Quality of life in dementia: An ethical and philosophical perspective

Expert Review of Pharmacoeconomics and Outcomes Research

Volumn 3, Issue 5, 2003, Pages 525-534

  Hughes, Julian C ^a  

^a NEWCASTLE GENERAL HOSPITAL   (United Kingdom)

Author keywords

Dementia; Objective; Personhood; Phenomenology; Quality of life; Subjective

Indexed keywords

NOOTROPIC AGENT; PSYCHOTROPIC AGENT;

CAREGIVER; COGNITION; DAILY LIFE ACTIVITY; DEMENTIA; ECONOMIC ASPECT; EUTHANASIA; FAMILY LIFE; HEALTH CARE QUALITY; HEALTH STATUS; HUMAN; INSTITUTIONAL CARE; MEASUREMENT; MEDICAL ASSESSMENT; MEDICAL DECISION MAKING; MEDICAL ETHICS; MEDICAL LITERATURE; MEDICAL RESEARCH; METHODOLOGY; PATIENT CARE; PHENOMENOLOGY; PHILOSOPHY; PSYCHOLOGICAL ASPECT; PSYCHOMETRY; QUALITY OF LIFE; RELIGION; REVIEW; SOCIAL ASPECT; WELLBEING;

EID: 0142154904     PISSN: 14737167     EISSN: None     Source Type: Journal    
DOI: 10.1586/14737167.3.5.525     Document Type: Review

References (62)

1. Baldwin C, Hughes J, Hope T, Jacoby R, Ziebland S. Ethics and dementia: mapping the literature by bibliometric analysis. Int. J. Geriatr. Psychiatry. 18, 41-54 (2003).
2. Dresser RS, Robertson JA. Quality of life and nontreatment decisions for incompetent patients: A critique of the orthodox approach. Law Med. Healthcare. 17, 234-244 (1989).
3. Drane JF, Coulehan JL. The best-interest standard: surrogate decision making and quality of life. J. Clin. Ethics. 6, 20-29 (1995).
4. Dresser R, Whitehouse PJ. The incompetent patient on the slippery slope. Hastings Cent. Rep. 24, 6-12 (1994).
5. Baldwin C, Hughes J, Hope T, Jacoby P, Ziebland S. Ethics and dementia: mapping the literature by bibliometric analysis. Int. J. Geriatr. Psychiatry. 18, 41-54 (2003).
6. Ready RE. Quality of life in dementia. Med. Health R. I. 85, 216-218 (2002).
7. Hughes JC. Ethics and the psychiatry of old age. In: Psychiatry in the Elderly. 3rd Edition. Jacoby R, Oppenheimer C (Eds). Oxford University Press, Oxford, UK, 863-895 (2002).
8. Burns A, Russell E, Page S. New drugs for Alzheimer's disease. Br. J. Psychiatry, 174, 476-479 (1999).
9. Post SG. The Moral Challenge of Alzheimer's disease: Ethical Issues from Diagnosis to Dying 2nd Edition. Johns Hopkins University Press, MD, USA, 63-64, (2000).
10. Whitehouse PJ, Orgogozo J-M, Becker RE et al. Quality-of-life assessment in dementia drug development. Alzheimer. Dis. Assoc. Disord. 11, 56-60 (1997).
11. Salek SS, Walker MD, Bayer AJ. A review of quality of life in Alzheimer's disease. Part 2: issues in assessing drug effects. PharmacoEconomics 14(6), 613-627 (1998).
12. Kitwood T, Bredin K. A new approach to the evaluation of dementia care. J. Advanc. Health Nurs. Care 1(5), 41-60 (1992).
13. Williams J, Rees J. The use of dementia care mapping as a method of evaluating care received by patients with dementia -an initiative to improve quality of life. J. Adv. Nurs. 25, 316-323 (1997).
14. Ballard C, O'Brien J, James I et al. Quality of life for people with dementia living in residential and nursing home care: the impact of performance on activities of daily living, behavioral and psychological symptoms, language skills and psychotropic drugs. Int. Psychogeriatr. 13(1), 93-106 (2001).
15. Ballard CG, O'Brien JT, Reichelt K, Perry EK. Aromatherapy as a safe and effective treatment for the management of agitation in severe dementia: the results of a double-blind, placebo-controlled trial with Melissa. J. Clin. Psychiatry 63(7), 553-58 (2002).
16. Fossey J, Lee L, Ballard C. Dementia care mapping as a research tool for measuring quality of life in care settings: psychometric properties. Int. J. Geriatr. Psychiatry 17(11), 1064-1070 (2002).
17. Bond J, Corner L. Researching dementia: are there unique methodological challenges for health services research? Ageing Soc. 21, 95-116 (2001).
18. Lyketsos CG, Gonzales-Salvador T, Chin JJ, Baker A, Black B, Rabins P. A follow-up study of change in quality of life among persons with dementia residing in a long-term care facility. Int. J. Geriatr. Psychiatry, 18(4), 275-281 (2003).
19. Lo B, Dornbrand L. Understanding the benefits and burdens of tube feedings. Arch. Intern. Med. 149(9), 1925-1926 (1989).
20. Gillick MR. Rethinking the role of tube feeding in patients with advanced dementia. N. Engl. J. Med. 342, 206-210 (2000).
21. Wilmot S, Legg L, Barratt J. Ethical issues in the feeding of patients suffering from dementia: a focus group study of hospital staff responses to conflicting principles. Nurs. Ethics 9, 599-611 (2002).
22. Fairbairn G. Ending lives: age, autonomy and the quality of life. In: Ageing, Autonomy and Resources. Lesser AH (Ed.). Ashgate, Aldershot, UK and Brookfield, USA, 88-115 (1999).
23. Post SG. Infanticide and geronticide. Ageing Soc. 10(3), 317-328 (1990).
24. Walter JJ, Shannon TA. Quality of Life: the New Medical Dilemma. Paulist Press, NY, USA (1990).
25. Bond J, Corner L. Researching dementia: are there unique methodological challenges for health services research? Ageing Soc. 21, 95-116 (2001).
26. Albert SM, Logsdon RG (Eds). Assessing Quality of Life in Alzheimer's disease. Springer Publishing Company, NY, USA (2000).
27. Lawton MP. Quality of life in Alzheimer's disease research. Alzheimer. Dis. Assoc. Disord. 11(Suppl. 6), 91-99 (1997).
28. Struttmann T, Fabro M, Romieu G et al. Quality-of-life assessment in the old using the WHOQOL 100: differences between patients with senile dementia and patients with cancer. Int. Psychogeriatr. 11(3), 273-279 (1999).
29. Logsdon RG, Gibbons LE, McCurry SM, Teri L. Assessing Quality of life in older adults with cognitive impairment Psychosom. Med. 64(3), 510-519 (2002).
30. Bond J. Quality of life for people with dementia: approaches to the challenge of measurement. Ageing Soc. 19, 561-579 (1999).
31. O'Boyle CA, McGee H, Joyce CRB. Quality of life: assesing the individual. In: Advances in Medical Sociology. Fitzpatrick R (Ed.). JAI Press, CT, USA, 159-180 (1994).
32. Bond J. Quality of life for people with dementia: approaches to the challenge of measurement. Ageing Soc. 19, 561-579 (1999).
33. Selai CE, Trimble MR, Rossor M, Harvey RJ. Assessing quality of life in dementia: preliminary psychometric testing of the Quality of Life Assessment Schedule (QOLAS). Neuropsychological Rehabilitation 11, 219-243, (2001).
34. Gill TM. Quality of life assessment: values and pitfalls. J. R. Soc. Med. 88, 680-682 (1995).
35. Selai CE, Trimble MR, Rossor MN, Harvey RJ. The Quality of Life Assessment Schedule (QOLAS) - a new method for assessing quality of life in dementia. In: Assessing Quality of Life in Alzheimer's Disease. Albert SM, Logsdon RG (Eds). Springer Publishing Company, NY, USA, 31-48 (2000).
36. Jennings B. A life greater than the sum of its sensations: ethics, dementia and the quality of life. In: Assessing Quality of Life in Alzheimer's Disease. Albert SM, Logsdon RG (Eds). Springer Publishing Company, NY, USA, 165-178 (2000).
37. Jennings B. A life greater than the sum of its sensations: ethics, dementia and the quality of life. In: Assessing Quality of Life in Alzheimer's Disease. Albert SM, Logsdon RG (Eds). Springer Publishing Company, NY, USA, 169-170 (2000).
38. Jennings B. A life greater than the sum of its sensations: ethics, dementia and the quality of life. In: Assessing Quality of life in Alzheimer's disease. Albert SM, Logsdon RG (Eds). Springer Publishing Company, NY, USA, 168 (2000).
39. Griffin JP. Well-Being: its Meaning, Measurement and Moral Importance. Clarendon Press, Oxford, UK (1986).
40. Jennings B. A life greater than the sum of its sensations: ethics, dementia and the quality of life. In: Assessing Quality of Life in Alzheimer's disease. Albert SM, Logsdon RG (Eds). Springer Publishing Company, NY, USA, 171 (2000).
41. I b i d.
42. Brock D. Quality of life measures in healthcare and medical ethics. In: The Quality of Life. Nussbaum M, Sen A (Eds). Clarendon Press, Oxford, UK, 95-132 (1993).
43. Jennings B. A life greater than the sum of its sensations: ethics, dementia and the quality of life. In: Assessing Quality of Life in Alzheimer's Disease. Albert SM, Logsdon RG (Eds). Springer Publishing Company, NY, USA, 172 (2000).
44. Brock D. Quality of life measures in healthcare and medical ethics. In: The Quality of Life. Nussbaum M, Sen A (Eds). Clarendon Press, Oxford, UK, 97 (1993).
45. Brock D. Quality of life measures in healthcare and medical ethics. In: The Quality of Life. Nussbaum M, Sen A (Eds). Clarendon Press, Oxford, UK, 98 (1993).
46. Moore A, Hope T, Fulford KWM. Mild mania and well-being. Philosophy, Psychiatry, & Psychology. 1(3), 165-177 (1994).
47. Rabins P. Measuring Quality of life in persons with dementia. Int. Psychogeriatr. 12(Suppl. 1), 47-49 (2000).
48. Volicer L, Hurley AC, Camberg L. A model of psychological well-being in advanced dementia. In: Assessing Quality of Life in Alzheimer's Disease. Albert SM, Logsdon RG (Eds). Springer Publishing Company, NY, USA, 111-124 (2000).
49. Hughes JC. Ethics and the antidementia drugs. Int. J. Geriatr. Psychiatry, 15, 538-543 (2000).
50. Department of Health. Reference Guide to Consent for Examination or Treatment. Department of Health, London, UK (2001).
51. Dworkin R. Life's Dominion. An Argument about Abortion and Euthanasia. Harper Collins, London, UK, 201 (1993).
52. Dresser R. Dworkin on dementia: elegant theory, questionable policy. Hastings Cent. Rep. 25, 32-38 (1995).
53. Hope T. Personal identity and psychiatric illness. In: Philosophy, Psychology and Psychiatry. Griffiths AP (Ed.). Cambridge University Press, Cambridge, UK, 131-143 (1995).
54. Jaworska A. Respecting the margins of agency: Alzheimer's patients and the capacity to value. Philos. Public Aff. 28, 105-138 (1999).
55. Bond J. Sociological perspectives. In: A Handbook of Dementia Care. Cantley C (Ed.). Open University Press, Buckingham and Philadelphia, USA, 44-61 (2001).
56. Hughes JC. Views of the person with dementia. J. Med. Ethics. 27, 86-91 (2001).
57. Brock D. Quality of life measures in healthcare and medical ethics. In: The Quality of Life. Nussbaum M, Sen A (Eds). Clarendon Press, Oxford, UK, 98 (1993).
58. Schermer M. In search of the good life for demented elderly. Med. Healthcare Philos. 6(1), 35-44 (2003).
59. Bond J, Corner L. Researching dementia: are there unique methodological challenges for health services research? Ageing Soc. 21, 95-116 (2001).
60. Kitwood T, Bredin K. Towards a theory of dementia care: personhood and well-being. Ageing Soc. 12, 269-287 (1992).
61. Whitehouse PJ, Rabins P. Quality of life and dementia. Alzheimer. Dis. Assoc. Disord. 6, 135-138 (1992).
62. Whitehouse PJ. Quality of life: future directions. In: Assessing Quality of life in Alzheimer's Disease. Albert SM, Logsdon RG (Eds). Springer Publishing Company NY, USA, 179-184 (2000).