The responsibilities of adult siblings of adults with dual sensory impairments

International Journal of Disability, Development and Education

Volumn 47, Issue 3, 2000, Pages 293-307

  Harland, Penelope ^a   Cuskelly, Monica ^a  

^a UNIVERSITY OF QUEENSLAND   (Australia)

Author keywords

[No Author keywords available]

Indexed keywords

EID: 0242323916     PISSN: 1034912X     EISSN: 1465346X     Source Type: Journal    
DOI: 10.1080/713671116     Document Type: Article

References (31)

1. BAKER, C.D., 1986. “ Some features of qualitative methodology ”. In Qualitative research, Edited by: EMERY, M., 1–10. Canberra: Research Network of the Australian Association of Adult Education.
2. BEGUN, A.L., 1989. Sibling relationships involving developmentally disabled people. American Journal on Mental Retardation, 93: 566–574.
3. BIGBY, C., 1997a. When parents relinquish care: Informal support networks of older people with intellectual disability. Journal of Applied Research in Intellectual Disabilities, 10: 333–344.
4. BIGBY, C., 1997b. Parental substitutes? The role of siblings in the lives of older people with intellectual disability. Journal of Gerontological Social Work, 29: 3–21.
5. BINKARD, B., 1987. Brothers and sisters talk with PACER, Minneapolis, MN: PACER Center, Inc.
6. BRESLAU, N., 1982. Siblings of disabled children: Birth order and age-spacing effects. Journal of Abnormal Child Psychology, 10: 85–96.
7. BURTON, S.L., and PARKS, A.L., 1994. Self-esteem, locus of control, and career aspirations of college-age siblings of individuals with disabilities. Social Work Research, 18: 178–185.
8. CLEVELAND, D.W., and MILLER, N., 1977. Attitudes and life commitments of older siblings of mentally retarded adults: An exploratory study. Mental Retardation, 15: 38–41.
9. CUSKELLY, M., 1999. Adjustment of siblings of children with a disability: Methodological issues. International Journal for the Advancement of Counselling, 21: 111–124.
10. CUSKELLY, M., CHANT, D., and HAYES, A., 1998. Behaviour problems in the siblings of children with Down syndrome: Associations with family responsibilities and parental stress. International Journal of Disability, Development and Education, 45: 295–311.
11. CUSKELLY, M., and GUNN, P., 1993. Maternal reports of behavior of siblings of children with Down syndrome. American Journal on Mental Retardation, 97: 521–529.
12. CUSKELLY, M., PULMAN, L., and HAYES, A., 1998. Parenting and employment decisions of parents with a preschool child with a disability. Journal of Intellectual and Developmental Disability, 23: 319–332.
13. DUNN, J., 1984. Sisters and brothers, London: Fontana.
14. FARBER, B., 1960. Family organization and crises: Maintenance of integration in families with a severely mentally retarded child. Monographs of the Society for Research in Child Development, 25 (1) Serial No. 75
15. HAND, J.E., TREWBY, M., and REID, P.M., 1994. When a family member has an intellectual handicap. Disability & Society, 9: 167–184.
16. JACOBY, J., 1990. “ My sister Angie: A sibling's perspective ”. In Quality of life: Perspectives and issues, Edited by: SCHALOCK, R.L., 23–26. Washington, DC: American Association on Mental Retardation.
17. KLEIN, S.D., and SCHLEIFER, M.J., eds. 1993. It isn't fair: Siblings of children with disabilities, Westport, CT: The Exceptional Parent Press.
18. KRAUSS, M.W., SELTZER, M.M., GORDON, R., and FRIEDMAN, D.H., 1996. Binding ties: The roles of adult siblings of persons with mental retardation. Mental Retardation, 34: 83–93.
19. MCHALE, S.M., and GAMBLE, W.C., 1989. Sibling relationships of children with disabled and nondisabled brothers and sisters. Developmental Psychology, 25: 421–429.
20. MERRIAM, S.B., 1988. Case study research in education: A qualitative approach, San Francisco, CA: Jossey-Bass.
21. MEYER, D., 1993. Siblings of children with special health and developmental needs: Programs, services and considerations, ARCH Fact Sheet No. 23 Chapel Hill, NC: ARCH National Resource Center for Crisis Nurseries and Respite Care Services.
22. PAOLETTI, I., 1990. Interpreting classroom climate: A study in a year five and six class. International Journal of Qualitative Studies in Education, 3: 113–137.
23. PIDGEON, N., and HENWOOD, K., 1996. “ Grounded theory: Practical implementation ”. In Handbook of qualitative research methods, Edited by: RICHARDSON, T.E., 86–101. Leicester, UK: BPS Books.
24. POWELL, T.H., and GALLAGHER, P.A., 1993. Brothers and sisters, (2nd ed.), Baltimore, MD: Paul H. Brookes.
25. PROSSER, H., and Moss, S., 1996. Informal care networks of older adults with an intellectual disability. Journal of Applied Research in Intellectual Disabilities, 9: 17–30.
26. PRUCHNO, R.A., PATRICK, J.H., and BURANT, C.J., 1996. Aging mothers and their children with chronic disabilities: Perception of sibling involvement and effects on well being. Family Relations, 45: 318–326.
27. SELIGMAN, M., 1983. Sources of psychological disturbance among siblings of handicapped children. Personnel and Guidance Journal, 61: 529–531.
28. SELTZER, G.B., BEGUN, A., SELTZER, M.M., and KRAUSS, M.W., 1991. Adults with mental retardation and their aging mothers: Impacts of siblings. Family Relations, 40: 310–317.
29. SELTZER, M.M., and KRAUSS, M.W., 1993. “ Adult sibling relationships of persons with mental retardation ”. In The effects of mental retardation, disability and illness on sibling relationships: Research issues and challenges, Edited by: STONEMAN, Z., and BERMAN, P.W., 99–116. Baltimore, MD: Paul H. Brookes.
30. TINGEY, C., 1988. “ Cutting the umbilical cord: Parental perspectives ”. In The young person with Down syndrome: Transition from adolescence to adulthood, Edited by: PUESCHEL, S.M., 5–22. Baltimore, MD: Paul H. Brookes.
31. ZETLIN, A.G., 1986. Mentally retarded adults and their siblings. American Journal of Mental Deficiency, 91: 217–225.