Engaging the experts: Popular science education and breast cancer activism

Critical Public Health

Volumn 13, Issue 3, 2003, Pages 191-206

  Braun, Lundy ^a  

^a BROWN UNIVERSITY   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; AWARENESS; BIOLOGY; BREAST CANCER; CANCER RESEARCH; CLINICAL PRACTICE; EDUCATION PROGRAM; EPIDEMIOLOGY; HEALTH CARE POLICY; HEALTH EDUCATION; HEALTH PROGRAM; HUMAN; POLITICS; SCIENTIFIC LITERATURE;

EID: 0141428985     PISSN: 09581596     EISSN: None     Source Type: Journal    
DOI: 10.1080/0958159032000114426     Document Type: Article

References (46)

1. Advocates in action (2000), Project LEAD Update, June, p. 10.
2. Agnew, B. (1999) NIH invites activists into the inner sanctum, Science, 283, pp. 1999-2001.
3. Anglin, M. K. (1997) Working from the inside out: implications of breast cancer activism for biomedical policies and practices. Social Science and Medicine, 44, pp. 1403-1415.
4. Barr, J. & Birke, L. (1994) Women, science, and adult education: towards a feminist curriculum? Women's Studies International Forum, 17, pp. 473-478.
5. Barr, J. & Birke, L. (1998) Common Science? Women, Science, and Knowledge (Bloomington, Indiana University Press).
6. Braun, L. & Trimbur, J. (2001) Popularizing science: at the boundary of expert and lay biomedical knowledge. In: Trimbur, J. (ed.) Popular Literacy: Studies in Cultural Practices and Poetics (Pittsburgh, University of Pittsburgh Press).
7. Brenner, B. A. (2000) Sister support: women create a breast cancer movement. In: Kasper, A. S. & Ferguson, S. J. (eds) Breast Cancer: Society Shapes an Epidemic (New York, St Martin's Press).
8. Brown, P. (2001) Presentation at American Sociological Association, August.
9. Day, C. (1998) A medical education for ordinary people. New York Times, 24 November, p. D8.
10. Desmond, A. (2001) Redefining the X axis: 'professionals', 'amateurs' and the making of mid-Victorian biology-a progress report. Journal of the History of Biology, 34, pp. 3-50.
11. Dickersin, K. (1996) Reinventing research. In: Moss, K. (ed.) Looking Forward: Defining a Health Agenda for Women in the 21st Century (Durham, NC, Duke University Press).
12. Dickersin, K., Braun, L., Mead, M., Millikan, R., Wu, A. M., Pietenpol, J., Troyan, S., Anderson, B. & Visco, F. (2001) Development, implementation and evaluation of a science training course for breast cancer activists: Project LEAD (Leadership, Education and Advocacy Development). Health Expectations, 4(4), pp. 213-220.
13. Epstein, S. (1996) Impure Science. AIDS, Activism, and the Politics of Knowledge (Berkeley, CA, University of California Press).
14. Erickson, J. (1995) Breast cancer activists seek voice in research decisions. Science, 269, pp. 1508-1509.
15. Ferguson, S. J. & Kasper, A. S. (2000) Living with breast cancer. In: Kasper, A. S. & Ferguson, S. J. (eds) Breast Cancer: Society Shapes an Epidemic (New York, St Martin's Press).
16. Fox, M. F. (1995) Women in scientific careers. In: Jasonoff, S., Markle, G. E., Petersen, J. C. & Pinch, T. (eds) Handbook of Science and Technology Studies (Thousand Oaks, Sage Publications), pp. 205-223.
17. Gibbons, M. (1999) Science's new social contract with society. Nature, 402, pp. C81-C84.
18. Greenberg, D. (2002) Science, Money, and Politics: Political Triumph and Ethnical Erosion (Chicago, University of Chicago Press).
19. Harding, S. (1991) Whose Science? Whose Knowledge? (Bloomington, Indiana University Press).
20. Irwin, A. & Wynne, B. (1996) Introduction. In: Irwin, A. & Wynne, B. (eds)
21. Misunderstanding Science? The Public Reconstruction of Science and Technology (Cambridge, MA, Cambridge University Press).
22. Johnson, R. (1979) 'Really useful knowledge': radical education and working class culture: 1790-1848. In: Clarke, J., Critcher, C. & Johnson, R. (eds) Working Class Culture: History and Theory (New York, St Martin's Press), pp. 75-102.
23. Journal of the National Cancer Institute (1998) Americans are interested in science: lack understanding of the basics. Journal of the National Cancer Institute, 90, pp. 1127-1128.
24. Kasper, A. S.& Ferguson, S. J. (eds) (2000) Breast Cancer: Society Shapes an Epidemic (New York, St Martin's Press).
25. Klawiter, M. (2000) Racing for the cure, walking women and toxic touring: mapping cultures of action within the Bay Area terrain of breast cancer. In: Potts, L. K. (ed.) Ideologies of Breast Cancer: Feminist Perspectives (New York, St Martin's Press).
26. Krieger, N. (1994) Epidemiology and the web of causation: has anyone seen the spider? Social Science and Medicine, 39, pp. 887-903.
27. Kohlstedt, S. G. (1978) In from the periphery: American women in science, 1830-1880. Signs: Journal of Women in Culture and Society, 4, pp. 81-96.
28. Krimsky, S. & Rothenberg, L. S. (2001) Conflict of interest policies in science and medicine journals: editorial practices and author disclosures. Science and Engineering Ethics, 7(2), pp. 205-218.
29. Lantz, P. M. & Booth, K. M. (1998). The social construction of the breast cancer epidemic. Social Science and Medicine, 46, pp. 907-918.
30. Lerner, B. L. (2001) The Breast Cancer Wars: Hope, Fear, and the Pursuit of a Cure in Twentieth-Century America (New York, Oxford University Press).
31. Logan, R. A. (1991) Popularization versus secularization: media coverage of health. In: Wilkins, L. & Patterson, P. (eds) Risky Business: Communicating Issues of Science, Risk, and Public Policy (Westport, CT, Greenwood).
32. Lupton, D. (1994) Medicine as Culture: Illness, Disease and the Body in Western Societies (London, Sage Publications).
33. Marshall, E. (1993) The politics of breast cancer. Science, 259, pp. 616-617.
34. Michael, M. (1992) Lay discourses of science: Science-in-general, science-in-particular, and self. Science, Technology, & Human Values, 17, pp. 313-333.
35. McGrath, P. (2002) Scientists, Business, and the State, 1890-1960 (Chapel Hill, University of California Press).
36. Roberts, C. (2001) Critical consumers: ideas for breast cancer advocacy. Queensland Women's Health Journal, 1(1), pp. 5-16.
37. Schiebinger, L. L. (1989) The Mind Has No Sex? Women in the Origins of Modern Science (Cambridge, MA, Harvard University Press).
38. Stabiner, K. (1997) To Dance With The Devil: The New War On Breast Cancer, Politics, Power, and People (New York, Delacorte Press).
39. State University of New York Upstate Medical University mini-medical school (2000) http://minimed (accessed 15 August).
40. Tesh, S. N. (1987) Hidden Arguments. Political Ideology and Disease Prevention Policy (New Brunswick, Rutgers University Press).
41. Weisman, C. S. (2000) Breast cancer policymaking. In: Kasper, A. S. & Ferguson, S. J. (eds) Breast Cancer: Society Shapes an Epidemic (New York, St Martin's Press).
42. Williams, R. (1989) Adult education and social change. In What I Came to Say (London, Hutchinson Radius).
43. Wynne, B. (1995) Public understanding of science. In: Jasonoff, S., Markle, G. E., Petersen, J. C. & Pinch, T. (eds) Handbook of Science and Technology Studies (Thousand Oaks, Sage Publications).
44. Wynne, B. (1996) Misunderstood misunderstandings: social identity and public uptake of science. In: Irwin, A. & Wynne, B. (eds) Misunderstanding Science? The Public Reconstruction of Science and Technology (Cambridge, Cambridge University Press).
45. Zinkernagel, R. M. (1997) Gene technology. Science, 278, p. 1207.
46. Zones, J. S. (2000) Profits from pain: the political economy of breast cancer. In: Kasper, A. S. & Ferguson, S. J. (eds) Breast Cancer: Society Shapes an Epidemic (New York, St Martin's Press).