Women with established rheumatoid arthritis perceive pain as the predominant impairment of health status

Rheumatology

Volumn 42, Issue 8, 2003, Pages 995-1000

  Minnock, P ^a   FitzGerald, O ^a,b,c   Bresnihan, B ^a,b,c  

^a Our Lady's Hospice Ltd Dublin   (Ireland)

^b ST VINCENT S UNIVERSITY HOSPITAL   (Ireland)

^c UNIVERSITY COLLEGE DUBLIN   (Ireland)

Author keywords

Pain; Patients' perceptions; Rheumatoid arthritis; Women's health

Indexed keywords

ANTIRHEUMATIC AGENT;

ADULT; AGE DISTRIBUTION; ARTICLE; CLINICAL PROTOCOL; CONTROLLED STUDY; FEMALE; FREQUENCY ANALYSIS; HEALTH STATUS; HUMAN; LONGITUDINAL STUDY; MAJOR CLINICAL STUDY; MEDICAL RESEARCH; OUTCOMES RESEARCH; PAIN ASSESSMENT; PATIENT SELECTION; PERCEPTION; PRIORITY JOURNAL; QUANTITATIVE ANALYSIS; QUESTIONNAIRE; RATING SCALE; RHEUMATOID ARTHRITIS; SCORING SYSTEM; STATISTICAL ANALYSIS; WELLBEING;

ANTIRHEUMATIC AGENTS; ARTHRITIS, RHEUMATOID; ATTITUDE; FEMALE; FORECASTING; HEALTH STATUS; HUMANS; PAIN; QUALITY OF LIFE;

EID: 0141727738     PISSN: 14620324     EISSN: None     Source Type: Journal    
DOI: 10.1093/rheumatology/keg281     Document Type: Article

References (56)

1. Gordon DA, Hastings DE. Rheumatoid arthritis. Clinical features of rheumatoid arthritis: early progressive and late disease. In: Klippel JH, Dieppe PA, eds. Practical rheumatology. London: Mosby; 1997:169-82.
2. Hannan MT. Epidemiologic perspectives on women with arthritis: an overview. Arthritis Care Res 1996;9:424-34.
3. Reisine ST, Grady E, Goodenow C. Fifield J. Work disability among women with rheumatoid arthritis. Arthritis Rheum 1989;32:538-43.
4. Allaire SH. Gender and disability associated with arthritis: differences and issues. Arthritis Care Res 1996;9:435-40.
5. World Health Organization. International Classification of Impairments Disabilities and Handicaps. Geneva: World Health Organization, 1958.
6. Steinbrocker O, Traeger CH, Batterman RC. Therapeutic criteria in rheumatoid arthritis. J Med Assoc 1949; 140:650-2.
7. Fries JF, Spitz PW, Kraines RG, Holman HR. Measurement of patient outcomes in arthritis. Arthritis Rheum 1980;41(Suppl. 9):S337.
8. Meenan RF, Gertman PM, Mason JH. Measuring health status in arthritis: the Arthritis Impact Measurement Scales. Arthritis Rheum 1980;23:146-52.
9. Baumann B. Diversities in conceptions of health and physical illness. J Health Hum Behav 1961;2:39-46.
10. Berkanovic E, Hurwicz ML, Lacenbruch PA. Concordant and discrepant views of patients' physical functioning. Arthritis Care Res 1995;8:94-101.
11. Suarez-Almazor ME, Conner-Spady B, Kendall CJ, Russell AS, Skeith K. Lack of congruence in the ratings of patients' health status by patients and their physicians. Med Decis Making 2001;21:113-21.
12. Hewlett S, Smith AP, Kirwan JR. Values for function in rheumatoid arthritis: patients, professionals, and public. Ann Rheum Dis 2001;60:928-33.
13. Kirwan JR, Chaput de Saintong Dm, Joyce CR. Clinical judgement analysis. Q J Med 1990;76:935-49.
14. Carr AJ. A patient centred approach to evaluation and treatment in rheumatoid arthritis: the development of a clinical tool to measure patient-perceived handicap. Br J Rheumatol 1996;35:921-32.
15. Wolfe F, Pincus T. Listening to the patient. A practical guide to self-report questionnaires in clinical care. Arthritis Rheum 1999;42:1797-808.
16. Ailinger RL, Schweitzer E. Patients' explanations of rheumatoid arthritis. West J Nurs Res 1993;15:340-51.
17. Le Gallez P. Rheumatoid arthritis: effects on the family. Nurs Stand 1993;7(39):30-4.
18. Hewlett S. Patients' views of changing disability. Nurs Stand 1994;8(31):23-31.
19. Browne S, Williams A. Women's experiences of rheumatoid arthritis. J Adv Nurs 1995;21:695-701.
20. Ryan S. Living with rheumatoid arthritis: a phenomenological exploration. Nurs Stand 1996;10(41):45-8.
21. DeVellis RF, Carswell Patterson C, Blalock SJ, Renner BR, DeVellis BM. Do people with rheumatoid arthritis develop illness-related schemas? Arthritis Care Res 1997;10:78-87.
22. Sakalys JA. Illness behaviour in rheumatoid arthritis. Arthritis Care Res 1997;10:229-37.
23. Quandt SA, Arcury TA. Qualitative methods in arthritis research: Overview and data collection. Arthritis Care Res 1997;10:273-81.
24. Beaton DE, Tarasuk V, Katz JN, Wright JG, Bombardier G. 'Are you better'? A qualitative study of the meaning of recovery. Arthritis Care Res 2001;45:270-9.
25. Okma-Keulen P, Hopman-Rock M. The onset of generalised osteoarthritis in older women: A qualitative approach. Arthritis Care Res 2001;45:183-90.
26. Felson DT. Epidemiology of the rheumatic diseases. In: Koopman WJ, ed. Arthritis and allied conditions. 13th ed. Baltimore: Williams and Wilkins, 1997:3-34.
27. Meenan RF, Mason JH, Anderson JJ, Guccione AA, Kazis LE. AIMS 2: The contents and properties of a revised and expanded Arthritis Impact Measurement Scales Health Assessment Questionnaire. Arthritis Rheum 1992;35:1-10.
28. Fries J, Spitz P, Young D. The dimensions of health outcomes: the health assessment questionnaire disability and pain scales. J Rheumatol 1982;9:789-93.
29. Meenan RF, Gertman PM, Mason JH, Dunaif R. The arthritis impact measurement scales: further investigations of a health status measure. Arthritis Rheum 1982; 25:1048-53.
30. Newman S, Fitzpatrick R, Revenson TA, Skevington S, Williams G. Understanding Rheumatoid Arthritis. London: Routledge, 1996.
31. Minnock P, FitzGerald O, Bresnihan B. Quality of life, social support and knowledge of disease in women with rheumatoid arthritis. Arthritis Rheum 2003;48: in press.
32. Fries JF, Spitz PW, Kraines RG, Holman HR. Measurement of patient outcomes in arthritis. Arthritis Rheum 1980;41(Suppl. 9):S337.
33. Fries JF, Ramey DR. 'Arthritis specific' global health analogue scales assess 'generic' health related quality of life in patients with rheumatoid arthritis. J Rheumatol 1997; 24:1697-702.
34. Guccione AA, Anderson JJ, Anthony JM, Meenan RF. The correlates of health perceptions in rheumatoid arthritis. J Rheumatol 1995;22:432-9.
35. Stenstrom H, Nisell R. Assessment of disease consequences in rheumatoid arthritis: a survey of methods classified according to the International classification of impairments, disabilities and handicaps. Arthritis Care Res 1997; 10:135-50.
36. Heiberg T, Kvein TK. Preferences for improved health in 1024 patients with rheumatoid arthritis: pain has highest priority. Arthritis Rheum 2002;47:391-8.
37. Kazis LE, Meenan RF, Anderson JJ. Pain in the rheumatic diseases: investigations of a key health status component. Arthritis Rheum 1983;26:1017-22.
38. Weinberger M, Hiner SL, Tierney WM. Improving functional status in arthritis: the effects of social support. Soc Science Med 1986;23:899-904.
39. Fitzpatrick R, Newman S, Lamb R, Shipley M. Social relationships and psychological well being in rheumatoid arthritis. Soc Science Med 1988;27:399-403.
40. Fitzpatrick R, Newman S, Becker R, Shipley M. Social support, disability and depression: a longitudinal study of rheumatoid arthritis. Soc Science Med 1991;33:605-11.
41. Krol B, Sanderman R, Suurmeijer Theo PBN. Social support rheumatoid arthritis and quality of life: concepts measurement and research. Patient Educ Courts 1993; 20:101 20.
42. Revenson TA. The role of social support with rheumatic disease. In: Newman S, Shipley M, eds. Psychological aspects of rheumatic diseases. Bailliere's Clin Rheumatol 1993;7:377-96.
43. Schoenfeld-Smith K, Petroski GF et al. The biopsychosocial model of disability in rheumatoid arthritis. Arthritis Care Res 1996;9:368-75.
44. Pincus T, Callahan LF. The 'side effects' of rheumatoid arthritis: Joint destruction, disability and early mortality. Br J Rheumatol 1993;32:28-37.
45. Smedstrad LM, Moum T, Guillemin TK et al. Correlates of functional disability in early rheumatoid arthritis: a cross sectional study of 706 patients in four European countries. Br J Rheumatol 1996;35:746-51.
46. Whalley D, McKenna SP, DeJong Z, Van der Heijde D. Quality of life in rheumatoid arthritis. Br J Rheumatol 1997;36:884-8.
47. Wolfe F, Hawley DJ. The longterm outcomes of rheumatoid arthritis: work disability: a prospective 18 year study of 823 patients. J Rheumatol 1998;25:2108-17.
48. Suurmeijer TPBM, Waltz M, Moum T et al. Quality of life profiles in the first year of rheumatoid arthritis: Results from the EURIDISS longitudinal study. Arthritis Care Res 2001;45:111-21.
49. Hunsted JA, Gladman DD, Farewell VT, Cook RJ. Health related quality of life with psoriatic arthritis: a comparison with patients with rheumatoid arthritis. Arthritis Care Res 2001;45:151-8.
50. Callahan LF. Arthritis as a women's health issue. Arthritis Care Res 1996;9:159-62.
51. Cornhill CJ, Schmitt MH. Perceived health status, self-esteem, and body image in women with rheumatoid arthritis or systemic lupus erythematosus. Res Nurs Health 1990;13:99-107.
52. Neville C, Fortin PR, Fitzcharles M et al. The needs of patients with arthritis: the patient's perspective. Arthritis Care Res 1999;12:85-95.
53. Donovan JL, Blake DR, Fleming WG. The patient is not a blank sheet: key beliefs and their relevance to patient education. Br J Rheumatol 1989;28:58-61.
54. Morse J. Nursing research: The application of the qualitative approach. London: Chapman and Hall, 1996.
55. Polit DF, Hungler BP. Nursing research: principles and methods. Philadelphia: J. B. Lippincott, 1995.
56. Faltermaier T. Why public health research needs qualitative approaches: subjects and methods in change. Eur J Public Health 1997;7:357-63.