Huntington's disease: Do future physicians and lawyers think eugenically?

Clinical Genetics

Volumn 64, Issue 4, 2003, Pages 327-338

  Elger, Bernice ^a   Harding, T ^a  

^a UNIVERSITY CENTER OF LEGAL MEDICINE   (Switzerland)

Author keywords

Ethics; Eugenics; Genetic testing; Hungtington's disease; Questionnaire

Indexed keywords

ARTICLE; ATTITUDE; CONTRACEPTION; CONTROLLED STUDY; GENE MUTATION; GENETIC DISORDER; GENETIC SCREENING; HEALTH EDUCATION; HETEROZYGOTE; HUMAN; HUNTINGTON CHOREA; INTERVIEW; LAW; MEDICAL GENETICS; MEDICAL STUDENT; NONMEDICAL OCCUPATIONS; PHYSICIAN; PRENATAL DIAGNOSIS; PRIORITY JOURNAL; QUESTIONNAIRE; RECORDING; RISK FACTOR; SOCIETY; STUDENT; SWITZERLAND; TEACHING; THINKING;

EMPIRICAL APPROACH; GENETICS AND REPRODUCTION;

ADULT; ATTITUDE OF HEALTH PERSONNEL; ATTITUDE TO HEALTH; EUGENICS; GENETIC SCREENING; HUMANS; HUNTINGTON DISEASE; LAWYERS; QUESTIONNAIRES; SOCIAL CONTROL, INFORMAL; STUDENTS, MEDICAL;

EID: 0141921341     PISSN: 00099163     EISSN: None     Source Type: Journal    
DOI: 10.1034/j.1399-0004.2003.00122.x     Document Type: Article

References (37)

1. Harper PS. Huntington disease and the abuse of genetics. Am J Hum Genet 1992: 50: 460-464.
2. Allen GE. The social and economic origins of genetic determinism. a case history of the American Eugenics Movement, 1900-1940 and its lessons for today. Genetica 1997: 99: 77-88.
3. Mao X. Chinese geneticists' views of ethical issues in genetic testing and screening: evidence for eugenics in China. Am J Hum Genet 1998: 63: 688-695.
4. Knoppers BM. Well-bear and well-rear in China. Am J Hum Genet 1998: 63: 686-687.
5. Flinter F. Medical genetics: advances in brief. J Med Genet 1999: 36: 503.
6. Wertz DC. Eugenics is alive and well: a survey of genetic professionals around the world. Sci Context 1998: 11: 493-510.
7. Habermas J. Die Zukunft der menschlichen Natur. Auf dem Weg zu einer liberalen Eugenik? Frankfurt: Suhrkamp, 2001.
8. Wertz DC, Knoppers BM. Serious genetic disorders: can or should they be defined? Am J Med Genet 2002: 108: 29-35.
9. Simpson SA, Harper PS, on behalf of the United Kingdom Huntington's Disease Prediction Consortium. Prenatal testing for Huntington's disease: experience within the UK 1994-1998. J Med Genet 2001: 38: 333-335.
10. Adam S, Wiggins S, Whyte P et al. Five year study of prenatal testing for Huntington's disease: demand, attitudes, and psychological assessment. J Med Genet 1993: 30: 549-556.
11. Evers-Kiebooms G, Nys K, Harper P et al. Predictive DNA-testing for Huntington's disease and reproductive decision making: a European collaborative study. Eur J Hum Genet 2002: 10: 167-176.
12. Firth HV, Lindenbaum RH. UK clinicians' knowledge of and attitudes to the prenatal diagnosis of single gene disorders. J Med Genet 1992: 29: 20-23.
13. Thomassen R, Tibben A, Niermeijer MF, van der Does E, van de Kamp JJP, Verhage F. Attitudes of Dutch general practitioners towards presymptomatic DNA-testing for Huntington disease. Clin Genet 1993: 43: 63-68.
14. Milner KK, Collins EE, Connors GR, Petty EM. Attitudes of young adults to prenatal screening and genetic correction for human attributes and psychiatric conditions. Am J Med Genet 1998: 76: 111-119.
15. Drake H, Reid M, Marteau T. Attitudes towards termination for fetal abnormality: comparisons in three European countries. Clin Genet 1996: 49: 134-140.
16. Vines G. Genetics: let the public decide. BMJ 1997: 314: 1055.
17. Levitt M. Let the consumer decide? The regulation of commercial genetic testing. J Med Ethics 2001: 27: 398-403.
18. Wertz DC. International perspectives. In: Clarke A, ed. The Genetic Testing of Children. Oxford: Bios Scientific Publishers, 1998: 271-287.
19. Fletcher JC. Ethics and human genetics: a cross-cultural perspective. In: Wertz, DC, Fletcher, JC, eds. Ethics and Genetics. A Cross-Cultural Perspective. Heidelberg, Germany: Springer-Verlag, 1989.
20. Wertz DC, Fletcher JC, Mulvihill JJ. Medical geneticists confront ethical dilemmas: cross-cultural comparisons among 18 nations. Am J Hum Genet 1990: 46: 1200-1213.
21. Wertz DC. International perspectives on privacy and access to genetic information. Microbial Comparative Genomics 1997: 2: 33-40.
22. Nippert I, Horst J, Wolff G, Wertz D. Ethical issues in genetic service provision: attitudes of human geneticists in Germany. Am J Hum Genet 1996: 59: A338.
23. ASHG statement. Professional disclosure of familial genetic information. The American Society of Human Genetics Social Issues Subcommittee on Familial Disclosure. Am J Hum Genet 1998: 62: 474-483.
24. Deftos LJ. The evolving duty to disclose the presence of genetic disease to relatives. Academic Med 1998: 73: 962-968.
25. Elger BS, Harding TW. Terminally ill patients and Jehovah's Witnesses: teaching acceptance of patients' refusals of vital treatments. Med Educ 2002: 36: 479-488.
26. Elger BS, Harding TW. Should cancer patients be informed about their diagnosis and prognosis? Future doctors and lawyers differ. J Med Ethics 2002: 28: 258-265.
27. World Health Organisation. Proposed International Guidelines on Ethical Issues in Medical Genetics and Genetic Services (Report of a Meeting on Ethical Issues in Medical Genetics Geneva 15-16 December 1997). Geneva: WHO Human Genetics Programme, 1998 [http://www.who.int/ncd/hgn/hgnethic.htm]
28. The International Huntington Association and the World Federation of Neurology Research Group on Huntington's Chorea. Guidelines for the molecular genetics predictive test in Huntington's disease. J Med Genet 1994: 31: 555-559.
29. CCNE. Avis du comité consultatif national d'éthique, 46; Génétique et médecine: de la prédiction à la prévention. Cahiers CCNE 1996: 6: 5-37.
30. Wertz DC, Fletcher JC. Attitudes of genetic counselors: a multinational survey. Am J Hum Genet 1988: 42: 592-600.
31. Lisker R, Carnevale A, Armendares S. Mexican geneticists' views of ethical issues in genetics testing and screening. Are eugenic principles involved? Clin Genet 1999: 56: 323-327.
32. Wertz DC, Fletcher JC. Ethics and medical genetics in the United States: a national survey. Am J Med Genet 1988: 29: 815-827.
33. Bernat E. Abortion without free and informed consent? An Austrian case of first impression. J Med Philos 2001: 26: 311-321.
34. Nuffield Council on Bioethics. Genetic Screening: Ethical Issues. London: Nuffield Council on Bioethics, 1993.
35. Académie Suisse des Sciences Médicales. Directives médico-éthiques concernant les examens génétiques sur l'homme. Bull des Médecins Suisses 1996: 74: 1454-1458.
36. Garver KL, Garver B. Eugenics: past, present, and the future. Am J Hum Genet 1991: 49: 1109-1118.
37. American Society of Human Genetics, Board of Directors. Eugenics and the misuse of genetic information to restrict reproductive freedom: ASHG statement. Am J Hum Genet 1999: 64: 335-338.