What should we tell people about dementia?

Advances in Psychiatric Treatment

Volumn 9, Issue 5, 2003, Pages 335-341

  Pinner, Gill ^a   Bouman, Walter Pierre ^a  

^a NOTTINGHAM UNIVERSITY HOSPITALS NHS TRUST   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

ATTITUDE; CAREGIVER; DECISION MAKING; DEMENTIA; DISEASE SEVERITY; GROUP PSYCHOLOGY; HUMAN; MEDICAL ETHICS; PATIENT ATTITUDE; PATIENT CARE; PHYSICIAN ATTITUDE; PRACTICE GUIDELINE; RETROSPECTIVE STUDY; REVIEW;

EID: 0141453335     PISSN: 13555146     EISSN: None     Source Type: Journal    
DOI: 10.1192/apt.9.5.335     Document Type: Review

References (34)

1. Bachman, D. L., Wagner, M. T., DePalmer, M., et al (2000) Caregiver attitudes about patients told they have Alzheimer's disease after truth disclosure. Journal of Clinical Geropsychology, 6, 309-313.
2. Bahro, M., Silber, E. & Sunderland, T. (1995) How do patients with Alzheimer's disease cope with their diagnosis? A clinical experience report. Journal of the American Geriatrics Society, 43, 41-46.
3. Barnes, R. C. (1997) Telling the diagnosis to patients with Alzheimer's disease: relatives should act as proxy for patient. BMJ, 314, 375-376.
4. Beauchamp, T. & Childress, J. (1994) Principles of Biomedical Ethics (3rd edn). Oxford: Oxford University Press.
5. Brodaty, H., Griffin, D. & Hadzi-Pavlovic, D. (1990) A survey of dementia carers: doctors' communications, problem behaviours and institutional care. Australian and New Zealand Journal of Psychiatry, 24, 362-370.
6. Clafferty, R. A., Brown, K. W. & McCabe, E. (1998) Under half of psychiatrists tell patients their diagnosis of Alzheimer's disease. BMJ, 317, 603.
7. Department of Health (1992) The Patient's Charter. London: Department of Health.
8. Drickamer, M. A. & Lachs, M. S. (1992) Should patients with Alzheimer's disease be told their diagnosis? New England Journal of Medicine, 326, 947-951.
9. Erde, E. L., Nadal, E. C. & Scholl, T. O. (1988) On truth telling and the diagnosis of Alzheimer's disease. Journal of Family Practice, 26, 401-406.
10. Fearnley, K., McLennan, J. & Weaks, D. (1997) The Right to Know? Sharing the Diagnosis of Dementia. Edinburgh: Alzheimer Scotland Action on Dementia.
11. Gilliard, J. & Gwilliam, C. (1996) Sharing the diagnosis: a survey of memory disorders clinics, their policies on informing people with dementia and their families, and the support they offer. International Journal of Geriatric Psychiatry, 11,1001-1003.
12. Glosser, G., Wexler, D. & Balmelli, M. (1985) Physicians' and families' perspectives on the medical management of dementia. Journal of the American Geriatrics Society, 33, 383-391.
13. Holland, J. C., Gearie, N., Marchini, A., et al (1987) An international survey of physician attitudes and practice in regard to revealing the diagnosis of cancer. Cancer Investigation, 5, 151-154.
14. Holroyd, S., Snustad, D. G. & Chalifoux, R. N. (1996) Attitudes of older adults' on being told the diagnosis of Alzheimer's disease. Journal of the American Geriatrics Society, 44, 400-403.
15. Holroyd, S., Turnbull, Q. & Wolf, A. M. (2002) What are patients and their families told about the diagnosis of dementia? Results of a family survey. International Journal of Geriatric Psychiatry, 17, 218-221.
16. Husband, H. J. (1999) The psychological consequences of learning a diagnosis of dementia: three case examples. Aging and Mental Health, 3, 179-183.
17. Husband, H. J. (2000) Diagnostic disclosure in dementia: an opportunity for intervention? International Journal of Geriatric Psychiatry, 15, 544-547.
18. Johnson, H. & Bouman, W. P. (1997) Driving and dementia. Geriatric Medicine, 6, 59-60.
19. Johnson, H. Bouman, W. P. & Pinner, G. (2000) On telling the truth in Alzheimer's disease: a pilot study of current practice and attitudes. International Psychogeriatrics, 12, 221-229.
20. Kitwood, T. (1990) The dialectics of dementia: with particular reference to Alzheimer's disease. Aging and Society, 10, 177-196.
21. Kukull, W. A., Larson, E. B., Reifler, B. V., et al (1990) The validity of 3 clinical diagnostic criteria for Alzheimer's disease. Neurology, 40, 1364-1369.
22. Maguire, C. P., Kirby, M., Coen, R., et al (1996) Family members attitudes towards telling the patient with Alzheimer's disease their diagnosis. BMJ, 313, 529-530.
23. Meyers, B. S. (1997) Telling patients they have Alzheimer's disease. BMJ, 314, 321.
24. Orrel, M. & Sahakian, B. (1995) Education and dementia. BMJ, 310, 951-952.
25. Pinner, G. (2000) Truth-telling and the diagnosis of dementia. British Journal of Psychiatry, 176, 514-515.
26. Pinner, G. & Bouman, W. P. (2002) To tell or not to tell: on disclosing the diagnosis of dementia. International Psychogeriatrics, 14, 127-137.
27. Pinner, G. & Bouman, W. P. (2003) Attitudes of patients with mild dementia and their carers towards disclosure of the diagnosis. International Psychogeriatrics, 15, in press.
28. Pinner, G., Gordon, C. & Bouman, W. P. (2001) Attitudes of an elderly peer group towards disclosure of a diagnosis of dementia. Proceedings of the Faculty for the Psychiatry of Old Age, Royal College of Psychiatrists Annual Residential Meeting, Dublin 2001.
29. Post, S. G. & Whitehouse, P. J. (1995) Fairhill guidelines on ethics of the care of people with Alzheimer's disease: a clinical summary. Journal of the American Geriatrics Society, 43, 1423-1429.
30. Rao, R. (1997) The role of carers in the information process in dementia. Psychiatric Bulletin, 21, 264-266.
31. Rice, K. & Warner, N. (1994) Breaking the bad news: what do psychiatrists tell patients with dementia about their illness? International Journal of Geriatric Psychiatry, 9, 467-471.
32. Rice, K., Warner, N., Tye, T., et al (1997) Geriatricians' and psychiatrists' practice differs. BMJ, 314, 376.
33. Rohde, K., Peskind, E. R. & Raskind, M. A. (1995) Suicide in two patients with Alzheimer's disease. Journal of the American Geriatrics Society, 43, 187-189.
34. Vassilas, C. A. & Donaldson, J. (1998) Telling the truth: what do general practitioners say to patients with dementia or terminal cancer? British Journal of General Practice, 48, 1081-1082.