Caring for a relative with dementia: The perceptions of carers and CPNs

Quality in Ageing and Older Adults

Volumn 2, Issue 4, 2001, Pages 3-11

  Pickard, Susan ^a   Glendinning, Caroline ^a  

^a UNIVERSITY OF MANCHESTER   (United Kingdom)

Author keywords

Carers; CPNs; Dementia; Healthcare; Older People; Support

Indexed keywords

EID: 0344112897     PISSN: 14717794     EISSN: None     Source Type: Journal    
DOI: 10.1108/14717794200100024     Document Type: Review

References (35)

1. Adams, T. (1996) Informal family caregiving to older people with dementia: Research priorities for community psychiatric nursing. Journal of Advanced Nursing 24 703-710.
2. Adams, T. (1999) Developing partnership in the work of community psychiatric nurses with older people with dementia. In: T. Adams and C. Clarke Developing Partnerships in Practice pp 305-324. London: Balliere Tindall.
3. Alzheimer's Disease Society (1993) Deprivation and Dementia. London: ADS.
4. Arber, S. & Ginn, J. (1991) Gender and Later Life. London: Sage.
5. Ashworth, M. & Baker, A. (2000) 'Time and Space': Carers' views about respite care. Health and Social Care in the Community 8 (1) 50-56.
6. Askham, J. (1997) Supporting elderly people and informal carers at home. In: I. Norman and S. Redfern (Eds) Mental Health Care for Elderly People. London: Churchill Livingstone.
7. Audit Commission (2000) Forget Me Not: Mental health services for older people. London: Audit Commission.
8. Briggs, K. & Askham, J. (1999) The Needs of People with Dementia and Those who Care for Them. London: ADS.
9. Brown, P., Challis, D. & Abendorff, R. (1996) The work of a mental health team for the elderly: Referrals, caseloads, contact history and outcomes. International Journal of Geriatric Psychiatry 11 29-39.
10. Burholt, V., Wenger, G. C. & Scott, A. (1997) Dementia, disability and contact with formal services: A comparison of dementia sufferers and non-sufferers in rural and urban settings. Health and Social Care in the Community 5 (6) 384-397.
11. Department of Health (1994) Working in Partnership: A collaborative approach to care. London: HMSO.
12. Department of Health (1996) Assessing Older People with Dementia Living in the Community: Practical issues for social and health services. London: HMSO.
13. Department of Health (1997) The New NHS: Modern. Dependable. London: HMSO.
14. Department of Health (1999) Caring About Carers: A national strategy for carers. London: HMSO.
15. Gilhooly, M. (1984) The impact of care-giving on care-givers: Factors associated with the psychological well-being of people supporting a dementing relative in the community. British Journal of Medical Psychology 57 35-44.
16. Greenwood, M. & Walsh, K. (1995) Supporting carers in their own right. Journal of Dementia Care 3 (2) 14-16.
17. Hirsch, C. H., Davies, H. D., Boatwright, F. & Ochango, G. (1993) Effects of a nursing-home respite admission on veterans with advanced dementia. Gerontologist 33 (4) 523-528.
18. Jansson, W., Nordberg, G. & Grafstrom, M. (2001) Patterns of elderly spousal caregiving in dementia care: An observational study. Journal of Advanced Nursing 34 (6) 804-812.
19. Keady, J. (1996) The experience of dementia: A review of the literature and implications for nursing practice. Journal of Clinical Nursing 5 275-288.
20. Kersten, P., McLellan, L., George, S., Mullee, M. & Smith, J. (2001) Needs of carers of severely disabled people: Are they identified and met adequately? Health and Social Care in the Community 9 (4) 235-243.
21. Levin E., Sinclair, I. & Gorbach, P. (1989) Families, Services and Confusion in Old Age. Avebury: Aldershot.
22. Lewis, R. (1998) The impact of the marital relationship on the experience of caring for an elderly spouse with dementia. Ageing and Society 18 209-231.
23. Macera, C. A. et al (1993) The association of positive and negative events with depressive symptomatology among caregivers. International Journal of Human Development 36 (1) 75-80.
24. Matthew, L. (1990) A role for the CPN in supporting the care of clients with dementia. In: C. Brooker (Ed) Community Psychiatric Nursing. London: Chapman and Hall.
25. Nolan, M., Grant, G. & Keady, J. (1996) Understanding Family Care. Buckingham: Open University Press.
26. O'Connor, D.W., Pollitt, P. A., Hyde, J. B., Brook, C. P. B., Reiss, B. B. & Roth, M. (1988) Do general practitioners miss dementia in elderly patients? British Medical Journal 297 1107-1110.
27. Philp, I., McKee, K. J., Meldrum, P., Ballinger, B. R., Gilhooly, M. L. M., Gordon, D. S., Mutch, W. J. & Whittick, J. E. (1995) Community care for demented and non-demented elderly people: A comparison study of financial burden, service use and unmet need in family supporters. British Medical Journal 115 (10) 1503-6.
28. Pickard, S. (1999) Co-ordinated care for older people with dementia. Journal of Interprofessional Care 13 (4) 347-356.
29. Seddon, D. & Robinson, C. (2001) Carers of older people with dementia: Assessment and the Carers Act. Health and Social Care in the Community 9 (3) 151-158.
30. Sweeting, H. & Gilhooly, M. (1997) Dementia and the phenomenon of social death. Sociology of Health and Illness 19 (1) 93-117.
31. Watkins, M. & Redfern, S. (1997) Evaluation of a new night nursing service for elderly people suffering from dementia. Journal of Clinical Nursing 6 485-494.
32. Wenger, G. C. (1984) The Supportive Network: Coping with old age. London: Allen and Unwin.
33. Wenger, G. C. (1990) Elderly carers: The need for appropriate intervention. Ageing and Society 10 197-219.
34. Wenger, G. C. (1994) Dementia sufferers living at home. International Journal of Geriatric Psychiatry 9 721-733.
35. Winter, J. (2000) Cost-effective quality service: Dementia care support. Clinical Governance Bulletin 1 (1) 9.