Palliative care for patients with end-stage renal failure: Reflections from Central Australia

Palliative Medicine

Volumn 17, Issue 6, 2003, Pages 514-519

  Fried, Ofra ^a  

^a Health and Community Services   (Australia)

Author keywords

Aboriginal; Dialysis abatement; End stage renal failure; Palliative care

Indexed keywords

ABORIGINE; ADULT; AGED; ARTICLE; AUSTRALIA; COMMUNITY CARE; CONTROLLED STUDY; CULTURAL FACTOR; DEMOGRAPHY; EPIDEMIC; FEMALE; HEALTH CARE DELIVERY; HEALTH CARE NEED; HEALTH CARE QUALITY; HEALTH SERVICE; HEMODIALYSIS; HOSPITAL CARE; HUMAN; INTERPERSONAL COMMUNICATION; KIDNEY FAILURE; MAJOR CLINICAL STUDY; MALE; MEDICAL AUDIT; MEDICAL DECISION MAKING; NURSING HOME; PALLIATIVE THERAPY; PATIENT CARE; PATIENT REFERRAL; PUBLIC HEALTH SERVICE; QUALITY OF LIFE; TERMINAL CARE; URBAN RURAL DIFFERENCE;

AGED; FEMALE; HOSPICE CARE; HUMANS; KIDNEY FAILURE, CHRONIC; LANGUAGE; MALE; MIDDLE AGED; NORTHERN TERRITORY; OCEANIC ANCESTRY GROUP; PALLIATIVE CARE; RECURRENCE; RESIDENCE CHARACTERISTICS; TREATMENT OUTCOME;

EID: 0141478956     PISSN: 02692163     EISSN: None     Source Type: Journal    
DOI: 10.1191/0269216303pm797oa     Document Type: Article

References (34)

1. Spencer JL, Silva DT, Snelling P, Hoy WE. An epidemic of renal failure among Australian Aboriginals. Med J Aust 1998; 168: 537-41.
2. Fried O. Cross cultural issues in the medical management and nursing care of terminally ill Aboriginal people in Central Australia. Thesis. Sydney: University of Sydney, 2001.
3. Farrell A, Rich A. Analgesic use in patients with renal failure. Eur J Palliat Care 2000; 7: 201-205.
4. Oreopoulos DG. Withdrawal from dialysis: when letting die is better than helping to live. Lancet 1995; 346: 3-4.
5. Andrews PA. Palliative care for patients with terminal renal failure. Lancet 1995; 346: 506-507.
6. Galla J. Clinical practice guidelines on shared decision-making in the appropriate initiation of and withdrawal from dialysis. J Am Soc Nephrol 2000; 11 1340-42.
7. Palliative Care Australia. Standards for palliative care provision. Canberra: Standards and Quality Committee and Council of Palliative Care Australia, 1999.
8. Hine J. Standards of palliative care in a renal care setting. EDTNA/ERCA J 1998; XXIV: 27-35.
9. Hoy WE. Renal disease as a metaphor: towards a more integrated view of Aboriginal health. Clin Exp Pharmacol Physiol 1998; 25: 1038-42.
10. Cass A, Cunningham J, Wang Z, Hoy WE. Regional variation in the incidence of end-stage renal disease in Indigenous Australians. Med J Aust 2001; 175: 24-27.
11. Health Strategies Deakin. Renal Disease in Central Australia-challenges and opportunities for better health. Alice Springs: Territory Health Services, 1997.
12. Condon J, Dempsey K. Mortality in the Northern Territory 1979-1997. Darwin: Epidemiology Branch, Territory Health Services, 2000.
13. Devitt J, McMasters A. Living on medicine: a cultural study of end stage renal disease among Aboriginal people. Alice Springs: Institute for Aboriginal Development Press, 1998.
14. Sehgal AR, et al. Advance directives and withdrawal of dialysis in the United States, Germany and Japan. J Am Med Assoc 1996; 276: 1652-56.
15. Leggat JEJ, Swartz RD, Port FK, Withdrawal from dialysis: a review with an emphasis on the black experience. Adv Ren Replace Ther 1997; 4: 22-29.
16. Bajwa K, Szabo E, Kjellstrand CM. A prospective study of risk factors and decision making in discontinuation of dialysis. Arch Intern Med 1996; 156: 2571-77.
17. Hoy WE, Mathews JD, Pugsley DJ. Treatment of Australian Aboriginals with end-stage renal disease in the top end of the Northern Territory: 1978-93. Nephrology 1995; 1: 307-13.
18. Pilbrow J. Alice Springs hospital renal services case management trial. Alice Springs: Alice Springs Hospital, 2000.
19. Australian Bureau of Statistics. Demography, Northern Territory. Canberra: Australian Bureau of Statistics, 1997.
20. Rich A, Ellershaw J, Ahmad R. Palliative care involvement in patients stopping haemodialysis. Palliat Med 2001; 15: 513-14.
21. Aboriginal Research Institute. Developing an Aboriginal palliative care strategy for south Australia. Adelaide: Aboriginal Research Institute, University of South Australia, 1998.
22. Collis-McAnespie C, Dawes A, Hemmings L, Dunn P. The terminally ill Koori: their care and their carers. Wagga Wagga: Australian Rural Health Research Institute, Charles Sturt University, 1997.
23. Williamson P. Let me die in my country: palliative care needs of Aboriginal people in the Kimberley and Pilbara regions of Western Australia. Perth: Health Department of Western Australia, 1996.
24. Marshall P. Cultural influences on perceived quality of life. Semin Oncol Nurs 1990; 6: 278-84.
25. Herdman M Fox-Rushby J, Badia X. A model of equivalence in the cultural adaptation of HRQo1 instruments: the universalist approach. Qual Life Res 1998; 7: 323-34.
26. Gonzalez-Calvo J, Gonzalez VM, Lorig K. cultural diversity issues in the development of valid and reliable measures of health status. Arthritis Care Res 1997; 10: 448-56.
27. McNamara B, Wadell C, Colvin M. The institutionalisation of the good death. Soc Sci Med 1994; 39: 1501-508.
28. Payne S, Langley-Evans A, Hiller R. Perceptions of a 'good' death: a comparative study of the views of hospice staff and patients. Palliat Med 1996; 10: 307-12.
29. Cohen LM, Fischel S, Germain M, Woods A, Braden GL, McCue J. Dialysis discontinuation: a good death? Arch Intern Med 1995; 155: 42-47.
30. Swartz RD, and Perry E. advance directives are associated with 'good deaths' in chronic dialysis patients. J Am Soc Nephrol 1993; 3: 1623-30.
31. Mobbs R. In sickness and health: the sociocultural context of Aboriginal well-being, illness and healing. In Reid J, Trompf P eds. The health of Aboriginal Australia. Sydney: Harcourt Brace Jovanovich, 1991: 292-325.
32. National Aboriginal Health Strategy Working Party. A national Aboriginal health strategy. Canberra: Australian Government Printing Service, 1989.
33. Prior D. Culturally appropriate palliative care for Indigenous Australian people. In Aranda S, O'Connor M eds. Palliative care nursing: a guide to practice. Melbourne: Ausmed Publications, 1999: 103-16.
34. Fried O. Providing palliative care for Aboriginal patients. Australian Fam Physician 2000; 29: 1035-38.