London, HMSO).
17. EDUCATION ACT (1944) (London, HMSO).
18. EDUCATION ACT (1981) (London, HMSO).
19. JARDINE, E. & WALLIS, C. (1998) Core guidelines for the discharge home of the child on long term assisted ventilation in the United Kingdom, Thorax, 53, pp. 762-767.
20. JARDINE, E., O'TOOLE, M., PAYTON, J. & WALLIS, C. (1999) Current status of long tem ventilation of children in the United Kingdom: questionnaire survey, British Medical Journal, 318, pp. 295-299.
21. MAHON, A., GLENDINNING, C., CLARKE, K. & CRAIG, G. (1996) Researching children: methods and ethics, Children and Society, 10, pp. 145-154.
22. MORRIS, J. (1998a) Still Missing? Vol. 1: The Experiences of Disabled Children and Young People Living Away From Their Families. The Who Cares? (London, Trust).
23. MORRIS, J. (1998b) Still Missing? Vol. 2: Disabled Children and the Children Act. The Who Cares? (London, Trust).
24. MORRIS, J. (1999) Hurtling into a Void: A Research and Policy Review of Transition to Adulthood for Young People with 'Complex Health and Support Needs' (Brighton, Pavillion Publishing).
25. NSPCC (1997) Turning Points (London, NSPCC).
26. NOYES, J. (1999) Voices and Choices. Young People Who Use Assisted Ventilation: Their Health and Social Care, and Education (London, The Stationery Office).
27. OLDMAN, C. & BERESFORD, B. (1998a) Homes Unfit for Children. Housing, Disabled Children and their Families (Bristol, Policy Press).
28. OLDMAN, C. & BERESFORD, B. (1998b) Living at Home with a Disabled Child (Bristol, Policy Press).
29. OLIVER, M. (1998) Theories of disability in health practice and research, British Medical Journal, 317, pp. 1446-1449.
30. REEVE, C. (1998) Still Me (London, Century).
31. ROBINSON, R. (1990) Ventilator dependency in the United Kingdom, Archives of Disease in Childhood, 65, pp. 1235-1236.
32. SAMUELS, M. (1996) Long term ventilation, Paediatric Respiratory Medicine, 2, pp. 24-31.
33. SHAKESPEARE, T. & WATSON, N. (1998) Theoretical perspectives on research with disabled children, in C. ROBINSON & K. STALKER (Eds) Growing Up With Disability, pp. 13-27 (London, Jessica Kingsley).
34. SUDBERY, J. & NOYES, J. (1999) The Voices and Choices of Children and Young People Who Use Assisted Ventilation: Bibliography and Analysis of the Literature (Joseph Rowntree Foundation/The University of Salford). Available from: The Administrator, Institute for Health Research, Humphrey Booth House, The University of Salford, M5 4QA. UK. Price £6.95 plus p + p. Tel: 0161 295 2808.
35. UNITED NATIONS (1989) United Nations Convention on the Rights of the Child. Including: Background to the Convention and Full Text of the Convention (London, Children's Rights Development Unit).